Pain

Hi Cathie,

I'm so sorry you are feeling so bad.  I remember I had about the same symptoms--hurts all over, when I was on Tamox.  I stood it for 2.5 years and my onc and I agree to stop it.  I felt better, a LOT,better, in about 3-6 weeks.  I have osteo of hips and knees and back. 

Please, discuss your symptoms with your doc.  Quality of life is a most, most, most important aspect of treating cancer.  It is only recently that the oncology powers that be have Finally come out recognizing that these symptoms are related to treatment.

As far as meds go----- have you tried anti inflammatories?  Advil, ibprophen?  that sort of thing?  Please -- treatment of these quality of life issues are Worth taking a daily med.  If you had diabetes or high blood pressure, wouldn't you take the daily meds to prevent long term physical problems?   I do believe you would.  Well, long term problems with constant pain can first change our posture, then when that changes, it throws all sorts of body functions out of whack.  Especially the joints.

Think it over and discuss it with your doc.  Keep in mind all the hundreds, thousands of women who had your symptoms and complained to their doc only to be told it was NOT related to treatment, when we know it was, and were brushed off.  You have a chance to benefit from all their pain, you can get treatment for it.  Go for it!

Cathie, I'm pretty sure you have googled the drug, but I did find this and will share:

Lupron stops menstruation and reduces estrogen levels in your body. Reduced estrogen may cause side effects such as acne, decreased sex drive, headaches, hot flashes, mood swings, muscle pain, a reduction in breast size, and vaginal inflammation and dryness. Your menstrual periods and estrogen levels will return to normal when you stop taking Lupron.

• Side effects may include:
  Anxiety, appetite changes, breast tenderness or pain, depression, fluid retention, development of male characteristics, dizziness, general pain, inflammation of the vagina (vaginitis), insomnia or other sleep disorders, joint pain, memory problems, nausea and vomiting, nervousness, skin reactions, stomach or intestinal disorders, unusual burning or prickling sensation of the skin, weakness, weight gain or loss

• Additional side effects you may experience if you are taking Lupron for anemia include:
  Body odor, flu symptoms, nail problems, nasal irritation, pinkeye, taste disorders

Whew!  As with ANY drug, the possible side effects are too numerous to mention (but they always Do) Why, if you read the side effects of tylenol, you'd wonder why anyone would agree to take it for fever.  LOL

At any rate,  yes, your doc may want to do some testing, but isn't that a good thing?  Personally, I love to rule out bad things that I'm actually thinking about in the very back of my mind.  It just makes it easier to be sure I Don't have any of the  stuff I read about, and can go on my way.  You may feel the same way, or not.

Good luck with your discussion with your doc.  These things are hard to get thru, but duscusion is a good thing to do.

I do wish the best to you, I know how hard it is to go thru all this crap.