Sisterhood of the Secret Handshake
Comments
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Found this posted on another thread. ENJOY! it brought a smile to my face...
"Pink Glove Dance"
http://www.youtube.com/watch?v=OEdVfyt-mLw -
Catherine- OK then I am emboldened, and you totally get it about the self gratification and cramps- I mean, this is all related to hormones and stuff... and hey, its free.
OK so here's where you gonna wanna smack me... are you still smoking? Like I don't have to tell you about smoking tobacco and headaches... and if you gotta smoke something, try cannabis instead! ( I think that might even be legal in California, right?)I also assume you've tried yogic breathing (quickie type: pant like a dog, shallow breathes for a count of 10, then breath in deeply for a count of ten and exhale for a count of ten, repeat a couple times, it floods your blood with oxygen. There's some other exercises but I figure again, being in Cali you probably got yoga up your yin yang.
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PattyB part deux- hell's bells indeed... well yes you knwo that the mega hot flashes mean your recurrence rate is even lower- woohoo! And maybe it was exacerbating to be at the holidays, even with wonderful close family, and you do have those terribly intense feelings about last year's Thanksgiving... and yes there is stuff you can take... everyone loves Effexor, and for me Xanax is working great, along with deep breaths. I learned about deep breaths when I was prepping for menopause (right, like you know that's how i am, I was already researching it before SFBC). Which leads me to how I was talking to my best pal about hot flashes and also the stupid heat in my apartment, that makes me turn on the AC in winter... and my friend, who is NOT an SFBC patients snorted something about how that's been her usual practice for years. So, once again, it is possible that you'd be having HF anyway... and one more positive note... most people (statistically, and I could dig up the study... but not tonight) have the hot flashes for a couple months and then they uh... chill out. So maybe, hopefully, you are getting the absolute best out of this drug and in a month or so it will be an easy ride to boot.
Come to think of it, where's my hot flash... should be here about now... hmmm.
Off to check out the video
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Patty B part deux- that video is cool!
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PattyB - great video.. I want that Janitors number ..... ha hahahahhaha
..oh and of course the head lice again .... thanx Rach :P
Renee - little late for nitecaps isn't it over there... or are we talking about something entirely different.
I am a cat person - no not in the physical sense - I am a cat lover - and I don't mean that in the physical sense either - but as I only have recent photos of Dd (dear dog) I will post one of her. Mind you I don't think cats age in photos but I'm just being lazy. Can't bore you all at once you see.
Edited to add: got to love those moments Rach xx
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Renee!!! Thanks for the welcome back. Rachel wasn't kidding when she said there were some great people on this thread. How's your train ride been thus far?
Rachel--My smoking hasn't stopped (I know...I know...), but I would best describe it as sporadic, say one every couple of days...? I know, with it being so slight, I should just stop it for good...which I did during treatment, so I don't know why I went back, even sporadically. If I could substitute it for the weed, I would, but I've never been a weed person. I even tried some on my worst days of chemo, but got nothing from it. Well, not entirely true. I got some relief for about ten minutes. That's me on pot: ten minutes for the whole experience. I would laugh hysterically on the floor, then get incredibly hungry...voracious is more like it, and then I would pass out. And the whole experience took about ten minutes. Such a shame too since my neighbor offered to write me prescriptions for medical marijuana at the time...but hey, in California...who can't?
Helena--The prepositional pronoun misuse drives me NUTS! People think that they come across as more erudite or educated by ending sentences with "I" as in "This is important to Amy and I", or "She went with he and I". It's like nails on a chalkboard. And it's so easily remedied by saying the same sentence with just one of the pronouns to get the correct pronoun: "This is important to me" You wouldn't say "This is important to I". Okay, I'll get off the soapbox. Just wanted to let you know that I feel your pain on that count in particular. (And people who get paid lots of money to write for tv and film have the nerve to make this mistake all the time...slapping myself off the soapbox now).
pkb--what a fun little video!
Also, regarding my tamoxication--I had a month break after rads before I started, but I was in full chemopause at that time as well. I think my onc was hoping that I would have normalized somewhat from chemo, but I probably would have needed more time. I hadn't had a period from February until June or July, and then it was really light spotting for a day or two. Then I started tamox in July, so my hormones were still way out of whack. Even talking to my onc's receptionist and comparing my symptoms, she told me that she got simillar headaches right before her period came. The headaches themselves are weird(or not...I never really suffered from them before, so I'm not an expert). They start as a tightness on one side of the back of my neck, almost as if I've slept wrong on it for several nights. If I don't catch it then and medicate, then it moves up one side of my head under the base of my skull and continues like this vice grip over the top of my head and onto my temple on the same side. By this point, I am fcrikeyucked and every movement just hurts.
I'm curious about your theories, Rachel. Since I'm came off(about 10 days) my three week menstrual bonanza before I started the tamox again, I want to see how things progress this time. I can't really place where in my cycle I had been when I started the first time.
Funny you should mention the breathing thing. I actually learned that secret from, of all places, Michael Crichton's Andromeda Strain. There was something about the breathing that kept the screaming baby alive that had to do with the amount of oxygen it provided that prevented it from dying...? Man, it was a long time ago when I read it. I used to sit in bed and do rapid panting until I could feel my arms tingle.
Also, never underestimate the power your mind can have over your body. I saw in this documentary called What the Bleep Do We Really Know that the body doesn't differentiate electrical signals that come from the brain that are based on what we experience and what we remember or imagine. It has to do with neurophysics, and the signals to the receptors are the same as far as your body is concerned. The film explains better than this, but you get the gist.
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Helena--Just saw the photo of your dog...AWWWWWW...I just want to squeeze it!
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Squeeze away Eadsla, she follows me around all day, and I mean all day, every day. Lucky she is so cute.
The breathing thing is interesting - when we are in danger or under physical harm or stress our breathing becomes more shallow and quicker, it heightens our awareness and sensory functions. I know that when I have had real physical danger and emotional trauma my senses are so alive and I can recall every single second years later. We only use a small percentage of our potential.
Fingers crossed you get some relief from those bloody horrible headaches soon. ((hugs))
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IvoryMom. No kidding. We sure talk about it being the gift that keeps on giving. Must be a heavy dried out old fruitcake (passed around multiple times) if its an X-mas gift. DS from Minneapolis is coming home for X-mas, I'm excited. Love visiting the twin cities. Hate going through Chicago traffic to do it, but we love visiting there.
Catherine, sorry to hear about the headache. Fingers are crossed for you.
Helena, new respect for you. I'm all for saving animals, but its hard to love a possum. And it is a very cute dog in that photo
Rachel, trying the theory on Tamox. I'm all for the placebo effect. Heck I'd pay for a script for the placebo effect. I don't care whats fixing it, as long as it works. Periods haven't come back after chemo but my hormone levels all show me as premenopausal still, and whooey I can tell I'm cycling. So in what Universe is it fair to be dealing with hot flashes and having PMS at the same time.
Speaking of hot flashes, Patty B. I finally couldn't take it and my Onc put me on neurontin/gabepentin. It has really helped me, not sure what took me so long to scream for help. And love the pink glove dance.
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Eadsla - We seem to have alot in common. Crazy howling cats, 3 week long periods and that horrible headache with tamox. My headache also was a tightness in the neck and up the back of my head. It hurt sometimes with each step I took! I asked my onc about it and she gave me muscle relaxers but they didn't really help much with the headaches but did help with my tissue expander pain. Now that I am off the T since Sept. the headaches are gone xcept just a few times and that I chalked up to possble T still flushing out of my system and also my wild hormones trying to get back to normal. Whatever that was. I used to stand in the shower and let hot water pound on my head, neck & shoulders and also put the heating pad on my neck. My heart goes out to you - it is a bad pain to deal with. But if I hadn't have had the damn blood clot I would still be taking it. Hot flashes on T were also so much more intense than now. I started having them again but no where near the inferno I was dealing with on T. I used to slepp (and I use the term loosely) with a sports bra on and tissues stuffed in it between my foobs because otherwise the sweat trickling down my chest would make me mental. But like I said I would still be taking Tamox. it if I could. I believe in it! Hang in there
!Still waiting on test results from endometrail biospy from the 3 week peiord and also from end. & colonoscpy. Once I get the all clear I am going to go out and have TWO beers - woohoo big celebration! I'm such a cheap date.
Helena - Good for you saving the baby possum! We have many in my neighborhood and they are so ugly they are cute! Baby anythings are always adorable I don't care what they are. Your pup is also a cutie! A Benji dog! Here ia my dog Kookie wishing she could catch Godzilla as he waltzes through my backyard!
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Rach, I do so hope you're right about these hot flashes waning. The problem's also compounded by the fact that I was on HRT for about 20 years after having a hysterectomy. I was starting to taper off this last year upon my GP's suggestion, but had to quit 'cold turkey' after my diagnosis. THEN they really started getting bad, but that was nothing compared to post-Tamoxifen. So if they continue to be a royal PITA, I'm going back to my GP, who during her "You Really Should Get Off the Hormones and I'll Help You Get Through It" Speech, promised me we would find a way to get past all the nasty repercussions.
kmmd, I'm googling that recommendation now (thanks!).
eadsla, I'm the same way about grammar and spelling, or as my DH says, "anal." My particular pet peeve at the moment is the word "definitely." Apparently 99% of the world wide web users believe this is spelled "definately," and that drives me crazy. People, it's "definitely"!
**I do hope you get some relief from those headaches....MaxAlt works wonders on my migraines so if you aren't getting relief from OTC stuff, maybe you should talk to Dr. about something stronger. What you described almost sounds like tension or possibly migraine. (If physical activity makes it worse, it's likely a migraine).Helena, I took note of the janitor (in the YouTube video), too. Kind of reminded me of the guy on "Scrubs" but not as weird. And I love your Westie pic!! My Mom had a Westie for about 12 years or more, and says she was the best dog she ever had (and she's had a lot of dogs).
And meg, I'm happy to hear I'm not the only person who believes it's her official duty to personally eat all the leftover Thanksgiving pie, even if it means eating one or two pieces daily, until gone -- except in my case, it's pecan.
kookiesmom, and just where do you live that you happen to have Godzillas in your backyard? Geez, that thing would be having my puppy dog for lunch!
Now it's time to officially begin putting up Christmas tree #2. Have a good day, ladies!
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I'm probably one spelling it wrong, its one of those words that I always have to stop and think about and probably rely on spell checke
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WOW cannot keep up with everyone even on a weekend!!
Little Red this is for a bread, machine the one that follows is the way I make it without a machine
Honey-wheat oatmeal bread
1 1/4 c warm water 80 degree, 1/2 cup honey, 2 TBL veg oil 1 1/2 tsp salt, 1 cup quick oats, 1 1/2 c bread flour, 1 1/2 c whole wheat flour, 1 pkt or 2 1/2 tsp dry yeast add all to machine and use per instructions.
I add the water, honey, salt, oil and oats and heat to 100, put in bowl add the wheat flour and yeast mix well, add 1/2 the bread flour, mix, continue adding bread flour until dough is elastic you may have to use a littel more or les depends on many factors, if you do not have a heavy duty mixer mix bread flour in by hand, knead until all frustration is worked out or dough is elastic which ever comes first!! I agree nothing beats stress like kneading bread.
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quickies:
Is there some way to see the avatars bigger than a postage stamp?
QOTD the Possum savior
OK I suck dog poo on grammar BUT I too have my bête noirs... ending sentences with a preposition (when I know what a preposition is, usually by my Southern Girl joke... y'all remember that one? but when I am tired, even I succumb to this one) the overuse of the word "apparently", their, there and they're...
we all dug the janitor
helena's doggie is just too damn cute
catherine- the headache/normal period connection gives me hope that the tamoxitiming issue may have some benefit for you- like what if you happened to "freeze" your system right at the time you get period headaches? d'oh! Andromeda Strain, also one of my faves. The only people who didn't die in the town were a baby and an old man- I think he was a drunk or something. (Anyone who didn't read the book or see the movie, SPOILER ALERT). What they had in common was their rapid breathing, the baby was a screamer and wouldn't stop crying and the old man, I forget, something maybe about alcohol, but whatever it was the oxygen like you say that countered the biological strain. What I learned (no idea if its correct) was that when you flood your blood with oxygen it forces the body to relax, not to mention feeding the blood cells, which may be a little oygen starved from tobacco smoking. Anyway, the panting/fluttering floods your blood with oxygen. There was a warning not to do it too much, like a limits of ten rounds of the panting and deep breaths, and stop or else you could faint from lightheadedness. There's another yogic breathing thing where you close one nostril, breath in for a count of lets say 5, hold both nostrils closed and hold your breath for double the inhale count and then exhale for a count of 5 again through the other nostril. This one was specifically for headaches. Gosh I missed you, we just so travel on the same wavelength- like on the power of the mind.
The similarities between cathering, kmmd and kookies mom - and maybe Little Red symptoms too are phenomenal. Makes me believe if we can figure it out for one we can figure it out for all. Even if we have it all wrong, if we get something we can believe in, maybe we can fix it with our belief-placebo. Hey, whatever works.
I hope Kari is having the MOST fun ever- and pity her when she gets back and tries to catch up on all these posts
And y'all know what I hope Leggy is doing
... :::whistling, trying to look innocent:::kmmd- lol- a script for the placebo effect. amen sister.
meg, girl you are cracking me up a lot these days... did the black dog make a move to go back to the doghouse? It sounds like it. Today I had some dark thoughts- everything from worries on the lawsuit to missing my dog from when I was 10. I think its period stuff, so... hormone related. I have too much to do to organize the shipment for tomorrow and no nanny today so I took Xanax. Xanax is my black dog's kryptonite. I also used to tough out bad cramps. Fcrickeyuck that. This morning's breakfast was a handful of pills- breakfast of champions. Also, i think you might have nailed something there- it did seem like you were sailing above all the insanity you were experiencing until the boob lymphedema thing happened. Maybe that threw you? Every step of the way on this fcrickeyucked up trip you have been ahead of the game, informed, experienced, organized, prepared- in control. Then this fcrikeyucked up wild card shows up unscheduled and unknown and needing immediate and constant attention. Again, I can relate sorta, because that's like my lawsuit being thrown out. And again, exponentially worse for you because its your body. Hey, sucks for me that its my home, my neighbors, a mountain of money, the Justice System but still, I'd take it over a physical problem, I'd take it over boob lymphedema, and I think anyone would. Poring over documents for days and trying to learn enough law to not let it slip away again is one thing, taking time away from my kid and my family and my troops and firefighters with the odds against me that it will work to get me back into court again, sucketh much, but I could walk away any time. You can't walk away from your body. I did not do the research on boob lymphedema but I have complete faith that your self-care is going to succeed over this temporary physical unscheduled and bothersome issue. And whatever other whack-a-mole problem pops up. Hang in there, strap on your sense of humor and rock the house. meg's self-salute to the secret handshake... well have as much fun as you can with it!
so much for being quick...
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kookiesmom- that godzilla was the alien baby??? (see, there's the "o" !!!!) And you had the same 3-week period as catherine (eadsla). This is really, really weird. It's only Thanksgiving Sunday, let's hope for results this week, and of course, that they're all wonderful
PattyB part deux- that whole "I'll help you get through it" stuff from the docs makes me want to get out my 2x4. RADs pals remember my 2x4, i think that was where it first came up. I remember when the 3rd ONC I saw showed up pregnant and due within 2 months telling me how she was going to help me through chemo if I needed it. Fcrikeyucked up bitch. Having a hot flash problem that existed before SFBC and Tamox sure as scrikeyhit doesn't help. I don't know what that means in terms of you following the "norm" of the SEs waning after some months. Someone above mentioned what Rx helped them, and there's always Effexor- which seems to work for everyone without a hitch or SE. You are not a big complainer, so if this is gettin to you, like someone else said- why wait to start asking for help? HOW can people misspell definitely here where there's automatic spell check? And why can't I type lymphedema without it saying its misspelled?
OK back to filling out customs forms and prepping for the big shipment day tomorrow while the kid naps.
I just adore you guys.
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PatMom- did you see we're gonna meet up in Allentown on Dec 12 for lunch?
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I have been in chemopause since 4/2 and now Tamoxipause. NP says she doubts I will get my period back but considered premenopause because I was regular before chemo and period must be gone for 1 year to be considered in menopause. In the next 1 1/2 years or so they will check hormone levels and switch me to AI if in menopause. I started tamox on 7/15, don't really know what part of my cycle I was in, but only SE's are hot flashes and leg cramps (fixed with an unwrapped bar of soap under my fitted sheet near my feet/calves). NP says if I have any bleeding/spotting at all I am to call right away.
Rachel - you mentioned many pages back about a ride from your car dealership. I would be happy to pick you up on the way to our lunch destination. Don't know the area , but have GPS will travel. See you in a couple of weeks!
Have a great week all!
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Cool Video!!!! I really do pity Kari trying to catch up on this thread. I missed a few hours and was a page behind.
Yes, I have had incredible spurts on energy, just like nesting right before you get your period. Except no period ever comes. I still go through a somewhat normal cycle with no hormones(ooph done in Aug right after period stopped and that was usually my feel good well) So maybe Rachel's theory should be studied, not only for starting Tamox, but for the best time to do chemical or surgical menopause! I must admit, I still get hotflashes and lately they have been more prevalent at night(but not bad night sweats)
Today I went to mass, then to the laundry mat to wash all the comforters and blankets, and since my machine is not spinning the clothes, I did my regular laundry. Then I took the kiddies to Wendy's for lunch, yeah I know My Bad!!!!! It was a late lunch and so dinner will be light cereal, roast beef sandwich or PB&J and tangerine or banana for snack!
Helena and Rachel, I have been dusting the paneling because I am 18 months behind. I usually do it in the spring and then again before I move furniture for Christmas tree. I missed last year at Christmas time due to biopsy and then SFBC DX and rushing to get everything done before surgery, not knowing last year was the hardest part. This year I an just so happy ot have gotten thus far in my tx plan and I plan to (;so live it like you're never living twice); My new favorite song since I first heard it, Nickelback If Today was Your Last Day. It really hit home more so after BC DX!
Helena, how could you bore the others on this thread I think I already did! LOL
Have a Marvie Day and A Happy Monday!!! Rainy Days and Mondays always get me down!!!!!
Edit~~~~~ For typos!!! Sorry!!!!
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Hi girlies~!!!!!!!!!!
It took me 3 days to read all the posts I missed!! I did post on my clinical trial thread and the Motivation thread, but I could never even make headway on this one, but I DID IT!!! hahahaha
Mary, I saw you sent me a msg on FB about the Tiddy Bear, that was a different Kari apparently, but I loved you thinking it was me
and your kids are so cute and you cracked me up with the Liquid Gold cleaning!!PattyB, loved the video, and that janitor, I dance like that all the time all around. Everyone thinks I'm nuts!! Well I only do it when I'm comfortable with the person/people.
Helena, what a sweet doggy!! And didn't surprise me a bit about you taking care of the possum by calling the animal control peeps. You are such a sweetie!! Now I get what Meg's post meant on FB!!!!!!!!!!!! heeheee
Leggy, I am sooooooo looking forward to your next post!!
Rach, boy have I enjoyed your posts. I love the whole City scene you describe and I just can't imagine how you do it!! Still waiting for the tv show...
I can't begin to remember what I wanted to comment on now!! Cabo was nice and warm and my SIL is going through menopause and she and I kept having hot flashes together and then we'd get cold, it was funny. I forgot that the warm weather causes a lot more hot flashes.
Ok, now I'm pooped! Have a great night all and I'll check in tomorrow.
Edited to fix typos
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kari- ROFLMAO 3 days... Welcome Home girlie!
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Hi all--drive by! I am reading but not posting. ****vrooooom*******
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Welcome back Kari!!!!
Hello, it is just after 1am here in the Poconos. DH is out hunting(he stayed overnight at the hunting club he belongs to) Very rustic cabin, no electricity, no running water, just shelter from the weather. They have a gas stove and a woodbruner to keep warm. He should have taken the generator and TV with him LOL!!!!!
I can not sleep, insomnia(had it before Tamoxifen and SFBC). I got another burst of energy and scrubbed both bathrooms down, fun fun!!!! Then I took a nice hot relaxing bath, still could not sleep, so what do I do, go on the computer and come here to bore you all! Kiddies are sleeping, so I think I just want to enjoy some quiet time!!!!!!
No school on Monday, so that means no work!!!!! So I will actually be able to keep up with the thread, for one day anyway!!!!!
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it's way past my bedtime, but I had to catch up. Just want to add my grammar pet peeve...when someone writes "Your" instead of "You're" as in "Your the best!"
Spell check won't catch that one.
Can you believe it's almost December? Where did the year go? Oh, yeah... to SFBC!
hugs
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Meg, love your post, hope the BD stays away.
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OK, I am swearing off the former BOT thread, which I now think of as the Stepford Wives Thread. I'll turn off the lights when I leave. Someone please let me know if it comes back...
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Mary don't forget to wear and dress the kids in your most brightly colored outerwear for the next couple of weeks. Hunters up that way have been know to mistake people in tan coats for deer. I hated hunting season because the kids were stuck in the house (there was a hunting club less than 1/2 mile away, and missed shots can travel that far) and I always got the creeps from seeing men walk past the house toting guns. There was always that question hunter or psycho trying to fly under the radar?
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Juli50--Thank you for the grammar pet peeves!!! The one that has been bugging me--and when you listen for it, you'll see it's everywhere!!!--using "there is" (and its abbreviation 'there's') instead of "they are" when referring to plurals. Ex: "There's all these sweaters on sale..." "There's tons of them over there."
Argh!! Also of course--"I should have went" instead of "I should have gone."
If they had my 5th grade teacher, this wouldn't be happening!
Have a good day ladies!!
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My grammar pet peeve is when people miss you the word seen!!! " I seen that on TV"
Today I see, yesterday I saw, and many times I have seen. Picky, picky, I know you hear it more than you see it! Of course my grammar SUX esp when typing, so who am I to complain!!!!!!
It is raining here. Patmom, I have no trouble keeping the kids in the house. For some reason they only want to go outside when it snows! When I lived in Michigan we always had the Nov 15 off from school, because that was the first day of deer season. I could never understand why my uncle sent us out to play in our reindeer antlers!!! LOL Only teasing!!!
It is a rainy day and a Monday, that reminds me of a song Rainy days and Mondays always get me down. The Carpenters.
Have a Great day, because today does not really count as Monday, since there is no school!!!!!
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I too have not been back to the BOT thread, I even removed it my list of favorites!!!!
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Ah...Monday morning... Get this: I'm thinking of making a turkey today. Crazy, but since I was guest this year, I miss not having the bevy of leftovers that you usually have when you make the feast yourself...especially soup!
Kookiesmom--First off, what a great coat your dog has! Second, WTF with that Godzilla!!!! I was NOT expecting that! LOL Very impressive, but holy crap, it's HUGE! Third, it's really reassuring in a sick sort of way to hear that you have had the same experience with the same sort of headaches. I am becoming more and more convinced that they are hormone related. Just another illumiating aspect of just how comlicated our bodies really are and we're never aware of it until something goes wrong.
Patty and others--Yay for all of us for having grammar pet peeves. Here's to being anal...grammatically, that is...or otherwise, if you're into that! (wha? No judgement!) Of course, I'm a victim of typos. While maybe not the Queen of Typos...definitley in the royal family. For some reason, I can not type the word "because" correctly the first time out. Just now, I typed "becasue" and had to go back and fix it. It's...annoying...
Ivorymom--I'm sorry to hear about your lymphedema and all that it was doing to you mentally and physically. You were right about one thing: You need to give yourself a break; as many breaks as you need, really. And you know what? I adore animals. I love dogs. But if your black dog insists on showing his face around you...? I'm gonna kick it...in the nuts! HARD!
So, what is UP with the BOT thread? I'm glad I was invited here before I could get too caught up in it. But Stepford Wives...eek! I don't want any part of that.
Ah, Rachel--You get all the references, and you're this fountain of informational wealth...or as I like to call it: A tub full of good things!
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