2 trips to hospital and mass in front of spine?

Options

Hello Everyone,

Well, I might be back, don't know for sure.  I am a breast cancer survivor, 4 years and 11 months out (almost 5 years).  I was stage 2b, ER+PR+, with one positive node, lump, reincision, chemo, and radiation all on the lieft side. I have had the normal aches, pains, and post cancer fears but all has always been fine until now. Let's begin-

Last week, I had an adominal and back pain for a couple days that was unrelenting.  To the point were I called my internist from work and told her about the pain.  To her credit she insisted that I go to the ER immediatley.  My friend took me in her car and kept me company.  They gave me pain medication and performed a CT scan with contrast.  I was feeling NO pain and laughing with my friend in the ER when the doctor comes up to me and starts asking strange questions (i.e. what other medical issues have I been having?).  You know us cancer survivors, I said, "What is going on"?  He goes on to explain that the CT shows a small mass (like small makes it all better-I don't think so) in front of my spine on the left side in the L5 region and they can't tell what it is.  Well, we stopped all that laughing in the ER immediatley.  I was scared out of my mind.

The next day my internist orders a MRI where they find the "small mass" in the same spot.  Radioligists keep saying that don't exactly know what it is but "not really concerned". 

Keep in mind that my pain is still there during all of this.  The adominal/back pain keeps me up at night to point where I am now living off of Tyneol #3 with codiene and that only takes off the edge.  The day after the MRI, I am sent back to the hospital by my internist because of unrelenting pain.  She insists the mass is nothing and that I most have a gastro issue.  Well, the gastro doctors come to the hospital and insist that I am constipated.  They order an enema (not very fun by the way) and leave.  It goes to work and I feel slightly better because of all the pain meds at the hosptial but the pain returns the night I go home from the hospital. By the way, doc still thinks mass is nothing and is now dumbfounded.

Two days later, my onco who receives a report of the CT scan has me come to his office with CDs of CT and MRI.  Bless him because after looking at the CT he shows me where the mass is located on my body.  Guess what?!  It is exactly where the pain is located.  He also has me look at the MRI and shows me the "small mass".   He goes on to explain that the CT and MRI are not of good quality and wants me to repeat the CT with "his guys".  Bad news-He wants me to wait 4 weeks to repeat the CT scan.  I believe he wanted to see if it changes. I still don't get why???  I was too shocked to ask the right questions.  I am still in ongoing pain.  The pain is so bad that my good nipple (the right one) hurts, head poinds, and pain sometimes shoots down my left leg.  I did ask the onco point blank - - "Is it a tumor or cyst"?  He said that he could not tell.  Now, after reading the breastcancer.org threads, I am worried about bones METS.  My CT is sch for Dec 7th.  I think that I can wait it out with the help of pain drugs.  Good news-at least he is not dismissing it and he is a good doc.

I am truly scared this time. Has anyone had this experience?  Any thoughts you might want to share?

Comments

  • lovemyfamilysomuch
    lovemyfamilysomuch Member Posts: 1,585
    edited November 2009

    I have nothing to offer you but love and support as you wait this out.  I am so sorry you are in such pain. Please take care of yourself, and I will be sending prayers your way!  In sisterhood, xo

  • whitecotton
    whitecotton Member Posts: 106
    edited November 2009

    hi there

    I am not is the same boat as you but similar. I have had back pain for the last month and went to see the onc last week and she booked a bone scan Dec. 1st and I am waiting for the MRI appt. I am praying I do not have bone mets.

    Melissa

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    Mercedes (I want one of them cars), with your bc history I'm glad your onc is taking care of this.  It may be nothing, but it's better to have it checked.  I don't have any advice except to say hang in there.

    Positive thoughts and prayers going your way.  Let us know what you find out. We always worry about "our" girls here on the board.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    Melissa, just want you to know that you will also be in my thoughts and prayers.  Let's pray it's arthritis.  You don't know how many gals here are so happy to have arthritis..LOL  Hang in there.  Dec. 1 is just around the corner.  Enjoy Thanksgiving.

  • TriciaK
    TriciaK Member Posts: 362
    edited November 2009

    Hi,

     I think a few of us are in a similar situation right now.  I had a suspicious bone scan for backache followed by an inconclusive mri and am now awaiting a pet scan.   

    Although I have pain it does'nt sound as bad as your's but as we all know bone mets can present without pain too!   Just wanted to let you know you're not alone and I'll be keeping good thoughts for both of us.

    Tricia xx

  • whitecotton
    whitecotton Member Posts: 106
    edited November 2009

    Awe ladies thank you so much for your kind words. Iots of prayers all around!

    The waiting game is really the worst isan't it?

    Tick tock tick tock!!!!

  • TriciaK
    TriciaK Member Posts: 362
    edited November 2009

    can you try to get in any sooner for the tests?

    I know how you feel but got the all clear yesterday and feel for you having to wait so long:(

    Tricia 

  • whitecotton
    whitecotton Member Posts: 106
    edited November 2009

    Tricia

    I am so happy for you, doing back flips (ouch that hurts but don't care right now because I am so happy for you). I am Canadian and that is the nature of the beast having to wait so long for tests. I am really lucky I have an awesome doc and got it as early as I did. Currently I am living in the US and have to go back and forth for Health care until I have a green card. I am looking forward to having my first American Thanksgiving tomorrow. I am thankful I have a wonderful family that supports me!

    Take care Tricia! 

  • Beverly11
    Beverly11 Member Posts: 443
    edited November 2009

    Congrats Tricia!

    Mercedes - You are in my thoughts & prayers.  I would keep trying to get in sooner.  Maybe the squeaky wheel gets in sooner.  Call periodically to see if there are any cancellations.  With the pain you are in you should not be waiting.  Plus, the trauma of waiting.  I am in Manitoba.  Curious, what province you are in.

    Take Care,

    Bev

  • TriciaK
    TriciaK Member Posts: 362
    edited November 2009

    Thanks so much Bev and Mercedes:)

    I was convinced I definatly had mets this time lol...

    Quite often here in Ireland there may be a wait for tests/appts also but my onc surprised me this time by pushing things through faster. I think my her2 status concerned her enough that she also felt bone mets were likely.

    I really hope the pain eases a little for you but know that does'nt help the endless waiting...

    Try to have a wonderful Thanksgiving, right now you're still cancer free and hopefully it'll stay that way so we all have much to feel thankful for:)

    Tricia xx

  • whitecotton
    whitecotton Member Posts: 106
    edited November 2009

    Thanks so much Bev and Tricia. I live in PA now and have a house in Toronto too. So I drive 8 hours back and forth for tests. I just got an apt for an MRI too and it is on Dec 3. So I am happy I can get the bone scan and the MRI in one trip. Yes I am so happy to think I am cancer free right now. I am really worried about mets though my tumor was 7cm and very aggressive. But I try not to think about these things. Crossing my fingers, legs. arms, hairs, lol

    take care all

    Melissa

  • TriciaK
    TriciaK Member Posts: 362
    edited November 2009

    Melissa, great news to have the scans arranged together:)

    The tumour I had was'nt as large as your's but I 'm her2+ (highly) with lymph nodes pos also!

    I allowed this history to convince me the cancer was back recently, I still don't know what is causing my pain or the positive bone scan but as the mri and pet were clear my onc is happy I'm still NED.

    I hope the same for you, it's very easy to get carried away by our our bc history and any sign of pain or  discomfort.

    I'll be thinking of you and try to remain positive until they say otherwise! :)

    Tricia xx

Categories