Nurses with Breast Cancer

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  • cwrightrn
    cwrightrn Member Posts: 242
    edited July 2009

    Hello everyone...I'm new to the website and so glad I found this leg of the forum!!  I have been an RN for 18 years....med surg for a few years, oncology for 4 years then telemetry, dabbled in IV therapy and recovery room and have been in the Cardiac Intensive Care unit for the last 5 working full time nocs, 12 hour shifts. I had been doing charge nursing and working on the rapid response team and had 2 sentinel events in December (prior to diagnosis) caused by the same CRNA that I had to go to tons of meetings for....nothing like a little stress, right?  And YES, night shift was my risk factor for breast cancer- ugh!!  (I had an aunt who had bc but a different type and my BRCA was negative). My manager has been very supportive and I took short term disability at diagnosis...being superwoman I thought I could work but when everyone was crying, including some of the Dr's I knew I couldn't do it.  In fact, now that I'm done with mastectomy and facing more chemo with rads the Dr said I could go back BUT I work in a cesspool of germs and have opted to shift to long term disability (I don't need ssdi yet).  My hospital will hold a job in house til July of next year so I have time....and my manager has assured me a job on my floor (thankfully).  I haven't read all the pages of this forum but was wondering if any of you went back to full time nocs?  I'm hoping to go back after the first of the year.  My unit will allow me to work 4 hour shifts to start and work my way back....just not sure what to do.  I have inflammatory breast cancer and the risk of recurrence in the first few years is very high and working full time would help my family in case I need to go on SSDI.  I have a friend on my unit that battled bc and is 5 years out and she is glad she came back to our floor, despite the stress because of the great patient care.  She thought I would be frustrated if I went to a less stressful but higher acuity area say like tele.  So that's my scoop....thanks for listening and for your thoughts...

    Carole 

  • cwrightrn
    cwrightrn Member Posts: 242
    edited July 2009

    PS...my best friend from work was an oncology asst manager for years and had never heard of inflammatory breast cancer--who would think something could pop up overnight but it did (and was bad!). So we don't know everything....she has been a godsend to me though with all my appts and helping me with info, being another set of ears when I couldn't hear at the beginning of diagnosis). AND, one of my good friends that I graduated nursing school with was diagnosed a few months after me--YIKES!!

  • anne26
    anne26 Member Posts: 40
    edited July 2009

    I know what you are going through. For I work with only breast cancer patients. I am stuggling to return to work with is population. How are you coping. I found is difficult to llive this everyday and never get a break. any suggestions.  I am here if you need someone who understands  keep strong anne

  • peg119
    peg119 Member Posts: 281
    edited July 2009

    I am a Public Health Nurse and was diagnosed with DCIS in May 2009.  I have had two lumpectomies (lat one July 8) because my mammogram still showed calcifications.  I had never heard of DCIS before diagnosis.  The plan is for radiation once I have a clear mammogram.  It is confusing because my path. reports from the two lumpectomies were negative even though they had calcifications in them.  The surgeon is sure he got them all this time but that is what he thought the first time so it is wait and see.  I have to heal some before I have another mammogram.  I will also be starting on Tamoxofen although if this continues to be postponed I may be post menopausal and be able to go on something else.  I have been almost 5 months without a period.  I feel like am handling things okay but all support is appreciated.  I have also joined the Michigan Survivors group. 

  • lorijo1993
    lorijo1993 Member Posts: 40
    edited August 2009

    Hi, I have been posting primarily on the July Chemo group had looked on this thread but did not see any updated post, but I need to talk to nurses, you all know what I am going through, I am a CCU RN x12 years before that I was med/surg and at one time even gave chemo, I have been an RN for 24 years, I was dx with IDC with a 8mm tumor, in April;l, I had a lumpectomy and SNB, then all hell broke loose....one node positive, because the cancer looked aggressive my ONC insisted on bilat mastectomy, my PS refused to do tissue expanders unless he knew my breasts were cancer neg and no one could believe a 8mm tumor would shoot of to a node so I next i had a right radical node dissection and SNB on the Left side. then a week later bilat mastectomy with tissue expanders. I am now on chemo, taxotere and Cytoxan, round 2 of 4. I have been out of work for over 2 months when my manager said I would loose my position if I stayed out threw out the course and i was running out of FMLA days, so, I went back to work. I have worked 4-12 hour shifts so far and it hasn't been that bad, but I am now being pushed to work a schedule ( I had been calling and telling them when I feel like working) Chemo knocks me out for over a week. then I try to work at least 2 day the other weeks

  • mbarnes
    mbarnes Member Posts: 8
    edited August 2009

    Everyone with breast cancer should know the data on vitamin D and its role in this condition. Take a look at www.vitamind3world.com THe site has good summaries of the data and recently launched a micro pill formulation of vitamin D that is very good value

  • susanb2
    susanb2 Member Posts: 80
    edited August 2009

    Hi lorijo,

    It's too bad they want you to commit to a schedule when you are dealing with the chemo. If your place is like my place, they can use help most any day you are available. Can you have your chemo scheduled in advance then work your schedule around that? Maybe you could commit to a day or two, then work in other days when you feel better.

      Is there another area at your hospital that may be more understanding of how you feel with the chemo that would be more flexible?

    Good luck with the schedule.

  • 2Hands4me
    2Hands4me Member Posts: 484
    edited August 2009

    Hi lorijo - so sorry to hear you need to work so many 12 hour shifts. I could barely make it through 8 hrs when I went back 2 months after a right mastec. But my surgeon thought I should have been able to go back to work after 2 weeks! We're all different and you need to take care of yourself during this stressful time, physically and emotionally. Hopefully your manager will understand - or can you trade days with co-workers if they are more understanding? I would encourage you to be persistent to get a schedule you can work with. I'll be thinking of you!

  • lorijo1993
    lorijo1993 Member Posts: 40
    edited August 2009

    thank you foor your concern, the group I work with is wonderful and very helpful, but management  is only for the money, I only have 2 more treatments and the side effects haven't been that bad, I just have a extreem malaise for about a week after chemo. I love being a CCU nurse but it is a  hard job.

  • anne26
    anne26 Member Posts: 40
    edited August 2009

    Be kind to yourself, I am a breast cancer nurse and I returned to work with a limited schedule. You may find it is harder to work post treatment, take your time and make sure you have a lot of support. Nurses think they are superwomen, be kind to you, work will wait. I feel for you. think positive, anne26

  • billiegirl
    billiegirl Member Posts: 85
    edited August 2009

    I read a book a while back...Women of Silence:The Emotional Healing of Breast Cancer

    I did not necessairly agree with everything the author suggested but did find it very interesting and  many descriptions of the typical Breast Cancer woman sure hit the nail on the head as far as my life and personality were concerned. Just one of many non-medical concepts out there. Interesting correlations between the high rate of breast cancer in women who are the fixing, caring, nurturing type and those that tend to take on the emotional pain and stress of others: ie nurses etc. There have also been ongoing studies/correlation between those who work the grave yard shift and their melatonon levels. Most night jobs for women are in nursing.

  • LISAMG
    LISAMG Member Posts: 639
    edited August 2009

    Hello Friends,

    How wonderful to find a forum just for nurses! I am fairly new here to the site and perhaps, a bit of an outsider as well. A former long time critical care nurse, I currently work in a pre-surgical ambulatory unit. I am a seasoned R.N. with 25 yrs. in the profession and I do not have breast cancer...yet, anyways. Rather, I am a Previvor who has a predisposition to hereditary breast/ovarian cancers. Having multiple cases of pre/post menopausal BC/OVCA on both sides of my family, I tested Un-informative Negative for the BRCA genes about 3 years ago. Since then, 2 affected family members also tested negative. Clearly, the genetic cause and/or gene is out there somewhere...over the rainbow, but not identified, or so I am told. I have a personal history of multiple breast biopsies, all benign thus far. I am currently contemplating a BSO to reduce my risk for both cancers.

    If anyone here thinks they may also have a hereditary predisposition to breast and/or ovarian cancers, I encourage you to visit www.facingourrisk.org for support and/or to seek further information. We are an amazing community that has 24/7 access to hotlines, message boards, newsletters, & local outreach support groups all over the country. I am also the Outreach Coordinator for Long Island. If I can assist anyone at all for available resources in the LI/NYC areas, please do not hesitate to contact me. Any woman under the age of 50 with a BC diagnosis with a weak/strong family history may also have a hereditary pre-disposition, especially if you are triple negative and/or have an aggressive tumor. OVCA at any age may also be a red flag for genetic origin as well. So, I am glad to be here among peers who have walked the path and/or had difficult journeys. You are all heros and I deeply admire your determination, strength & courage.

    Thanks,

    Lisag@facingourrisk.org

  • cwrightrn
    cwrightrn Member Posts: 242
    edited August 2009

    Lorijo--I was shocked to read you would lose your job.  Don't you have medical/personal leaves of absences?  I can be off for up to a year without losing my job--but I work in a huge facility.  I too am a CCU RN.  I have a friend at work who took a year off for breast cancer treatment and has successfully returned to work but has reminded me NOT to work night shift and watch the stress level...especially in CCU.  My only risk factors for breast cancer were 18 years of night shift and working in a stressful environment! Hang in there!

  • DebZaz
    DebZaz Member Posts: 50
    edited August 2009

    I am not a nurse but my sister was and she passed away in 2/08 from mets to the bone.  Now I have mets to bone, liver and a mass in my chest.  I would just like to say that I think Lynn (my wonderful sister) felt that she had to be stronger because she was in the field.  I wish so badly that she had been more open about what she needed.  I always felt somewhat helpless because she just dealt with it.  I tried to see what she might need and I think sometimes I got it right but please remember that your family and friends do want to help and reach out to them.  I miss her every single day and wish I could have done more.

    Hugs and prayers to all.

    Debbie

  • susanb2
    susanb2 Member Posts: 80
    edited August 2009

    Debbie,

    Sorry to hear about your sister and about your mets also. As nurses we are so used to taking care of everybody else, it is hard to ask for help. Thanks for encouraging us to reach out. I'm sure your sister appreciated you looking to see what she needed. You probably got it right more often than you know.

    Good luck to you.

  • dreaming
    dreaming Member Posts: 473
    edited August 2009

    There is one for people that work on the medical field. Not many posting .

  • OG56
    OG56 Member Posts: 897
    edited August 2009

    I haven't posted on this thread for a while, but as a BC patient I found it extremely comforting that my Dr. is a cancer survivor and so is his nurse, she has has a bilateral mx. and so has my Radiologist!

    I felt their compassion and I felt like they would make better choices for me because we had this disease in common. Now if that is true or not I don't know but that is how I felt. I had to tell them to talk to me as if i wasn't a nurse because I was totally in the dark about BC. Just wanted to share that with those wondering about returning to oncology, I can't say what it will be like for you or if it will be like living CA, all the time, but I think it will be a comforting fact to your patients. Just my 2 cents.

  • 2Hands4me
    2Hands4me Member Posts: 484
    edited November 2009

    My left mastectomy is scheduled for 11/10 - only a week from tomorrow. So many last things to do this week! This is the path God has for me right now, and He provides the peace I need to keep moving forward without too much stress. I'm thankful for the friends and family support I have also! Hope everyone else is doing well.

  • OnePetie
    OnePetie Member Posts: 68
    edited November 2009

    Wonderful...a place just for us! I'm retired now, but back when the world was young I was Chief Flight Nurse for a Helicopter Trauma Program in Texas and Nurse Manager of the Trauma Center.

    Like many, I started out with a dx of DCIS this past May but surgical pathology showed microinvasion so I'm now officially IDC (or, according to some, DCIS with microinvasion!). I had L mx with immediate MS2 free Tram Reconstruction. I'm now scheduled Nov. 25th for my 2nd phase surgery. Happy Thanksgiving....and I do mean that seriously! I just hope I can get checked out Thanksgiving morning and back home for the football game....and being fairly concious would be a plus!

    Does anyone here have any experience with Phase 2? I'm having lipo on my hips, dog ear revision, lipo on the new breast for shaping and an implant on the right for symmetry. Any info would be greatly appreciated!

  • 2Hands4me
    2Hands4me Member Posts: 484
    edited November 2009

    Che 53 - I can't speak for the reconstruction and this forum hasn't been especially active. If we keep posting, it stays on the active list where more will find it but.... You might want to go to the "Reconstruction" forum and ask there. I know there's one for November Surgeries there also. Hope you get some answers!

  • OnePetie
    OnePetie Member Posts: 68
    edited November 2009

    Thanks, 2Hands4me....I've posted there and am awaiting the words of wisdom:-)

  • iodine
    iodine Member Posts: 4,289
    edited November 2009

    Hi, new here, but not the boards.  Retired, graduated 1964, del. rm., med. surg., trauma/ER, USAF flight nurse,pt. ed, discharge planner(one of first nurses in US), independent case manager/rehab nurse/consultant.

    About lipo: hurts like hell.  Just saying, you may be too loopy from meds to watch the game. Be sure to WALK--watch for clots.  I had my abdomen done before BC , and after mast and 2 times reconstructed, the second PS did lipo on my back fat, and sides, plus provided inframammary fold under the mast side and balanced it on the good side.  That wasn't too bad, but the abdomen was tough.

  • mimi1964
    mimi1964 Member Posts: 2,163
    edited November 2009

    Hi All I'm new here but not to the boards.  I have been on the board since early October.& I was dx on Oct. 22, 2009 and had surgery on 10/29/09.  I had a right breast lumpectomy and sentinel node biopsy.& I have been off work for almost 2 weeks recovering.  I have been an LPN for 27 yrs.& I am the Director of Nursing at an Assisted Living Community.  I spent 24 yrs in a Nursing Home environment and was a MDS Coordinator and Care Plan Coordinator.  I have never worked in a hospital setting.  I have been having to learn alot about breast cancer because there were many things I  didn't know.  I'm glad I found you all.

  • Lucitarn
    Lucitarn Member Posts: 3
    edited November 2009

    New to this forum, but not new to the big C,I am an Hodgkin stage IV survivor (1993)no radiation just 9 courses of CHOPP.(can;t remember to good  long ago). Been  an RN for 16 years prior to that an LPN 8 years. Working at a Nursing Home (love my geriatric population).Have wonderful co-worker's that are always calling and checking up on me ,wonderful husband who continue to say that I am beautiful.Have 2 mammo's done,MRI and results Negative ,thanks to my BS he decided to do a exploratory of my right breast,results Extensive DCIS ,  I decided for a mastectomy. Its been one month been doing "alright" but having doubts about Femara after reading so many SE's on it.

  • mimi1964
    mimi1964 Member Posts: 2,163
    edited November 2009

    Lucitarn:

    Perks to your breast surgeon for staying on top of your situation.  I am sad that you had to join us her on the boards though.  I to am a Hodgkins survivor since 1981! I'm with you on the side effects of all these oral drugs they want you to take like Tamoxifen, Arimidex or Femara.  But I'm not sure that the benefits don't out weigh the side effects in this situation.  It's certainly a personal decision.  I have to see my oncologist tomorrow for the first time and we will see what his recommendations for treatment are.  If you ever want to chat just PM me.  I love meeting new people and talking about my geriatric resident's.  I worked in a nursing home for 23 yrs before moving on to assisted living which is where I am now.  

    Renee

  • Apolli1
    Apolli1 Member Posts: 18
    edited November 2009

    I am a nurse and so happy to have found others! I do believe that my 12 years of FT night shifts were the one and only factor in my 4 cm tumor. No BRCA gene, no fam history, never smoked or drank, several children starting at age 20. So to all working night shifts, please please be sure to take your Women's Daily vitamins with extra vitamin D.

     If there is anyone here who is well versed in LTD, I am mid reconstruction and ltd is discontinuing my benefits as they say my choice for a second mastectomy after symmetry could not be achieved, was unwarranted. 

  • mimi1964
    mimi1964 Member Posts: 2,163
    edited November 2009

    Hi Apolli1 welcome to the board.  I'm sorry you are going through everything that you are going through right now.  I don't know anything about LTD I hope you find someone that can help you.  I have only worked 3 rd shift for about 6 months total in my entire nursing career.  But I have read some research being done that directly points to that possibly being a contributing factor with nurses getting BC and they are researching it right now.  Good Luck with your cont reconstruction.  Take Care and Happy Thanksgiving.

    Renee

  • cheers247
    cheers247 Member Posts: 270
    edited November 2009

    I'm so happy to have found this thread!!  I am a perinatal RN.  I have been on (unpaid) medical leave from work since April when I was diagnosed.  I started rads this week and will finish mid Jan.  I hope everyone has a Happy Thanksgiving!! XOXO Jessica

    I'm wondering how many of us worked night shift?? I did

  • peg119
    peg119 Member Posts: 281
    edited November 2009

    I worked day/night rotation for about 4 years and then went to public health where I get to work days only.  The pay isn't as good but the stress on the body sure is a lot less.  I feel very fortunate in this breast cancer battle in that I only had to have two lumpectomies for DCIS, radiation and Tamox for 5 years.  Are any of you on Effexor?  My onc gave me a script about a month ago that I just got filled.  Haven't started taking it yet.  It is supposed to have pretty good success reducing the hot flashes from tamox.  They wake me up at night so I rarely get a good nights sleep but I sure hate to start another drug.  Hope everyone has a great Thanskgiving.  I know I am thankful this year.

  • Jo_Ann_K
    Jo_Ann_K Member Posts: 277
    edited November 2009

    Peg,

    I was taking Effexor for anxiety a few years before the Tamoxifen, but I have had minimal issues with hot flashes, which I attribute to the Effexor.  In fact, mild hot flashes have been the only side effect to Tamoxifen that I've been on for almost a year.  Good luck with your treatment and happy thanksgiving!

    Regards,

    Jo Ann

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