Starting Radiation soon and scared!!

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Hi Everyone,

I am due to start my radiation treatment next week and am freaking out a little. My doc was going over some of the side effects, etc and I gotta tell I almost fainted. I am due to have it four times a week for five weeks. Does that sound "normal"? I know there really is not normal with this, but still...Is there anything I should do or know before I start this? Like what to take...OMG. I wish I had a better support system here!

Thanks for any and all help!

Comments

  • ADK
    ADK Member Posts: 2,259
    edited August 2008

    Hi,

    Please don't be scared.  I did 33 radiation treatments 2 years ago.  I did it 5 days a week for 6 weeks, so you are right in line with the norm.  This board will give you great information.  My experience was very doable.  Since I work in a job that doesn't require interaction with others, I arranged to get a laptop from my company and worked from home for the time.  My hospital where I did the treatments was about a half hour from my home and my job is an hour the other way.  It would have been very hard on me to go to the office every day as well.  I did go in on a couple of days, but I had to rearrange my treatments to earlier in order to do it.

    As far as what I experienced from side effects, I got very red.  Some women don't fare as well as I did.  I am very fair skinned and the doctor was concerned, but I went through it without a great problem.  I even went to a wedding two weeks after finishing treatments and wore a spagetti strap dress and no one could tell.

     I used aloe vera on my skin every day after treatments.  I used Tom's of Maine deodorant because it has no aluminum chloride in it.  I  showered with a soap that was mostly olive oil.  They will tell you what you can use and ask questions if you want to know something - that is what they are there for.

    I wish you the best - you can do it.

  • mrsdoty
    mrsdoty Member Posts: 14
    edited August 2008

    Hey...I'm starting rads next week and I am due to have 33 treatments 5 days a week for 6 weeks  I think that is pretty much the norm

  • Shirlann
    Shirlann Member Posts: 3,302
    edited August 2008

    Hi sister!  I am almost 10 years post treatment and I had rads, 5 days a week for 7 weeks.  I do have a semi-sore rib, but I am still here!

    I was lucky, I did not burn, I was 63, but did not miss a day at work.  I just left around 4, got zapped, only takes 5 minutes, takes longer to get your clothes off, then went home and did nothing, the one time I tried to go out for dinner, I was very tired the next day.

    Other women have burns, some bad, some just bright pink.  Nothing is free.  But when you are dealing with a life-threatening disease, somehow side effects take a back seat.

    Gentle hugs, Shirlann

  • NancyD
    NancyD Member Posts: 3,562
    edited August 2008

    From one sexy Irish one to another: come on over to the SEPTEMEBER 2008 Rads thread and we'll help you through it.

    Yes, the possible side effects can be scary, but they're just that...POSSIBLE...not probable. With the more focused radiation delivery they use today, the side effects are very reduced. There isn't the ovespray that used to cause so much collateral damage as a generation ago.

    Your biggest worry should be which ointment/cream to use!

  • BridgetO
    BridgetO Member Posts: 19
    edited August 2008

    I finished 33 rads 3 weeks ago. Nancy is right that side effects are possible, not probable. They have to tell you about everything that could possibly happen. My treatment was not free from side effects--I had some burns and had to take a break for them to heal. That part was distressing, but I got through it and everything healed up really fast. I didn't have much fatigue. I felt pretty energetic and kept up my normal activities- maybe a tad bit slower than usual. I did feel tired AFTER it was all done, which I think is within the normal range of things. Still, I was able to keep up with stuff, but did sleep and rest a little extra, maybe an hour a day.

    .If you have any side effects, or are worried about something,  talk to your radiation oncologist or nurse right away. I had vomiting and fever and thought it was a side effect, but my onc said it was either a virus or food poisoning, which was reassuringTake care of yourself. You'll get through it just fine

  • sxyirishone
    sxyirishone Member Posts: 6
    edited August 2008

    Thanks so much for all your input! I can't imagine doing this without this wonderful community to vent to! I start my rads next week. Everyone keep your fingers crossed for me!

    Hugs to everyone!Wink

  • irishdreama
    irishdreama Member Posts: 938
    edited August 2008

    Hi sexyirish-I had radiation 5 days a week for just over 6 weeks. The only side effect I got was a burn similar to a sunburn at the radiation sites. And I used Aquaphor when I got the burn, before that I used Aloe vera gel. And I used non-scented Dove body wash and unscented shampoo. I had no fatigue, nothing. Compared to chemo, it's a walk in the park.

  • cm1122
    cm1122 Member Posts: 12
    edited September 2008
    Hi, by now you've probably started your treatment, and before you know it, you'll be through the first week! I finished 33 treatments in May, had to postpone the last few for a couple of days because my skin burned, but it wasn't unbearable. The worse part was driving to and from the appointments every day!Tongue out My group was really good about getting me in on time, so the appointment took literally 10 - 15 minutes from walking in, changing into a gown, laying down and getting "set up", the treatment, getting dressed and walking out! I used Aloe Vera every day. As far as fatigue, when I went home, if I laid on the couch I would fall asleep, but if I did something else like go shopping or out to lunch, I was fine. I hope yours goes as well or better!! Take good care of yourself, you can do this!!
  • easyquilts
    easyquilts Member Posts: 876
    edited September 2008

    Hi...Don't be scared!  Most people do not have all the nasty side effects your doctor went over with you.  I had 28 treatments...and as someone else said....the worst part was just going every day!  My team was great, and got me in and out in ten to fifteen  minutes..from start to finish.

    I had no real burning....Just turned pink (and tan), had some itchiness...went without a bra whenever possible....and as for fatigue,  I did go to bed earlier than usual, and would fall asleep easily in my chair, but if I were busy it would be OK.....I am now almost two weeks out, and doing fine.  The discoloration is still there, but that is OK....

    Come here as often as  you like during your treatments and talk to us...We have all experienced the same fears and worries about our treatments....And we all survived them!  The weeks will fly by, and it will be all over before you know it!

    God Bless,

    Sandy 

  • koshka1
    koshka1 Member Posts: 678
    edited September 2008

    hey there...

    please dont be scared of the radiation treatment,,,,this is the easy stuff compared to all the biopsies and surgery.....

    think of going for radiation treatment as going in for an xray,,,the treatment is really fast and it takes you more time to get changed and in your sexy little blue robe (lol) than it does to have the treatment....

    the techs are really nice and will help you and make you feel totally comfortable......

    as for side effects,,,i did 16 rads and 4 boosts ( i am in canada,,,did shorter treatment higher dose)...i had some fatigue, slight tan,,,and about 2 weeks after my rads ended i had a rash on my breast which was cured with some cream the oncologist gave me....that is it!!!

    so hugs...hang in there.....

    kosh 

  • dalycity
    dalycity Member Posts: 248
    edited September 2008

    Oh, yes, I did 20 radiation treatments (including 2 boosts, I think).  Like Shirlann, I went to radiation, then to work.  I am a runner, and continued to run while doing radiation and working.  I did get sore ribs about 7 mos. out, but the soreness eventually went away.  Then I got radiation fibrosis on my shoulder, the side that got radiation; went to physical therapy for a couple of weeks.  Now I am OK, almost like nothing ever happened.

    One positive thing about doing radiation -- I came to really like the radiation staff.  They were so positive and always encouraged me.  I still think of them and told them that after treatment, I would miss them.  I said I would prefer to meet them again, but outside the hospital--like at Costco or somewhere and I would buy them a hot dog lunch and chat.

    Best wishes to you. 

  • Makratz
    Makratz Member Posts: 12,678
    edited March 2009

      Click here for a larger view.  Hi Guys,

    I thought I would post some pictures of my rug rats.  My youngest won 1st place in the pinewood derby this past weekend.  4 years in a row!!  He's lucky.  Below are my kids and DH.  I made them hike in the wood with me on my birthday.  They weren't happy when we started but defintely had fun.  Last pic is my boys at the State Police Barricks in Framingham MA.  They are by an old police car.   Not as cute as the puppy or granddaughter, but I wanted to share!  Linda

      Click here for a larger view.

      Click here for a larger view.

  • Makratz
    Makratz Member Posts: 12,678
    edited November 2009
  • Sparrow
    Sparrow Member Posts: 262
    edited November 2009

    Sxyirishone, I'm so sorry you are anxious!  I am absolutely THE poster child for rads anxiety.  I have had 5 treatments so far and if I can get through this anyone can!  :)

    I too felt faint when my doctor told me about the side effects.  

    Some things that have helped me a lot have been a sleep mask & some ear plugs from the drugstore and Xanax and a low dose of Klonopin.  I really can't say enough about the sleep mask and earplugs even if you don't need the anti-anxiety meds.  One of my rad techs (love her!) lets me wait in the outer waiting room or even outside the building before treatment.  She comes and gets me and leads me into the treatment room with my sleep mask on & ear plugs in.  The sight & sounds of the machine freak me out.  If I can't see it or hear it I can *almost* pretend it's not there and just daydream for 10 minutes.  ;)

    My husband has this week off from work and has been taking me to treatments.  He laughs when I am lead into the room with the mask on...  but I say-  whatever works!  ;)

    Rads IS scary but it's all I've got besides surgery & Tamoxifen.  Whatever gets me through treatment is a good thing!  :)

    You will get through this!  XOXO- Tamara 

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