Task Force Clarifies Breast Cancer Screening...

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cp418
cp418 Member Posts: 7,079
edited June 2014 in Advocacy

http://www.medicalnewstoday.com/articles/171938.php

Task Force Clarifies Breast Cancer Screening Recommendations; Editorials, Opinion Pieces Respond To Guidelines

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  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited November 2009

    cp .. I read the WSJ article that was linked to the medicalnewstoday article.

    There were two things that caught my attention.  The first .. the WJS states the recommendations were signed in June of 2008 ... so why the wait to publish in November of 2009.

    The second was a paragraph stating that the recommendations were "complicated by the "incomplete" medical understanding of breast cancer and its progression, she said."

    If there were "complications" by incomplete medical understanding of breast cancer and its progression .. why they hell didn't the task force get some "understanding" before releasing the recommendations?  Geez .. they had 17 months between June of '08 and November of '09 to get some "understanding."

  • Colette37
    Colette37 Member Posts: 387
    edited November 2009

    Why do they have to use an article to "Clarify" their position on women breast health.  Why not use it on their web site under the standard of care for breast cancer testing?  I smell a cover up for their true intentions.

  • LittleC
    LittleC Member Posts: 151
    edited November 2009

    colette37 - I agree.  If any part of the government has something to clarify, it should be on their own site.  Not on a news site, Not on a blog, Not on an opinion place - all these sites are swayed one way or another.  If Government has something to say.  Say it on their "official site"  make it an "official" statement.

     ------------------I quote: 

    "Task force members said that they did not intend to convey that women in their 40s should not get mammograms or that women should be discouraged from examining their breast for lumps. Task force co-chair Diana Petitti, a professor of biomedical informatics at Arizona State University, said that the panel believes that women in their 40s should decide on their own, after consulting their doctors, whether to begin mammograms (Wang et al., Wall Street Journal, 11/20)" -------------------

    oooookay... then why bother changing the guidelines.  This way, we can still decide, but have to have the money to do it.   No, they aren't saying don't do SBE, but they are saying, "recommend against it"  thereby rendering SBE as not tangible "evidence"  to pursue a mammogram.

    What they are saying truly makes no sense when put all together. There's back pedaling, but they are going nowhere. Feels like they are just throwing comments in the air for people to cling to one comment instead of what they have actually written.

  • LittleC
    LittleC Member Posts: 151
    edited November 2009

    and fyi, look at the contact page of that website. They aren't even in the US.

    Do they truly understand how the guidlines affect our insurance & medicare here?

    Perhaps in other countries the guidlines aren't as big a deal as they are here in the US? I don't know.

  • AnnNYC
    AnnNYC Member Posts: 4,484
    edited November 2009

    LittleC, which website and contact page are you referring to?

  • AnnNYC
    AnnNYC Member Posts: 4,484
    edited November 2009

    Bren, you asked "why the wait to publish in November 2009?"

    I have worked for 25 years preparing scientific/medical manuscripts for submission to peer-reviewed journals (and have been a co-author on a few).  I am 100% certain that the release date of these guidelines was entirely due to the peer-review and editorial process at the Annals of Internal Medicine.  Three papers from the Task Force were published on Nov 17 in the current issue of Annals:

    1) a summary of 6 computer models of the risks and benefits of mammography screening

    2) a review of studies of the effectiveness of mammography screening

    3) "guidelines" based on the above 2 papers

    Also, an editorial discussing all 3 papers was published.

    The process of peer-review of 3 papers takes many months -- as many as 12.  First drafts of these manuscripts were submitted to the Annals. If the process worked unusually fast, 2 or 3 months later the authors got the reviewers' comments. A month or two later (if the authors worked really fast, with great communication among multiple authors, and the reviewers hadn't asked for a lot more data to be addressed), the authors submitted revised manuscripts addressing the reviewers' comments.  Then there may have been a second round of reviewer comments, author revisions, re-review of the re-revised manuscripts.  Finally the papers were accepted, the multiple authors had to sign copyright agreement forms and Conflict of Interest disclosure forms, then proofs were made available, proof-read by the authors and approved, then the papers went into the publication queue (usually at least 2 months, up to 6 if a high-volume journal) -- and the contents of the papers were under "embargo" so that no word could be released until the publication date.  Somewhere in there, after acceptance of the 3 papers, the journal invited an editorial by an unrelated author.  The time-line involved writing, peer-reviewing, editing and proofing of the editorial as well.

  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited November 2009

    Thanks Ann ... too bad the papers, blogs, etc, reporting didn't clarify that point. 

    Unfortunately, the release of the task for information was poorly handled and poorly explained.  Perhaps a breast cancer specialist on the panel could have added more insight and clarification when the report was released.

  • Colette37
    Colette37 Member Posts: 387
    edited November 2009

    AnnNYC...She is talking about the USPSTF own website where the standards of care are posted for all to see.  Here are the links:

    http://www.ahrq.gov/CLINIC/uspstfix.htm

    Here is the standards for breast screening from their website:

    http://www.ahrq.gov/CLINIC/uspstf/uspsbrca.htm

    I really don't understand how women who have had breast cancer can stand for these changes in the standard of care and support the bill that gives this power to the USPSTF who the bill gives the power to change these standards...especially when a massive amount of Dr. Surgeons, and Medical Associations say that this is going in the wrong direction and will cost women their lives!

  • AnnNYC
    AnnNYC Member Posts: 4,484
    edited November 2009

    Thanks Colette -- I'm familiar with those websites.  What I didn't understand this:

    "and fyi, look at the contact page of that website. They aren't even in the US."

    The AHRQ "contact us" link provides an "ahrq.gov" email address, which is in the U.S., as well as a mailing address in Gaithersburg, MD.

    One of the 6 modeling teams (the 6 modeling teams wrote one of the 2 "supporting information" papers published along with the guidelines) was from Erasmus University in Rotterdam, The Netherlands (and, FYI, the Dutch team's model predicted an 8% difference in mortality prevention, one of the US models said 10% -- but two U.S. models said 3%, and two U.S. models said 2%, leading to a "median" of 3% -- so the only non-U.S. authors found a HIGHER risk with not start screening at 40, compared to all but one of the U.S. teams). 

    But otherwise, I think all contributors were from the U.S., so I don't understand "the contact page of that website...[isn't] even in the U.S."

  • Colette37
    Colette37 Member Posts: 387
    edited November 2009

    AnnNYC  Thanks for pointing that information out.  Isn't the whole thing just mind-boggling idiotic how the government is treating it's citizens with the USPSTF..I.E. AHRQ  and their new "health care" bill?

    I have called my Senators...but I know they will not listen because one of them is a co-signer for the bill.  I am so disgusted by all of this.  I used to vote Democrat...Now I vote for who is not the incumbent.  It doesn't take a rocket scientist to see that there will be a lot of people getting NO health care...and I can't understand the blind faith in the democrats/party/Senator who support this bill not to see and understand that people will die without having routine screening done.  Is mammograms great?  No.  Should we try to find other testing?  Yes.  But until that day, we should use what we have which is mammograms because MRIs will not always see DCIS and are fairly cheap.

    I don't understand why people are closed minded when you point out the information to them and still yell that we are attacking the Democrats...It isn't the Democrats it is this stupid bill and the USPSTF.  Another thing that I don't understand is why some people don't stand up against this, not for themselves, but for their children and grand children and friends who would be saved because of the defeating of this bill. 

  • Gitane
    Gitane Member Posts: 1,885
    edited November 2009

    AnnNYC    Thank you for the time you have taken to help us understand the process that is used, who does what, when, how, etc.  I admit to being overwhelmed and somewhat uninformed compared to many of the women posting.  However,  I have learned a lot by reading what you have shared.  G.

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