Health Reform Bill – Mammo Guidelines NOT “JUST Guidelines” –

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  • Colette37
    Colette37 Member Posts: 387
    edited November 2009

    Tender...I just read the article you posted.  The sad part is, if this "Task force" finds new evidence at the drop of the hat and changes quickly happen based on this "evidence"...it will change back to this BS in 5 years, and will only change to get it passed.

    I am personally going to email everyone that I know with this new information that Carol gave us.

    WAKE UP PEOPLE AND STOP THEM FROM HURTING OUR FAMILIES WITH THESE IDIOTIC RECOMMENDATIONS IN THIS HEALTH BILL THAT WILL MAKE IT HARDER TO GET HEALTH CARE!!!!!!!!!!!!!

  • LittleC
    LittleC Member Posts: 151
    edited November 2009

    See on the USPSTF where they TELL YOU INSURANCE COMPANIES ARE PART OF MAKING THIS DECISION   

    FYI - this is NOT an opinion in someone's blog!!  It is from their official site. (I noticed a lot of people opposed to us fighting against this keep posting crap from blogs of others, not fact based hard copy proof)

    SEE #9 ON THIS LINK OF "COMMON QUESTIONS" http://info.ahrq.gov/cgi-bin/ahrq.cfg/php/enduser/std_alp.php

    IT STATES: Who uses U.S. Preventive Services Task Force (USPSTF) recommendations?

    Primary care clinicians are the principal audience for U.S. Preventive Services Task Force (USPSTF) recommendations. Task Force recommendations also have informed recommendations developed by by professional societies and the coverage policies of many health plans and insurers. The USPSTF has figured prominently in the development of health care quality measures and national health objectives.

  • LittleC
    LittleC Member Posts: 151
    edited November 2009

    Colette -  I agree 100%.  You are either with the sisters or with the government.

    We know a woman from England.  The pap smear thing didn't work well over there.  They went to every 3 years I think she said, and ended up with TRIPPLE  amount later stage cancers.  Their gov't ultmately went back to screaning EVERY YEAR.  This is from someone that LIVED IT.Can't our Gov't learn from that mistake?  Or, they are trying to weed out...   

    Here's other topics on the table:

    These topics are being reviewed by the U.S. Preventive Services Task Force:

    • Aspirin Use to Prevent Preeclampsia
      Cervical Cancer Screening
      Depression in Adults
      Falls in Older Adults
      Hearing Impairment, Older Adults
      Oral Cancer Screening
      Osteoporosis Screening
      Osteoporosis Preventive Medicine
      Ovarian Cancer
      Skin Cancer Counseling
      Vitamin Supplements to Prevent Cancer and CHD
  • LittleC
    LittleC Member Posts: 151
    edited November 2009

    Look what else is under review....  (medications used for breast cancer and prostate cancer)

    http://www.guideline.gov/browse/workqueue.aspx 

    American Society of Clinical Oncology

    * American Society of Clinical Oncology 2008 clinical practice guideline update: Use of chemotherapy and radiotherapy protectants.
    * American Society of Clinical Oncology clinical practice guideline update on the use of pharmacologic interventions including tamoxifen, raloxifene, and aromatase inhibition for breast cancer risk reduction.
    * Use of 5-alpha reductase inhibitors for prostate cancer chemoprevention: American Society of Clinical Oncology-American Urological Association 2008 Clinical Practice Guideline.

  • Colette37
    Colette37 Member Posts: 387
    edited November 2009

    LittleC...Do you get the same feeling that I do, that our health care will very quickly be getting very bad?  That in the near future there will be many more people dying from cancer?  This is beyond scary people...this is horror in real life.  It is bad enough living through and dealing with cancer, but not to be able to protect your loved ones all because the government has created panels to decide who gets care and who doestn't is beyond comprehension that it is happening here in the US!

    The government should stay out of health care because they are suppose to pass laws protecting us...not be one of the insurances!  Doesn't that create a bit of conflict of interest?

  • LittleC
    LittleC Member Posts: 151
    edited November 2009

    Colette - ABSOLUTLY I DO!  I've feard this comning for a while, but I honestly didn't think it woulod rear it's ugly head so soon.  And it's happening so FAST!  I'm with you, I've been through it, I"m concerned about our "little ones" in their future.

  • LeggyJ
    LeggyJ Member Posts: 726
    edited November 2009

    Thanks for the info. girls!  In England, the mortality rates for women with breast cancer, are 35% higher than in the US and this is heading our way. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    I guess women under the age of 50, won't have to worry about whether or not diagnostic mammos will be covered...without bse's and mammos, how would they know if they needed a diagnostic mammo?

  • LeggyJ
    LeggyJ Member Posts: 726
    edited November 2009

    My health care recommended every two years for mammograms, for women 40-50years of age.  At 52 I was DX with IDC, and had lymph node involvement.  Ended up having 5.9cm's taken out, 8 rounds TAC,  followed by 5wks. of rads.  Maybe they could of caught it earlier.  Now after my last mammo. at 6months from treatment, they said see ya in two years. Go figure.

  • Seven11
    Seven11 Member Posts: 162
    edited October 2010

    Three words you all should familiarize yourselves with: 

    Evidence

    Based

    Medicine.  

  • Seven11
    Seven11 Member Posts: 162
    edited October 2010

    I'm wondering how all of you explain that other countries that follow the mammograms at age 50 guidelines have the same survival rates as the US?  

     It's so sad to me the way people react by blaming the government.   

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    KLFH:

    "I'm wondering how all of you explain that other countries that follow the mammograms at age 50 guidelines have the same survival rates as the US?"

    I'm curious and concerned...can you post a specific report/credible souurce verifying your statement? Thanks! 

  • lewing
    lewing Member Posts: 1,288
    edited November 2009

    There's a lot of misinformation on this thread, and that's unfortunate.  It's one thing to have a difference of opinion, based on different values, priorities, political perspectives, etc. etc.  It's another thing to repeat claims that are simply not true.

    Yes, both the House and Senate health care reform bills make reference to USPSTF guidelines.  They do so in a section that deals with the reform of the insurance industry, limiting the ability of insurers to screw us over (OK, I'm editorializing there, but the bulk of this post will be fact-based - promise!).  One of the reforms is to require insurance companies to not only cover preventive services, but to cover them with *no* cost-sharing for the policy holder (no co-pay, no coinsurance, deductible would not apply). 

    That's it.  Nothing more.  There's no sinister plot to deny women under 50 access to mammograms; quite the contrary, coverage for preventive services is being EXPANDED (even if not as much as many here would like).  If a woman's current employer-based plan covers screening mammograms starting at age 40, that's not going to change.  And if she doesn't have access to employer coverage and needs to get an individual plan through the insurance exchange, she can buy a plan that covers screening mammograms (which won't be hard, since most states already mandate coverage, though the specifics vary from state to state).  The only thing that will change is that fewer women will be uninsured (and how many of the uninsured d'you think get regular screening mammograms??)  and that women who've been diagnosed with bc, like all of us here, will no longer be uninsurable. 

    So go ahead and oppose health care reform if you want.  But don't oppose it because of the utterly fictional notion that Congress/Obama/whoever has a stealth plan to prohibit mammograms for women in their 40s. 

    Linda 

  • konakat
    konakat Member Posts: 6,085
    edited November 2009

    Excellent post Lewing.

  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited November 2009

    Lewing's post got me thinking. Then I remembered this:

    WASHINGTON-"While the Obama White House is searching for a replacement for health czar Tom Daschle, policy work on health care reform--a priority for the administration--Is ongoing with one key advisor especially well connected.

    The brother of White House Chief of Staff Rahm Emanuel, Dr. Ezekiel J. Emanuel, a noted bioethicist, is advising the Obama administration on health care reform.

    Dr. Emanuel is the Chair of the Department of Bioethics at The Clinical Center of the National Institutes of Health and a breast oncologist.

    Dr. Emanuel is a special advisor to the director of the White House Office of Management and Budget for health policy. He told me he is "working on (the) health care reform effort." He is "detailed" to the OMB spot and is still officially an employee of the NIH.

     According to his NIH bio, Dr. Emanuel is "widely published on the ethics of clinical research, advance care directives, end-of-life issues, euthanasia, the ethics of managed care, and the physician-patient relationship..."

    http://blogs.suntimes.com/sweet/2009/02/dr_ezekiel_emanuel_rahms_broth.html

    That umbilical cord between USPSTF, AHRQ and Congressional Health Care Reform legislative wording (now modified due to backlash) is getting awfully hard to cut imho.

    Tender

  • AnnNYC
    AnnNYC Member Posts: 4,484
    edited November 2009

    Laura, you asked about cancer survival rates.

    I wrote a lot of posts extensively documenting this, which unfortunately were lost when the "Health Care in the U.S. vs Other Countries" thread was expunged.

    But a good reference is a paper published in The Lancet in August 2008:
    http://www.ncbi.nlm.nih.gov/pubmed/18639491

    Coleman MP, Quaresma M, Berrino F, Lutz JM, De Angelis R, Capocaccia R, Baili P, Rachet B, Gatta G, Hakulinen T, Micheli A, Sant M, Weir HK, Elwood JM, Tsukuma H, Koifman S, E Silva GA, Francisci S, Santaquilani M, Verdecchia A, Storm HH, Young JL; CONCORD Working Group. Cancer survival in five continents: a worldwide population-based study (CONCORD). Lancet Oncol. 2008 Aug;9(8):730-56.

    The following values are the percentage of patients surviving 5 years after diagnosis with breast cancer (dx'd during 1990-94 and followed up to Dec 31, 1999) in several countries:

    Australia: 80.7% 

    Canada: 82.5%

    Cuba: 84.0%

    Finland: 80.2%

    France: 79.8%

    Italy: 79.5%

    Japan: 81.6%

    Norway: 76.3%

    Sweden: 82.0%

    United Kingdom: 69.7%

    USA: 83.9%

    (you can find many more countries, and individual US states, in the publication itself; I will be glad to email a PDF of the paper to anyone who wants -- just send me your email address by PM)

    Unfortunately, it is the case that these are data from 10 years ago.  It takes 10 years to compile, analyze and publish all these data -- by then, of course, they are out of date...

  • konakat
    konakat Member Posts: 6,085
    edited November 2009

    I was hoping you'd post Ann -- you are a research goddess!!  I appreciated all the hard work you did on the other thread too.

  • Seven11
    Seven11 Member Posts: 162
    edited October 2010

    Thank you Ann. 

  • Seven11
    Seven11 Member Posts: 162
    edited October 2010

    I'm just curious... what would the advantage be to the government of killing off women aged 40 - 49?  

  • Colette37
    Colette37 Member Posts: 387
    edited November 2009

    Lewing...why does the bill read the exact opposite from what you wrote?  I refer you to starting on page 17 of the bill.  It states that the USPSTF is the panel that will write the standard of care that insurances will abide by...anything other will come out of the patients pocket.  Doesn't sound like it is trying to catch cancer early to me.  Insurances will quickly change to what the law dictates as the standard of care that this bill states is based on the USPSTF.

    Do I think that there needs to be some kind of reform?  Absolutely!  Is this is?  NO!  It will kill by preventing any kind of early detection of cancer..and that is only one part of the USPSTF...I am sure the worst is to come!

  • Seven11
    Seven11 Member Posts: 162
    edited October 2010

    Do you understand the A and B ratings?  If so, I'm sure you are aware that the age change is a D rating, meaning that this section of the proposed legislation DOESN'T EVEN APPLY. 

  • Colette37
    Colette37 Member Posts: 387
    edited November 2009

    klfh...One point that another poster made is that women under 50 will ask to have reconstruction done, when most older women will not...which would cut down a lot of costs in the long run.  The other problem that I have is the fact that it does not want women knowing what their breasts usually feel like.  Why?  Is it because they want a basis to minimize women asking for testing done on breast lumps and then it gives them a reason to deny the claim?

  • Seven11
    Seven11 Member Posts: 162
    edited October 2010

    The government can't stop you from performing self-exams.  It's a totally different topic.

    I would guess that if you want to be all clinical about it, the future tax revenue potential of a woman in her 40s would outweigh the cost of reconstruction.   

  • Seven11
    Seven11 Member Posts: 162
    edited October 2010

    Correction, it's a C recommendation.  Still doesn't apply.  Here is a source for information if anyone wants to read the actual facts instead of relying on fear.

     "Here is the summary of the task force's findings, published in the Annals of Internal Medicine. The grades are explained here; A is the highest recommendation (meaning there's a high certainty the benefits are substantial), and D is the lowest. A rating of I indicates evidence is insufficient or conflicting.

    The USPSTF recommends against routine screening mammography in women aged 40 to 49 years. The decision to start regular, biennial screening mammography before the age of 50 years should be an individual one and take patient context into account, including the patient's values regarding specific benefits and harms. This is a C recommendation.

    The USPSTF recommends biennial screening mammography for women aged 50 to 74 years. This is a B recommendation.

    The USPSTF concludes that the current evidence is insufficient to assess the additional benefits and harms of screening mammography in women 75 years or older. This is an I statement.

    The USPSTF recommends against teaching breast self-examination (BSE). This is a D recommendation.

    The USPSTF concludes that the current evidence is insufficient to assess the additional benefits and harms of clinical breast examination (CBE) beyond screening mammography in women 40 years or older. This is an I statement.

    The USPSTF concludes that the current evidence is insufficient to assess the additional benefits and harms of either digital mammography or magnetic resonance imaging (MRI) instead of film mammography as screening modalities for breast cancer. This is an I statement."

  • Colette37
    Colette37 Member Posts: 387
    edited November 2009

    klfh...Yes, I do understand that.  I also understand that it is giving more power to the "Federal Reserve" which is as "Federal" as Fed Ex.  It is a private bank and the IRS are it's goons to collect taxes from something that our congress should be in control of.

    As far as the rating...all you need is a Dr. who is willing to do the bidding of the government and follow what the USPSTF states...Which is exactly what happened with my case.  I had a new gyn through a government source..and she refused my request of a mammogram at 35...even though my mother had breast cancer at a young age.  Now at age 37 I had a 10 cm tumor which WOULD HAVE BEEN SEEN ON A MAMMOGRAM AT 35 since it takes between 4 to 6 years to get that size.  You think it will only happen to me?  Good luck on that thought because it will affect our daughters, nieces and friends who will look like I do right now if it is not stopped.

    You ask how I look..I have a bilateral mastectomy and my left side has major burns to where there is major weeping taking place because of radiation.  I have had to go through 6 rounds of chemo to the point that I went into anaphalactic shock and needed 2 blood transfusions.  I was not a candidate for immediate reconstruction done because of the extent of cancer that I did have.

  • Seven11
    Seven11 Member Posts: 162
    edited October 2010

    If you read my diagnosis, you'll see that you are barking up the wrong tree by trying to accuse me of not understanding this situation.

    There is no guarantee that your lump would have been caught by a mammogram.  In fact, the entire point is that it probably would not have because mammograms are not effective at catching tumors in young women.

    At age 35 or 37, you wouldn't have qualified for a routine mammogram under the current standard of care anyway so I don't see why this change would have affected you at all.

    And I was addressing the point someone above was trying to make about the proposed bill trying to legislate the mammogram age.  I am simply pointing out that the bill only calls for A and B graded recommendations be followed and this recommendation is NOT a or b! 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    Ann, you replied about cancer survival rates...

    Well guess what?...it's our lucky day! I found much more recent data! Woo-Hoo! 

    NATIONAL CENTER FOR POLICY ANALYSIS (NCPA)

    Thursday, October 11, 2007  by Betsy McCaughey

    During this presidential election season, candidates are urging Americans to radically overhaul our "broken" health care system. Before accepting the premise that the system is broken, consider the impressive evidence from the largest ever international study of cancer survival rates.  The data show that cancer patients live longer in the United States than anywhere else on the globe.

    Overall Cancer Survival Rates:  According to the survey of cancer survival rates in Europe and the United States, published recently in Lancet Oncology.

    • American women have a 63 percent chance of living at least five years after a cancer diagnosis, compared to only 56 percent for European women.  
    • American men have a five-year survival rate of 66 percent - compared to only 47 percent for European men.
    • Among European countries, only Sweden has an overall survival rate for men of more than 60 percent.
    • For women, only three European countries (Sweden, Belgium and Switzerland) have an overall survival rate of more than 60 percent.

    These figures reflect the care available to all Americans, not just those with private health coverage.  Great Britain, known for its 50-year-old government-run, universal health care system, fares worse than the European average:  British men have a five-year survival rate of only 45 percent; women, only 53 percent.

    Survival Rates for Specific Cancers.   U.S. survival rates are higher than the average in Europe for 13 of 16 types of cancer reported in Lancet Oncology, confirming the results of previous studies.

    Here's the entire article:

    http://www.ncpa.org/pub/ba596

    BONUS! They are a nonprofit, non-partisan public policy research organization!

  • Seven11
    Seven11 Member Posts: 162
    edited October 2010

    I'll have to look at the numbers, but right off the bat I can dispute your claim that it's non partisan.

    "If successful, ObamaCare will create a terribly bureaucratic and dysfunctional health care system. Millions will lose the insurance they now have, the government will determine what kind of insurance you can have and a national health board will have the authority to deny treatment," said NCPA President John C. Goodman. "That's why we created a petition that demands patient-friendly health care and protects our right to choose the best health care for each of us and our families." 

  • Colette37
    Colette37 Member Posts: 387
    edited November 2009

    klfh...I have had numerous Dr. tell me that it would have been caught.  They saw it as a 9.5 tumor originally, and it was 10 cm when it was removed. (I had IDC and then after chemo I had slow growing DCIS left)

    And yes, I would have qualified under the screening because my mother had breast cancer at under 50 which puts me in a high risk group.

    This bill will do nothing except bring the survival rate of cancer down and make it harder for women to get the care they need to detect this monster.  This bill states that the USPSTF has the last say in the cancer screening and on their website they state that very little cancer screening should be done...and then on women whose cancer is usually slow growing as it is well known that younger women usually have the aggressive cancers.

  • Seven11
    Seven11 Member Posts: 162
    edited October 2010

    Hmmm, let's just look at our neighbor Canada, often used by people who wish to disparage socialized medicine. 

    "At present, the five-year relative survival rate for breast cancer in Canada is 87%, which means that women diagnosed with breast cancer have an 87% likelihood of living for 5 years after their diagnosis." 

    Guess when they start routine screening? 

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