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  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited November 2009

    Rinna, I had the same feelings several years ago when the seasonal flu shot first started being available.  As I worked in a hospital, I felt obligated (although I wasn't dealing directly with patients, but still, there are a lot of germs floating around inside a hospital!).  I did manage to skip a couple of years, but then went back to getting the shot.

    The powers-that-be have really no conclusive way of knowing how this so-called pandemic will spread - and therein lies the problem!  Yes, the pharmas are making gigantic bucks, but at the same time, wouldn't we all be vilifying our own government if it hadn't ordered the vaccine and made it available?  I did get it a week ago after finding out all I could about it, and discovering it's made the same way as the seasonal flu, just using a different strain of (dead) virus.

    If I were undergoing rads and visiting the hospital every day, I would be inclined to get the shot -- but that's just my own personal opinion.  You need to do what seems the right thing for you.  Oh, decisions, decisions -- how did our lives ever become so complicated? <sigh>

    Hugs, Linda

  • pip57
    pip57 Member Posts: 12,401
    edited November 2009

    As I read through all these threads, it occurs to me that what people want is 'definitive' answers.  They need to be told that "yes, you need to do this." Or "no, we know that this is not necessary for you."

     It seems that a lot of posters don't like the gray areas.  But they will always be there.  You are right Linda.  WE have to make the best decision for ourselves after doing our homework.  And sometimes there just isn't the information that we would like available to us.

  • rinna40
    rinna40 Member Posts: 357
    edited November 2009

    I have a question to ask you Canadian ladies. I finished chemo on Sept. 14. I did three rounds of FEC and then three rounds of Docetaxol. I had severe body aches when on the D. I am two months out now, and still have aches in my back and arms, and slight headache. Did anyone else have this linger so long? I'm asking on this thread because it doesn't seem that many of the American ladies had the same regime as me.

  • pip57
    pip57 Member Posts: 12,401
    edited November 2009

    Hi Rinna.   Yes, the body aches did last several months. I don't recall headaches but since I have always been prone to them I probably wouldn't have noticed.  I also had the numbness in my hand and feet that took longer to go away.

  • lassie11
    lassie11 Member Posts: 1,500
    edited November 2009

    Rinna we had the same regime and I finished about three weeks ahead of you. I still have the body aches - but have been attributing them to the Femara. It would be lovely to think that it is the Docetaxol since that would end sooner than the five years I will be on Femara.

    How is your hair? I am getting encouraged by some dark hair starting to join the white and think that maybe in a few weeks I can ditch the wig.

  • rinna40
    rinna40 Member Posts: 357
    edited November 2009

    Leslie: Hair..... UGH.....  Well, I would say it's about 60/40 grey/black. The longest may be 1/4 inch. It feels nice, but looks pretty thin. At this rate maybe I'll have enough hair by the end of January to go 'topless'.  Are you doing rads?

  • lassie11
    lassie11 Member Posts: 1,500
    edited November 2009

    Rinna - once it gets to about 1/4 inch, it seems to grow more quickly - at least that's what I tell myself. I think everyone starts off with it much thinner on the top than on the sides and back.

    Yes, I had rads - 16 sessions - finished the last one in spectacular fashion by having a flat tire on the 401 in the rain on the way. It took me til 3/4 through to figure out that the driving was much more pleasant by getting some books on CD from the public library. Otherwise that part was all right. It does take over your life though.

  • rinna40
    rinna40 Member Posts: 357
    edited November 2009

    Lassie - great idea about the books on CD. I am spending 1.5 hours in the car daily. The first three times I listened to CBC, but it is hit a miss with them - sometimes very interesting but other times not so much.

  • rinna40
    rinna40 Member Posts: 357
    edited November 2009

    Lassie - great idea about the books on CD. I am spending 1.5 hours in the car daily. The first three times I listened to CBC, but it is hit a miss with them - sometimes very interesting but other times not so much.

  • lassie11
    lassie11 Member Posts: 1,500
    edited November 2009

    Rinna - yup - CBC is my favourite while driving but I am on a campaign not to listen to war stories these days so sometimes it didn't serve the purpose.

    I see the Americans have moved one step forward in health care reform. Do we have anything similar in that the opposition can make a motion to refuse debate on the issue? And what was that about filibustering if the Republicans won the motion? Would they just read the phone book (as I heard somewhere) instead of debate the issue? And how long would they have done that? It seems to me that they are showing their feathers by attempting to refuse debate - no doubt there is some right wing explanation as to how that move is supporting the "will of the people" but I don't see it as particularly democratic.

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited November 2009

    Leslie, go to your local video store and rent a copy of "Mr. Smith Goes to Washington" to get an interesting demonstration of filibustering, U.S. style!  And yes, the "loyal opposition" here can resort to a filibuster but I can't remember under which conditions -- chemo brain lingersTongue out!

    I see the U.S. mammogram debate is still going strong on this site.  I've been looking up statistics re breast cancer incidence and breast cancer mortality rates -- comparing Cdn vs Am.  Even with screening starting 10 years later in Canada, there is virtually no statistical difference between the 2 countries.  Is it because we can have a diagnostic mammo at any age with a doc's referral, and without having to pay (directly) for it, while our American sisters are dependent on their insurance company allowing it? Plus the fact that those without insurance simply aren't diagnosed until their BC has advanced so far as to be virtually untreatable?

  • lassie11
    lassie11 Member Posts: 1,500
    edited November 2009

    I was wondering about those comparable statistics. All of the passionate arguments about the recommendations have left out the reality of how many American women are not covered, and then of how many women (everywhere) just don't get mammograms regardless of the recommendations. And of the lumps found by women on themselves, how many are because of formal training and how many because of serendipity - I expect many more by serendipty than formal BSE training. Because everyone on this forum, by definition, is immersed in far more information than we ever wanted about breast cancer, it is hard to remember that a whole bunch of people just don't pay attention to any recommedations.

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited November 2009

    Oh, you're so right about us living in our own little BC world!  But while it may be true that one in eight of us will develop BC, I bet at least 7 in 8 of us WORRY about developing BC and thus take steps to verify a lump as malignant or benign.  All my adult female relatives under 50 have had mammograms (except for one niece under 40 who lives in Michigan).

    There looks to be an interesting doc on CBC Newsworld tonight (10 p.m.) called "Catching Cancer", about a group of women in Aussie-land who all worked together in close proximity for several years  and who all developed BC.  Some have theorized that it was a virus which caused it.  Should be an interesting doc

  • konakat
    konakat Member Posts: 6,085
    edited November 2009

    I'm trying to stay out of the mammo brouhaha now, except for BLundin's thread occasionally -- she's always a voice of reason, and a few others.  The others I go to see what the conspiracy theorists are blathering on about, such as the rest of the world following these guidelines have women dying left, right, and center when there really isn't a difference.  Probably more dying in the US from lack of insurance.  According to Pitanga the system in Brazil sounds great -- mammo and ultrasound are included in a routine annual checkup. 

    I deleted my name from the petition against the guidelines since I'm returning to Canada and also because I think it is too alarmist a reaction.  We are a little BC fishbowl here -- not the "real" world.  It's not the guidelines that are a problem, it's how healthcare insurance is run -- I know I'm preaching to the converted here... 

    On the news ages ago there was a report that many women aren't taking advantage of getting screening in the US anyway.  I wonder how many have ever been trained to do a BSE.  Also, I wonder how much BC was found in screening vs BSEs or annual check-ups.  I never was taught -- just found my lump poking around at another injury.  A WTF moment.  Never thought about getting BC, even though my Mom had it -- she was post-menopausal and I mistakenly thought it was an older woman's disease. 

    I'm just so happy that I'm making my big get-away back to Canada. I'm fed up and tired of health care in the US.

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited November 2009

    And we're so happy you're coming back too!

    I look at the posts on the mammography threads and some of them are just so irrational!  In fact, if people took a really hard look at the facts -- both in the U.S. and in Canada, for example -- wouldn't they find that it's the health insurance industry that's going to change the screening ages, and that this wouldn't be an issue if they had a not-for-profit, single-payer system.   We can tell them until we're blue in the face that we can get diagnostic mammos here as an adult, and do not have to wait until we're 50 for a screening mammo....oh, and that it doesn't matter if we're poor, or have lost our job etc.  But oh no, they can't possible believe that anything good comes out of so-called "socialized" healthcare.  Well, they can live within their insurance-restricted guidelinesFrown, although they have my sympathy.  I am so completely thankful I live north of the border!

  • pip57
    pip57 Member Posts: 12,401
    edited November 2009

    Our health care makes up for all the snow we have to shovel through.  At least what we're shoveling is just snow!

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited November 2009
    PiP -- ROTFLMAO!!!!Laughing
  • pip57
    pip57 Member Posts: 12,401
    edited November 2009

    God bless Canada!!!

  • rinna40
    rinna40 Member Posts: 357
    edited November 2009

    PIP:I second the LMAO!!!!

    I stopped reading about how gov't run health care will destroy their rights. I can't believe the costs they have to incur. I even read about someone who had to make a decision in a week about lumpectomy/mastectomy/ within a week because her insurance would run out. That sounds like a great system.  And yes, it was serendipity that led me to find my lump, not formal BSE. A true  WTF moment. 

  • konakat
    konakat Member Posts: 6,085
    edited November 2009

    That is hilarious!!!  Gotta remember that one!

  • konakat
    konakat Member Posts: 6,085
    edited November 2009

    It is very worrisome when insurance dictates healthcare.  There are too many women having to make fast choices, poor choices, no choices.  It's turning into a real mess in the US -- If I was staying in Boston I would be very worried about my care.  I will miss my oncologist and nurses so very much though -- loved them.  My new team will have big shoes to fill.  But I am looking forward to getting the enormous burden of US-style healthcare off my back.  It has been so very hard money wise.

  • pip57
    pip57 Member Posts: 12,401
    edited November 2009

    I just read the healthcare thread.  Haven't done that for a while.  I really get the impression that they just can't envision the kind of healthcare that most of the world has.  It is too much to comprehend after the system that they have become comfortable with.  Most of us would consider a change to the US model as a step backwards.

    To the American girls reading this thread.  I do not mean this to be a personal criticism of any of you or your objections to government run healthcare.  Just saying that it is all a matter of perspective. 

  • covertanjou
    covertanjou Member Posts: 569
    edited November 2009

    PIP, you are correct in stating that they cannot envision a different healthcare system.  It is foreign to them (ha! ha!).  The do not believe that the government does not tell our doctors what tests to perform.  

    I am staying off the other threads dealing with American healthcare.  It is simply too vitriolic.

    Konakat, welcome back to Canada!   

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited November 2009

    It's pretty clear, isn't it:  Perfectly okay to bash the Canadian healthcare system using derogatory terms such as "socialized medicine", and continuing to spread falsehoods about the government standing between you and your doctor, and all the other awful things neither you nor I have experienced.

    BUT, definitely not okay to try and set the record straight and explain the benefits of a single-payer system.

    Instead we get criticized for allegedly "bashing" America.....the same tactics that got the original thread shut down.

  • lassie11
    lassie11 Member Posts: 1,500
    edited November 2009

    phew!I feel kind of bashed from being in that other thread. I think it might be a good idea for me not to post there for a while.

    Maybe some of them have been listening to Sarah Palin: http://ca.news.yahoo.com/s/capress/091124/entertainment/palin_marg_delahunty

  • konakat
    konakat Member Posts: 6,085
    edited November 2009

    I love This Hour Has 22 Minutes!!!!  And Rick Mercer -- I bet you can guess which segment of his I like, and have done south of the border.  Just goofin' around...  Can't wait to see these shows again.

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited November 2009
    Yep, Elizabeth -- I can guess which oneWink!
  • Rico
    Rico Member Posts: 128
    edited November 2009

    Be careful. Sarah Palin lives a lot closer to you guys than she does to me.

    Thank you, God! 

  • konakat
    konakat Member Posts: 6,085
    edited November 2009

    Hahahahahahaaa!!!!!!  Good one Rico!

  • mke
    mke Member Posts: 584
    edited November 2009

    We aren't getting enough action on this thread so we have to bad mouth US health care. Or so they say.  I suggested an alternative thread and title, but I doubt they will take me up on it.

    Wasn't it Rick Mercer who, when Stockwell Day had this hare brained  scheme that 10% of the voters could force a referendum vote, proposed a referendum vote?  As I recall the proposal was that Stockwell Day should have to change his name to Doris Day and there were about a million on-line votes in a couple days.  This referendum was going to be a shoo in.  The bill was dropped.

    I told my  US mother-in-law about it and she said "You have more fun with politics up there".

    She was right, I think there is more scope to show an ass to be an ass.

    I also think that multiple parties are a real boon.  It isn't so black and white and therefore not so polarizing.  I'm an NDP supporter, but I might edge liberal or green.  It really is more interesting.

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