mets in herceptin?

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SL448
SL448 Member Posts: 16

I am still in Herceptin (15#).  3 more to go.  Recently, I found some hip pain. Actually, it is not serious.  But it really affect my thinking that why It is so quick I got mets.    I finished 4AC (2 weeks) followed by 4T+H (3 week) in Mar 09.  My last PET scan in April was NED.   I wonder if I could be mets during Herceptin?

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  • azsunn
    azsunn Member Posts: 201
    edited November 2009

    I had a similar situation, by hip started hurting very bad.  I had started walking trying to get my strength back and lose some of that chemo gain.  As it turned out I needed to replace my walking shoes, they were worn on the sides and causing it.

    I hope that yours is as simple of a fix as mine.

  • vivo
    vivo Member Posts: 532
    edited November 2009

    I am also interested about this post. I am stage IV, have finished on June chemo and had a ned pet scan on September. I have found a lump on my supraclavicular area and had a biopsy(waiting for results) Could it be so early recurrance while on Herceptin?

  • DianaT
    DianaT Member Posts: 532
    edited November 2009

    I was still receiving herceptin when they found my brain lesion, but herceptin can't make its way across the blood brain barrier.  My hips hurt, my femur sometimes and I have joint pain.  My onc says it is a result of the taxotere and herceptin has been known to also cause joint pain.  I have had 8 PET scans that show NED, so I attribute the 90 yr old body feelings to that and enjoy life as much as I possibly can.

  • Brenda_R
    Brenda_R Member Posts: 509
    edited November 2009

    I had bad hip, back and thigh pain during Herceptin.  I found out it's a side effect of the Herceptin.

  • maryannecb
    maryannecb Member Posts: 1,453
    edited November 2009

    No mets for me while on herceptin...tho I had and still have hip pain...LOL. Metinks i am getting old.!

  • fightinhrd123
    fightinhrd123 Member Posts: 633
    edited November 2009

    Just had my last herceptin, and just had a PET scan that showed NED.  I have pain, everywhere, back, legs, fingers, feet, you name it!!  I guess now im done with herceptin i will be able to tell if it was that or just chemo damage.

    Laura

  • SL448
    SL448 Member Posts: 16
    edited December 2009

    Thank you for all input.  I have one hereptin left on 19 Dec 09.  I hope all these annoying side effects will go away after the last one herceptin. 

  • Carolina59
    Carolina59 Member Posts: 232
    edited December 2009

    SL448: You may still experience joint and other pain if you are on an AI. Zapping all that estrogen leaves some of us feeling very old in the body.

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