Sign the Petition Against the new Mammography Guidelines

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  • niedrl00
    niedrl00 Member Posts: 1
    edited November 2009

    I was 29 years old when I was diagnosed with Stage II breast cancer.  I am OUTRAGED at the new recommendations for mammograpy and self breast exams.  If I didn't 'feel myself up', my husband would be a single parent.  What these recommendations say to me, is that the lives saved isn't as important as the money and anxiety spent to determine if a lump is positive or negative.

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  • Lap3
    Lap3 Member Posts: 13
    edited November 2009

     Lora Petersen, diagnosed with IDC at age 45.

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  • cindoe
    cindoe Member Posts: 265
    edited November 2009

    On behalf on Christina Carter, age 45 dx, through free mammogram , Huron county Michigan health dept.( unemployed michigander) passed away 5 months later at 45 years old. A earlier mammogram may have saved her life.

    Cyn

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  • sydsmom
    sydsmom Member Posts: 1
    edited November 2009
    I was 34 when I was diagnosed with stage II breast cancer.  I had just gone to my gyn 3 months prior and there was nothing there.  If I hadn't done the self breast exam I wouldn't be here today.  I am totally DISGUSTED that they feel that money is more important than saving lives.  I think that we need to do whatever we can so these new guidelines are not put into effect.  So many lives will be lost unnecessarily.
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    Mary O,    I was diagnosed at 53.  

    Mammogram found DCIS in right breast.  My breast surgeon sent me for a MRI of both breasts. MRI found DCIS in left beast that was not detected in the mammogram.  I had bilateral mx in May 2009.

    No family history. These guidelines are ridiculous!

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  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited November 2009

    The study is probably paid for by big pharma who wants to ensure women keep getting sick so they can fatten their wallets or by big insurers who want to do the same.



    The darn mammos cost the insurers only $200 or so per woman annually. Obviously the well heeled ones will pay out of pocket but what about the middle and poor class people?



    Someone tell these guys common sense.



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  • 3katz
    3katz Member Posts: 1,264
    edited November 2009

    This is appalling news!!!! I read it this morning in our local newspaper. All someone has to do is check out this board to see the tremendous amount of women diagnosed in 20s, 30s & 40s.

    Amy Dierbeck - Diagnosed with Stage III IDC at age of 40 with 19 out of 28 positive nodes. Mets diagnosis at age 43. Found lump in lymph node during BSE - could not feel 5 cm tumor in breast itself since it was along the chest wall. It was visible on mammogram.

    Did have 2 prior mammos due to family history.

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  • PugMum
    PugMum Member Posts: 80
    edited November 2009

    Kathy W. Found at 49. Minimal family history. Never was able to feel the lump. Who knows how large it would have been had I waited a year!

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  • cuozzmar
    cuozzmar Member Posts: 1
    edited November 2009

    Maria C. - dx. age 42 (1 week after my 42nd birthday) stage 1 almost unpalpable. Routine mammogram week or so before picked up a calcification that turned up benign but caused me to be sent to a surgeon who found the cancer! No known history prior to this. According to the new guidelines, I would be in that dispensible 3%!

    These new recommendations try to protect women from false positives. I don't know anyone who would choose undetected cancer over a false positive. Give American women the credit they deserve and stop choosing the almighty dollar over women's lives. I am throwing out my Susan Love book because of this!

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  • LittleC
    LittleC Member Posts: 151
    edited November 2009

    I've already commented, but I'll add....

    I'm including this BC ORG link along with my name and opposition and sending it to EVERY REPRESENTATIVE  in my state...here is where you can find YOUR representative.

    http://www.house.gov/house/MemberWWW_by_State.shtml 

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  • deborye
    deborye Member Posts: 7,002
    edited November 2009

    Early Detection is the Best Protection!

    Let's mention the Breast Friends we have lost on BC.org♥

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  • deborye
    deborye Member Posts: 7,002
    edited November 2009

    Excellent Idea, LittleC.

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  • cakeisgreat
    cakeisgreat Member Posts: 660
    edited November 2009

    Ditto LittleC...I also sent an email to President Obama.

    People can choose to opt out and not get mammos, but we should have the CHOICE to get them at age 35 and insurance should cover it.  They are taking away the CHOICE!

    Sherri--I just told them to go to breastcancer.org and click on the link with this title.  I didnt want them booting me off thinking it was a virus or something.

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  • DebbyB
    DebbyB Member Posts: 16
    edited November 2009

    Debby B. diagnosed at 51.  Lump found at yearly well women checkup.  Digital Mammography confirmed.  Stage 1, Lumpectomy in right breast, triple positive. My doctor told me if I had waited even 6 more months, because my BC was very agressive, my outcome would have been very different.   If I had waited 2 years, as the proposed guidelines suggest for women over 50, the diagnosis would have been much worse and probably would have cost me my life!

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  • my2boys
    my2boys Member Posts: 339
    edited November 2009

    Anne B.  - diagnosed at Age 46, 4 months after a mammogram.  No family history.

    I found the lump myself.....DURING A BREAST SELF EXAM!

    Shame on them for saying that breast self exams do NO good!  I think my husband and children would beg to differ with them! 

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  • fortunate1
    fortunate1 Member Posts: 644
    edited November 2009
    Found my tumor by Breast Self Exam at 61. Who could possibly object to the value of examining and knowing your own breasts? Mammograms failed to find my Lobular tumor, but look at this list!! So many young women saved by mammograms. Now get out there and create a screening tool for Lobular cancer as well! We need more, not less.
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  • Raye99
    Raye99 Member Posts: 1,350
    edited November 2009

    Diagnosed at 39, found lump myself, which ended up being 5cm. There was also a 1cm tumor  in my tiny breast which I did not find, but was found during mastectomy.

    Raye

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  • BarbG
    BarbG Member Posts: 7
    edited November 2009

    4 yr survivor - dx age 46, pleomorphic ILC, 1.7cm, 1+node.  Discovered on annual mammogram/well woman check-up.  No family history.

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  • LVLinda
    LVLinda Member Posts: 93
    edited November 2009

    Currently going through chemo for BC, cannot believe new guidelines.  Anyone who says that "self breast exams" are inneffective certainly doesn't know anything, and I mean anything about breast cancer!  Whoever these people are, they must be worried with the possibility of more women being able to afford "preventative" care in the future, that their bottom dollar will shrink.  What a sad world we live in.

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  • dee1961
    dee1961 Member Posts: 1,672
    edited November 2009

    Dx routine yearly mamo at age 46 ...If anything the guidelines should start at age 30 not 50!

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  • candie1971
    candie1971 Member Posts: 4,820
    edited November 2009

    Guidelines should start at 30!! especially what we see here. I was dx'd at 53...claim I must have had since mid 40's!! We have got to fight this one!!

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  • Hanna60978
    Hanna60978 Member Posts: 815
    edited December 2011

    .

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  • JustOne
    JustOne Member Posts: 226
    edited November 2009

    Pam P.~ age 45 with no family history.  10 year survivor because of a mammogram!

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  • Raney43
    Raney43 Member Posts: 1
    edited November 2009

    Lynn diagnosed at age 42 with IDC. Routine mammogram, biopsy, lumpectomy, chemo, and radiation. No family history!!!

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  • inspiewriter
    inspiewriter Member Posts: 876
    edited November 2009

    Robin Bayne, diagnosed age 43 through mammography. By age 50 this would have been much worse, probably requiring chemo and radiation at a much higher cost.

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  • JacquelineG
    JacquelineG Member Posts: 282
    edited November 2009

    Jackie, diagnosed Stage 3c at age 39 -- no lumps, my first mammogram.

    Tested positive for BRCA2 but NO family history whatsoever. Wouldn't have known I was high risk if I didn't have my mammogram at 39. Wish I had had one earlier!

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  • Nebraskagrandma
    Nebraskagrandma Member Posts: 263
    edited November 2009

    Paula Fowler- DX age 58 Digital Mammo caught micro calcifications DCIS found with BX

    Don't expect us to go backwards !! Lives have been saved ! Thanks to Early Detection !

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  • lindaann
    lindaann Member Posts: 1
    edited November 2009

    My best friend's doctor told her to avoid mammograms during nursing - that she was "only" 40 so chance of cancer was small.  A year later she was diagnosed with Stage IV cancer after she finally had a mammogram and she died two years after diagnosis.  I will have surgery on Thursday for Stage 0, non-invasive DCIS.  The cells they removed in biopsy were Grade 3 - high aggressive.  I thank God for mammograms.  God forgive anyone who doesn't realize their importance.  People can die - it is not worth the risk. 

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  • Nebraskagrandma
    Nebraskagrandma Member Posts: 263
    edited November 2009

    WOW, Very well said hanna !! you go girl.................

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  • ekena
    ekena Member Posts: 3
    edited November 2009

    Age 47 DX  stage II infilterating ductal carcinoma and insitu ductal carcinoma. Tumors were against the chest wall and could not be detected by self exam. They were detected by mammogram!

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