Starting Chemo in July 2009

Hi ladies

I have numbness in my fingers and surprisingly in my cheeks!! My onc says I'm only the second person he has had this happen to. But it gets better as time goes on. As I am done with taxol I am looking forward to the end of the SEs, just not sure how long I will have to wait.(4 weeks like Josybee perhaps) I am VERY tired now, probably the cumulative effects of all the chemo, and not sure if having it all dose dense makes me more tired. I feel like I've done pretty well over the chemo time despite having a sinus infection, broken bones in my foot and shingles.

I THINK I have been getting thrush too. Is it the white tongue thing? That would account for things not tasting great. But by the time it's my next appointment it has always gone.

Those of you who have already started rads, how long between your last chemo and first rads? I have the consult on Tuesday and am worroed about starting quickly when I am so tired and still have shingles etc. But of course if it affects tx I want to get going!!!

Hope you are all having a good weekend.

Gilly, I had 20 days between last chemo & 1st rad (Sept 10-Sept 30)  I took naps almost every day for the 1st 3 weeks of rads-either came home at lunchtime for a power 20 min nap or took a half hour or so one right after work, but this last week, I didn't nap at all. My rad onc said that sometimes with chemo after it's out of your system, the energy level is increased even while undergoing rads--seems to be that way with me (so far!)

Joni2

Eliz-how long have you been on Tamoxafen?  Did you chose that over Femara, Arimidex or Aromasin? Or did your onc just chose that for your treatment?

Hi to all,

 So far taxol #5 has gone smoothly do not know whats different but I am doing much better. I even felt like going out day after chemo and had more engergy than normal. I am sure by Fri. or Sat. Fatigue will set in. At least I can eat and function more normally. Thank goodness!! 7more weeks of Taxol girls and I will be finished with chemo YEAH!!

Take care,

Edie

I

Glad to hear the treatments are going well for all. I am finally starting to feel better. Met with PS  and surgrey is after the first of the year. Can't wait for the exchange. Ready to live life again. The hair is coming also.   Have a great day Dianne

Eph 3   i have done alot of research with some help from my onco.  i also went to some support groups to find out about all the different drugs out there for bc   i choose tomoxefen for my ++ hormones. i havent had any side affects other than once in a while i feel tight in my hands but i do have some arthrites anyway also hot flashes but everything is very managable.  i did also research vitamins and the projestrone cream but i am not going to fool around with my body .....I have been considered a health nuts since i was young and also brought up with homeopathic medicine all my life .this is very much a change in my life.  haveing cancer has change my life. if things change than i will check into other options ferema is to new on the market its still in the testing stage .....i do have a health doc i go to also and yes i still take homeopathic meds

HI ladies, Started rads yestrday, today is only my 2nd day(can't wait to be finifhed) They wouldn't give me my Herceptin last week due to the fact that my mugascan showed ejection fraction at 50%. Now I have to see a Cardiologist on Thursday. I know I will probably have to have an echocardiogran but I don't know what else they do. Anyone have any info on that?? Any info would be helpful. Thanks,Joanne 

Hello triple j's. LovinLife, I just got done with taxotere and very little SE's. The only thing that I got was from the steriods. Little sleep the first night and thrush and fungus on the arm. they can be handled. The taxotere makes the bones ache but that might be the neulasta shot. Sleep when you need it and take tylenol or advil for the pain. it usuually popped up for me on days 4-6. Otherwise not bad. The hair is getting where you can see it. Going to ditch the hat if the hair on top thicker. It is coming. Had to shave the armpits and going to shave the legs tonight. Have a great day Dianne

ok....I have a new question.  My last chemo was Sept 9 and I have been on tamox for 1 month.  I now have fine, fuzzy hair all over my face!  Will this go away, or what can I do to get rid of it?????  Exchange surgery next Thursday....cannot wait!!!!!!!!!!!

Hugs,

Linda

I've always had fine, light hairs on my cheeks, even before all this.  Maybe with your head hair gone you are just noticing it now or is extremely noticable? Mine's not.Joni 2

I can't have my Herceptin treatments, ejection fraction was 50% and had to see a Cardiologist today. Have to start taking 2 pills for the heart and have echocardiogram and stress test in the next 2 weeks, so I don't know if and when I will be getting the herceptin again. Anyone else have this problem??? Still doing rads though, #5 tomorrow.

Hey Triple Js-Just thought I'd report in.  Finished radiation yesterday!!!!!!  Start Femara on Monday-seems never ending!

Joni2

Hello Triple J's. I hope you are all having a good weekend.

Congratulations Joni2 on finishing Rads.

Josybee  I hope you get your heart issues sorted out. I cannot really comment on Herceptin as I am HER2- and cannot take it.

I haven't started Rads yet, I'm going to be marked up on Tuesday, not sure yet when they will start. Can't say I am looking forward to it, but it is the next stage and I should be finished by Christmas.

My hair has started to grow back a little, I have the fuzzy baby hair on my head and not much in the way of eyebrows or lashes. I am ready for my nasal hair to come back too, I'm fed up with the constantly running nose!

Sending a wish for minimal SE's to all still going through treatment.

Good luck with the rads gilly!  How many? Joni2

Gill good luck with your rads.

I'll have to start reading the November rads thread to see what to expect. Today I went for my marking up, had a CT scan and 3 very small tattoos. My dry run will be 26th November and my first real session is 30th November. I am only having 15 though, so will be finished before Christmas.