Strange side effects with my "alternative" approach

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This is just so weird. I guess you could say this is a side effect: I'm feeling A*M*A*Z*I*N*G!

I know it's all the good organic leafy greens and other produce I'm eating, and the exercise, and getting better sleep etc. Who wouldn't feel better on all that? But seriously, even when I was in "awesome" shape in my 20's, I don't remember feeling this fantastic!

I have so much energy, I'm dancing around the house and office all day (thankfully I work by myself so no one has to witness that!! Laughing).I have always had insomnia, and except for two nights ago when I stupidly let a post by a troll get to me, I've been falling asleep so quickly and sleeping AMAZINGLY well. 

This is such an awesome way of life, I wish it didn't take a cancer diagnosis to get me to do it!! Tongue out

Comments

  • covertanjou
    covertanjou Member Posts: 569
    edited November 2009

    I am sorry to hear that.  I thought you were still waiting for the biopsy to confirm it was cancer.  How did the biopsy go?  I hope you are feeling well.

  • artsee
    artsee Member Posts: 1,576
    edited November 2009

    Alright, I can't keep myself from putting in my two cents worth about these very strange and unrealistic posts that have appeared on these boards very recently.

    Superscared, how can you be crying and practically dying from a tumor that you say has probably spread through out your entire body, to dancing around the house with an enormous amount of energy? All in two days? Your downer post was Nov. 4th and today on the 5th you floating because of organic leafy greens?? Can you explain this to us? By the way, what else are you on along with the green stuff?

  • joanneasiata
    joanneasiata Member Posts: 719
    edited November 2009

    Hi I'm glad your having a really good day , It does  feel good to have them .Any news on a  up date on your diagnose yet ??? have you seen any results from a biopsy  . i read your first post and replied to that and I'm just wondering how your going

     Joanne

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 1,220
    edited November 2009

    >> Superscared, how can you be crying and practically dying from a tumor that you say has probably spread through out your entire body, to dancing around the house with an enormous amount of energy? All in two days? Your downer post was Nov. 4th and today on the 5th you floating because of organic leafy greens?? Can you explain this to us? By the way, what else are you on along with the green stuff?

    LOL, that's a great question -- the reason I was bawling all night two nights ago was that a couple of posts (one of whom was a troll, which I didn't realize at the time) basically told me cancer had been spreading rampantly throughout my body for 6 months.

    If you must know, it was an anniversary of one of my miscarriages and I had already been sleepless and upset about that... then I came here for comfort, only to be harshly scolded and told that I was doomed, and what can I say, it sent me over the edge. I guess all the factors combined (tough date for me personally, + lack of sleep + feeling all alone in the middle of the night + being scolded and told I would die) hit me wrong. Maybe I unconsciously parroted the troll's words in some of my posts that night, in hopes of reassurance.

    The next morning (yesterday morning), my rational mind was back and I was able to think clearly again. I really regret the bipolar-seeming posts of that particular 24 hours and can understand how it would be bewildering.

    I don't do drugs or alcohol, and I've weaned myself off of the only medication I was taking, an antidepressant (Zoloft), so I promise it really is all the organic greens! Laughing (and maybe the exercising too.)

    Joanne, my biopsy isn't until Tuesday...Covert, you don't have to be sorry that I'm feeling so bizarrely wonderful as a "side effect" of all this healthy livin'! Laughing

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 1,220
    edited November 2009

    Oh, and part of it is probably getting over the withdrawal effects of my caffeine addiction!

  • joanneasiata
    joanneasiata Member Posts: 719
    edited November 2009

     No I'm NOT sorry your feeling good, i said I'm happy for you  ,i do have my bad and sad days as well and i know how it feels to have good days .

    Joanne

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 1,220
    edited November 2009
    I know, that was meant for covert, who said she was sorry to hear that! Smile I hope you have a wonderful day tomorrow... everyone who's reading this! (even the troll! Laughing)
  • joanneasiata
    joanneasiata Member Posts: 719
    edited November 2009

     ok thanks i got a bit confused then ,hope all goes well for you on tues .and the results are all good .

    Joanne

  • Fairyfloss
    Fairyfloss Member Posts: 32
    edited November 2009

    hey, are you on chinese medicinal herbs?  i know i feel SO much better since i changed my diet but the herbs for me add an extra boost.  if it wasnt for the ongoing disability i have from chemo is suspect i wud be running marathons by now.  my father has also converted, its the weirdest thing.  my whole family has.  my father is the last person to give up red meat and dairy but he has and he feels great.  he drinks wheatgrass juice every day and eats herbs and he doesnt even have cancer as a motivation.  he now insists on his daily green salad and vegetable juice, its pretty funny.

    also acupuncture and qi gong help my mood so much.  im always happy afterwards, no matter what sort of bad mood i was in at the start.  i have to say that before i went to my chinese doctor, i was in the most awful mood possible, and i felt so tired and depressed and cranky with everyone.  he has totally turned me around.

    also since i changed my diet including ditching caffeine, which was hard, i loved my earl grey tea  with sugar.., i dont get ANY headaches anymore.  i dont even know what one feels like.  i used to be on nurofen all the time for them.  i wud never go back to eating badly even tho i loved the taste of bad foods like KFC and choccy cake.  you can get chocolate w no dairy and no sugar but a stevia type thing thats sweet but still ok re: cancer.

    also other cures i want to share that are natural.  since i started drinking raspberry leaf tea mixed with mint tea at that time of the month, i dont get cramps or period pain anymore.  i used to be on nurofen all week for it.  its really amazing.  one of the most amazing and instant results ive had from any herbal stuff.

    another one is elderberry tea.  i buy it as 'cold rid' tea from my health shop.  havent had a flu since i started taking it whenever i felt one coming on.  mainstream sci studies found in 90plus % effective against normal flus and 99% effective in curing avian flu.  it is hardcore stuff and it really does work.  personally based on my experience i believe they've underestimated its effectiveness. i find a 100% cure /prevention rate.  when combined with tumeric and garlic and vit c and wheatgrass juice you're pretty set i imagine.

    ps if anyone wants PROOF that this diet i suggested will make you feel so much healthier and better/happier, here it is:  since i started, i have not touched a chocolate eclair.  now anyone who knows me, knows that a few years ago, me not eating a chocolate eclair if it was around to be eaten, wud be like the sun not rising.  but i havent even touched one in years.  it scares me a little actually.... but thats how much better i feel.  i just cant do it to myself when i know the bad stuff it does to my body.  its not worth it anymore.

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited November 2009

    Hi CP Mama,

    I had two rounds of chemo then said no more.  I am eating mostly foods and taking supplements as mentioned in Anticancer by David Servan-Schreiber.

    I will be doing radiotherapy and I'm not sure about aromatase inhibitors as I'm already using GSE, mushrooms and other estrogen inhibitors.  It's taken me a few days to get over the fright from seeing the oncologists shocked looks when I told them I wasn't doing any more chemo.  I had a 5cm ILC tumour with 9 lymph nodes and they kept reminding me I was high risk for mets.  As if I needed reminding!  I just can't justify putting those toxins into my body.  

    It's not an easy thing to do, to buck the system, as the oncs have no knowledge of the negative views of their drugs and are convinced their is no alternative.

  • rreynolds1
    rreynolds1 Member Posts: 450
    edited November 2009

    Hi Crunchy,

    I'm sooo glad you are feeling great.  It has been 9 months since my diagnosis and I finished my radiation in Aug.  I am on Arimidex but haven't experience any SEs yet.  I am considering stopping the drug and going for only alternative treatments but I'm not there yet.  My husband and I went to an event last night and he said it was like being with a different person.  We danced the night away!  I never realized how badly I felt after menopause until now.  Because I did not have chemo, the effects of my changed lifestyle have shown up more quickly than others who had longer treatment periods.  The nutritional supplements, good food choices, and excersise have all brought me back to life.  Too bad I had to get BC to realize that my body was suffering.  I don't want to blame everything on the docs but I had been having my annual physicals.  If they had checked my blood levels for nutrients and estrogen dominance, I would have felt better for the past 9 years and may have avoided BC all together.  The health decline happened so gradually that I didn't notice.  Looking back, I  know I was depressed but because I still was able to work, it went undiagnosed.  I was tired and had no ambition.  Now I not only work, but also have a social life.  In April I'm going back to school for my masters degree in Experiential Health and Healing.  It is a 2 year program but it may take me longer because of my work schedule.  Not sure what I'll be doing with it other than learning information I can share with others.  Not bad for a 59 year old!

    Sheila,

    You are very brave.  I'm curious about what you are doing to support your healing instead of chemo.  If you haven't read these books, I strongly recommend them..."Breast Cancer and Iodine by Dr. David Derry, "Beating Cancer With Nutrition" by Patrick Quillin Phd, RD, CNS and "What Your Doctor Won't Tell You About Breast Cancer".  I also recommend daily meditation.  Deepok Chopra believes that our healing starts with our spiritual energy so by connecting with our spirits through meditation, our bodies will naturally heal.  So much to learn!

    I'm not sure about this Alternative Thread because alternative ideas are sometime received with hostility.  I'm wondering if some of us who want a noncensored forum for our ideas should be using the PM feature.  I'm all about the freedom to express but I don't want to upset others with what may appear to be "far out" concepts.  I also don't want to be verbally assalted by those who don't agree with me. 

    Peace, love and healing...

    Roseann

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited November 2009

    Hi Roseann,  Apart from all the anticancer foods and supplements, I'm attending a 10 day retreat after the rads are finished early next year.  They do meditation, diet, attitude, purpose for living, hope, qi gong, exercise and more.  The retreat is run by Dr Ian Gawler who is mentioned in the anticancer book.

    I'm gradually introducing all his methods one at a time so I'm not too stressed trying to change all at once. I attend a guided healing meditation once or twice a week but haven't got the knack of doing meditation on my own yet.  I also believe in the Law of Attraction according to Abraham Hicks which is to always look at the things that please me and if I have negative feelings then to gradually improve my feelings by moving slowly into feeling better about whatever subject is causing the bad feelings.

    I am not at all worried about opposition to alternative methods as everything I am doing has some science behind it apart from LOA which is my spiritual belief.   I applaud whatever methods people use to get healthy, it's not my place to question or doubt others. Anyone who can get through chemo deserves a medal in my opinion.  If others are challenged by my dropping chemo that's fine.  I can understand where they are coming from but it's my life and my right to refuse treatment. This is the complementary section of the forum so why would anyone knock complimentary methods on here?  If they do then it's just fear.

    Thanks for the book references, I've noted them and will try to get them from the library to see if it's worth buying them. 

    Time for bed now here in Australia.

    Sending hugs.  Nice to have "met" you.

     

  • Yazmin
    Yazmin Member Posts: 840
    edited November 2009

    Crunchy: all that matters is that you are feeling so good now. Now that you are "back," you can concentrate on what matters: your research, and your difficult decisions.

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 1,220
    edited November 2009

    Thanks, girls!!

    Fairyfloss: hey, are you on chinese medicinal herbs?  

    Actually, I have some that are designed to promote fertility/healthy egg quality... I actually haven't taken them in a year since actively TTC... I figured I definitely shouldn't take them now since they probably have some kind of hormone-influencing effect... plus one acts as a natural blood thinner, which my doctor told me to avoid until after biopsy and surgery.

    I would love to start taking Chinese herbs that are cancer-fighting though! I need to go back to my acupuncturist/herbalist and see what she recommends. Do you remember off-hand which herbs are in what you're taking?

    That is interesting about elderberry... I've been wanting to plant some elderberry bushes on our property so I can grow and eat organic ones.  

    I just found a "Qi Gong for Breast Health" DVD that I had gotten at the place where I did thermography this summer (they actually gave it to me for free, "as long as" I would use it -- well, I darn well need to use it!!). Will try that (finally) tomorrow... I've heard good things about qi gong.

    That is amazing about not craving eclairs -- GO, YOU!!! I had to buy something in the store yesterday and as I was checking out, the woman pointed to a big chocolate bar and asked me if I wanted to get some "delicious chocolate."

    Now, in the "old" days, the power of suggestion would break down any resistance and I'd get one if not two! But time, I said, "No thank you! I don't eat sugar any more."

    She said, "Wow, are you sure you can do that, with the holidays coming up?"

    I smiled and nodded, and said (in a positive, upbeat way) "My life depends on it!" But truth be told, I wasn't even TEMPTED. It just didn't appeal to me at all. It's weird how I've lost all desire for the "bad" stuff. (BTW, I will someday once again indulge in dark chocolate, one of life's great pleasures, and I will savor every bite, but right now, while I'm actively fighting this "c" thing, my body does not need OR want it!)

    The nutritional supplements, good food choices, and excersise have all brought me back to life. Too bad I had to get BC to realize that my body was suffering. I don't want to blame everything on the docs but I had been having my annual physicals.

    Roseann, I've found exactly the same thing!! I almost have a "buzz" now after drinking a good green smoothie or going for a brisk hike in the fall mountain air. And yup, it took BC to get me to wake up and do a 180-degree turnaround. I posted on a raw food forum the other day that I was actually grateful, in a weird way, for this happening, because it's the ONLY thing that was able to make me start living in an intensely healthful way again. 

    That thing about having annual physicals... just a side story. My husband and I had been trying to have a baby for 4+ years. First we had a miscarriage in 2005. After that, I got horribly depressed, stopped exercising, ate terribly, and started gaining 10-15 pounds a YEAR (eek! and I had been 10 pounds overweight to start with).

    Two years later, I met with a fertility specialist who put me on Clomid for a few months... didn't work. I finally thought, hmm... I'm at least 40 pounds overweight... I wonder if that could have anything to do with our not being able to conceive?? I started exercising and eating well again (this was in early '07), and bam, as soon as I lost the first 10 pounds, we conceived. (Unfortunately, that baby and the next two didn't make it either.)

    I remember thinking, "WHY wouldn't my doctor look at my chart and say, hey, you've been gaining weight at a rather fast rate... this could have something to do with why you're not conceiving" -- nope, his only advice was to throw Clomid at it. UndecidedJust another doctor who thinks a drug is the answer to every problem and won't even MENTION the possibility of how eating and lifestyle can impact a health condition. It royally ticks me off.

    Roseann, thank you for the book suggestions... I'd love to hear ANYTHING you've found useful, PM or otherwise!! (What a sad situation that we can't use the alternative board to talk freely about alternative options, without the fear of being lambasted by a troll. Frown I don't want to even post on other sections because people keep looking up my history and gouging me once again about the fact that I found this mass in May and it's now November... it's done now and I don't need 476 more people telling me how stupid I was to take the path of diagnosis that I've taken etc.)

    Sheila, I admire you greatly for the approach you're taking! I will have to look up the retreat center you're going to... I'd love to take a week or two and do something like that. Thank you for mentioning it.

    Yazmin, thank you! I think I'm TOTALLY beyond any caffeine or Zoloft withdrawals now, and it feels great. I think I craved the ritual of coffee as much as the caffeine, so I'm now drinking a coffee substitute made of organic chicory, almonds, dates, etc. It's so yummy with two drops of stevia and a teensy bit of organic milk (the only dairy I consume now)!

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited November 2009

    Crunchy, if you were so strongly affected by someone you don't know on this forum, wait till your oncologist tells you what the odds are of living 10 years based on whether or not you have chemo!  That won't happen till you know all the details such as how many lymph nodes involved etc. They'll tell you that they have to kill any micrometastases before they turn into secondaries which chemo can no longer deal with.  Micrometastases are controversial.  It seems most people get them throughout life but our immune system normally deals with them and that's why I'm opposed to wiping out my immune system with chemo.  At the same time I'm aware that my immune system allowed the cancer to grow in the first place so I have to work on fixing my body so it's working at it's peak to fight any new or secondary cancers. 

    People being offered chemo after the surgery seem to fall into one of three categories, either 1) the cancer isn't advanced enough to form secondaries as long as the surgery and any radiation deal with all the primary and local tumours/nodes and they are now cancer free, or 2) the secondaries have already begun somewhere, perhaps with stem cells and the chemo won't stop it.  This second group are the ones who have the chemo but still get secondaries later, 2, 5, 10, even 18 years later. 3) The third group are the ones that are helped by the adjuvant chemo and they are the smallest group, maybe 2% to 20% of those who are offered chemo depending on the stage etc.  Unfortunately there is no way to tell which group we are in since no scans or tests can detect micrometastates or stem cells or which ever undiscovered mechanism the cancer uses to spread.

    If you get as much knowledge as you can before that decision time comes then you will be better informed before making the decision as I only had a week to make up my mind whether to have chemo and found myself going through a week of grief, crying like a baby in front of all the specialists and everywhere I went, shops, library etc and I don't normally cry in front of anyone.

    You will find yourself on an emotional roller coaster so enjoy the highs and remember when the lows come that it's just temporary.

    Hugs to you and good luck for Tuesday.

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 1,220
    edited November 2009

    Big hugs to you too, Sheila, for everything you've had to go through! 

    It seems most people get them throughout life but our immune system normally deals with them and that's why I'm opposed to wiping out my immune system with chemo. At the same time I'm aware that my immune system allowed the cancer to grow in the first place so I have to work on fixing my body so it's working at it's peak to fight any new or secondary cancers.

    That's my thinking (and my approach) based on everything I've read. Thank you again for sharing your perspective!!

  • desdemona222b
    desdemona222b Member Posts: 776
    edited November 2009

    Crunchy -

    Just pm'd you. 

  • RunswithScissors
    RunswithScissors Member Posts: 323
    edited November 2009

    SheilaEchidna wrote:

    "People being offered chemo after the surgery seem to fall into one of three categories...  ...Unfortunately there is no way to tell which group we are in since no scans or tests can detect micrometastates or stem cells or which ever undiscovered mechanism the cancer uses to spread."

    ***************** You might want to look into chemo sensitivity testing. You have to prepare for the test BEFORE your surgery, though.

    Basically, they take  your cancer cells and divide them into several samples. Each sample is flooded with a different chemo drug at very high doses - amounts the body couldn't have because it would kill you. They look to see which drugs will or won't kill your cancer.

    They're  looking for drugs that DON'T work - which ones to avoid. The idea is, if it won't kill the cancer  with an intense dose in a dish, it's not likely to work with the much lower dose inside your body. 

    It's been around for quite awhile but isn't catching on for several reasons - none of which make sense to me.  For instance, they do clinical trials looking for improved survival among those who get the test - and the results have been variable. (Although none of them showed that the test worsened the survival rate.)    This kills me!  Why does it have to prove improved survival?  To me, one of main benefits is improved quality of life.  - not subjecting people to SE's, not wasting their time, not  costing them $$, jeopardizing their jobs....    

    There are other arguments against the test, but they are all based on goofy reasoning, IMHO. 

    I wanted the test but didn't know I had to set up for it ahead of time. My sample was dead by the time I looked into it.    I was devastated to know I had to have "blind" chemo as result.  

     

  • Yazmin
    Yazmin Member Posts: 840
    edited November 2009

    Sheila:

    You have hit the nail on the head, and your explanation is crystal clear.

    However, when you write: .........3) The third group are the ones that are helped by the adjuvant chemo and they are the smallest group, maybe 2% to 20%.........one correction/question, maybe? Everything I have ever read points to the fact that this third group never exceeds 2% in terms of ABSOLUTE statistics (see, for instance, what these Australian oncs once had to say: Aussie oncologists: http://www.natural-progesterone-advisory-network.com/aussie-oncologists-criticize-chemotherapy-part-one/

  • Fairyfloss
    Fairyfloss Member Posts: 32
    edited November 2009

    re: my chinese herbs: its a hugely long list and all the names are in latin.  i dunno if its worthwhile posting it.?

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