November 2009-Starting Chemo

ccnani · November 2009

Hey my sisters!! Just checking in this evening after reading the great news that our three sisters that had their TXs today are doing pretty good!!! Hooraah!! Sweet dreams you warrior princesses. I wanted to let you girls know how much I am admiring the strength and stamina of all our november girls!!

RedheadPam, I have a question if you don't mind. I too will be getting taxotere along with carboplatin and herceptin, dense dose. I wanted to know if you would let me know what the reaction was like and how it felt, so I can be on my toes for my D-Day? Thanking you in advance, cause I feel that knowledge is power!!

Wow girls, I think you girls certainly came up with 2 or 3 answers to what may be causing the headaches and dizziness. Caffeine withdraw, low white count, low platelets, sinus problems. Those things could certainly account for some of those yukky SEs. I know I need my caffeine and so I wont just suddenly stop. Another thing is what they call the steroid crash !!

I'm so happy that you girls are feeling a little "high", or foggy and maybe thats a good thing. I had a dream last nite. I dreamed that the DOCS put me in a coma, administered the chemo cocktail and left me in coma for ten days. They woke me up and I felt great. While I was under my head was in an Ice Helmut. So then even after day 20, I still had my hair!! The dream went on for 6 txs and each time they put me under. I was in heaven!!! The Ice Helmut saved my hair and I was in a deep sleep during the whole 6 TXs and after till day 20... Wow what a sweet dream!!! Maybe someday they will be able to do it just that way. My BC surgeon says that he went to Japan to a conference where they were showing him how to perform endoscopic mastectomies . Imagine that, they were removing breasts thru tiny holes without all that extensive surgical scarring!! Anyway thats coming in the very near future, not in my dreams but for real!!!

COOLBREEZE, I'm feeling your pain tonite!! I have had to put down some of my babies in the past and it is one of the hardest things I ever had to do!! I'm going to the web site to take a look at your chocolate fudge baby and I know that he is running thru heavens green fields with alot of other chocolate labs and feeling NO PAIN NOW!! You are a brave mommy and you did the best thing for your baby, a mom always knows when that time has come. So let your tears come but dream good dreams of HIM romping and playing!!! Hang in there my sister!

Goodnite all you princesses heres hoping that tomarrow will bring a brighter day, fewer SEs and alot of love, prayers and hugs from our loved ones. Sleep with the angels girls!! Innocent

livelife · November 2009

Hi. Just spent ages catching up on all of your postings. Cafelovr my heart goes out to you- I notice that we were on similar stagings and sizes- so I can imagine just a little how you might be feeling. I had lymphoma in my 20's, again in my 30's and now this in my 40's- we just have to pick ourselves up- dust ourselves down and fight just as strong as ever !!!!! My dear friend here in the UK is stage 4- liver and bones- she has been stage 4 for the last 4 years- she is still working, travelling and enjoying life to the full. Have you read the Bernie Siegel book Love, medicine and miracles- I read it just before this third diagnosis and it really helped me to keep a positive outlook- to keep my mind in a 'health fulfilling prophecy' mode.

Doronet thanks for mentioning the back ache with neupogen- I thought it was just me- I have been feeling like every other vertebrae has been taken out.

My wigs are Rene of Paris- they must be doing well with the UK and USA markets- I have a longer one for when I want to feel glamarous and a shorter one (Tori) for day to day practical time- in nice mid chocolate colour.Still got my hair- not sure how much longer though- will pop up to hair dressers and get a an inch and half cut- after reading through your experiences. Doesn't it make a difference learning and sharing from each other.

Coolbreeze I hope the thoughts of all the happy days you had with your dog are easing the pain. My much loved rabbit Dylan had to be put down a few weeks ago- I knew that he couldn't have been more loved. Just got a new baby rabbit Peaches- he is angora soft- he comes in the house for an hour- last week he ate through the phone wire !!

I send you all my love, especially the warrior princesses who are recovering from treatment over the next few days.xx

JustmeAlicia · November 2009

Hi girls ~ I hope are girls that got their first TX are feeling good today !

I thought I was going to wake up to my hair coming out but no. All day yesterday I couldn't figure out why my nose was burning. I thought I was wiping it too much and it was getting dry skin on the nostrils. Low and behold I realized last night when looking in the mirror trying to figure it out. DUH, all my nose hairs have fallen out. Then my hair started itching like crazy. I had to take benadryl ~ So I think the hair may start going soon. Day 11 here.

Seems like a lot of us have the Rene of Paris wiggies. I think they make a lot of nice styles. I have a Rianna and a Regan. They are cute. I still somehow feel like Norman Bates when he is in the rocking chair with that wig on pretending he is his mother. Bad wig association in my head I spose. LOL

Well good day WARRIOR Princesses.

feistybluegecko · November 2009

being a mega wimp today Cry

Have had my hair cropped as it is falling out everywhere, but i can't yet face being bald. (and it is amazing how much is still on my head!)

My skin is so so sensitive and surgery wounds (even the port site is tender) still hurting (i am sure a lot less than before but today is a wimp day).

My scalp is hurting and I feel as if i have to sleep half sitting up!!

I know the port is great for chemo - buI wouldn't it be even better if it could also be used to download music and movies/films?

Most of all, I am wimpy because my chemo (CT 2) is on sunday - yuck!

Hugs to my brave sisters from humid Bangkok

philippa

x

Sherri_V · November 2009

I think I wrote when I woke up from my nap yesterday. Can't really remember much of what I said though

Anyway, on this cycle, ONE DOWN!!! 3 to go. I ended up with TC (no H) and they are doing dense dosing. The head pathologist is handling my HER2/neu status but they are having issues due to the sample (my tumor is colloid). She says she'll have a definite answer today but my oncologist wanted to get the ball rolling. They have switched me to a 2 week schedule at this point but, depending on the final report, may go back to 3. If I stay on a 2 week schedule, my last treatment will be 2 days before Christmas!

That leaves me with a question...my surgery will follow this first round (in efforts to shrink tumor). How quickly do they get you to surgery once the chemo ends???

Thanks for any insight.

I have a totally unrelated doctor appointment today but I'll check in this afternoon.

Good luck to everyone have any kind of treatment or side effects today. I am thinking of you all!

Mouse6694 · November 2009

Good morning girls yesterday was day 10 for me and I felt human all day finally, hope the next 4 will be much of the same. Getting a little anxious for tx2 dont want to feel that way again. I have lost 10 lbs last week but the way I ate yesterday it will be put back on by the end of the week everything just tasted soooo good. And finally no headaches.

Feistyblug Sorry to hear your having a bad day tomorrow is a new brighter day for you. Keep your Warrior sisters on your side and you can get through it.

dornet You should try some Claritin 24hr and aleve when you get your shot. I take that day of and for 2 days to follow and had no problem with shot. The oncologist explained as the shot affects your body like allergies would sending your platelets into overdrive causing the bone pain. Its worth a try.

coolbreeze So sorry to hear about Fudge being a fellow dog lover I know this is hard to take right now. My condolences go out to you and your family.

AroninMIA · November 2009

Way to go SLV, we made round one! Funny how the brain makes us so crazy with all the worst possiblities.

And am up and about this morning, feeling, dare I say it, almost normal? Thanx to everyone here's fantastic advice I am drinking water like a fiend, probably 2 gallons yesterday, and plan to do the same today, and I am thinking that my be why I am doing better than I had expected. Took the second Emend tab today, so knock on wood, no nausea yet, took one and later another of the compazine when my stomach feelt 'bubbly' yesterday evening, and then about 3 am this morning, along with some ibuprophen for what felt like might becoming a headache, but cut them both off at the pass.

My only fear now, in my normal pessimistic way, is the sword in still hanging and the real SE's will hit...so it is just a waiting game. My DH will give me my Neulasta shot later this afternoon (has to be at least 24 hrs after chemo) so will get to see if the bone pain is an issue.

doronet - do they give you adivan as an Rx too? I just thought they shot you up with it prior to the chemo. It did make me drowsy, do you take it to sleep? I used to take unisom. but saw it has 'dry mouth' side effects, which I thought was not good with the chemo, so was actually asking my onco nurse what other options there were... she hasn't gotten back to me yet.

Oh, one funny thing I forgot to tell you all, not sure if it was the adivan, or just my own twisted mind, but when these what I had been thinking of as 'toxic' drugs were being pushed into my body, I suddely thought of PAC MAN!... all those hungry little guys running through my veins eating up any sneaky cancer cells! It made me laugh out loud, and suddenly it just didn't seem as scary!

We can always make lemonade Warriors!

Hang Strong!

Shel · November 2009

To my fellow November Warrior Princesses,

I feel so good today. Day 8 for me, though it started in earnest yesterday afternoon. I even got up before work and cleaned up my kitchen. And I was happy about it.

So it can and will be done!

Congrats, to those of you who can through yesterday in flying colors. Keep drinking water, tea, soup, whatever works for you. Love the PacMan image, AroninMia.

coolbreeze, so sorry to hear about your dog. We had a black lab named Smudge; they are such sweet, faithful dogs.

I don't know if anyone saw this, but apparently a woman in Texas faked breast cancer to hold a benefit for breast implants. If you don't feel good today, maybe you don't want to read it, but I was glad to see she got her comeuppance. http://www.msnbc.msn.com/id/33907426/ns/today-today_people/

Rest, drink and be positive!

doronet · November 2009

Mouse6694: thanks for the advice on the Claritan. I had read about taking it on this site, however, no one was specific on when and/or how much they took, so I didn't try it. If I do, I would be taking it for 8 days, since I do the Neupogen and not the Neulasta. Do you think taking one Claritan each night before the shot (since they are supposed to be 24 hr. pills) would still work? The X-Strenth Tyl. is helping a lot, but not getting rid of all the pain, tho on a 1-10 scale, the pain is only about a 3 as long the Tyl. is in my system, i.e. it is manageable. I also remember someone here saying to walk, which I'm doing and I'm moving around a lot, and take warm baths, which I'm also going to do. I haven't even showered yet (yes, it is almost noon here), but I just finished talking on the phone to my sophomore college daughter for an hour and a half!!! (We are very close.) It was great!!!

AroninMIA: Yes, my Ativan is an RX. My breast surgeon, prior to my lumpectomy, gave me the RX for .5 mg for my tremendous anxiety about the surgery. At that time, I researched the Internet to see exactly how much I could take, because I wanted to take more since the .5 wasn't calming me down enough. Web said that someone using Ativan for anxiety could take 1-2 mg., every 4-6, and for insomnia, someone could take 2-4 mg. So, I figured taking 1 mg. was okay, though I don't drive when I've taken that much. Lastly, my onc prescribed 1 mg. as a back-up for nausea. I also get other anti-nau at the beginning of my TX, so that's why I made sure to tell the chem-nurse I had already had the Ativan. I am taking 1 mg. prior to my Neupogen injections at night, and yes, I do sleep well afterwards. It definitely makes me drowsy, hence the no-driving policy for me. Hope this helped in some way.

Off to the warm bath!

JustmeAlicia · November 2009

Feistyblue ~ so sorry you are having a bad day. It is okay to be feeling whimpy. We have all been there !! Hoping you feel better soon.

Slv/Sherry ~ glad you are feeling pretty good today ! AND woo HOO 3 more to go. I would imagine your surgery would not be long after that last chemo. But ask your oncologist what they think maybe?! I hope your SE's stay to a minimum.

Aronin ~ woo HOO another Warrior feeling pretty good ! You are so funny with the pac man comment, I had someone tell me they think of chemo the same WAY. I like it. I shall think like that on Monday maybe it will give me some comfort for Round 2. And yes I too used the Claritin for the Neulasta side effects and I went for a walk for 2 days after and it definately helped. I did have pain in my chest bone and my lower back 1 week later though. But tylenol worked it out.

Shel ~ I hear you on the cleaning of the kitchen, I just did mine. IT is shining and boy does it feel good to have a sense of normalcy in the house. I am glad you feel good today, enjoy it and do what you can without OVER DOING it !

Lots of fluids my Warriors and yes Whimps too!

((((( GROUP HUG ))))))

BrendaSharon · November 2009

Good Day to all,

annamary1,

May you day go smooth! You said you had TX every two weeks, but could you let me know how many in all you will receive. Thanks. Remember to DRINK a lot of fluids, mostly water to keep your system flushed. Also, be sure to eat if you can, because it really helps with the nausea issues. You will most definitely be in a fog but you should be fine. Get some needed rest as well!

RedHead, AroninMia,SLV/Sherri

I hope the three of you all are still dealing well, and having minimul side effects again today.

SLV/Sherri

Your TX changed to every two weeks, but two weeks from yesterday falls on Thanksgiving. Are they going to switch up day to maybe Wed. or Friday? Let me know so I can correctly edit your post above on the "Welcome Warrior Board" Thanks in advance, B

AroninMia,

I'm glad that you realized there is no mets!!! Ya-Whoooo. thanks for the compliment on my hip-hat-hair. Nothing special, but it's my own hair so it looks naturally like me. I love it!~ I wonder why, as much as our diagnosis are similar, I don't get nulasta or nupegeon shots, not that I'm complaining, one less shot. BUT, I also just realize I'm one of the few not receiving this shot.

giggles, You have made me LOL, I loved the PAC-MAN story , :v :v :v munch, munch, munch Surprised kinda like me, munch, munch, munch !

SHEL,

You gave me a good chuckle when you said I might be lightheaded due to a lack of calories!!! Tee-heeee-hee!!~~~If it could be caused by an over abundance of calories then maybe so. Wink

My second good chuckle for today, Thanks!!~~~I'm glad you feel so GOOD today (#8) as well

Kimmy,

I do have a bit of sinus going on and a smidge of a headache. And then again my DH was sick on Monday & Tues. He's pretty much better now, but I just hope I don't get sick myself.

CoolBreeze,

I hope your spirits lift a little today! I know your heart is broken over Fudge!!! I totally understand.

mouse,

Yes, you are right!!!!! DAY 10 is the best!!! This is definitely when I began to feel like there was nothing wrong anymore. I was worried because I thought day ten was like the day to start worrying about catching other's illnesses, etc. But, I felt soooo good from 10 day onward for sure. I know this is when my even though they where dull, the headaches went away completely (back now a bit) but not a s/e from the chemo. I think from my dizziness and maybe getting DH's cold.

used2be, WHERE ARE YOU??? - has anyone heard from used2be, she only made 1 post then got a reply from a (JEZZA) who said she sent her a personnel message and now we have not heard anything since that day. she has only made one post. I'm a little concerned for her.

kayan57- Where are You???? - another fellow sister missing in action, if anyone knows anything of these two sisters, please share the information?

I just edited this post as I was doing research and noticed ever since jezza posted a private message to used2bshe has not written. I went to her site and seen several people she had requested (all from Australia) to check their PM and she would show them how to post to an Australian site. I did find her on an Australian site but can't find our girls. Has me a smidge worried now., I'm just not liking this at all.

To everyone, Ccnani-my cheerleader,doronet-our biggest warrior whimp so far, portergirl-most gorgeous girl, mommy2two-my #1 mommy,Natalie-From across the Pond, fiestybluegecko / phillipa-from the Orient,Tyland, AnnHoung- our Canadian Warrior, Alicia, Sue, jkwick and reglau- haven't heard from you in a while, what's up & are you OK??? We miss hearing from all of you.

Melinda41,Susan62,CafeLovr&Ccani,Kayh, How are you girls doing? Next week is y'alls big entrance down to Chemo Lane! No big problems!!! You should be ready and know what to do, be the warriors we all have been. For those receiving TX on Monday, you need to start Sunday with drinking, drinking, and drinking some more. Until you "FLOAT A BOAT" then try to sink it. The rest start the day before with the drinking. Eat your most favorite foods this weekend and just pig out and enjoy!! It'll be bout 8-10 days after your TX before you really get in the mood for a good meal again. But the day of Chemo-TX be sure to eat a good meal and keep the fluids in your system! I hope the weather is as beautiful as here, enjoy the weekend!!!~~~~~~~till next week,

Good Luck to all our "Warriors" have a great weekend.

((((((((((HUGS))))))))))

MeNeverMind · November 2009

Good Afternoon Girls,

I feel so much better. I added another med to the antipuck meds so I feel so much better. I think I might have had a bit of a bug as well. I left work early yesterday and went to bed early again. I'm like a new not sick but definately sheeding person. I can not believe how much hair I have pulled off my shirt today. Good thing I am shaving my head this weekend. And I can drink choclate milk. Boy oh boy is it GOOD!!!!!!! And I am hungry. So I should get back to lunch. Love and Kiss Kimmy

BrendaSharon · November 2009

Thanks everyone for your advise!

I did call my oncologist yesterday and got a return call from the RN. She spoke to the onc and he said that he was going to call in a prescription for the dizziness. BUT, to keep an eye out. If I was to get worse or have a severe accompanying headache to call back. Also, if I wasn't better by Monday to be sure and call again, regardless if I was worse or even the same. I am still dizzy today, just being careful not to bend over to quickly or move my head in either direction to fast. Laying down and getting back up is the worst for the dizzy spells. As long as I don't move at all the vertigo is alright. BUT, you know it's hard not to do those things. When I get that way it almost instantly makes you want to PUKE. BUT, so far I haven't. I'm X-tra tired today, so I'm ready for the weekend.!!!

To all have a fantastic weekend, if that's possible,

I will chat and catch up on Monday.

(((((HUGS))))) Brenda

CoolBreeze · November 2009

Hi Phillipa! We are truly an international group, are we not? You''ll have to tell us what Bangkok is like. I would love to see it one day, Thailand looks so beautiful on TV.

Thank you all for your thoughts on my dog. I cried so much yesterday - I'm not a crier and have not shed a tear over having cancer, but losing my poor doggie was so hard. But, I am comforted knowing that there was no other choice. He had one bad night and morning of severe pain and of course, I couldn't let him go through that. He stopped being able to walk at all the night before (he lost his hind legs a couple months ago but one we got him up he could stand) and so that was it. The house sure seems empty without him though. My other dog is a greyhound and he was sniffing all over yesterday - something is wrong and he knows it.(Greyhounds mostly sleep and his sniffing was unusual behavior)

I hope you all know how helpful you are being to those of us who are having chemo at the end of the month. Your tips will come in so handy and make things easier for those of us who come later. I did start a December thread so I could do the same for those ladies but it seems that nobody is starting in December!

ccnani · November 2009

Hey Fearless Warriors, it's me your lil ole cheerleader. Hope that this weekend turns out good for the new chemo princesses and all the other been there done that warriors!!!

BrendaSharon, you are absolutely right, for a minute there I thought it was just me and my oldsheimers , but I was pretty sure we had lost some girls along the way. Anyway, who is that JEEZA person? Was our used2be sister a triple negative?? I absolutely remember that stuff about the personal post from JEEZA and then nothing from used2be after that. I wonder what that sister told our sister, did she scare her away? Also we haven't heard from joanne and the other Aussie sisters in quite a while, and they were such cool sisters. I wonder whats going on with that. How could we find out about our sisters?? Brenda, posted last nite but had a bunch of stuff to catch up on this morning. I'm doing good just the apprehension is gettin a little tough. I plan to get bombed on Ativan on monday nite so I can get there at 8am on tues. still flying!! Got to dye my hair tonite for the last time before it's gone. Getting ready for the big Vicente Fernandez concert on Sat. Plan to fiesta that night with 1 of my daughters and cousins. Sunday, brunch with my kids and grkids to celebrate 2 birthdays. Monday rest and get ready, start drinking the fluids, can you give me an idea of how much fluids I should take in ??? Did you just drink constantly say 32oz per day or what?? I'm so glad you are feeling like your old self, and looking like it too with your hip-hat-hair!! I'm waitin on my Rene of Paris wig, and if I can come up with the money I would love to send in my pony tail to the Hip people to make me a hat w/ my pony tail. It's kinda expensive, maybe later I can find a way. I send you alota luv! Smile

Doronet, I too got .5mg of ativan and thankyou for posting the amounts to take because since I have never taken any drugs I had no idea what would work for my anxiety about the chemo!! I am going to try it out tonite to see if .5mg works or if I will need the 1mg the nite before and day of chemo. I will also be sure to tell the onc nurse, that is such important info thanks again sister. I sounds like you are feeling better and that you are getting this thing down to a science which makes me feel really good cause I know you were having some hard times. Stay well sister!! Smile

phillipa, so good to see you post and I am so sorry your feeling bad!! It's ok to be wimpy and I'm sure your gonna be reading my wimpy whines after my 1st TX on tuesday. Your up for another TX soon and I hope things get much better for you. Feel free to let us all know exactly whats going on with the SEs cause that way maybe one of the sisters can give you some advice on what to do!! Sending warm hugs!! Smile

Alicia, hope I love my rene as much as yours!! Your post re. the nose thing was hilarious!! Your absolutely right about the hairs falling out and that can cause irritation as well as runny nose. Just another embarassing, crazy SE. Carry lots of tissues when you go out! Norman Bates REALLY?? LOL!! Glad you haven't lost your hair or your sense of humor and maybe you'll be one of those girls who doesn't!! Wink

AroninMia, yeah thats the ticket, cut those SEs off at the pass. Since I'm such a big fight fan, your pac man thing is the best cause this saturday Manny Pacquio fights and they call him Pac Man, he's the champ. Now I can cheer that pac man in more ways than one!! Here's to making lemonade!! Go girl!!! Wink

Mouse and Shel, so glad your back in the game and feeling so much better. Smooth sailing girls. Lets hear it for cleaning the kitchens!!!! Smile

RedheadPam, hope your doing good!! Can you tell me about the allergic reaction to taxotere so I can watch out for that cause I start mine on tues. 17th. Hang in there sister.

Kimmy, I'm sooooo happy your feeling good!! I know you were havin such a hard time!! better days ahead for you sister. I love chocolate milk and I'm so glad you can chug it down now!! Smile

For malinda, Susan62, Kayh, Reglau, Mommy2two, Jkwick, Ann, and the two or three missing sisters, I wish for a great weekend for you and your families. Hope you are all doing well!! Phillipa due for TX on our Sunday good luck sister!!

Special warm hugs to COOLBREEZE, we are all thinking of you today cause we know your lil heart is broken! Alotsa luv from all your sisters!! Cry

doronet · November 2009

ccnani: i've been making sure I get 64 oz. a day, which is a lot for me, because before all this, i was lucky to drink 28 oz. a day. I've kept a 32 oz. pitcher of water in the fridge and I've been trying to make sure I drink that much twice, using it to refill a daily water bottle, mix with juice, mix with Crystal Lite...anything I can possibly stomach, just so I can get it down.

Happy Friday and have a great weekend, everyone. Prayers for few, manageable, or better yet, NO SE's!!!

joanneasiata · November 2009

HI COOLBREEZE

i DIDN'T THINK ABOUT THE SOY PRODUCTS I DRINK SOY MILK ALL THE TIME AND IM ER AND PR + ,WHAT ABOUT TOFU? ILL HAVE TO LOOK THROUGH MY STUFF NOW THANKS FOR THE TIP.

JOANNE

JustmeAlicia · November 2009

BrendaSharon and CCNANI ! You girls amaze me with you posts. HOW do you do it?! Thank you I love them ~

I hope everyone has a good weekend. I am heading out to dinner with hubby, going to wear the wig for the first time even though I still have my hair. (it is short and ugly) Time to get used to the wiggy as it is a matter of days. I now have 4 WIGS! MY Sister-in-Law is a 5 year survivor she just gave me 2. Hubby can have a different girl almost everyday.

Hope my Warriors are feeling GOOD and if not HEALING hugs for a better day tomorrow.

((((((((((((((((((((HUGS)))))))))))))))))))))))))))))

Sherri_V · November 2009

My 2nd treatment will be on the Wednesday before Thanksgiving.

It's 5 o'clock here and I'm still feeling fine...just tired

AroninMIA · November 2009

You Rock Sherri!

Glad so many of you liked my Pac Man image, it still helps me smile! ccnani, try not to freak to much, that first TX is really isn't that bad, trust me! Mouse & JustMeAlicia thank you both for the claritin advice, I had some in my med chest and took it earlier today. My brave DH gave me my neulasta shot a few min ago, so will see how that part goes.

And Brenda you are just the best! And dealing with the dizziness sounds like it sux, so hang in there! could compazine or other anti nausea drugs help, even sea sick drugs like bonine?

ccnani, liquids, I am a believer as I am still feeling pretty good, more than 24 hours now, My chemo nurse recommended the equivalent of 6 20oz bottles of water per 24 hour period, and I have been following it. As some have already suggested crystal lite it great, but any liquid, tea, koolaid, it all helps to mix it up with the H2O to help you feel like you aren't floating away.

Wigs: I ordered mine from wigsalon.com, they are out of Miami here.... great selection, and though they are expensive, they have various sales and discounts going on, I too got a Rene of Paris - Tia, and a back up Raquel Welch - At Ease.... both monofilament so they are not abrasive. So am ready to shave in about 2 weeks! Finally uploaded a photo, I took scissors to my hair last weekend, hence the slightly punk look, but less to shave in the not so distant future!

Well, dinner time and I am hungry, so later Warrior Princesses!

AroninMIA · November 2009

Brenda, just realized I never gave you my TX stats for your header board:

FEC every 3 weeks X 3, (1 down 2 to go) then I beleive it is Taxotere every week X12 weeks. Next FEC TX Dec 3rd.

Later dudette!

Mouse6694 · November 2009

Dornet Onc said just 1 24hr claritin day of and for 2 days to follow. Good luck.

mommy2two · November 2009

I agree with JustmeAlicia ~ Brenda and ccnani are amazing. I look forward to reading your posts everyday, thank you!

I'm not brave enough to post a pic with my shaved head but my current pic shows my new wig. My daughter just had to keep taking my picture last night at my son's music program. I felt silly posing for pictures at my son's school. I figured my previous pic is about 3 years old so I would let you see the new and possibly improved me :-)

Hope all you awesome WARRIORS have a wonderful weekend!

((((HUGS))))

Toyah

ccnani · November 2009

Hey there mommy2two what a great picture you are rocking that wig, it looks great!!! Wow how does it feel to be a brand new woman your makeup looks great and it looks like you were ready for your sons event at school!! Listen Toyah thats just great that your daughter was taking all those pictures cause this will be recorded for posterity and after it's all over you will have some amazing pictures to show when you get some grandchildren and the stories to go with them. They will find out that their nani was a warrior princess!!! Kiss

OMG, AroninMia, 120 ounces per 24 hrs. that is astounding, I'm like Doronet, I'm lucky if I drink 24oz. per day i'm really gonna have to stomp on this if I want to drink that much. I wonder if I'll just explode like a giant water balloon?? Thanks to you both for giving me the info on the liquids it's going to be real hard but i'll try to stay in compliance!!! Great picture sister warrior!! Tongue out

Alicia, wow 4 wigs amazing!! Your right your husband won't know which sexy lady will be waiting for him when he gets home from work!!! That picture is great you look amazing. Could someone tell me how to put a picture in the little slot?? I'm gonna try to take one at the concert on Saturday nite before I cut my hair. I want to have at least one picture of me with my long hair. Kiss

BrendaSharon, I'm so sorry that you are still having the vertigo!! have they checked your white count??? They better take good care of you or they will have to deal with a whole slew of angry warrior princesses throwing daggers and hizzies at them!! Have such a good weekend BRENDA!!! Smile

Joanneasiata, girl me and Brenda were just asking about you and the other Aussie sisters? Where you been, hope your doing good!! NO TOFU or SOY MILK ER PR + girls need to stay far away from soy it feeds your cancer!!! Glad you posted we thought you girls got lost!!! Hey Joanne do you know who JEEZA is?? She posted on this site once and asked one of our November Warriors to pick up a personal post, then our sister disappeared and we haven't heard from her since. We think she is from Australia. How have you been?? hope your doing good and that your weekend will be a good one!! BTW I love your flower and I wear flowers in my hair all the time too!!! Much luv Smile

Well sisters, another week gone by and we are all still here!!! I'm sending out the best and warmest hugs I have to all my sisters and I'll talk/cheer at you all tomarrow. Sleep with the angels!! Innocent

joanneasiata · November 2009

HI CCNANI

Its nice to be missed thank you

I'm glad to have found out about the soy i drink about 2 glasses a day naughty me .

i come on to see how all you girls are going every day and you all seem to have grown very close to each other and are getting along with your treatments thats so good to see .

Its funny how we learn new stuff with each TX but sad when we have finished cause we will be so used to the routine and the things to do and not to do will will have it down pat when this is finished , well least we can help the next lot of terrified women / men about to go down the same road.

WELL IVE JUST HAD #2 TX AND DOING PRETTY GOOD HAD IT YESTERDAY I WAS VERY SICK AND TIRED LAST NIGHT BUT OK TODAY JUST DOING NOTHING BUT BEING A LOUNGE LIZARD OH DEAR FORGOT TO TURN CAP LOCKS OF I CARNOT BE BOTHERED TO RE WRITE ALL OF THIS ,there we go thats better sorry.

I haven't heard from JEZZA ill look her up and see how shes doing . thanks for the comment on my flower ,my husband loves the look he is from Samoa ,so when i want a bit of looove ill just slip one behind my ear and he turns into butter .

Well ill go now and ill pop in later, you all are doing so well , and don't to forget to wash your self after going to the toilet after chemo for a few days, i learned the hard way ended up with bad sores and 2 causes of antibiotic .

take care ladies

JO JO

Melinda41 · November 2009

I met with the research nurse yesterday, signed up to be a guinea pig in the Altto sudy.

I also found out that I am classified as a stage IIIC due to my glowing lymph node, which is much closer to being a stage IV than is comfortable.

Also found out that chemo will be once every three weeks since my insurance won't pay for the Neulasta shot to keep the WBC counts up. It's not the cancer that will kill me, it is going to be the insurance.

My brain just feels saturated with bad news. It is like I only digest a chunk at a time.

Two of my neighbors have been robbed this week, I hate having to worry about that in addition to all this other crap.

JustmeAlicia · November 2009

Toyah ~ your wig is great. You are beautiful! As are all of our girls here ~ JO JO love the flower too, so pretty ! Hope you are feeling good today girls. Love the lounge lizard comment I use the very same tame. Glad you popped in you were missed.

Jezza ~ where are YOU? hope you are OK.

Melinda ~ sorry about your stage, just know there are a lot of girls with node involvement and they are doing find many years OUT ! SO you will be great as well.......... Hang in there, so sorry about your insurance. that just makes me crazy ~ grrrrrrrrrrrrrr.

Hoping everyone is feeling well today and gets to enjoy the weekend!!!

(((((HUGS))))))

AroninMIA · November 2009

Hi All,

Melinda, hang in there, I think a lot of us know how it feels to get news and then worse news. With my original lump and recon, my sentinel was negative, my husband and I were exstatic! Then a week later when the final labs came back, although my margins were clean, they found that there were micro metastisis in the node, I thought my whole insides just dropped out of me. So then it was back in for the ALND. But now, "it is what it is"... another of my favorite sayings, and we just have to keep fighting on. And try not to focus on the shot stuff, as I found out during my TX on Thur, some chemo cocktails have a lesser incidence for nausea and vomiting, so they don't automatically prescribe neulasta for everyone. But if you do experience those SE's, then your onco Dr. can push for you to get it. So lets keep fingers crossed that your cocktail is of the less yucky kind.

Hey, did I tell you all, as a joke my DH bought me a leopard patterned Snuggie! Great for lounge lizarding in!

ccnani, just realized you live in Long Beach, my oldest sister lives there, I love that area! I grew up in CA before joining the Navy, and then when I retired, the job was out here in MIA. Sure wish I was back home in CA, but got to stay where they pay me. Cool

Am a bit tired today, but other than that, feel mostly ok. No bone pain yet, thanx to my Warrior sister Mouse and her great advice, am doing the claritin 24 and ibuprofen as a proactive measure. Will keep you all posted but so far so good.

Thats another of my sayings now... from the old joke about the guy who fell off the 20 story building, as he dropped past each story, he was heard to say....

'So far, so Good!'

Later Warriors!

Aron (aka Tawanda!)

JustmeAlicia · November 2009

Tawanda ~ so glad you are feeling good. I have the leopard Snuggie too ~ Love it !! I am always cold I am finding ~ very sweet of your DH.

It is my understanding the Neulasta is used to up your white blood count. It has nothing to do with nausea. But hence it still makes sense, some chemo cocktails are stronger and maybe does not cause the low blood count like others. No rocket scientist here, just figuring. Smile

Good Day my Fellow WARRIORS!

AroninMIA · November 2009

Thanx JustmeAlicia!... guess I have a bit of chemo brain fog after all... yes, some chemo is harder on the white blood cells than others. Somehow my twisted brain mixed up the Emend (also apparently prescribed automatically or not depending on the cocktail) with the Neulasta, thanx for keeping me honest!

Sealed

As for the snuggie, am tempted to take it to my next TX, much nicer than a plain old cotton blanket!

November 2009-Starting Chemo

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