Sisterhood of the Secret Handshake

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  • cd1234
    cd1234 Member Posts: 169
    edited November 2009

    Kari, I would turn the heat way up for you! Actually, I am always cold too, except at night when the hot flashes get rolling. I have been cold since chemo. I love Napa, or maybe I just love wine, I'm not sure. I really love Nothern CA. I grew up in Oregon, and we used to go to the Bay Area for long weekends.

  • Rachel_BC
    Rachel_BC Member Posts: 1,386
    edited November 2009

    lisa-e, climbing how freaking cool is that?!

  • DebbieSawyer
    DebbieSawyer Member Posts: 133
    edited November 2009

    Hi Rachel_BC; Thank you for the welcome. After I did the original post, I realized this is a forum for "Friendships after Treatment". Oops. I am just starting treatment, so if I'm intruding, let me know!

    kfinnigan: ooooh, can't do that heat. I generate enough of my own. Love the Bay Area with it's cooling breezes. Your dh has a bit of commute, from here to there every week.

    lisa-e: I'm not a climber, but have a previous working relationship with a climbing gym in SC, called Pacific Edge. I grew up near Joshua Tree (do you know of that?), and was all over the rocks when I was a kid, but not the kind of climbing I assume you do. I hear Pinnacles is awesome, but have never been there. Anyway, have a great time!

    cdean1971, your comment "I love Napa, or maybe I just love wine, I'm not sure" made me laugh. So try wine while not in Napa, then go to Napa and not drink wine. See how you feel then. I think you'll like the wine without Napa, but you won't want to be in Napa without the wine! Where in OR did you grow up? (if you don't mind me asking). Hubby and I go to Central Oregon several times a year.

    Speaking of dh, he just got home and is asking what I want for dinner (he cooks 99.999% of the time), so I'd better go keep him company while he's cooking for me!

    Nite all!

  • Rachel_BC
    Rachel_BC Member Posts: 1,386
    edited November 2009

    Debbie- we're just hiding out in this forum, because they don't have a forum for "silly arse beetches" or "twisted humor"... shakeshake

  • lisa-e
    lisa-e Member Posts: 819
    edited November 2009

    Debbie,  I try to go to Joshua Tree every spring.  This year I am going there to hike.   One of my friends grew up in Yucca Valley and like you spent her childhood scrambling around on the rocks their.  I am always amazed at how sure footed she is, which I attribute to the scrambling.   Also, I am curious what you did for the Pacific Edge; I am a member  there.  And the Pinnacles are awesome!

  • Rachel_BC
    Rachel_BC Member Posts: 1,386
    edited November 2009

    hey climber people... I have this idea to put one of those indoor climbing walls in my son's room when I rebuild my house (which looks like the plan now!).  Ceilings are only 8 ft.  Just trying to give a growing boy a way to play indoors using his body.  So have you seen these things and any comment?  

  • Rachel_BC
    Rachel_BC Member Posts: 1,386
    edited November 2009

    Debbie, I peeked at your previous posts. You still waiting on Oncotype results?  Good for you that you went for the test.  We can also help if you want for RADs :)

  • Rachel_BC
    Rachel_BC Member Posts: 1,386
    edited November 2009

    Debbie- go to Napa and not drink wine?  Isn't that illegal?  That's crazy talk girl!

  • covertanjou
    covertanjou Member Posts: 569
    edited November 2009

    Hello everyone!

    Welcome Debbie!

    I have a question for you tamox ladies.  Been on it for two weeks now.  The nausea and dizziness is the main complaint.  Is this normal?  The nausea seems to be subsiding a little, and the comes and goes throughout the day (worse in the morning).  

    Paul Newman....drool.Wink 

  • lisa-e
    lisa-e Member Posts: 819
    edited November 2009

    Rachel, for a little kid 8 feet is pretty tall.  As he gets older the way to deal  with the lack of height is to make the wall adjustable, so it can be overhanging, ie more than vertical.   If I were designing a climbing wall for a kid's bedroom, I might think about putting the bed on a platform.   Use the space under the bed to make a climbing cave.   It takes a lot of ab strength to cimb upside down and hang around like a monkey. 

    When I get my laptop back, I'll see what I can find on the internet about building a home wall in limited space.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    Rachael, a general rule of thumb is don't build anything into his room that he will outgrow soon.  A climbing wall that is beyond dangerous to a toddler is not going to be a challenge for an 8 or 10year old boy.  Do something small, safe and easily replacable for now, and if it turns out he's a climber, when he's older put in a wall that would be stong enough to support an adult. 

  • LeggyJ
    LeggyJ Member Posts: 726
    edited November 2009

    Kari, what happened to your beautiful picture? 

  • LeggyJ
    LeggyJ Member Posts: 726
    edited November 2009

    Oh I wasn't logged in, no wonder I didn't see anyone's picture...sorry.  I think I gained three pounds today, they had cake at lunch for employee of the month, and it was soooo  gooodddd.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    Hi, everyone.  Long day - saw the onc this morning and they were disappointed about the severe pain and everything - painful exam (kept saying "sorry") as I grimaced.  Breast still warm too - so they set me up with an ultrasound for later in the day (it's almost an hour's drive to the onc, so once I'm down there, I'm down there) and decided to give me a shot of a very strong antibiotic and then put me on levaquin for 3 days, then back to follow up with them, another shot and then we will push the MRI up to next week too, just to make sure.  The shot ended up being 2 shots in the rear, one in each cheek, and it was a powder mixed in with lidocaine to help it go in and not hurt so bad - yeah, right!!!  I am sitting with a heating pad on because my rumpus is in pain too!  Went for the ultrasound and thankfully nothing is lurking in there that they could see, but you can see a lot of swelling.  I didn't realize I was holding my breath until they were finished.  So, now will take this stuff this weekend and see how it is doing - and the doc seemed certain with this super stuff, it should feel better.  I hope so!  They want to get this under control, because in addition to it being a pain, the swelling can start lymphedema.  Nice. 

  • kookiesmom
    kookiesmom Member Posts: 143
    edited November 2009

    DebbieSawyer is that your horse in the picture?  He is a beauty! I grew up having horses and wish I could still ride.  All this California buzz makes me want to go out there and explore.  I have only been to LA and I wasn't impressed but the pictures of San Francisco and Napa area look breathtaking.  Some day....

    I finally got my mother's report from her onc. (SFBC took her in '06) and she had IDC in the same breast as me and hers was early stage like mine.  I don't know what to do now that I can't take tamox. and neither could she.  To be honest I am scared Sh*tless!  Guess I will bring it to my next onc. appointment and if she tells me "don't worry you had a baby cancer" again I think I'll smack her one and go elsewhere.  Gotta enter menopause by force and get an AI going,  I think that is going to be my only option.  Or take a chance  and do nothing.  My grandmother's never came back.  That is just an example of what me brain is tossing back & forth.  Like the devil and the angel on each shoulder but I don't know which is which!

    On a happier note we have cooled off in FL finally!!!  Gonna go walk and think and not sweat now.  And pretend I am in Napa drinking wine spody odie!

  • hrf
    hrf Member Posts: 3,225
    edited November 2009

    Paul Newman was so sexy even at the end of his life. I will always remember him from the movie, Exodus.

    I saw a general surgeon today and he is going to remove this lump from my arm in a couple of weeks. Every doctor who feels it says it is "fat necrosis" ... never thought I'd be happy to hear the word "fat"

    chelev, hope this new antibiotic clears things up for you.

    rachel, your little guy is adorable.

    And when can I sign up to get new boobs. I'll gladly come to Australia.... wouldn't that be awesome .... growing new boobs.....and if they can do nipples too .... well, wouldn't that be just wonderful!!!! I ready. Can we charter a plane and a bunch of us go together?

    Have a great weekend, everyone.

  • kookiesmom
    kookiesmom Member Posts: 143
    edited November 2009

    chelev-Sorry they hurt your tushie to go along with your boob!  Hope the antibiotics kick in fast and you get to feeling better so you can enjoy the great weather!  Levaquin is good stuff so it should help.  Feel better!

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited November 2009

    Okay, so my hair is growing back (PFC-post friggin chemo) and for about two weeks it was cute and I got lots of compliments and I felt stylish for once when I went to the beautician and she would sort of spike it out and even out all the cowlicks.  Yeah, so much for all that......Suddenly my hair looks pointed at the top, like I am one of my high school students who insists on a mowhawk and doesn't shave the sides.  I was never really the one for the great hair doos anyway, but gosh I had a glimmer of hope that I could just rub my hair once or twice in the morning and people still thought it looked cute.  Sigh.

    Debbie---which bay area???SF??  SO lovely to live there

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited November 2009

    Btw, I think we should all go to Napa!!!  I love that place!

  • Mom_of_boys
    Mom_of_boys Member Posts: 556
    edited November 2009

    Rachel....... I would love to write a testimonial for Joseph on his web site.  Just let me know what I need to do!!!

  • pkb143
    pkb143 Member Posts: 280
    edited November 2009

    Well, I'm back from playing with the great nephew this afternoon. We spent almost the entire time playing Pokemon cards. I didn't have a clue what we were doing but we had fun anyway. HEY, play date sounds fun!! Well, the ladies would have fun, don't know about the kids. LOL 

    Rachel talking about the benefits of having a cute kid brought to mind the fact that my little guy (above) is SO cute.....well, when he was about 3 or 4, he looked positively angelic. Very blond hair and the bluest eyes. My Mom & Dad love garage sales, so we would load up and go on Friday afternoons and invariably, he would pick up some toy or something, go up to the lady in charge, and ask how much she wanted for it. I guarantee you, 99% of the time, the reply was "Oh honey, if you want that, you can just HAVE it!"  He got more free stuff than you would ever think possible!

    Welcome to the group, Debbie ~~~ chelev! we are all so hoping you get relief this weekend. I'm about ready to come out there and personally supervise your painful booby care!!

    And I've been to Napa Valley, loved, loved it, except for the episode right after we did the wineries. We decided to take a shortcut leaving Napa on our way to Tahoe (? - I think I remember this right) and on the map, it looked like a little winding road. OK, yes, it was a winding road but it was up and down one side of a God-awful mountain!!  Add tipsy women afraid of heights, some forest fires, bad brakes on the rent car, one-lane passes and you are ready for some heavy-duty stuff by the time you get to Tahoe.  LOL

  • pkb143
    pkb143 Member Posts: 280
    edited November 2009

    oh yeah, and Rach, please tell me you have the cards I sent by now.....

  • LeggyJ
    LeggyJ Member Posts: 726
    edited November 2009

    Chelev, I just can't imagine your pain, hope you feel better soon.

  • Juli50
    Juli50 Member Posts: 859
    edited November 2009

    What? No posts in the last 5 hours??? Everyone must be sleeping. Good job!

    hugs Kiss

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    Thanks, everyone!  Happily, the tush pain is over and I think the meds might be working, because I can now touch the boob and not recoil in tons of pain. Yay!!  And, yes, it is PERFECT here in Florida right now - one of the few weekends we get with absolutely gorgeous, what I call California weather.  There is an air show going on in the next town, and we live west of there, right in the turnaround flight path - so I can hear the WWII planes doing maneuvers.  Yesterday, i came out of the garage to bring in the trash cans and a huge army cargo plane was like a few hundred feet overhead.  Scared the crap outta me!

    Meg, yes, I was reading your posts last night and will definitely keep an eye out for that.  I have noticed both lymph nodes under both arms tender, so hopefully it will all resolve with the meds.

    I think we should all meet in Napa!  Wouldn't that be a great trip??  The sisterhood meeting in a gorgeous place, to drink gorgeous wines and be with each other?  Nice!

  • LittleRed
    LittleRed Member Posts: 223
    edited November 2009

    CA-Ladies:  I haven't been to CA in years.  You all are making me want to take that drive down the coast in my convertible...

    chlev:  Glad you are feeling better. 

    ReneeS:  Your description of the HFs is PERFECT - a classic!!  I had to change 3x last night.  I'd like to say it was the fever from the flu, but I don't think I can blame the bug.  I'm sure it's the Tamox.  It's like having a baby in the house again with all the laundry I do.

    Rachel_BC:  So hoping you'll get your free month.  You need a little sunshine on the 'home front'.  Nice your little man is such a big help...

    Today I am really hating SFBC!  Last week I had a cold that knocked me out.  Now the flu.  I was supposed to do yoga this morning.  Meet my girlfriend to see her new car.  Tomorrow I'm supposed to meet my other girlfriend's grandmother - 30 year survivor - and I can't leave the house!!  Arrgghh!!  When does it end?  So sick and tired of being sick and tired!

    My skin is healing up from the rads.  But, I've noticed I'm having twinges lately.  Is that just the nerves around the TE doing more of their healing thing?  I thought my TE and I had come to an understanding - we've been together since late April.  I haven't had a fill in months.  Now that rads are done we're stuck with each other for the next 7 months.  Anyone else experience on-going sensations like this?  Will this continue until my exchange?

    Be good to you -

  • Rachel_BC
    Rachel_BC Member Posts: 1,386
    edited November 2009
    chelev- well that sucks, not as bad as it could suck, but sure as hell could be better. This seems to be the week for asses on this thread. Just when you thought it was safe to sit down... Maybe that kind of boob lymphedema is what meg's dealing with? And my demented mental cheerleaders are chanting RAH RAH RAH Antibiotic Shots.   kookiesmom- I think you should listen to that voice telling you to get another opinion.  Did you have more than one to start?  mary #2- I was hoping the dizzyness and nausea would go away.  (I guess you were too!) Although those things sure can be SEs of Tamox (again, I am guessing) I'm trying the Sherlock Holmesy- type approach: Assume it's not Tamox and work from there.  On that score, it was unusual how fast the SEs happened, at least from what I've read here over 8 months.  I also did that "side effect" diary BEFORE I started Tamox, and I noticed that I was nauseous.  Especially around my period.  This whole process (DX, tests, surgery & RADs) and the prospect of having to take Tamox for 5 years- was nauseating.  So far, I am not nauseous on Tamox.  If you are dizzy, then it also makes sense to be nauseous from being dizzy.  Again, assuming it is not Tamox, what else could be making you dizzy?  Inner ear infection, being run down, stuffy nose... Did you used to get nauseous and/or dizzy during your periods?  It would make sense if you did.  When Tamox causes period-like SEs it fits in with a personal theory I have about how Tamox works with hormones so they should consider the cycles.  Meanwhile, there's also the Tamoxication... 2-5 weeks off Tamoxifen which first of all tells you if your SE is from the Tamox, because if you stop Tamox and they stop, well you know it was Tamox.  The other weird and quite nice thing is that usually when you restart Tamox, the SE does NOT come back.  But this should be done with your ONC's blessing. 
  • Rachel_BC
    Rachel_BC Member Posts: 1,386
    edited November 2009

    lisa-e and patmom- THANK You for climbing tips!  That's so great... funny group we have here...

    i kinda assumed if they were re-growing a boob it would include a nipple- I mean otherwise it would be regrowing skin...

    jess- I think that's why people who wear those short hair styles have to get it cut to keep it doing that spiky thing... girl you are GROWING OUT woohoo!  

    renee- I think momofboys would write a fab blurb for Joseph from a chemo pt POV

    pattyb part deux- yesss... playing the cute kid card muahahahahaha!  Box not here yet but I am sure it will show :) 

  • Rachel_BC
    Rachel_BC Member Posts: 1,386
    edited November 2009

    Juli- nanny's nanny was sick today, so I am with my boy, that slows down my posting! :D

    meg- me too, I spent time at Stanford, and love Palo Alto, Los Altos, driving into SFO, sausalito, stinson beach, mt temelpius... love it all, and I love my 4 seasons in PA and NY but in that area, you can have any season you want any time with a 20 minute drive...

    Chelev- and the demented mental cheerleaders are building a pyramid with unrestrained glee to chant "RAH RAH RAH she can sit down, RAH RAH RAH it doesn't hurt, RAH RAH RAH antibiotics!"  You're not drinking wine with your antibiotics, right?  Napa... that would rock for a sisterhood meet. Then again, I'd could have fun with you nuts in a paper bag.

    Little Red- LOVING the new pic!!!!!  You hairy girl you!  I can't see your scalp!  Yes, one would think after all the evil potions and radiation we've survived that we'd somehow be imbued with super powers, not vulnerable to the little petty common diseases that put mere mortals in their beds... but not so.  Drink lots of soup, take care of you.  When did you finish RADs?  The twinges could be RADs.

  • Rachel_BC
    Rachel_BC Member Posts: 1,386
    edited November 2009

    Got this from the Army of Women email list:

     

     

    View as a Web page

     

    Army of Women

     

    Herbal Use by Breast Cancer Patients:

    We Need to Know More!

    Dear Rachel,

    We know that many women with breast cancer are using complementary and alternative medicines, in particular herbal dietary supplements. But we don’t know what they are using, how they learn about products they choose to take, and whether these supplements work.

     

    To learn more about what women are using and what works and what doesn’t, a research team at the University of Maryland, in College Park has created a short survey on herbal supplements called Breast Cancer and Herbal Dietary Supplement Use.

     

    If you are a woman who has been diagnosed with breast cancer and if you are interested in sharing information about your thoughts and experiences with herbal supplements – please read on and sign up! If you know of anyone who might fit this study, pass it on!

    What’s the study about?

    The purpose of this research study is to find out which supplements are most commonly used by women who have been diagnosed with breast cancer, how effective women think they are, and how women learn about them. The researchers also are interested in women’s feelings about how dietary supplements are regulated. The researchers need to enroll 500 women who have been diagnosed with breast cancer in this study.

    What’s involved?

    If you join the study, you will be sent the link to complete an on-line survey about your use of herbal dietary supplements during and after your breast cancer treatment. You will be asked about the kinds of supplements you used, the reasons you took them, and where you learned about them. The survey will take approximately 15 - 20 minutes to complete.

    Who is conducting the study?

    Mark Kantor, PhD, at the University of Maryland, in College Park

    Where?

    Anywhere in the United States – this is an on-line study

    Who can participate?

    You can join the Herbal Dietary Supplement Study if you match ALL of these MAIN categories:

     

    •You are a woman who has been diagnosed with breast cancer.

     

    •You are over 18 years old

     

    •You live in the United States

     

     

     

     

     

    This email was sent by:

     

    Love/Avon Army of Women | 2811 Wilshire Blvd. | Suite 500 | Santa Monica | CA | 90403

    info@armyofwomen.org

     

    I

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