Bone mets?

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I had one suspicious area light up on my recent bone scan so had an MRI yesterday.

I 've had a dull ache in my middle back area for a few weeks, sometimes radiating to my thigh or leg.

Should I think bone mets?   Has anyone had a pos bone scan but neg MRI??

 I'd appreciate any response, if it's mets I'd face it but it's so hard waiting to know.

Tricia 

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Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    Tricia, I was scheduled for a CT scan and bone scan and then see my onc all in the same day. I had no pain.  She was checking for something else. The CT scan said "highly suspicious" for mets and recommended a bone scan which I was doing anyway.  The bone scan said "very concerning for mets."  I could have had an MRI, but chose to go for a biopsy although my onc really didn't think it was mets.  I don't know what to say except that things can light up i.e. arthritis, that are not cancer.  I had both scans come back believe it was mets.  You could have some arthritis in your back.  I have degenerative disc problems in my lower back and it radiates down my buttocks if I do too much.  What did your onc say?

  • lorieg
    lorieg Member Posts: 802
    edited November 2009

    Tricia, I didn't see your post when I posted something similar.  I have no answers for you, but I hope your MRI is ok and does not indicate mets.  Hugs.

  • TriciaK
    TriciaK Member Posts: 362
    edited November 2009

    Thanks Lorieg!

     Shirley, thanks for responding. My onc said as it was only one area many Dr's would wait and see but as I am also her2+ he felt why wait when an mri may give me peace of mind.  I agreed and was glad to do it.   Am I correct in thinking despite both your scans indicating mets, you "Only" have degenerative disc disease?    Bad enough of course but so much better than cancer!

     Tricia xx

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    No, Tricia, it is mets.  Like I said, my onc really didn't believe it would be.  When I saw her for the results of the biopsy, which did come back with cancer cells, she said she was surprised.  She said to me, you knew.  I said, yes.  She said, sometimes we have a sixth sense.  That DOES NOT MEAN yours is mets.  I don't think I had a "sixth sense."  I just wanted to know what I was dealing with which is unusual for me because I would much rather stick my head in the sand.  However, my three daughters were not satisfied with me waiting for three months for another CT scan.  Plus after reading my reports I was convinced to go ahead with the biopsy.

    Crossing my fingers that yours is ARTHRITIS!  It sounds like that's what you could have.  I do have that degenerative disc so I know what you are feeling.  Let us know so we don't have to worry about you.

  • TriciaK
    TriciaK Member Posts: 362
    edited November 2009

    Thanks again for replying Shirley and I'm sorry the news was bad for you.

    I like to be prepared and will face this if neccessary and fight but obviously would prefer to put off that diagnosis for as long as possible! :)

     I see my onc next Wed for the results and will keep you posted. Thanks again !  

    Tricia xx

  • fightinhrd123
    fightinhrd123 Member Posts: 633
    edited November 2009

    Im in the same boat, ive been out of treatment a year, still just herceptin, and have bad back pain, down my legs. I had a PETCT on Monday and am tenderhooks waiting for the Dr to call!  He seems to think i'll be fine!  I had a complete response to chemo, but still.....

  • lorieg
    lorieg Member Posts: 802
    edited November 2009

    Tricia, I really hope it is not bone mets for you.  You have to wait until next Wednesday to get your results???  I would be calling about that one.  I could not wait that long!!  Good luck!!  Praying for you!!

  • konakat
    konakat Member Posts: 6,085
    edited November 2009

    I'm just dropping in to say hi to my new bone mets sisters. Those who don't know yet, I have my fingers crossed that you're all clear.  {{{Shirley}}} is very right in saying arthritis can be mistaken for mets.  I hope that is the case for you who are waiting for news.

    As a word of encouragement, although bone mets sucks, in many cases it can be managed very well with Zometa, Aredia, or similar drugs.  Rads can help with pain if you have it.  I was lucky in that the Zometa for my bones and the chemo I was getting for my liver wiped it out of my spine.  All clear -- MRI next week to check, but so far so good.  I assume it is fine until told otherwise. 

    I'll be checking in to see all your good news!  Fingers tightly crossed!!

    Elizabeth

    xox

  • TriciaK
    TriciaK Member Posts: 362
    edited November 2009

    Thank you Elizabeth and I'm hoping your next scan will still show such a good response!

    It's good to know this can be kept in check too if the news is bad.

    Lori, I live in Ireland and things take a little longer here lol....they don't give results over the phone in general so have an appt with my onc for then. It's hard, but a great lesson in patience being a virtue ha ha....I know hearing it sooner (if it's mets) won't change the tx or prognosis but obviously am going through torture.  It helps to share here and thanks to everyone for responding:)

    Fightinhrd, I had a lot of aches and pains during herceptin. The main side effect of this drug is flu like symptoms so really do think you'll be fine:)

    Finger's crossed for both of us!

    Tricia xx

  • americanpinay
    americanpinay Member Posts: 338
    edited November 2009

    I just want to wish benign and/or NED results for everyone waiting for test results. Take care ladies.

  • fightinhrd123
    fightinhrd123 Member Posts: 633
    edited November 2009

    Thanks for the good wishes.  My dr didnt call again TODAY!!  I had my PET on Monday!!!  I may go nuts waiting.  Everyones telling me to call him, but i just cant bring myself to do it :(

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    Tricia, waiting is hard, but like you said it will not change anything.  I was going to wait two weeks to get my results, but after talking with the neuroradiologist who did my biopsy, he said it would be done withing a couple of days.  So, before my biopsy, while sitting in the waiting room, I called my onc to change my appointment for that Friday (when the biopsy would be in)..LOL  Since I didn't HAVE to wait I wanted to get it OVER with.  And, let me tell you, I'm the GREAT procrastinator. I don't know what got into me. 

    I'm gonna bet yours is arthritis.  Yep, that's what it is.  It's really great to have arthritis..LOL

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    {{{{Elizabeth}}}}}, may I tell you how I think you are just a doll!?  even though you are a Kanuck (is that how you spell it?)!  You are the peace maker and calmer-downer. 

    Have you made your move yet?  I hope you will be so happy back in Canada.  You deserve it.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    fighting, I think you will be just fine.  Sounds like you have arthritis too.

    I'm hanging my shingle out soon.  I'll be called Dr. Shirley.  Wink

  • spar2
    spar2 Member Posts: 6,827
    edited November 2009

    Dr. Shirley, I would like to be your first patient.  When may I make an appointment.  Make it in the afternoon, I will have to catch a plane to NC or maybe you can make a home visit and spend a week with me here in Okie land, enjoying the sunshine.  I promise to feed you good and fatten you up a bit.

  • konakat
    konakat Member Posts: 6,085
    edited November 2009

    Awwww Shirley!  That means a great deal to me!!!  Glad you don't hold the Canuck bit against me!!  Wink  I think you're the cat's meow and the bee's knees.  In case don't have those expressions here, it's a good thing!!

    I was in Canada over the weekend, got an apt and saw my doc.  I make the big move on Dec 01.  I'll miss my b/f (will visit often) but will love being back with my girlfriends there!  Thanks for asking Dr. Shirley!

    xox

  • Mazy1959
    Mazy1959 Member Posts: 1,431
    edited November 2009

    Everything crossed for anyone waiting and all are in my prayers.

  • konakat
    konakat Member Posts: 6,085
    edited November 2009

    I will tell Mom, eventually.  Part of me doesn't want to -- wait until the next treatment takes all my hair and I have to.  When the time comes I will no doubt look for advice, encouragement from ALL my BC friends. 

    As much as my b/f has let me down (gee, a marriage and green card would have solved lots!) he definitely is worth the 7 hour drive to visit!  So far...

    OK, back to your regularly scheduled program... (Thanks for asking Athena).

  • TriciaK
    TriciaK Member Posts: 362
    edited November 2009

    Thanks so much for the encouragement Dr Shirley:)

    I just called the liason nurse who said there is a report through but she needs my onc to take a look and will call me back aarrgghhhh......I'm scared to leave the phone!!! I feel if the news was good she would have just told me?

    Fighting, hugs to you and I think it's probably better to just get it over with...if it's bad news the sooner we know the sooner we can begin dealing with it:)

    Thanks ladies so much, I'll keep you posted when any news comes if I'm still sane or sober by then lol...

    Tricia xx

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    Okay, Tricia, don't jump ahead of things.  You know nurses are not allowed to give out info unless the doc says so.  If your onc hasn't read the report yet she cannot give it to you.  You know how it is when given any kind of test.  You ask, how does it look?  And, damn, they can't tell you and you know these techs are probably pretty good at reading some things.  I remember when I had my ultrasound when I found my lump.  It took forever for the tech to scan my breast.  In the past when I had an ultrasound (the rad doctor did it) it took a couple of minutes, IF THAT.  I didn't ask the tech anything because I knew she wouldn't/couldn't tell me.

    Okay, get drunk but be sure you are able to type.  We're waiting!  LOL

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    Elizabeth, being with your gfs will be wonderful.  They'll treat you better than any ole man would..LOL  It's tough being in love.  I have one unmarried dd who lives with her bf.  She was so sure she would want to become engaged no longer than a year of living with him.  HA!  She has now changed her mind...no engagement.  He's got some stuff to fix before she wants a ring from him...LOL  Would you believe they are even going to couple's counseling.  I say kudos for him doing it.  Most men wouldn't.

    I'm still waiting for Tricia's results.  <tapping fingers>

  • fightinhrd123
    fightinhrd123 Member Posts: 633
    edited November 2009

    Well I got good news.  My PET came back clear!  I can hardly believe it!!!!!  All the pain im having must be left over chemo pain or herceptin!!  Good luck to you girls, i will be praying for ya and watching this thread!

    laura

  • americanpinay
    americanpinay Member Posts: 338
    edited November 2009

    Congrats Laura!  Woohoo! Cheers!

  • lorieg
    lorieg Member Posts: 802
    edited November 2009

    Congrats, Laura!  I love hearing good news...makes my day! 

  • konakat
    konakat Member Posts: 6,085
    edited November 2009

    Congratulations Laura!!!!!!!  Now celebrate!!!!!

  • konakat
    konakat Member Posts: 6,085
    edited November 2009

    Shirley -- you raised one smart daughter.  So many marry and then expect the guy to change!  And looks like your DD's guy knows he's got a good thing and is working to win her heart and commitment. 

  • TriciaK
    TriciaK Member Posts: 362
    edited November 2009

    Congrats fighting, I'm so pleased for you:)

    Shirley you're an Angel and thanks for caring,  I was out all day but the Dr called back and left a message to say the MRI was ionconclusive !!  

    He wants to arrange a pet scan now, more waiting and still in limbo:(

    I swear I'll be an alcoholic by the time I get this dx, if the cancer does'nt get me the stress will lol....

    Soo, not bad news but not good either....I'm confused and wondering why it was'nt clear. I had thought an MRI was good for detecting mets, arthritis etc...

    Tricia xx

  • konakat
    konakat Member Posts: 6,085
    edited November 2009

    Oh Tricia!  It is torturous to have to wait longer!!!  I hope he can get the PET scheduled for early next week.  Inconclusive is good.  He didn't say suspicious of cancer.  So you are leaning towards the good news side of things.  Still, it is brutal having to wait.  I'm sorry you have this crap to deal with.  We're all here waiting with you.  I'll have a drink (or 2) this evening with you.  Cheers and here's to good new SOON!!!

    Dr Shirley -- what's your understanding on this?

  • fightinhrd123
    fightinhrd123 Member Posts: 633
    edited November 2009

    Sorry Tricia, the waiting is torturous!!  Hopefully you will get you answer with your PET scan, and it comes back clean.

    Laura

  • TriciaK
    TriciaK Member Posts: 362
    edited November 2009

    Thanks Laura and Konakat for your replies,

     I'm feeling a little down this evening, just too much stress to deal with and I'm sure you understand.

    I just lost my Maine Coon cat last weekend to a tragic accident and am very upset to deal with this also.

    I know I can't change anything by worrying but had so hoped I'd know one way or the other...

    Even a stage iv dx would be easier than these mind games!!!

    Tricia xx

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