I miss my eyelashes -- Latisse anyone?

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ChemoSobby38
ChemoSobby38 Member Posts: 66

okay - I know this sounds VERY vain ... but I am using Latisse. 

hey, why not?  I've fought cancer twice [2006 & 2009], chemo each time, radiation once in 2006, bilateral mastectomy in 2009 and I in the final stages of breast reconstruction.  My hair is finally growing back after this last round of chemo, but my eyelashes seem to taken a beating and is lagging in the growth dep't - so I asked my ONC about Latisse.  Believe me, I've researched the heck out of it before asking about it.  There are some down sides, but you ladies know that everything we take to keep cancer away have these god awful SE and so I said to hell with it.  If I have to have SE, it might as well be for beauty; as long as I don't lose my eyesight.  Anyway, ONC didn't know much about it -- but he quickly looked it up and said it was okay for me to use.  I've been using for almost a week and it seems like it is working. 

So I was just wondering -- has anyone else thought about using Latisse to help re-grow lashes?  I'm also using Latisse "off label" for my eyebrows and that seems to be working too.

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Comments

  • pk0199
    pk0199 Member Posts: 586
    edited October 2009

    Chemo, I have thought of it. I did not have chemo but had lumpectomy and rads. Now I know rads to the breast should have no effect on my eyelashes but on my one eye on the inner corner, the lashes have fallen out for the 4th time last week. This has been going on since my treatments, not sure if it is a result of the anesthesiologist taping my eyes closed during surgery and weakening the eyelashes at that time or if it something else that has just coincided with my tx's. So I have been thinking about asking my dr if I could try it but that is as far as I have gone. Glad to hear someone has tried and is having success. Maybe now I will try it so thank you for starting this thread.

    Edited to add, I don't think you are vain, eyelashes actually have a great purpose and it feels weird to not have them, at least to only have half an eye with eyelashes feels very weird. 

    Penny 

  • ChemoSobby38
    ChemoSobby38 Member Posts: 66
    edited October 2009

    My pleasure, Penny  -- I love this site because no one would understand how I felt about using this but us.  Also, I figured that there had to be many more of us that is tempted to try and I couldn't find a thread about it. 

    I will tell you that Latisse has some serious side effects.  Like changing eye color to dark brown [my eyes are already dark brown, so I had nothing to worry about there] and you should tell you eye doc that you are using it before they do the pressure test. 

    Like I said, its only been a week; but I really feel fine using it and I think it is working.  So I am hopeful that I will be better than normal in a few weeks.  Kiss

  • sushanna1
    sushanna1 Member Posts: 764
    edited October 2009

    How often does it change one's eye color?  My eyes are blue-grey-green and I would prefer to keep them that way.  I am afraid to use it on my lashes but would be interested in having eyebrows again.  Mine have not been normal since they fell out during chemo. My post-chemo eyelashes curved the wrong direction and grew towards my eyes so many of them had to be (at least that was what I was told at the time) removed by electrolysis.  I fear that Latisse would grow eyelashes that would head towards my eyeball again! 

  • ChemoSobby38
    ChemoSobby38 Member Posts: 66
    edited October 2009

    Electrolysis to your eye?  I can tell you that a few months after I completed my first round of chemo [back in 2006] my lashes began to grow back mostly baby soft and wispy thin and a few lashes grew in weird.  The weird lashes looked like three or four lashes had grown into one; creating a super thick lash that would curl back into the lash line.  Honestly, I just plucked them.  It wont hurt at all -- promise.

    However, this time around, it's all baby soft and growing super slow.  I just thought I needed help since this is my second time doing chemo and maybe my lashes had about all that it could handle.

    Before I go on to eye color, you should know that Latisse is a "watered down" version of Lumigen, a glaucoma medicine.

    And the eye color COULD changes because: "The iris of the eye has pigment in it, much like hair.  This pigment, or melanin in some cases of patients  using the glaucoma drop Lumigan, had their eyes become darker by the activation of the cells that produce pigment.  It was most noticable in lighter colored eyes that became darker, and the change was permanent. In the case of Latisse, it is exactly the same medication (Brimatoprost 0.03%) but if applied properly, does not go into the eye, or in very tiny amounts and there has been no evidence of it darkening eyes in the Latisse studies.  The bottom line here is if using Latisse, to use it as directed, and not get it into your eyes in the first place."

    http://www.realself.com/question/latisse-affect-eye-color

  • FACECRAFTER
    FACECRAFTER Member Posts: 1,092
    edited October 2009

    I have been using Latisse (I used Revitalash at first and switched) since it was announced.  And my clients use it. I have not had a single reaction to it, although I had several people who thought Revitalash burned their eyes.  I never had anyone's eyes turn darker, although I'm told IF it constantly gets in your eye (it shouldn't), that could happen. 

    All in all I've been using the products for 2-3 years with no side effects. I stopped using it during chemo, I didn't see the point, but I started again after the rads were over (in July).  My lashes are coning in just fine. I would highly recommend the Latisse, since it is the only one approved by the FDA.   

  • ChemoSobby38
    ChemoSobby38 Member Posts: 66
    edited October 2009

    ohhhh, that's wonderful!  Again, its only been a week but I was waiting for burning eyes and such and I haven't had any issues and it is a cinch to use!!  So tell me Facecrafter, do you have super long luscious lashes?

  • apple
    apple Member Posts: 7,799
    edited October 2009

    and if you have blue eyes?

  • FACECRAFTER
    FACECRAFTER Member Posts: 1,092
    edited October 2009

    they are thick, traditionally they go thick first then long..on some people is it the other way around.  So mine are thick and the length is coming   JUDY

  • FACECRAFTER
    FACECRAFTER Member Posts: 1,092
    edited October 2009

    My blue eyed clients are using it without incident..But they are careful not to get the product into their eyes..which you are not supposed to do anyway.     The does os lumigan- put into the eye for glaucoma, is over 200 times stronger than the dose of lumigan in the product,  You would have to use the produc IN THE EYE for 200 days to get the equivalent of one daily dose of the parent product.  I'm not saying that the color shange is impossible, just unlikely.  I'm sure there are some who won't follow directions, put on too much and get it in their eyes..And if their eyes are blue or hazel, they could get some brown spots in the eye color.  

    Either my clients are compliant or something, because as I've said I don't see these side effects at all.  I have about 150 clients using the products..You would think we would know if they had a bad reaction.  JUDY

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2009

    I am so freakin' JEALOUS of y'all! I've lost my lashes more times than I can count and now, 4 years post chemo, they are sparse and stubby, whereas they used to be so thick and long that they'd brush my glasses. And my brows...ugh!

    So I asked me onc about getting a prescription for Latisse and getting my insurance to cover it. They've been looking into it, but it appears unlikely. If I can't get it covered, there isn't a chance in hell that I could foot the $400 bill for just one fill of the prescription! So I'm hanging in there and keeping my fingers crossed...and envying those of you who are lucky enough to be deriving the benefits of this miraculous stuff!!

    ~Marin

  • ChemoSobby38
    ChemoSobby38 Member Posts: 66
    edited October 2009

    Hi Marin -  I don't think insurance companies cover it; but they should for us, right?? 

    I purchased my first bottle and it cost $117. So, $400 sounds like a lot!  Granted over time it adds up, but for me, it's worth it.  I've stopped doing my nails before chemo and I haven't gone back yet [their still a little dark from chemo] and I really don't pay for anything cosmetics since my hair is just starting to kick in and there is nothing really to do with it right now.  So I feel like its cheaper than getting my hair and nails done.  So if this works, I am just going to factor this in and not worry about the price.  This darn cancer took so much away from me and if I can make myself happy with long thick lashes ... so be it.  But at the same time I am not made of money -- so you reminded me that I would pursue to the ins company for coverage on this now so fresh out of chemo and maybe get them to cover for 6 months or something like that.  Wish me luck.

  • iodine
    iodine Member Posts: 4,289
    edited October 2009

    I began usiing Revitlalash about 3 years ago.  It took me about 3 mos. to see a change in lash length, but the difference is huge.  They arn't much thicker, so I still use mascara for going out, but I just have them tinted for every day.

    I found a source out of the country for very inexpensive (compared to other) Brimatoprost.  I just filled my revitalash tube with it and use it regularly with the tiny brush..  My lashes were not long enough for a lash curler, but now I have them brushing my glasses, they are so long.

    I agree that you can apply it with out it going into the eye.  The brush I have is only about 6 little bristles and is easy to apply  right at the lash line, and uses way less than a drop.

  • Moissy
    Moissy Member Posts: 550
    edited November 2009

    Oh, Chemo ...Totally not vain (although I was thinking the same thing about myself when I started using Latisse 9 months ago!).....Yes, it works!  I obsessively researched everything I could find out about it when it first came out. I mean I read EVERYTHING, including the lengthy reports submitted to the FDA for approval (which included before and after photos and more data than you'd ever want to read.)

    What I learned is that Latisse is just a repackaged Lumigan (the glaucoma drug). With a higher price for cosmetic use! It is the exact same formulation as Lumigan. The only reason it appears to be a lesser strength drug is that it's brushed onto the eyelid instead of being dropped into the eye so concentration is lower.

    By googling, I found women who had been buying Lumigan from two out of country sources without prescription and a fraction of the cost. The sites were alldaychemist.com and inhousepharmacy.com

    I have ordered from both with no problem. I did first get an appt. with an eye doctor to make sure my eyes were ok. And told him I was thinking about using it.

    My eyelashes never really came back in after chemo...no eyebrows either. Lashes really came in with Lumigan, but I didn't have any luck with my brows. (I'm five years out, so doesn't look like I'm gonna get much growth there. Maybe I'll try Rogaine again.

    The only side effects I have are occasionally if I put it on at night, my eyes may get a little dry. And recently I noticed that my eyelid seemed to be a little discolored, so I've cut back for a few days and it seems to be back to normal. My eyes are green, and no change to iris color.

    Anyway, glad you posted. I have not wanted to appear to be vain either, but this really made me feel a lot better starting to look more like I used to. It works!

  • ChemoSobby38
    ChemoSobby38 Member Posts: 66
    edited November 2009

    No, thank YOU Moissy!  I was getting a bit discouraged b/c there isn't much studies on African Ameican women using Latisse and although I've used this for a month and I do have lashes again, I feel like they're my normal lashes and had I just waited my lashes would look the way they do now.  I think I see one or two break out lashes but that's about it.  I have it in my head that if I don't see improvement after three months, that I would stop. But I do have lashes now, so I am not too upset about -- just in waiting mode.

    I started my second month [second bottle] this week and grumbled a little when I went to pick up the new bottle at $117.  I think I will ask my oncologist for a script for Lumigen when I see him later this month. 

    One question though -- you mentioned that Lumigen is dropped into the eye for glaucoma patients -- how do you apply for just your lashes?  I feel like the cost of Latisse is so high because of all those dang brushes they give you.

  • LJ13-2
    LJ13-2 Member Posts: 235
    edited November 2009

    Eyelashes are not like other hair/body hair. They grow VERY slowly. It takes at least 6 months for them to grow to an appreciable length.

    Personally, as a cancer survivor, I'm not interested in taking ANYTHING that makes ANY part of my body grow faster. Please. Particularly for a cosmetic issue.

  • ChemoSobby38
    ChemoSobby38 Member Posts: 66
    edited November 2009

    LJ13-2 ... hello.  thanks for the explaination on how long eyelashes take to grow, now I know that I should hang in there a bit longer.  Anyway, I know how you feel about taking something that alters it -- but think about how many drugs you take on a regular basis that make you feel like crap that alters your body as well.  So, if I can use one item that makes me feel pretty again then I am all over it.

  • LJ13-2
    LJ13-2 Member Posts: 235
    edited November 2009

    I used to have the most gorgeous long Bambi eyelashes. They still aren't back to their original length, but I too am just trying to be patient. They've been growing about 18 months.

  • ChemoSobby38
    ChemoSobby38 Member Posts: 66
    edited November 2009

    me too -- but after cancer twice and chemo twice - I was afraid that my lashes were destroyed ... so Latisse is helping ... and now I am left with 'coloring in' my eyebrows.

  • LJ13-2
    LJ13-2 Member Posts: 235
    edited November 2009
    Love the screenname, btw  Wink
  • ChemoSobby38
    ChemoSobby38 Member Posts: 66
    edited November 2009
    thanks!  you have to keep a sense of humor about all this crap.  Laughing
  • Moissy
    Moissy Member Posts: 550
    edited November 2009

    LJ, I know what you mean, and I was really concerned about using it and asked myself if I was being too vain. I read everything I could find first, including submission to the FDA on safety, history of the drugs, etc. (See link at end.) And I definitely didn't want to spend the $$ that they were asking for Latisse. Ouch!

    Of course Allergan is promoting the product, but since Lumigan had years of safety in use on glaucoma patients, I decided it was worth a try for me. Since I'm five years out from chemo plus on Arimidex and essentially no estrogen to support hair growth, my hair that did return after chemo was greatly thinned....and no eyelashes and no eyebrows at all. Of course my chin hair had no problem coming in though! What's up with that!

    Chemo - Maybe your lashes are normally growing back and you can discontinue it now. I found at 4 weeks of Latisse, I was noticing growth. By week 16, they were "normal" length lashes. For me that was such a huge improvement. I was tired of looking sick and older due to no lashes. Not saying it's for everyone. From what I read, how it works is that your hair goes through different cycles of growth and dormancy. Latisse/Lumigan reduces the dormant cycle, and increases the growth cycle. Of course as LJ points out, after BC, we are all worried about anything that might cause a problem. After reading the reports, I decided the risk seemed small enough to take for me.

    As for the brushes, Chemo, yes, they jack up the price due to the brushes...and from what I read, most people dislike the brushes that come with Latisse. Based on advice I read from others who were using it, I purchased a couple of thin eyeliner type brushes...I put one drop of Lumigan in the cap of the bottle, dip the brush in and can do both eyelids with only one drop. And it costs only a few dollars a month to buy the Lumigan online. I sanitize the brushes since I am not using the disposable ones.

    The FDA did recommend that Allergan conduct a clinical trial specifically for chemo patients. I would gladly have participated!  I was very nervous at first, but it has made a big difference for me and no problems. From a cosmetic standpoint, I don't think I am particularly vain. In fact most days I wear no makeup at all other than giving myself eyebrows. I did not choose reconstruction after my mast. because I did not want to deal with more surgeries. So I am pretty comfortable in my own skin. I might not have considered this right after my treatment because--well, first--it wasn't available then and I was focusing on other things...We all make the choices that feel right for us.  But after five years and getting my life back to kind of normal, I am glad to have the opportunity to have somewhat normal lashes finally as I have moved on. Believe me, they are just the average normal eyelash--nothing spectacular.. But after still looking sick five years later and not having enough lashes to even be able to apply mascara, I wanted to give it a try. 

     Here's a link to the full report:

    http://www.fda.gov/ohrms/dockets/ac/08/briefing/2008-4397b1-04-Allergan.pdf

     Moissy

  • shakinginmyshoes
    shakinginmyshoes Member Posts: 8
    edited November 2009

    DO IT... I used it and love it!!!  I will never be without!  Totally worth the cost!

  • shakinginmyshoes
    shakinginmyshoes Member Posts: 8
    edited November 2009

    DO IT... I used it and love it!!!  I will never be without!  Totally worth the cost!

  • ChemoSobby38
    ChemoSobby38 Member Posts: 66
    edited November 2009

    NICE Shakin'!!!!!!!!!!!!  You just put a huge smile on my face!

  • DD_done
    DD_done Member Posts: 3
    edited January 2010

    Had 4 rounds of TC ending June 08.  Eyelashes were only stubble in Mar of 09, so I started using Latisse/Lumigan.  I'm a runner and the sweat running into my eyes was painful.  My insurance wouldn't pay for Latisse, so my internist (also a runner) wrote Lumigan for me off-label.  Takes 10 or so weeks, but it works!  It grows lashes!!  They are 100% as long, thick, and dark as pre-chemo. 

    Eyebrows were very slow to re-grow, and sparse.  By Sept 09, one was 35% re-grown and the other almost non-existent - so I started brushing the brow ridge with Lumigan daily.  Now, Jan 10, I have one 60% re-grown and the other about 35% - although both brows are markedly finer and fairer than pre-chemo.

    BTW, forget arguing with the insurance company.  You can get the generic of Lumigan from Canada for $20 a month. 

  • ChemoSobby38
    ChemoSobby38 Member Posts: 66
    edited January 2010

    I keep forgetting to ask about Lumigan.  I just picked up my third bottle of Latisse.  My eyelashes are very dark and almost look like I have mascara on when I don't.  When I do wear mascara my eyelashes are incredibly long.  Everyone comments on it.  My Onc is now going to prescribe it to his other patients coming out of chemo; which makes me feel good.

    For the Lumigan users -- does it come in a container with its own brush?  I hate the millions of brushes that Latisse gives you for that tiny bottle. 

    Also, DD_done ... your eyes burn when you run?  OUCH!  Are you putting the Lumigan on before you go to sleep?  I do Latisse before I go to sleep, then in the morning I shower.  It helps wash away the Latisse from my skin and reduces the red eye.  It sounds like you're using it in the morning and then experiencing the burn when you jog because it's still on your face.  You may want to try changing your routine around ... because it shouldn't burn.  It's very easy and painless.

  • iodine
    iodine Member Posts: 4,289
    edited January 2010

    My lashes basically look a little longer than a younger woman's, but not any thicker.  At least it's now worth putting on  mascara and using a curler---they were too short for that before the drops.  Of course, I have to clean my glasses more frequently, but that' s the kind of problem to have, no?

  • ChemoSobby38
    ChemoSobby38 Member Posts: 66
    edited January 2010

    Iodine, I agree -- I remember the soft baby stubble lashes that wasn't worth the effort for mascara because the lashes were uneven or too soft.  Then the worst was gently washing off the mascara and finding so many lashes in the sink. 

    Now, I think my favorite part about Latisse is not only are the long and dark -- but strong.  I can put on a lot of mascara and gently wash it off and not a strand will fall out.  So, overall I am happy.  My lashes are now hitting my eyeglasses too and yes, I have to clean them more often, but it IS a nice problem to have. 

    My husband is astounded and wants to know if he can use it on his growing bald spot.  Laughing

    Be well ladies ... I love that we found one piece of happiness in all of this muck of a life.

  • SuzCA
    SuzCA Member Posts: 118
    edited January 2010

    I am using Latisse and love it.  I am blond, years post chemo and middle aged.  That means I have transparent eyelashes and they are sparser than they used to be.  My eyelashes have not been this long since I was a teen.  It costs between $95-130 a bottle which lasts 6-8 weeks, depending on how stingy you are with it. Rite Aid sells it for $95, dermatologist charge close to $130. I take a day or so off now and then to extend it's use and it still works well. The risk of iris pigmentation in minimal but permanent.  The only eye color at risk I believe, is hazel or light brown.  I have blue eyes and have seen no changes at all and I have been using it for about 5 months.  It does grow thicker eyebrow hairs. I have had to trim a couple that grew out too long, but that''s OK.  I believe there is research into potential use for all sorts of other forms of alopecia including balding.  If it really worked to reverse balding in men I bet there would be quite a market for it.   

  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited January 2010

    I am trying to get my courage up to start use of my bottle of Latisse. Many an episode of foreign bodies in eyes and red eye over the years, which I attribute to almost no lashes (I had taxotere). But I linger over items that make things grow.Sealed  Not planning on using in on my absent eyebrows although I'd like too.

    Best,

    Tender

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