NED with Xeloda

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dfleaman
dfleaman Member Posts: 159
edited August 2017 in Stage IV/Metastatic Breast Cancer ONLY

I just left my Dr. Office and after 11 weeks of Xeloda I am now NED.  My Dr. had to read it twice because he could not believe it.  He was going to start me on Avastin but instead It showed no NED.  I had mets to my hips, pelvis, back shoulder and liver.  It has been allost 2 years since I have not seen mets on my pet scan.  I still cannot believe it.   The power of prayer works.  I have read of others having NED but never thought it would be me. 

Give God all the Glory

Donna

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  • RobinWendy
    RobinWendy Member Posts: 1,983
    edited November 2009

    THAT IS SO FABULOUS!! CONGRATULATIONS AND ENJOY NED

    Robin 

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  • konakat
    konakat Member Posts: 6,085
    edited November 2009

    Absolutely fabulous news Donna!!!!!  Such encouraging wonderful news!!  CELEBRATE!!!!!

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  • PJB
    PJB Member Posts: 2,615
    edited November 2009

    Donna, I love to hear that! I'm just starting Xeloda again (had it in 2006, for recurrence) for bone/liver mets. Thank you for sharing and I hope you celebrate like crazy!

    Paula 

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  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited November 2009

    Donna you indeed are blessed.

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  • Irina
    Irina Member Posts: 987
    edited November 2009

    Good news!!!(((HUGS)))

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  • mthomp2020
    mthomp2020 Member Posts: 1,959
    edited November 2009

    YEEEHAW!  That is absolutely fantabulous news!  Maybe you'll be able to have a chemo break for a while.  Wouldn't that be fantastic!

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  • Nanalinda
    Nanalinda Member Posts: 826
    edited November 2009

    Congratulations!  Great news!  Thank you for sharing with us.  Linda

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  • Reneepals
    Reneepals Member Posts: 2,196
    edited November 2009

    Donna WooHoo! Thank God! WHAT A BLESSING! I hope you get to dance for a very very longtime with NED.

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  • meima-Bev
    meima-Bev Member Posts: 2,432
    edited November 2009

     Congratulations on your fantastic news. So happy for you!   Meima

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  • kirby
    kirby Member Posts: 198
    edited November 2009

    Donna,

     That is such great news for you. It makes me hopeful, because I just started my second cycle of Xeloda + Avastin and Zometa.

    I am wondering, Did you have this great success after just 11 weeks, or is it 11 cycles? Any way it is, fantastic!

    xoxo

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  • GracePang
    GracePang Member Posts: 178
    edited November 2009

    Love to hear news like this. This gives us hopes. Thank you for sharing.

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  • LiniWD
    LiniWD Member Posts: 209
    edited November 2009

    Congratulations - keep that dance going!!

    Lynn from Tampa

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  • JeninMichigan
    JeninMichigan Member Posts: 2,974
    edited November 2009

    Donna..

    Big congrats to you!!!   Such wonderful news!!!!   Heres to a very very long dance with NED

    Jennifer 

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  • Duffymom
    Duffymom Member Posts: 179
    edited November 2009

    Fantastic news!  Always good to hear of a chemo that has great results for someone.  Xeloda's next on my treatment list after Gemzar/Avastin stops working for me.

    Kathy

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  • donnabee
    donnabee Member Posts: 580
    edited November 2009

    oh Donna! such good news!!
    I just left my doctors office and after progression on arimidex, she's putting me on Xeloda. (Dear Lord, do you have room for one more Donna on your "NED on Xeloda" list?) humbley, donna b

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  • LisaSDCA
    LisaSDCA Member Posts: 2,230
    edited November 2009

    Donna - I am elated at your great news! Praise God!

    Lisa

    p.s. donnabee, I'm sure He's got room on the list for another Donna. Maybe a Lisa too!

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  • Faith316
    Faith316 Member Posts: 2,431
    edited November 2009

    Xeloda (and Tykerb) are kicking butt for me, too.  I, too, am now NED.  I have had 2 clean PET/CT scans.  I have been on Xeloda and Tykerb for 18 weeks (six 3-week cycles for the Xeloda although the Tykerb is every single day).  I am taking  2 (or maybe 3) more cycles and then having mastectomy.  (Will stay on Tykerb indefinitely.) After previously taking Adriamycin, Cytoxin, Taxol and Herceptin and also having radiation for my initial dx of IDC and then having IBC start in the midst of all that!!!!!! --- I am grateful for finally finding some chemo that has made a difference for me.  (I've been on chemo non-stop for 18 months and finally NED.)  Now, we just gotta stay that way!!!  Those of you who posted that you were just getting ready to begin with Xeloda --- I wish you good results with it as well.

    Congrats, Donna.  And, yes, give God all the glory.  

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  • LuAnnH
    LuAnnH Member Posts: 8,847
    edited November 2009

    YEAH!!!!  Such great news!

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  • Fidelia
    Fidelia Member Posts: 397
    edited November 2009
    Wow - this is the best news  - congratulations!!! and yes - there should be room on that LIST for everyoneEmotions
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  • Dee2810
    Dee2810 Member Posts: 97
    edited November 2009

    Wow....3 NED's picked up on puter today! Yippee!! go celebrate

    Dee (0: 

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  • dfleaman
    dfleaman Member Posts: 159
    edited November 2009

    Hello everyone,
    Thanks so much for all the encouraging words.  I hope this news brings many of you hopefull that are taking Xeloda.  Kirby I took Xeloda for 6 cycles dr. took me off for h/f for 2 weeks that is why it was only 11 weeks not 12.  I took 3300 a day.  The only side effect I had was h/f.  I worked every day.  I bought cotton gloves and wore cotton socks and slippers to work.  I took doxil for 3 months and had progression.  I did one treatment of taxetere and avastin and went in hospital for 10 days very sick.  I have watched many of you get goods news but never thought it would be me.  Thank you all for giving me hope.  I pray that meny of you get great news.

    Donna 

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  • respin
    respin Member Posts: 280
    edited November 2009

    GREAT NEWS!

    Can I ask what your onc's next step is - will you continue on Xeloda?

    (I'm also on it, and onc has told me indefinitely....oh and can you squeeze one more NED in your Xeloda group? - my scans are next week)

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  • 3katz
    3katz Member Posts: 1,264
    edited November 2009

    FANTASTIC news!!! And very encouraging as I just started Xeloda myself on Nov 1st. Thank you so much for sharing.

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  • mason204
    mason204 Member Posts: 570
    edited November 2009

    Great news!  Congratulations!

    I just finished my 3rd cycle of Xeloda.  I'm due for scans soon so I hope to celebrate with you.  God be praised!

    Cheryl.

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  • Maryiz
    Maryiz Member Posts: 975
    edited November 2009

    Come on all you Xeloda girls, show us the way, we all need NED.  Maryiz

    Great news, Donna. 

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  • dfleaman
    dfleaman Member Posts: 159
    edited November 2009

    respin, 

    I wanted to continue taking Xeloda but dr. said no.  He said the pet scan showed ned so no cemo.  In 3 months I will have a pet scan and if it has come back I can always go back to Xeloda.  He does not want my cancer to get immuned to the drug. He believes it will come back slow and we can try and get ahead of it.

    Donna  

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  • lukejessesmom
    lukejessesmom Member Posts: 598
    edited November 2009

    that's awesome!  gives us stage iv girls HOPE!!

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  • Bmarie
    Bmarie Member Posts: 129
    edited November 2009

    Wonderful news, Donna!

    I am in Xeloda/Tykerb cycle #7 (doing 2500/day)..had a scan and am doing well with Xeloda, too. My doctor added in Navelbine to help me along with the skin mets (they are hard to treat)...I will get a couple more cycles of Xeloda in before my next PET on December 22. I am hoping for a NED announcement, too! My tumor marker (ca27.29) is down over 100 pts to the 90's. Xeloda is a great drug if you can deal with the hand/foot. Keep that good news coming!!!!! 

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  • Maryiz
    Maryiz Member Posts: 975
    edited November 2009

    Dear NED, please come visit me.  We can date forever.  You can even have as many affairs as you want.  You are much revered.  Maryiz

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  • MJLToday
    MJLToday Member Posts: 2,068
    edited November 2009

    I LOVE NED!!!!!!!!!!!!!! Happy Dance!

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