APRIL Rads Anyone?

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2009

    Thanks, Patoo

    I know that God is blessing me. It is difficult at times to trust, as I can't see into the future. But I know it is in his hands, and he gave me Tom to be by my side.

    The CT scan today will show the state of my liver, and whether I am improving on this treatment or not. Pray that I keep my mind of the results and seek God's face so that I can rest tonight.

    Bette 

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  • marlenet
    marlenet Member Posts: 345
    edited September 2009

    Bette

    I have been reading your caring bridges page.  Stay  strong, and keep your strong faith in god.  I'm sending you prayers and hugs!  Your Tom is an amazing person, as well.  You both are very lucky to have each other.  God will carry you through this.  God bless you and Tom.

    Marlene 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2009

    How are you today Bette?  My prayer is that you have been able to leave your cares and fears on the altar of God and experience some peace.  God is still in the blessing business.

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  • marlenet
    marlenet Member Posts: 345
    edited September 2009

    Hay Bette

     How are you doing?  Have not heard from you too much.  I hope the headaches are better.

     Marlene

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2009

    A brain MRI just turned out clear, so no brain mets, but also no answers on the headaches.

    My liver enzymes have returned to normal, so I am once more able to get chemo, AND on the experimental PARP Inhibitor arm of the trial as my tumors grew on the control meds.

    I was in the ER last night with a high fever. Was released on antibiotics. It made me nervous to be there as there were a lot of people with swine flu..

    I am trusting in God for the relief of my headaches, and praising Him for delivering me from the fever and flu.

    Bette 

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  • EleanorJ
    EleanorJ Member Posts: 752
    edited September 2009

    Such great news about brain mets :) Sorry about the headaches, hopefully, they'll figure out what is cause them but so glad glad to hear it's not more cancer :) When are you set to restart chemo?

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  • bethaib
    bethaib Member Posts: 125
    edited September 2009

    Bette - Have been following your journey through Caring Bridge. Am so sorry for all the pain you are going through with your headaches. I was very relieved to read your test results. I know I haven't been here in a while, life has gotten busy with two teens and school in full swing again. But even though I haven't been here, you have been in my thoughts.....hope they are able to find something to give you some relief....

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2009

    Caroline, I am hoping to start chemo again next week. Waiting for phone call with our schedule.

    Bethaib, Thanks for following my story and caring. We are still waiting for an appointment to check on my headaches.. Today is not so bad. Still some pain, but I am upright and able to type!

    Bette 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2009
    To my breast friends,

    I got unwelcome news from the oncologist today. Skull and spine mets causing my pain, fevers may be from tumor growth. Another MRI, monthly Zometa and perhaps radiation to the spine in my immediate future. I should start feeling better as the tumors are treated. Still waiting on chemo schedule for the PARP inhibitor branch of the trial.

    Pray for God to grant me grace to get through the pain until the chemo and Zometa start to work.

    Bette 
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  • EleanorJ
    EleanorJ Member Posts: 752
    edited October 2009

    Oh no Bette, how horrible! I really don't know what to say. Cancer is just a horrible disease. I hope they can get the tumors to shrink quickly and relieve you from the pain.

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  • marlenet
    marlenet Member Posts: 345
    edited October 2009

    Bette

    I'm so sorry to hear that.  Let's pray for  you to get chemo soon to relieve the pain. Keep your strong faith!  Prayers are sent to you dear.

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  • Lainey64
    Lainey64 Member Posts: 740
    edited October 2009

    Bette,

    I have been MIA from the boards for awhile.  I'm sorry that you are in so much pain.  I will indeed pray for your speedy healing.

    Much love,

    Elaine

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2009

    Bette, so sorry for this news.  We know God is in control and you and Tom will get through this.  I pray for the quick shrinking of the tumor and relief from your pain.  Blessings coming your way - can you feel them?

    I see another ice cream party in our future!

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  • kjbell
    kjbell Member Posts: 974
    edited October 2009

    Bette-I am so sorry to hear of your unfortunate news. I will be praying for you and Tom.  If anyone deserves a break from all this cancer stuff, it is you. You have had more than your fair share of crap. Bless you, dear!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2009
    The spine MRI was incredibly painful, both in the noise surrounding my headache, and in keeping still for 45 minutes with what turned out to be cancer at levels T9 and T12 and a small compression fracture at T9. The radiation oncologist said they can do rads for 10 treatments to reduce the pain on the spine, but that the procedure of radiating the skull would involve radiating a lot of soft tissue and scary SE's. The docs have to discuss the timing of the rads, before, during or after chemo, and then we will have to make a decision.

    Tomorrow at 6 AM we leave for VA to start Cycle 3 of the clinical trial. I will start Zometa then as well. Then on Tuesday we go back there to get the PARP inhibitor, BSI-201.

    Tom has been very sweet today and is teaching me the safe use of my new wheelchair. I could not have navigated the hospital today without it.

    Bette 
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  • bethaib
    bethaib Member Posts: 125
    edited October 2009

    I'm up for that ice cream party Patoo!  The last one was good...a little lonely..but good! lol  If you are up to it Bette, maybe we can try for one again? Let us know how you are feeling and we'll go from there....

    I hope the chemo does it's thing and hopefully the fevers calm down for you. Good luck with the rad onc tomorrow...  Beth

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  • bethaib
    bethaib Member Posts: 125
    edited October 2009

    Just an update on Bette-

    From Tom:  Bette is still in the hospital, pain in her right foot and heel due to a fracture caused by the cancer in the bone. Docs are looking to radiate her heel along with her spine to reduce her pain. If pain can be controlled and bloodwork is satisfactory she might be able to go home on Monday on oral pain meds. She's been on a pain pump for her spine and has had her spine radiated.

    It may be a while till she is up for that ice cream party, but I am hoping she is able to go home tomorrow and that she's finally gotten sufficient relief from the pain.

    We'll be waiting Bette......

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  • kjbell
    kjbell Member Posts: 974
    edited October 2009

    Betty-how are you doing? I think about you often and say a prayer everyday for your health.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2009

    I am home from the hospital. Lots of pain and morphine. On Rads for spine, back and heal pain. Partial relief noted.

    Thanks for prayers  an good thoughts.

    Bette 

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  • marlenet
    marlenet Member Posts: 345
    edited October 2009

    Bette

    So happy to hear you are at home.  Prayers sent for you! 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2009

    Bette, glad to hear you are back home.  Let Tom know we continue to pray for both of you.

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  • kjbell
    kjbell Member Posts: 974
    edited October 2009

    Bette-I am glad you are in the comfort of your own home. Sending many positive thoughts your way. Bless you and Tom.

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  • bethaib
    bethaib Member Posts: 125
    edited November 2009

    Update:   Bette is back in the hospital being treated for flu symptoms/possible pneumonia. Tom said she may be home Tuesday or Wed. Let's hope for the best! Bette has gone through so much lately, poor woman, I'm sure she would rather be home again....

    Thinking of you Bette....

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  • bethaib
    bethaib Member Posts: 125
    edited November 2009

    There's another posting bettelou68 how are you?   regarding Bette with updates posted....

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    Thinking of you Bette.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    I am now home, and seriously considering entering hospice. Tom Has been a blessing, a love. Pray for relief from pain. Am at home on pain pump. Thank you, Lord

    I am finding joy in small things, like morning coffee and ice cream.

    Bette 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    Bette, thinking of you and Tom.  Prayers are going up for you.  Blessings.

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  • kjbell
    kjbell Member Posts: 974
    edited November 2009

    Lets keep the prayers going for this wonderful, sweet lady.  Bette, I hope you are resting comfortably, with Tom by your side. Bless you both.

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  • ntvinh986
    ntvinh986 Member Posts: 1
    edited November 2009

    hi guys

    Im a newbie.Nice to join this forum

    _________________

    htpp://animewatching.com

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    Thinking of you Bette and hope you are resting comfortably.  HUGS for you and Tom.

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