Bone mets to Femur? Please help!

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Vicki26
Vicki26 Member Posts: 27

Before the radiation, i had a pet scan and it showed a lesions in my right femur(But my cancer was on left breast), other than that every where is clear.  I had a X-ray and still showed that? My rad. one said she couldn't tell if is cancer or not, and wanted me to have a bone biopsy to see what is it. I am so scary while waiting for the biopsy. But i had partial mastectomy and axillary dissection on Sep. and they found no cancer on it.( I had completely response to Chmeo). My questions are is there any one have bone mets to femur? Can breast cancer mets to the other side of the body? 

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  • Nanalinda
    Nanalinda Member Posts: 826
    edited November 2009

    I don't have mets to femur, but in multiple lymph nodes and my spine.  In answer to your question, yes, mets can appear anywhere in the body even the other side.  Have the bone biopsy, then you will know for sure if it is mets.  I hope that it is not.

    I had a partial mastectomy with no lymph node involvement, but I still got mets.  I have been very disturbed by multiple posts in these threads saying that no lymph node involvement is key... that is not so.  I believe in hope, but I don't like to see women receive false hope that all is well simply because they did not have lymph node involvement... I was there... I was so relieved when they told me there were no lymph nodes involved.  Imagine my surprise almost two years later when I was told I had mets.  Linda

  • hollyann
    hollyann Member Posts: 2,992
    edited November 2009

    Unfortunately yes you can get mets on the other side.......There are a few ladies on the mets board who have mets to the femur also.......Also the girls tell me that bone mets can be maintained with Zeloda and that you can live years and years with bone mets....I actually had the pleasure to meet a lady who has had bone mets for 19 years and she is going strong........I wish you well.....



    Nanalynda, I am so glad that my feelings are validated about no node involvement and mets......My oncologist even says she cannot say if or when I will develop mets.....Although she does say I have a low recurrence rate she cannot rule them out entirely........It makes me sad that some people will tell you that if you had no nodes involved you can't get mets........I wish you well also, dear sister.....I am the 5th in my family to have bc.....My youngest sister who is 5 yrs older than I had stage 3 and one older sister had stage 4...We lsot our mom in 1972 and our grandmother in 1976.........athe younger sister and I are doing well so far.........

  • Vicki26
    Vicki26 Member Posts: 27
    edited November 2009

    I will have  bone biopsy tomorrow. I hope there is nothing related to cancer. But i wonder why I just finished chemo on Aug. and it kill the cancer in the breast and in the lymph nodes, but why  it can still met to the bone? 

  • lexislove
    lexislove Member Posts: 2,645
    edited November 2009

    Sometimes the cancer cells have already set up shop. Before you started or during treatment In your case, the femur.

    Cancer cells can also be resistant to chemo. There are woman on the Stage 4 forums who have a lot of info. they may be able to help you!

    Be well.

  • cmb35
    cmb35 Member Posts: 1,106
    edited November 2009

    Unfortunately, no one can tell us that whether or not we will get mets. While having negative nodes is certainly considered a positive thing in general, it is by no means a guaruntee that you will never ever have a recurrence or mets. Cancer is a funny thing, and it doesn't always act the way the docs expect it to.

    If it helps you any, I have had bone pain in my right shin ever since chemo for my left bc. No real explanation for the pain, but no biopsy yet. At this point, I just try to ignore it.

    There is a Forum called "Not diagnosed with mets but worried", or something to that effect. That might be a good place to voice your fears about having mets. While it is not my place to tell you where or what to post, there has been some upset feelings on the boards lately, and on the stage IV board in particular. So, just a friendly tip - it's upsetting to have someone come to your "home" and say, "I'm terrified of becoming you, please reassure me that it won't happen." And honestly, no one can reassure you of that anyway.

    The very best of luck to you, here's hoping your biopsy is B9, B9, B9!

  • Vicki26
    Vicki26 Member Posts: 27
    edited November 2009

    Thank you so much! Ladies.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited November 2009
    Also, about the lymph nodes, there is an entire system of nodes that drains under your sternum and is difficult for a doc to reach during surgery. So they don't take any of those out. They are either intra-mammary or something else I can't remember....Undecided
  • ravdeb
    ravdeb Member Posts: 3,116
    edited November 2009

    I remember reading once that with triple negs it doesn't really matter if you have node involvement or not. And besides..it can spread vascularly.

     Also..according to the recent study written on this site, your doctor can write "node negative" when there is an isolated cancer cell in your lymph nodes. THAT, I did not know!

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited November 2009

    That's what happened to me! I have ITC's and micro-mets in my lymph nodes but he considers me node-negative. I don't!

  • violet7
    violet7 Member Posts: 180
    edited November 2009

    Vicki,  I empathize.  I wish I had more to give you than that.  I have a PET Scan tomorrow.  I start chemo the fiest week of December.  My thoughts and prayers are w/ you.

  • cmb35
    cmb35 Member Posts: 1,106
    edited November 2009

    Me too on the "onc personalized" staging! I had micromets to one node, and despite being staged at II by everyone else, one onc said, "I just consider it stage 1 when it's just a few cells..." 

    How nice for him that he has his own rules!

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited November 2009

    Mine was by my surgeon, not even an onc!

  • Titan
    Titan Member Posts: 2,956
    edited November 2009

    I am one of those people saying that node negative is good...I never ever meant to imply that mets would never occur...I just know that my BS woke me up from my lumpectomy, grinning from ear to ear telling me that I had no lymph node involvement...then my cheme Onc told me before I did chemo that having no lymph node involvement was HUGE...

    I certainly don't live in la la land thinking that this is over in any way,...in fact I have probalby turned into a pyscho freaking out about every pain..

    I never can seem to find the recurrence rate for TN's anywhere.whether lymph node involvement or not...is it that bad????

    Good Luck to you Vicki...Would be surprised if it was anything so soon after chemo..but I have had a couple of scares too!

  • cmb35
    cmb35 Member Posts: 1,106
    edited November 2009

    Titan - The one guarantee with breast cancer is that their are no guarantees! I think that's the hardest part of this disease, and why so many women are on anti-anxiety meds. No matter what your stage/status, there is always a chance of recurrence/mets. I think we all live with that fear in one way or another.

    I didn't mean to imply that you (or anyone) assumes that because they had negative nodes they can't get a recurrence.

    Printed words don't always come across the way we intend them to, so I just wanted to make sure it was clear that there was no "scolding" or any negative emotion attached to my post!

    (And yes, when I found out my cancer had spread to my nodes, I started shaking from head to toe. I made my rat bastard ex-fiance lie on top of me to try to stop my body from quaking. But here I am, almost 5 years later, doing great, and happy to feel like I have removed two cancers from my life - the breast cancer and the rat bastard ex-fiance! LOL)

  • Titan
    Titan Member Posts: 2,956
    edited November 2009
    cmb35....and hopefully neither one comes back!  Yell
  • SuzShea
    SuzShea Member Posts: 8
    edited November 2009

    Yes, mets can definitely show up anywhere in your body.  I was dx in 04/07 with Stage IV breast cancer which spread to my ilium.  They did a bone biopsy just to make sure.  The biopsy went fine and I can honestly say it did not hurt.   As of today, I have mets throughout my skeletal system and I feel fine.  Hang in there and I pray everything goes well.  Stay in the present and don't look too far ahead in the future.

  • Titan
    Titan Member Posts: 2,956
    edited November 2009

    SuzShea...you are exactly right!  To stay in the present...I'm going out and having FUN now!  I'm not putting anything off until tomorrow...just because....you just never know...And I'm .trying very hard to hope that I don't get mets..but if I do I will deal with it...all of usl..no matter what type of stage we have or what type of cancer we have..are going through the same thing...

  • Vicki26
    Vicki26 Member Posts: 27
    edited November 2009

    I did a Bone Scan and came back there is something in my femur too. The report states the findings remain nonspecific and metastasis is no excluded. The doctor told me it can be cancer or something else and i need a bone biopsy to confime that. And i don''t know when i can get my biopsy done. Waiting make me so scary.

  • Calico
    Calico Member Posts: 1,108
    edited November 2009

    Vicki,

    I have an enchondroma (benign growth) in my femur, it was visible on my first bone scan (2005) but not reported, later showed on a PET and I got another bone scan which shows 'similar'.....nobody (onc, radiologist that read bone scan) seemed concerned.

    What was the uptake on the PET? (there is a higher SUV value that they associate with cancer)

    In my case the SUV was low. Still p***** that nobody said anything before...something like this is stressfull.

    Sending you hugs and vibes, hoping that it is a benign growth!

  • hollyann
    hollyann Member Posts: 2,992
    edited November 2009

    Titan, I must disagree with your assessment that no matter what stage we are we are all going through the same thing......Our stage 4 sisters are going through a whole lot worse than we are.....They are going through more chemo and tests than we are and also they have less time here than we do......To say that we stage 1 ladies are going through the same thing as the stage 4 is very incorrect.......I once thought the same as you when I was first diagnosed but I have since learned we are a whole world apart in what we deal with compared to the stage 4 sisters......

    Vicki26, good luck and prayers for B9.......

  • Vicki26
    Vicki26 Member Posts: 27
    edited November 2009

    Hi Calico,

    I don't know about the PET because i didn't get the paper from my onc yet. But on the Bone Scan, it said there is mild increase, somewhat patchy radiotracer activity in the right mid-to-distal femoral diaphysis correlating. Do you know what does mean?

  • tibet
    tibet Member Posts: 545
    edited November 2009

    Vicki

    When can you get a bone biopsy? Push for it. Did your path report say you had vascular invasion? Usually bone mets are caused by vascular invasion. 

  • tibet
    tibet Member Posts: 545
    edited November 2009

    Nanalinda

    When you first dx and had surgery, did they take many nodes out? I saw your signature saying 1 node out and recurrence in nodes. I read before, 6% women with sentinel node negative can have the cancer skipped the sentinel and went to other nodes. So Sentinel node biopsy has 94% accuracy. So I think it might have been good just to take many nodes out first round that's what I did.

  • Nanalinda
    Nanalinda Member Posts: 826
    edited November 2009

    newalex:  I had a sentinel node biopsy at the time of my surgery and it was negative.  It took almost two years for the mets to show up, but they were in the nodes around my collar bone and throughout my chest on the side of my surgery.  They were also in my mid chest (mediastinum) and in my spine.  Just 6 months previous to the mets, I had shoulder surgery on that side and had xrays and an MRI which showed nothing.  The Dr. who did my breast surgery was a very prominent breast surgeon and very experienced.  He was very happy I was node negative, but he told me I had a "nasty" cancer.  I thought I was home free since the sentinel node was clear.  I also have TN and a basal tumor which were working against me.  I get upset when I read on these boards messages to newbies that "no nodes are key" when indeed I know from my own story that that is not necessarily true.  Then I am torn about posting my story and dashing their hope (which I don't want to do), but I want them to be informed about what can happen.  Linda

    Edited for spelling.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited November 2009

    Linda that is a very valid truth that has to be repeated. I think even a lot of docs take it easier when someone is node negative. There is a whole thread of the controversary of treatment being taken lightly on those with negative nodes. Knowledge is power, not fear. Thanks for the reinforcement!

  • Nanalinda
    Nanalinda Member Posts: 826
    edited November 2009

    And my Docs were aggressive because I was TN.  I had a partial mastectomy, dose dense TAC, and Rads.  I know everything was done to prevent a recurrence, but it happened anyway.  You are so right barbe.... knowledge is power.

  • Vicki26
    Vicki26 Member Posts: 27
    edited November 2009

    Newalex,

    I don't know when is the bone biospy yet. I didn't have vascular invasion on my path report becasue on my path I had complete reponse to Chemo they didn't find any cancer left in my breast and nodes. It just two month ago. I don't knwo why it would met to fumer so fast?

  • tibet
    tibet Member Posts: 545
    edited November 2009

    Vicki

    Maybe there were cell travelled into blood before the mast and chemo. Did you have a PET scan prior to chemo? 

  • Titan
    Titan Member Posts: 2,956
    edited November 2009

    Ok..ladies..I read your posts above...and I agree with what you have said.....however, there is always a however...I'm really trying to think here...there is always a chance of reocurrence..whether you are node negative, estrogen postive, stage O or whatever......certainly in no way insinuating that because a person has no positive nodes they are home free...I wish that were TRUE....however (there I go again)...no positive nodes does have a better prognosis...just like a smaller tumor.

    As far as Stage 4 ladies...we are in the same place...we are on the board because we have BREAST CANCER.....I do not read or post on the Stage 4 threads at all...maybe someday I will there myself...I don't know that....but it may happen...it is not a certainty..however...I don't go there to offer my sympathy because I HATE it when someone offers me sympathy or says "How are you...in that whining type voice...

    I'm not one of those positive pollyanna type people either..I listen to my doctors...You just can't believe everything you read on here...good or bad...no one knows who is going to get mets..or not....but..I hope and believe. that most of us will go on to have longer, quality lives...or if we don't....the damn it..go out and have some fun now and don't post on these boards..

  • Nanalinda
    Nanalinda Member Posts: 826
    edited November 2009

    I truly hope that no one on these boards gets mets, but everyone needs to know it is a possibility.  Titan is right... having no positive nodes does decrease your chances, but there is still some risk for all.  I started out stage I in 2006 and in 2008 I was stage IV... totally shocked that it happened.  Knowledge is power.... yes, don't believe what you read on the boards, but instead research and learn everything you can about your cancer.

    Vicki:  Have you gotten a date yet for your biopsy?  Linda

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