Symptoms Question

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Pat634
Pat634 Member Posts: 271
edited June 2014 in Just Diagnosed With a Recurrence or Metastasis
Symptoms Question
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  • Pat634
    Pat634 Member Posts: 271
    edited October 2010

    Can anyone tell me what symptoms they had regarding both bone and lung mets?  Thanks!

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  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited November 2009

    Some times nether have symptoms.

    My came in the form of muscle type pain.

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  • konakat
    konakat Member Posts: 6,085
    edited November 2009

    Hi Pat -- just like Fitz said, sometimes there aren't symptoms.  I didn't have any for my liver mets.  Often only a scan can tell if you have mets, especially when they are small.

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  • 3katz
    3katz Member Posts: 1,264
    edited November 2009

    My bone mets were found when I exhibited knee pain. Thought it was cartilidge or meniscus (sp?). Figured I injured it from over-exercising and being over 40. None of the other mets that showed up on the scans had symptoms. Here's a word of advice: Normally PET scans are "from eyes to thighs." If you are having knee pain, insist on the scan to go below the knee! It is not common practice and I have been told many times it is rare to get cancer in the knee or lower. Yeah . . . right . . . I have lesions at the base of both femurs, in both tibias and in the left ankle. Of course I never have been normal . . . Wink

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  • Chelee
    Chelee Member Posts: 513
    edited November 2009

    I have bone mets to femur, ilium, axilla, sacrum.  As far as my femur goes I've had pain off and on since first dx.  In fact first baseline PET/CT lit up on both hips.  It was recommended TWICE to do bone scan or MRI to rule out metastasis.  But my onc always blew me off and wouldn't do it.  (Saving money..profit over patient!) 

    Now I find out almost 4 yrs later my right hip that I've complained about the most has a large mass on it.  I'm scheduled for surgery next week to avoid a hip fracture.  I've heard from some womenn they have constant pain if its bone mets...but that is just not always true. Obviously it can be very different for all of us.  Like I said...my hip pain has come and went.  Other times they were killing me.  Now the last 6 or 7 months I've had my right ankle and foot swelling up really bad...plus its painful!  I asked my onc if that could be bone mets too in ankle?  She said cancer can go any where but its REALLY RARE to go to the ankle/foot.  Well I just saw a "Orthopedic oncologist" and he said it is NOT that rare...and YES I can have cancer in that ankle.     

    This ortho onc has ordered a "head to TOE" bone scan.  So I pray they don't find a bunch more places of bone mets!  Oh yea...I've also at times had sharp stabbing pains in the ball of my foot on the bone mets side.  It really hurts when it happens!  I've also had pain up by my pubic bone and thigh area on the same side as the bone mets.  Some days that pain is mild...others its really bad...then sometimes I don't have any?  Go figure.  In order to know for sure you have to have scans.  And please don't let you onc deny you scans if you are truly concerned about bone mets or lungs.  Be very pro-active!  I do NOT believe I would be stage IV right now had I stayed on top of my onc and not taken no for an answer.  No one knows our bodies better then us...so speak up when your concerned...it could save you alot of misery, grief, and pain.  Its hard when you TRUST your doctors and they don't always have your best interest at heart.  (Sad to say but true...not in all cases...but far too many.)

    Chelee

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  • ElaineD
    ElaineD Member Posts: 2,265
    edited November 2009

    What symptoms do you have that are concerning you Pat? I assume that you must have some? But I have to say that I had no symptoms with both the mets to pleura, and bone, so it's as true to say that mets don't have symptoms as it is to say that they may present in  certain way. My bone mets are to my spine and collarbone, but they give me so little pain that they are not being treated at the moment-we're much more concerned with the mets in my liver and pleura!

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  • Pat634
    Pat634 Member Posts: 271
    edited October 2010

    Well I am also on Femara so I dont know whats going on. My tumor markers were up 3 points (from 37.5 to 40.5) and my onco considers 0 - 40 in the normal range so since I am 1/2 point over we are doing a "wait and see" thing until I see him again in January. I'm having lots of stomach upset (stomach pains, reflux, etc) , a pain in the rib where it joins the sternum just under the affected breast and here tonight I have middle, upper back, and left shoulder pain. Finding out about the TM going up really has stressed me out and my sister (whom I live with) may have Cushings Disease and may require surgery soon.

    The Oncologist also said that one of my liver enzyme counts was up but the others werent so we are watching that as well. Stomach pain is on the left side and I believe the liver is on the right side.  Maybe I am just freaking myself out.....

    I've had emphysema for a few yrs now (quit smoking 11/4/06) so I always have some trouble with getting winded with almost any kind of activity.

    Like I said, its hard for me to figure out whats what.

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  • konakat
    konakat Member Posts: 6,085
    edited November 2009

    Hi Pat -- I understand the worry and freaking out bit -- any pain or illness automatically makes us think the worst.  I'm glad your onc is keeping a watch on you.  Are you due for any scans?  It would be good if you could get a PET or CT or whatever to check things out and hopefully put your mind at ease.  Please ask for a scan -- emphasize to your doc that you need to have some answers.  It's horrible to have this worry!  And, of course, I hope it's all run-of-the-mill aches, nothing scary.

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