Did any ladies get ovarian suppression?

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hlya
hlya Member Posts: 484

Did anybody out there who was on Tamoxifen for a while but didn't get much/any SEs and had to take ovarian injection?  What did your doctor say and what did you feel?  Did you get bone loss?

Comments

  • Fidelia
    Fidelia Member Posts: 397
    edited November 2009

    Hi Hyla,

    by the time I was given tamoxifen I was at Stage IV - so they had to hit it with ovarian suppression/Zoladex as well as I have ER+ PR+ and HER2- disease and despite it being widespread the onc thought my best chance was with hormonal treatment - but the ovary suppression shot was (and still is) vital to stop oestrogen being produced - or at least reduce it. I was 37 at the time and I went from being very strong and well to being, well...not so strong. I went into menopause with the second monthly injection and there I have remained - getting gradually slower with arthritic pains and a few other side effects which I would probably have not experienced until I was much older - but then without this treatment - I would never have got there...its a tough gig and the decision for ovary suppression truly depends on just how hormonally dependent your disease is - if it is highly dependent and you are young - 5 years of suppression and tamox may be worth the SEs - good news is - SEs go once you go off meds - of course at Stage IV - that won't happen for me - but caught early the thinking is treating you with oestrogen deprivation for 5 years gives your body a chance to overcome any lingering cells - I also noticed that if you keep up your exercise and watch the carbs - the effects can be minimal - as for the bones - depending on your age and build and your response to the treatment - you may experience very little loss - or if you experience significant loss - and they will test this - you could taken bisphophates to counter act this or seriously - eat yoghurt and walk to keep up the density - sometimes it is as simple as that....you are in a tough place being young and probably not feeling as though this is worth the SEs - I was in the same position and told no nodes involved - I did not bother with adjuvant treatment - I am bothering with treatment now!!! Good luck

  • hlya
    hlya Member Posts: 484
    edited November 2009

    Hi, Fidelia,

    I am so sorry to hear it!  Were you dx at stage IV or were you dx at early stage but you didn't take any hormone treatment?


    Thanks for the info. they are very helpful.  But my ONC told me the longest time of taking injection is 3.5 year and it can't be longer than that.  I am wondering what's supposed to do after 3.5 years,  - surgically remove the ovaries? hmmmmm

  • cancerkicker
    cancerkicker Member Posts: 99
    edited November 2009

    I did injections for 5 years with stage 1 bc.  After that, they cut me loose. 

    My cancer did come back 8 years after original dx and so I had my ovaries removed. 

    Jessica

  • Lauren3
    Lauren3 Member Posts: 289
    edited November 2009

    I just started Lupron injections and will be starting Tamox. as soon as rads are done... I'm 33 and I was 88% ER+.

  • lexislove
    lexislove Member Posts: 2,645
    edited November 2009

    Ive been on Lupron + Tamoxifen since June 2008...

  • hlya
    hlya Member Posts: 484
    edited November 2009

    Thank you all!

    Lexislove,  did your doctor recommend it to you or did you request for it?  What's your ER/PR %? 

  • Fidelia
    Fidelia Member Posts: 397
    edited November 2009

    Hi hyla,

     I have been on Zoladex - which seems to be similar to Lupron for over 6 years - not sure why your onc was so sure it could only be taken for 3.5 years - it is still working for me....and yes I failed to take tamox at initial diagnosis - I was told the surgeon had got it all and early so treatment was really optional - well - not really :)

  • dieAngela
    dieAngela Member Posts: 5
    edited June 2010

    I´m on Lupron since september 2009

  • Kathy39
    Kathy39 Member Posts: 8
    edited January 2012

    I am on Lupron and Tamoxifen since May 2010

  • 88Jessica
    88Jessica Member Posts: 4
    edited June 2014

    I am on Lupron and Tamoxife since 2012

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