No BIG deal... (yeah right!)
I'm not sure if there is a post about this already or not but I didn't see one. And I really need to vent!!
I'm so sick of people acting like BC is no big deal and acting like it's no worse than having a cold or the flu. When I found out I had breast cancer, I turned to my family and friends only to be royally let down and disappointed. Below are some of the responses I got...
1) Well it's not like your going to die or anything, no one dies from breast cancer anymore.
How wrong they are... woman are still dying from breast cancer just because more of us are surviving doesn't mean we aren't afraid that we aren't going to win the battle. (Sorry this one still ticks me off... I hear it about 10 times a day)
2) Oh I have a friend who's sister in law's, cousin who had breast cancer and she's fine now, so you have nothing to worry about. *Note they have never even met this person let alone spoke with them*
3) So what did you do to get breast cancer?
And the one that still makes me mad, sad and end up in tears.
4) Well look at it this way... you'll get new boobs and lose some of that weight with chemo. *Yes, I have some extra weight on me but not once did I think of chemo as a diet plan!*
I'm not sure if they meant well or just didn't know what to say so they said the first thing that came to mind. All I do know is that it hurt like hell to see and hear how flip people are getting about cancer period. These people were suppose to care and love me, not make me feel worse and more alone than ever.
Has anyone else gone through this or am I alone with having to deal with uncaring and rude people?
Comments
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Jeez! I'd be ready to give someone a six-pack of whup-ass if they said something like that to me. I did have people who acted like it was no big deal at work, but no my family and friends.
On the other hand, it's really bad when people act like you've got one foot in the grave, too.
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You are not alone! I've had all of the above said to me (except the chemo comment since I didn't do it.) I try politely to set people straight when they say things that are flat out wrong; such as pointing out that over 40,000 women a year die from this disease and that no one knows what causes BC. And, I try to explain the fear that breast cancer patients will ALWAYS feel about recurrence. I do get rather snippy sometimes when I think someone is being truly idiotic. I was once told, "I wish I could get a boob job and have my insurance cover it." She got an earful!!
Although organizations like Komen do amazing work raising money to fight this disease, the sea of pink survivor shirts that everyone sees on TV or at a race gives the impression that breast cancer is a disease that most can "survive." Although many of us will survive, I do feel some responsibility to educate people about the toll breast cancer takes.
I don't know that people are deliberately uncaring or rude. They want to be encouraging, make you feel good, see the bright side, find the silver lining, etc. But, they just have no idea how we feel. So, they say stupid things. I'm sorry all of those things were said to you. (((hugs)))
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I think it's all a combination of things. Most of all, I think that cancer, particularly breast cancer, has been made commonplace by all the attention it has gotten. The fact that there are the faces of celebrities attached to breast cancer make it even more of a common thing. I think people see these female celebrities who have "survived" it and are rarely, if ever, seen in their darkest hours and think as a result of it that breast cancer is no big deal. The "ooh, look how good Suzanne Somers looks!" or "wow, Melissa Etheridge is back performing already!"
As for losing weight on chemo. Not me! I've gained weight. Maybe people see us as looking healthy compared to the stereotypical chemo patient in the past, frail and thin.
Southport, I love that you are trying to explain the fear we will always have.
Luckily, I'm out of state for my treatment and not having to deal with some of the people I've been working with. I responded to an email from a co-worker explaining to her that although the nausea from chemo has been absent, that the fatigue, fear and depression has not been absent.
From what I've read, it sounds like we all get the comments about getting new boobs. I don't get that one. I was quite content with my original breasts, why on earth would I have wanted falsies?
Overall, I think most people just don't take time to think before they make comments about our cancer.
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I think people believe they can lift our spirits with what they think are positive statements. They just really don't know what to say sometimes so ignorant statements come flowing out. For the most part, they mean well. Then there are the really stupid SOBs like the one southport wrote about. Yikes!! And as desdemona222b wrote, it is just as annoying when your treated like you have one foot in the grave.
It is sad that the people that should care the most act like morons. Is it because they are rude or are they so uncomfortable and/or scared for you that they think joking will help. Unfortunately they are failing miserably at it. When planning my reconstruction I did joke that "I can get those DDs I've always wanted" just to lighten the situation. It made it easier to discuss the surgery & process with friends & family - for them and me.
I did get the "lose weight on chemo" comment and fired off with that really isn't a great diet plan. And what REALLY sucked was I gained weight during treatment. Sigh . . .
So, MsMarilyn, you are not alone. That's why this is such a great site. We all need to stand by each other.
Ignorance is bliss so that explains why certain people are always happy.
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Thanks for all the comments... I have to say that I'm glad that I'm not the only one that has had to deal with comments like these.
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Hi MsMarilyn! Just don't LTBGYD! Sorry, but that's what those people are! Those comments are just plain rude & un-called for....EVER! As you get older, you will learn, that some people simply have no class, & they think their comments are either funny or needed! TELL them! Tell them "that was a stupid thing to say"....and walk off! They don't deserve your friendship or your company....Just stay confident in yourself...WE know how you feel...just us girls! And we'll alwlays be here for you! Hugs, kiddo!
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Jeannette, that's exactly what I plan on doing. I'm no longer going to just shrug it off or ignore them. I'm going to let them know just how their words hurt and anger me and other people that are dealing with the same issues.
Thank you all for the hugs and support!
Marilyn
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You GO girl! Just carry yourself high, keep a good sense of humor, & understand that this world just has mutton-head people all over it! But don't let them get to you....whether it is about your breast issues or ANYthing in your life, just stand up for yourself, & carry dignity in your heart! Just look at all your "friends" here, with these posts! We are all here for you, holding you up with angel wings! Breathe deep, put on that beautiful smile, & know you are not alone! xoxoxoxo
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Yes, I've heard them all; especially the one where they think you can bounce back like Lance Armstrong. And I did gain weight on the chemo.
That's why I process alot of my hurts and fears with a psychiatrist. I just don't think other people who have not gone through this can fully relate. And I do THINK that some people don't know what to say.
Take care of yourself.
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Just got back from having all the pre-op testing done. Was just about to leave when I seen a Cancer Support office... being nosy (and yes I'm VERY nosy) I went in to see what was going on. And WOW!!
The ladies in there was great! They having a support group meeting every 2 Wednesday 5-7, they offer psychiatrist counseling and spiritual help if you want it. Free wigs, wraps, bras and so on if your having your treatment done there as well.
I'm sooooo glad I looked to my left when I was leaving.
*Just thought I'd share*
Marilyn
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