Starting Chemo October 2009
Comments
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Valerie, I do have good co-workers. More people are coming by to see how I am doing, some I haven't seen in years. I have worked there 23 years, so just about everyone knows me.
Congrats on finishing tx #2. I will be there with you next week. I don't know whether I want it to hurry by to get it done, or enjoy all the good days in between. What a fickled person I am.
Hope you have gentle ses.
Juannelle
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Hi JUANNELLE
I'm happy for you ,that your work mates are making you feel special I'm doing my #2 also and Ive been having really good days expert the crying that happens all the time , but I'm not looking forward to next Friday cause its back to square one again but I'm going to bake a cake to take and share it with every one, they seemed so friendly and some just wanted to have a chat so I'm going to make the most of it .
Joanne
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Joanne, I went through some pretty emotional days about 5 or 6 days post tx. I cried over everthing. Other women have said they do the same thing. I haven't been emotional this week and I hope it stays that way. But if it happens it happens.
Eat a piece of cake for me.
Juannelle
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Joanne, cake is a great idea! I brought donuts for the nurses last time - I figured anything I could do for this group of women that would be taking care of me for the next 5 months would be good! Yesterday in the treatment room they had mini-cupcakes. I ate one, even though it had pink icing!
Juanelle, I'm glad you're doing better this week, and it sounds like you have a great place to work.
Well, I'm feeling optimistic about s/e's this time - NO nausea or vomiting, and NO headache! They loaded me up on the anti-nausea meds, and they are definitely much better than compazine alone. Just fatigue - I fell asleep at 8:00 last night, and it was hard to drag myself out of bed 10 hours later at 6:00 this morning. I have to go get my Neulasta shot today, and I'm going to try the Claritin, maybe it will work too! When does the pain usually start after the shot?
Peace...
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Shelby - take the Claritin one hour before the shot. If you are doing the 12 hour Claritin, you don't have to be diligent to the hour, but make sure you take one both morning and evening. I did this for 1 week and have had zero pain this time around.
And Good Morning to you All - I am really, truly headed to MEXICO this morning! Should have internet, so I may even be able to send some pics! When I cracked the henna paste off of my head, the stain was light. It is darkening up now, so you will be able to see the tattoo.
I bought a bathing suit yesterday because I realized I didn't have any that fit the "no boob" me. Almost started crying right there in Nordstrom. My chest area just looked horrible. Thankfully, my shopping gal helped me find something that didn't suck the air right out of the room. Unfortunately, it still looks like I'm giving birth to the alien baby, but that is really fat and I can't blame that on cancer. OK, I'm blaming it on the steroids.
The reason I say this is so that you all can be prepared if you go shopping. I think if I had just mentally prepared myself for the sight, I would have done better. Yes, I've seen myself with the shirt off a hundred times since surgery, but there was something about the bathing suit that just hit me. I'm supposed to have cleavage - lots of it from the perky DD here - and to have nothing was jolting. And worse than nothing since left foob (cancer girl or Venus) is in my armpit and right foob (necrosis side or Serena) is pointing toward my neck. And my skin is right down to the sternum, making it look like I'm anorexic from the boob area up. (Not below, because that is the domain of the alien baby, and will be fixed at implant exchange, as assured by my wonderful PS)
I think I recovered ok with the help of my shopping gal and my friend who was with me. I got a suit with a bandeau (kind of tube) top, that ties in the back. Fully covers the underarm area and the other weird area. It was just an unexpected jolt of cancer fear in what was otherwise a really nice day.
I need this vacation! I am sending big, warm, ocean scented hugs and love to you all. Minimal s/e's to everyone, uneventful stressfree tx's, and lots of moments where you can just remember the person you are and the people who mean the most to you!
Laura
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Oh Laura, have a fabulous time in Mexico! You may have mentioned before where in MX you are headed, but I've forgotten - where will you be? I hope you have great warm ocean weather! I'm sorry about the trauma of suit-shopping - as if it weren't traumatic enough! I have to say you put a smile on my face with your description of the alien baby. I'm not laughing at you, I'm laughing WITH you! And it was great to have such a helpful salesperson.
Peace...
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Laura, hope you have a fabulous trip! Sitting on a beach (minus the bathing suit...I don't mean wearing NOTHING, but minus the anxiety of a bathing suit!) that sounds fabulous.
My port infection is looking a bit better and is a lot less painful. Thank goodness for antibiotics!
I wanted to chime in another voice about franceluxe.com. I used the e-mail address Brenda posted on page 32, and Laurie replied today! It almost seemed to good to be true, you know? I picked out this one: http://www.franceluxe.com/pc/L3083X/headwraps/index.html
Laurie (laurie@franceluxe.com) said it would take about four weeks. I can't wait...I have some basic cotton ones already from softhats.com, but this one looks just gorgeous!
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Ladies, I was having a bit of a panic attack earlier...My husband won tickets to an NHL Hockey game tonight and we are going...here is the thing, I am freaking out thinking of all the sick/germy people that will be there...Does any one else have these freakout moments?
My chemo is set for tomorrow so I guess my WBC is good. No news is good news I guess. Funny to, I am as nervous as I was the first time. The onc said I should react the same as last time. And last time it was a breeze...But I am still a little nrervous . Oh the stress..I will be happy when this week is over..
Went out and checked out wigs...how strange a thing to do..I did manage to pick one that I didn't mind. and they are ordering me one in a different color as well, to choose between the two. It was hard. I want something close to my old style, yet I want something different. Perhaps I will get this one and then order one on line as well for fun....Any good sites that you ladies liked?
gotta go..
Michele
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HI ladies
MICHELE
i know the fear feeling , just try to turn this negative into a positive if your S/Es weren't that bad last time and your onco said it should be the same ,keep that in your mind take some one who will be positive and fun with you and make the most of the few hrs that you will be there do some nice fun things while your there YOU WILL BE OK
LAURA
Can i come to please please please , Mexico wow over here in aus Mexico is such a long way away and thats what i want now ha ha have a fab time girl, from what i get from you i have no doubt you will have a ball you sound like such a bubbly fun person ,good to have around.
JOANNE
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HEY
Forgot to mention my hair Delmer , Ive cut it really short in prep ,and its only thinned out a bit in the front, around my hair line and my scalp isn't sore or anything nothing much is happening !!! i tell you ill be one pissed of person if by chance ill be someone who doesn't loose their hair with chemo ,funny i was pissed off when i found out that i was going to loose my hair ,oh boy the mixed emotions !!!!!!!!
Joanne
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Joanne...we're da@ned if we do, and da#ned if we don't!!
Laura, have fun in Mexico.....glad you made it through the suit horrors.
Mechelle, I get that way, but then I talk myself down. If I try not to touch, use hand sanitizer, and move away from anyone with a cough, I figure I'm doing what I can and I just can't quarantine myself for 4+ months. Plus, white cells should be up and ready for next time, right? Hope your SEs are as mild or milder than before.
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re: lint roller...I was in the bathroom tearing at my hair with the tape for about 45 minutes. I guess from the outside that sounds kind of funny, but it really hurt.
Anyway, 2nd tx tomorrow and kind of apprehensive, but I don't want to be the little crow of doom (as opposed to bluebird of happiness) so I'll check back tomorrow.
Be well and easy to no se's to all,
Sido
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Sido, if it's any comfort, my second treatment yesterday has been worlds better than the first. I hope that yours will turn out as well! I'm sorry about the hair issues, I'm still in that stubbly phase which is really annoying - I just attacked my head again with the electric razor. It can be very frustrating! Gentle hugs...
Michele, your WBC should be pretty good considering the timing - I went to a college football game last Saturday and had no problems, just made sure to keep to myself as much as possible.
Take care everyone...
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I feel like I am falling apart. My dd has been sick with a cold and sure enough I caught it. Called onc tonight because I got the dreaded fever. he will call in an antibiotic for me. Looks like I will have a forced restful weekend.
Laura enjoy that vacation for all of us. I totally relate to the alien baby stomach. I went looking for a new shirt last night. I looked in the 3 way mirror and found the 12 pounds I have gained since diagnosis. Silly me thought those pounds had been evenly distributed over the body---wrong. I know the weight should not be my concern these days but sometimes what looks back in the mirror knocks your socks off!!!!!!!!!!!!!!!!!!! Jean
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HI Jean
hope your feeling better soon, you will once the antibiotics kick In. I got an infection as well a few days after my firstTX ,it does knock you around even more so so hold on tight a better day is just around the corner
Joanne
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Hi Jean so sorry 2 hear u r sick! It will make the next chemo seem like a breeze tho - I tell u #2 is not as bad at all....Boy oh boy-when it rains it pours. Please lie low and take care of yourself.
Best and warmest wishes for a speedy recovery! Valerie
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Hey everyone, I'm realizing just how long my week has been with the 4+ pages of posts I had to read to catch up! This has been a good week. I've been feeling well and have been very busy this week - too many work projects, too little time.
In the posts, I saw several people mention hot flashes. Keep in mind that steriods can also cause hot flashes; although, I belive the documentation calls it being flushed.
Mary - I had issues with my steri-stips as well, but I think it was mainly because I am sensitive to adhesives. I just trimed off the edges as they started peeling.
All - has anyone tried hand lotion that has anti-bacterial "beads" in it? I saw some at the store the other day and wondered how well it works.
Here's wishing everyone health and happiness.
Suzi
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Hi to all my chemo sisters! Just wanted to pop in and wish everyone a healthy, SE free weekend, Today is my birthday- my 43rd, thank you very much. I wish I was on the beach in Mexico with Laura but I'm stuck in reality getting ready to go to work. No big plans, just gonna hang with the hubby and friends this weekend. Glad I'm able to celebrate now because tx #2 is next week. I hope all of the colds, aches and port pains are short lived for all the great ladies here. Have a great weekend and as always, hang tough and be well.
Dee
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Good Morning from Mexico!
Snuziq - "Flushed" my A$$!! That description was made up by a man. Maybe it is the steroids. I never thought about that. Although I'm kinda hoping it is chemo/menopause and that I will never go through this again!! If it is steroids, can I blame my anger on 'roid rage?
All is good here. Having fun, but a little hesitant about drinking (increased risk for bc, blah, blah, blah). Can ONE WEEKEND of getting my drink on be that bad? Damn, I never thought I would be the responsible one.
Will check in later. Have a good one, Gals!
L
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Happy birthday, Dee!
Oh Laura, please send us lots of updates about how things are going and we can all be your virtual companions on the beach.
Not sure how you would welcome all of us balding, burping, flushing, whining, gassy ladies in reality. Just imagine all of us lined up there beside you.
About the flushing vs. hot flashes. I was warned to expect hot flashes and to go into sudden menopause. So far no hot flashes for me. However, I did have facial flushing on the morning of Day 2 and Day 3. I woke up with very high cheek color which lasted for a couple of hours each day. A nurse I spoke to said it was probably from the steroids.
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Hi Ladies.
Feeling much better than days before. Finally.
Mary- I also get those flushed cheeks. Bright pink. Looks like I have on blush. After a few hours they dissappear. I have also had hot flashes. I am on chemopause. That is the only thing I am happy about as I just hate periods. My onc told me I may never get them again. That would be just fine with me.
Dee- Happy Birthday!!!! Enjoy this day with your DH.
AZDiva - can we have liquor while on chemo? I heard that is a no no. I dont drink so that did not bother me. But hey if your onc says its okay....a small drink wont do any harm.
Jean - sorry you are sick. Thats is a bummer. Hope you are feeling well real soon.
I am looking forward to a feel good weekend. My SEs seem to be abating and I am done with my neupogen shots. My onc said I may not have to do shots anymore depending on my WBC on T. I am nervous about starting T next week. My mom is flying in from FL to be with me for my first T tx.
Anita
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Happy Birthday Dee...have a great day. Make sure that your family treat you good.
Just got back from treatment #2. All went well.I guess I can get a
now. 1/3 done this nasty ride.
Laura the chemo nurse told me that one drink is ok...not sure if she ment a day or a hour...
later fellow brave cancer warrior chicks..
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Hi everyone, it's been a busy day!
Second treatment was this morning. Even though the port area is still infected, it looked a lot better than Wednesday and they were able to use it. Turns out I also have a reaction to Tagaderm and the lido cream, so I'll just be getting the freeze spray.
While I was getting saline to start, I started running my hand through my hair, and out some came! I tried again, same thing. I saved a little pile for DH on his magazine (he'd gone to get a head start on the pharmacy). Now I'm home and it's buzzed. I had a lot of hair, so even after seeing a big pile gone, you couldn't tell, but I knew I'd always be playing with and losing more. This'll give me some time to get used to it before going back to work on Thursday!
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Meredeth, you are really rocking the buzz-cut! You look amazing. I do recommend the lint-roller (they recommended it on the taxotere / cytoxan thread) forgetting rid of the little hairs. It only hurts if you do it way too much, otherwise you won't really feel anythin. It's kind of a strange grooming tool though.
I had my 2nd tx today (second smiley face please!) and it went okay. I'm a bit gassy and achey, but I've been reading Anna Schwartz's Cancer Fitness and am inspired to walk every day no matter how I feel, even if it's only a little bit.
Here's hoping for sunny beaches in Mexico and SE free weekends for the rest of us,
Sido
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MEREDETH
You are such a pretty women you can so easily get away with the bald look ,your very lucky .
Ive been surfing some other forums lately and I'm a bit upset, and a bit put of some of them really turn into a boxing ring its very sad ,so I'm trying now to shake all the yukies of and come here and have a nice chat to my Oct sisters .
I went to work today only 4 hrs thats all they would let me do there very concerned i might pick up germs (I'm a hairdresser) or get to tired ,my husband Sam was against it as well but i really wanted to go in Ive been feeling really good all week and just wanted to get back doing normal things.
So Sam unwrapped the cotton wool he had put around me and off i went and i had such a lovely time catching up with my special clients they bought me flowers coffee,cake i got very spoilt.
My boss rang twice to make sure i was OK and Sam gave my co worker his mobile number just in case, now thats a little to much for 4 hrs but least i know he cares .
My hair is coming away a lot more now but i wont do a buzz for a little while yet ,but ill wear some of my scarfs got some real pretty ones ill try to do some photos , not good at all with technology.
SIDO i hope your SEs arnt to bad for you and i think i will try to walk every day to if it helps
Well 1 week of feeling normal till next TX so ill make the most of it .
LOTS OF LOVE YOUR AUSSIE MATE
JO JO
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Scoobydoo, I am glad you are feeling better. Those ses are the pits.
Meredith, cool pictures. I am finally getting use to being bald, except I am not sure my hair is falling out yet. But it is all gone.
Sido, congrats for finishing second tx. I get my second next week, am not looking forward to it, but I do want to get this over.
Michele, congrats on finishing your second tx also. I wish you very slight ses.
Laura, I hope you have the greatest time ever. I wish I was there, I just love Mexico. We scuba and we haven't been in years and I really miss it. Maybe we will be able to get back into it next year after my treatments are over.
Jo Jo, our Aussi mate. It sounds like you have a great place to work also. They treated you like a queen and that is the way it should be.
I hope everyone has a great weekend. I am going to see my grand-baby, she is so cute.
Juannelle
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Hi girls, I think this is my week to be having issues. First I got an awful cough and fever, onc put me on an antibiotic Thursday.
Now (6 a.m.) Saturday, I have found I have a toothache and my lower jaw is so swollen, I just left a message for my onc. I don't know what will happen now. I am hoping I won't end up in the hospital for this infection. Anyone have this issue while doing chemo? I just don't believe it!! I am worried?
Jean
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Meredeth you look awesome! I am going to have my hair cut today for the hair piece headband and then they will buzz me. I have a wig picked out so I guess this is it.
My daughter came home last night for the weekend and I saw her for a little bit, but was tired and had to go to sleep. It is going to be great having her home for the weekend. I am so glad she pushed and pushed to come home. She knows me so well.
I had a bad day yesterday, mainly because I have been feeling so bad with my stomach. I thought I was ok and on the road to feeling good, when I went to sleep on Thursday. Had energy and was happy to be going to work on Friday. Then had a terrible night Thursday and was up all night. I went to work on Friday any way, but it was a long day. I felt so discouraged. When I got home from work I Googled holistic facilties where I lived and found a wonderful place. I am going to go for a consult and acupuncture on Wednesday.
Today, I am feeling better. My stomach has been ok and I actually slept last night. Hope it is an issue free day with the tummy.
A great weekend to all
Jean I hope you feel better. I have had a cough all week,but the doctor said it is environmental and gave me an inhaler adn told me to take Clariten. I am still coughing a lot in spasms, but it helps.
Congrats to all who had their next chemo
Have a great time in Mexico. Maybe I can visualize myself there on the beach having a margarita.Wouldn't let be nice.
It is great to have a supportive work place.
one-L enjoy your grand baby. That should be wonderful.
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I'm glad people are able to visit with family - it makes such a difference to be surrounded by loved ones! Meredith, I love the message on your head! laura, hope you're having a blast down in MX.
Those who are feeling sick - take it easy and take care of yourselves! Follow the doc's orders and don't end up in the hospital! Here's to a quick recovery for all of you!
I've done much better this second time around, just a LOT of fatigue - but I'll take it!
Peace...
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Hi ladies.
Jean - so sorry to hear about all of your health issues. Hope you feel better real soon. I heard that if you had dormant tooth issues before chemo, then once you have chemo those issues will surface because of the drop in WBC.
Speaking of coughing. I am constantly coughing. No fever just coughing. Is this a SE of any of the drugs I am taking? I will have to speak to RN Onc on Monday to find out. It is driving me crazy. Anyone else coughing a lot?
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