DCIS Treatment

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wavering2andfro
wavering2andfro Member Posts: 3

Just diagnosed with DCIS.  Have 2 sisters with BC.  One had DCIS 10 years ago and advised to wait a year, which then became invasive.  Had mastectomy, chemo, radiation and meds.  Is doing okay now.  Other sister diagnosed with DCIS 2 years ago and decided double mastectomy, and is very happy with her decision.  I want double mastectomy also so that I will have peace of mind.  I am 56.  I met with radiation oncologist Nov. 2nd  I just had MRI this morning, Nov 3rd.  My surgeon scheduled lumpectomy last week for Nov 9th even though I said I wanted to know more info first.  I really want mastectomy for peace of mind, but I feel my doctors are almost forcing me to do the lumpectomy instead.  I have read everything I can get my hands on and am trying to remain open minded, but I feel like no one is listening to me and what I really want.  My husband is completely supportive of me.   Any advice?   Please? 

Comments

  • TOB
    TOB Member Posts: 74
    edited November 2009

    Some doctors suffer from the "I know what is best for you because I'm an expert and you are being irrational" syndrome. It is your body, your breast cancer and your decision.  You have to live with your decision, not him.  If this surgeon is unwilling to do what you believe is the best option for you, find another surgeon.  At a minimum get a second opinion.

    Many women with DCIS in one breast seem to be opting for double mastectomy.  Given your family history, it is certainly not an unreasonable decision.  It is, however, a decision that only you have the right to make.

  • wavering2andfro
    wavering2andfro Member Posts: 3
    edited November 2009

    Thank you.  I appreciate you taking the time to reply and I will take to heart your advice.   I don't know what my health will be like in the 5-10 years they assure me I will be cancer free, and I don't know what type of insurance I will have then either.  There are so many factors to consider.  I am 57 years old.  I choose not to be defined by cancer or whether I have breasts or not.   I'm not sure my doctors understand this.  Thanks again for your advice.  I pray all goes well for you now and in the future.  God bless.

  • Loni
    Loni Member Posts: 28
    edited November 2009

    It can be so frustrating.. I know my doctor insisted on a second stereotactic biospy after the first one I had came back positive for DCIS, they then felt there was another suspicious site further away and many calcs inbetween, would mean a a mastectomy instead of a lumpectomy if it came back positive as well.... (why didn't they sample this area the first time.. I still don't know and they just divert)..long story short it was also positive so off I went for the mastectomy.. I truly believe that would have been my choice with only one spot.. but he just kept saying if you want a choice have the second biopsy, in hind sight caused more stress and time lost..  If you truly feel you have made your decision and are at piece with it ask for a second opinion, or seek out adifferent surgeon that will listen to you. Did you have an MRI, genetic testing?  Again all of these tests may be redundant if you already know your course of action.  I assume you must not be using the same surgeons as your sister's? You would think they would be more sympathetic.  Good Luck to you..

    Loni 

  • annie7216
    annie7216 Member Posts: 96
    edited November 2009

    It's very possible that the mri will show that the dcis is more extensive than the mammo shows. This is pretty typical and may warrant a mastectomy, due to size. Given your family history, I can't imagine a surgeon arguing about getting a bilateral. Perhaps you should get tested for the BRCA1&2 gene. A bilateral would be warranted again, if either was positive. I think physicans are reacting to recent negative press about women being treated too aggresively for dcis. My breast surgeon suggested a bilateral and said that she would present my information to the insurance company in a way that would encourage them to pay for it. I had the bilateral and I don't regret it. The reoccurance rate for lumpectomy was just too high for me.  Maybe you should get another opinion from a different breast surgeon, one who may be more likely to see things your way. Good luck.

  • CAROLMARIE427
    CAROLMARIE427 Member Posts: 206
    edited November 2009

    Do in your heart what is right for you.  Doctors today are about salvaging breasts if they can.  They don't like to take away healthy breasts or tissue if they don't have to.  Trust your gut instincts and go with them, whether it be lumpectomy or bilateral.  I was in your shoes and had a bilateral, but only my husband and I were behind the idea.  My breast surgeon was very supportive of my decision, but gave me the lumpectomy talk and having a good outcome also.  I got a lot of grief from close family members, but you have to do what is the right decision for you.  Only you can decide that and no one else.  Good luck in your decision.  

  • wavering2andfro
    wavering2andfro Member Posts: 3
    edited November 2009

    Carol Marie.  Thank you for taking the time to address my concerns.  I can't tell you how good it feels to have someone understand what I am feeling and thinking.  God bless.

  • joannsend
    joannsend Member Posts: 7
    edited November 2009

    After about 8 biopsies, both steri and MRI - I was diag with DCIS in 2007 and had a lumpectomy and radiation.  Just found out In Oct. the DCIS has returned in the same breast and docs have recommended a DM for me.  Since this seems to be reoccuring on my left side, I've decided not to take the chance of waiting until it does become invasive.  I agree with Carol Marie.  Give it some thought and then go with your gut.  I wish you all the best.

  • clik212
    clik212 Member Posts: 10
    edited November 2009

    I had the same thing in my left breast and I had a very understanding doctor and surgeon, he did and had both breasts removed. Everything I've read and heard convinced me that the probably of it occurring in the other breast was enough to convince me of my decision I am a month and a half after surgery. Go with your gut, it is your body and life. Good Luck.

  • Lovegolf
    Lovegolf Member Posts: 513
    edited November 2009

    I had DCIS in right and made choice for bital Mx. Had it 5/1 and have no regrets.  This is your choice, your body your life.  If you are not confortable with Dr go see another one.  With your family history i can not imagine a Dr not listen to you.  I was told I would have 30% chance of it coming back or 1% with Mx.....do the math.  That made it easy choice for me.  The path report after Mx found DCIS that was not on MRI or mammogram. 

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