idc and chemo..is it necessary

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teracole
teracole Member Posts: 10
idc and chemo..is it necessary

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  • teracole
    teracole Member Posts: 10
    edited November 2009

    I was recently diagnoised with ICD/Stage1c

    Sentlinel nodes were clear and now I'm having a re-incision on the mid-line to make sure, since the path doc wasen't certain  if there might be some cells on that margin.

    My surgeon told me that she would recommend chemo and then radiation but I do have an appt with an oncologist re: the chemo.

    I am 61 yeas old, no health issues with me or no family bc in my family.

    I am certian to take the radiation but the chemo is my biggist concern and issue of whether it's right for me.

    Could use some objective comments from those who've been there.

    thanks,

    Terri

  • katherella70
    katherella70 Member Posts: 38
    edited November 2009

    Hi Terri,

    I am stage 2a, had a bilat MX, and the first oncologist I saw "highly favored" chemo without even knowing my oncotype score.  My score was 12 and the second onco I saw did not recommend chemo.  I would get a second opinion to be safe, especially for your age and no node involvement.

    Do you know if they ordered this test for you? 

    My Best,

    Kat 

  • Lindissima
    Lindissima Member Posts: 239
    edited November 2009

    Hi Terri,

    Your stats sound a lot like mine and we are close in age. I also needed a rexcision, but ended up with good clear margins.

    My surgeon told me it was the oncologist who determines whether chemo is warranted, though both she and my rad onc weighed in  on the issue when I asked them.

    The oncotype test is being used increasingly to help women and their onco's come to a decision. You can google ONCOTYPE dx to get their web site.  There are also several  previous threads on BCO you could read. (Roll call Oncotype dx new)

    In my case, with a score of 13 my onco advised no chemo.  I got a second opinion at another hospital who said the same.  Still, it was not an easy decision and I agonized over it.  I felt a lot better after I found this  (BCO) and  read up on it here. Very interesting to see how women come to the decisions they do.

    By the way, more and more, insurance companies are on board with paying for the Oncotype test.

    I recommend asking for the test and/or getting  an opinion from your oncologist. 

    Best of luck! 

    Edited to add:  Do you know your grade?  That might factor into whether you need chemo as well. 

  • Morgan513
    Morgan513 Member Posts: 664
    edited November 2009

    I think you need to get the hormone status of your tumor.  Triple negative is most always chemo and also you need the Her status.  There are many things that go in to making that decision.  It's not just as simple as how healthy you are currently.  I would have a talk with your oncologist and then go somewhere else for a second opinion.

    Good luck! 

     Lorrie 

  • bluedasher
    bluedasher Member Posts: 1,203
    edited November 2009

    As the others have said, it is impossible to know whether chemo is wise or not based on the information you gave us.

    There are various factors other than tumor size and lymph node status that factor into the decision. One is grade - do the cells look close to normal cells and therefore not aggressive (grade 1) or do they look very different indicating an aggressive cancer (grade 3).

    And more important than grade are some other less subjective measures of how aggressive the tumor is. Cancer cells may have several kinds of receptors that trigger growth. Those that are positive for hormone receptors (estrogen and progesterone) tend to be less aggressive and hormone treatments that block the receptors may be enough.

    Those that have HER2 receptors tend to be very aggressive (even if they are also hormone positive). If the tumor is HER2+ recurrence without chemo is relatively high and there are some very effective chemo regimes that reduce it a lot so chemo is a good choice.

    If the tumor is HER2- and hormone positive, there is a test called oncotype that looks at some of the genes in the tumor to determine how likely it is to recur without chemo.

    Triple negative tumors (those negative for HER2, estrogen and progesterone receptors) are in between HER2+ and hormone-positive HER2-negative tumors and chemo might be good.

  • Mouser
    Mouser Member Posts: 245
    edited November 2009

    Hi Terri --

    I agree with everyone who's weighed in: more info needed. Age is not the issue here - you're way too young to opt out because of age! On the other hand, chemo is certainly not for everyone -- for many of us, it offers way too little improvement to be worth the risks it poses. Once you have the ER and Her status (and the *onc's* opinion - that's the expert for nonsurgery treatment) you can make a decision... or go for a 2nd opinion if you're not comfortable. And yes, the oncotype does seem to be useful in making a decision, so try to get that too before you decide.

  • teracole
    teracole Member Posts: 10
    edited November 2009

    I appreciate so much all the input I've gotten in less then a day.  This site has made me feel more empowered and knowing there are so many other alternatives.

    After these past few comments I called my surgeon, since I am having the re-excision next week and asked about the oncotype test.  She had just ordered it so I will be able to have that for when I meet with onco doc #1.  I realize I have not had much info to post here but I'm learning.  I thought what I had initially was minor, and all these other realizations have been mind boggeling.

    I know feel less fearful and appreciate all that's been sent to me.  Once this next procedure is over I'll certainly have more precise info to offer.

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