Trolls on these boards

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  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited October 2009

    Oh gosh, I do dots all the time....I'm not a troll, I'm not a troll, I'm not a troll, lol.  Seriously though, I'm NOT!!!   I swear.... ;)

     Gracie, who has never put up her bio due to the same kind of crap of having people use it in inappropriate ways.

  • junie
    junie Member Posts: 1,216
    edited October 2009

    hmmmmm--never thought I was a troll, but basis the criteria of not having a bio available for all to read, I must be.   Fact is, when I first registered at bc.org that wasn't an option.   That feature came with one of their upgrades--I'm lazy--have never felt the need to fill it out.  Had no idea that the absence of my info was upsetting to anyone.  I gladly share when asked.

    junie

  • shokk
    shokk Member Posts: 1,763
    edited October 2009

    Awhhhhhhhhh............Bluester...........you find my wedding photograph............ha..................Shokk

  • jancie
    jancie Member Posts: 2,631
    edited October 2009

    Count me as another one that is hesitant to give out too much information as I deal with my dh's ex-wife who is bipolar and is gloating over the fact that I have cancer and I lost my hair.  She has also stalked me many times.  Believe me, I have never met an evil person before in my life until I met her.  And to top it off - I have never done anything to her.  I think she just hates me because my dh loves me so very much and *gasp* her own children actually like me Tongue out

    Konakat - you crack me up!  I hope I spelled your name right.  I am still dealing with chemo brain.

    I know I have said the wrong things in the past, posted on the wrong forums but gosh....with all of the medication I am on it is hard to think straight.  There were periods of weeks that would go by and I wouldn't post because I didn't trust my brain to work my fingers properly. 

  • flash
    flash Member Posts: 1,685
    edited October 2009

    As some one who was accidentally identified as a troll in the chat room a long time ago, I can tell you it is very frustrating and obnoxious if you are NOT a troll.  Thankfully, it was eventually cleared up and I have now enjoyed the comraderie of all my sisters here.  Please be very careful before you incorrectly identify anyone.

    Hugs to all

  • mittmott
    mittmott Member Posts: 409
    edited October 2009

    I usually only post a question, or answer a question, but all this arguing has made for some interesting reading, and to tell the truth, I'm kind of dumb about these things.. What exactly is a troll?  I'm assuming it's a lurker who likes to make trouble.  am I correct?

  • mittmott
    mittmott Member Posts: 409
    edited October 2009

    So, I was pretty close.  If there is someone on these boards who is a troll, they must be enjoying the goings on right now.  Best to let go of everything and all hard feelings.  we need this board.

  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited October 2009

    trolls get into threads only to start trouble. 

  • shokk
    shokk Member Posts: 1,763
    edited October 2009

    Madalyn you over educated bleeding heart liberal..........we......know.........what.......you.......meant.............Shokk

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited October 2009

    Boy, we sure are giving trolls a bad name here, aren't we??  I think they're the cutest little things -- ugly but cute!

     Funny,when I first heard the term "troll", I thought it referred to someone "trawling" through websites with open forums to see what kind of ruckus he/she could stir up.  Must've been a mix-up in CanAm pronunciations!

    At any rate, our anonymity provides us the opportunity to ignore or rebut. Ignore is probably the best response, but rebut sometimes feels too good to pass up!   As for naming names, that's truly a dangerous game......Frown

    Linda (Madalyn's bleeding heart liberal palKiss,  Hey Shokk, howya doin'?!)

  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited October 2009

    Not the Billy, Gruff, Gruff trolls

  • otter
    otter Member Posts: 6,099
    edited October 2009

    lindasa, you said this in a post on the previous page of this thread:  "Funny,when I first heard the term "troll", I thought it referred to someone "trawling" through websites with open forums to see what kind of ruckus he/she could stir up.  Must've been a mix-up in CanAm pronunciations!"

    From what I've read, your understanding of the meaning of "internet troll" is correct -- or, at least, that's how the phrase "internet troll" was originally used.

    The "wisegeek" website (http://www.wisegeek.com/what-is-an-internet-troll.htm) says this:  "An Internet troll is someone who posts offensive, controversial, or divisive material on an internet community. ... The evolution of the internet troll was a slow process which began as computer users started to more widely adopt the Internet. At first, the term referred merely to someone who was "trolling" for a response or opinion, in the same way that fishing boats cast out large nets to troll for a catch. Over time, trolls grew more aggressive, and the term began to be used specifically to refer to someone irritating or hurtful. In this sense, a troll could be compared to the nasty creatures of Scandinavian mythology which are also known as trolls."

    otter 

  • GramE
    GramE Member Posts: 5,056
    edited October 2009

    Who is gonna be a troll for Halloween?   or are we already trolls???    LOL,  Hugs for all,   Nancy

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited November 2009

    Oh, thank you athena, you are too funny.  Next year I'm gonna be a foob!!!

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited November 2009

    Well, most likely not, but it seems so funny.  I truly would love to see us all walk thru the airport system.  very hilarious. 

  • chainsawz
    chainsawz Member Posts: 3,473
    edited November 2009

    I just read a post this morning that greeneyeslv passed away......

    Here's the post from her daughter:

    Hello it took me a while to figure out how to get on to here.. My mother was coming onto this web site for a short period of time and thought I would come on to regret to inform you that my mother passed away a couple of weeks ago and have just recently been going through her computer stuff to get in touch with anyone and those who touched her heart and where there for her if you could please forward to karen who she spoke with often on here about my dear mothers passing she will be dearly missed but her heart and spirit will go on and Im sure she will be watching over all of you wonderful people.. Take care and my prayers are with you all.. You may have known my mom by Lisa and or Greeneyes... God bless you all and wish you all the very best...

  • CoolBreeze
    CoolBreeze Member Posts: 4,668
    edited November 2009

    Personally, I don't think that's her daughter.  Another member on this forum has been stalked by this person, first in the greeneyelslvs identity and then when contact stopped,  with different identies This person tried to do the same to me.  I've recognized him/her in several incarnations.

    I realize my comment won't make me very popular and might make me the object of scorn, but it's the truth. 

    This forum is full of women with an abudance of good-will and acceptance, and that's as it should be. It's wonderful that you all err on the side of believing people, and with the subject matter of this forum, that is probably as it should be.  Better to not hurt somebody's feelings in case they are speaking the truth

    That doesn't mean there aren't sad people here who use this forum to fullfill their own needs.  I'm a moderator of one of the most popular technology boards online and I see this daily - I've gotten pretty good at spotting fakes and the needy. 

    The mods could check IPs to find out if they so desire, but since they haven't weighed  in, I guess that speaks for itself.   And, frankly, I'm not sure what good it would do.   We all have the ability to make our own judgments. 

    I think the OP started a thread to protect somebody from being stalked and she should be given the same consideration that has been given to the stalker, that's all.

  • London-Virginia
    London-Virginia Member Posts: 851
    edited November 2009

    hmmmmmmmm  time to call in Sherlock Holmes.........

  • chainsawz
    chainsawz Member Posts: 3,473
    edited November 2009

    Coolbreeze -

    I had absolutely no clue, but now I do and it's making much more sense.  When I read new posts I see some particular ones a little differently and now understand what you guys were all talking about.  I am so sorry this is happening and people on this board are being stalked and I do appreciate the warning.   lisa

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    I personally prefer to err on the side of caution; the nature of internet is anonymity.  I would be devastated if I called someone out or didn't offer support because I thought it may be someone who is trying to cause trouble or gain attention, and it turned out to be someone in genuine need.

    If the worst thing I do is give support to someone who doesn't "need" it, then I'm okay with that.

    This is a very fine line that needs to be walked with care and caution.

    As always, JMO.

  • RunswithScissors
    RunswithScissors Member Posts: 323
    edited November 2009

    Sige,

    Nice post!  Thanks. 

  • Jelson
    Jelson Member Posts: 1,535
    edited November 2009

    I am more like Miss Marple than Sherlock Holmes, plus not that familiar with message boards and new to the concept of trolls. However, I was wondering if this might be a clue to the existence of a troll or simply a sign of stress: I have noticed that someone who has been posting recently has spelled her name differently within her post. Once it was Julie, another time Julia. As a Julie myself, I would never refer to myself as Julia. I am not sure if using different spellings of your own name other than formal vs informal (Katherine vs Kathy) is common or suspicious.  

    Julie E

  • London-Virginia
    London-Virginia Member Posts: 851
    edited November 2009

    A very kindly thought, but I fear more likely someone that is  (for instance) someone that changes their identity regularly, for whatever reason.

    Troll is a rather nasty name, but in fact (if you dig back far enough someone explained this, but don't bother digging!) is apparently the ubiquitus net-name for such a person. 

  • CoolBreeze
    CoolBreeze Member Posts: 4,668
    edited November 2009

    Ladies, I'm what they used to call a "net denizen."  I have been online since the late  80s on BBS's and was a USENET regular in the early 90s.  The term troll has evolved to a more catch-all phrase, but the original meaning was based on the fishing term.  Back in the USENET days, people would delliberately join a group and troll for victims.  Back then (and in some cases today) it was mostly about causing flame wars and then enjoying the show. 

    As an example, somebody might join a group dedicated to fans of a specific model of car, and  then a troll would join for the sole purpose of getting people to fight about the car.  Good trolls were very subtle and injected themselves with the regulars.

    Now people use the term more broadly, to mean anybody who is not quite what they seem.  Since the internet became accessible to everybody, it's spawned a new version of fraud.  These are people who don't want to cause fights but who are pretending  to be something they are not for their own purposes. 

    The person in question, I would not consider a troll, but a needy person who has likely got some mental problems and latched on to one person here who gave her some kindness, and then to fulfill that need, began using multiple identities to get more attention from that person and the people close to her.

    I have seen it many times in my role as a moderator, and many of them use illnesses as a way to fullfill some need. 

    The forum I currently moderate has had the same regulars for 11 years now.  We have a hidden section of the forum for off-topic chat (you can only see it if you register) and one of our members grew very close to the group over the course of two years or so, then started throwing out hints about illness, then spread rumors of his impending death through PM and cryptic posts - then disappeared.  Many assumed he'd died and we mourned.  However, he came back as an alternate personality to watch the show.  He was very good at his deception and it took about 2 years to figure it out.  

    There are other members who use illness to gain attention - we had one who ended up having a collection taken for them and turns out there was no illness at all.

    I don't think the person we are suspecting is doing anything like that to gain the attention of other members, just the one.  And, I stayed out of it until that one member got some pretty devastating news on the same day this person posted trying to attract her again -  and I felt it was time to speak up.  This forum should be safe for her too.

    I agree, as I said before, that it's best to err on the side of caution.  Only the moderators can know for sure via IP and registration information, if the multiple identies originate from the same place.   Being new to this forum, I don't know who the moderators are, and when you report a post, you can't explain why.  So, it's difficult to say 'can you check this person out for multiiple identities because one of our members is being harrassed"  You seem to only be able to say it on the forum, which is also bad form. But, perhaps there is a better way and we who are new just don't know about it yet.

    There are often signs of people who have this problem - multiple identities with the exact same writing/spelling errors, a person who doesn't have facts at their disposal that you know they should have (how many of us don't know our diagnosis date), even when they forget their own name - those are all clues that things might not be as they appear.

    The last thing that should happen to any legitimate person suffering from breast cancer would be to turned away as they are asking for help.  So, I agree that the benefit of the doubt should be given. However, on every forum, since the beginning of the internet, there have been these kinds of people and it's always best to be watchful.  In this case, we are pretty sure due to private PMs and other things, that this was not who she said she was.

    I hope that explains some of my thinking anyway. There was no maliciousness in any of this.

  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited November 2009

    cool breeze that was a very dynamic look into the behavior  of trolls..thank you

  • CrunchyPoodleMama
    CrunchyPoodleMama Member Posts: 1,220
    edited November 2009

    I was coming here to see if this was referring to the "anti-alternative" fellow who keeps slamming us on the alternative forum, but this post caught my eye:

    I have noticed that someone who has been posting recently has spelled her name differently within her post. Once it was Julie, another time Julia. As a Julie myself, I would never refer to myself as Julia. I am not sure if using different spellings of your own name other than formal vs informal (Katherine vs Kathy) is common or suspicious.

    May I ask, is this in reference to me? My given name is Julia. My parents and brothers (and everyone who knew me through college), however, always called me Julie (when I was a kid, I HATED my name so Julie was an acceptable nickname). When I graduated, I decided to go by my real name. That is what everyone who knows me now calls me (even college friends call me Julia, which always makes me laugh because I think they should call me what I went by in college). 

    I put "Julie" in my signature because at the time, it felt comforting to be thought of as my childhood nickname... what my parents call me... I don't know, I guess that was stupid. Just today I was thinking I wish I'd introduced myself here as Julia, because it feels fake now to be called something I'm not called by most acquaintances.

    If you weren't referring to me, I apologize for all this blathering, but wanted to explain in case you were.

    Anyway, I learned two nights ago that reading trolls' posts is HORRIBLE for my mental health (at least in the middle of a sleepless night while I'm weaning off of an anti-depressant). I saw in an older post that one of them had cruelly attacked someone else... so I reported that post... I didn't bother posting any of her (his?) attacks on me, I guess because at the time I didn't know they were a troll and were hurting other people, not just me.

    As for people with multiple identities, the admins can see their IP addresses and, if necessary (if it's DEFINITELY a troll), ban their IP address... that way they can't re-register as someone else unless they do it from a different location.

    CoolBreeze, I'm an old-time 'net girl myself (I sent my first email in 1989, freshman year of college)... remember IRC? Ah, good times! LOL

  • lisa-e
    lisa-e Member Posts: 819
    edited November 2009

    Well, the show has been amusing lately . . .

  • Moderators
    Moderators Member Posts: 25,912
    edited November 2009

    Hi All, 

    We always need help with 'detective' work to keeping a safe and supportive environment. IP's change, making it extremely difficult. So, feel free to PM me with thoughts.

    Thanks for your support  of the boards!

    Melissa

  • Rachel_BC
    Rachel_BC Member Posts: 1,386
    edited November 2009

    I'm like cool breeze, I have been on the Internet since it was the Arpa net, and on computers since i was born (my uncle was on the team that created the first computer at U of P, ENIAC).  The Internet is a lot like the Wild Wild West.  I run several mail lists, I've run forums/message boards and have to say she's 1000% correct.

    Spelling is not an indication of being a troll.  Often these people are quite clever, and like many other mentally ill people, adept at manipulation.  I was only mildly surprised to find these jerks on BC.org, and of course, vulnerable.

    What they do is not benign, it is a horror.  It is not OK to just let them keep posting, They post incorrect information that needlessly scares patients from proper TX.  Some of them seem to feed off the fear, ramping it up.  Some of them are going to tell tall tales of their suffering to get ATTENTION, which aside from robbing real patients of the attention they need and deserve, it also comes up on searches for more innocents everywhere on the web who are just beginning their understanding of DX TX etc.  Some are selling products, either giving false hope (I caught one on the Hair Thread trying to sell a magic hair-growing potion) or knocking a known TX in hopes that you will buy theirs- this happens a lot on the Tamoxifen threads. 

    When they are confronted they invariably fall back on pity, claiming to be innocently asking questions and needing help or presenting another "opinion" from something they "read" somewhere or something happened to their friend... although they can't produce the source of that information.  The fall back on pity is especially heinous, "I thought that we were supposed to help each other" bull.  Confronting them is NOT the way to solve the problem. It's what they want.  They want the ATTENTION, and if you give it to them they will simply manipulate you.  This just happened on the Bottle of Tamoxifen thread. That thread is now fairly effectively dead.

    These trolls (it may be one person with several names) would appear and make crazy claims to scare people and didn't like it that I would ask them for their sources or just post the correct information, because I was wrecking their scheme to create and promote fear.  Most of the time the people on the threads learned to just IGNORE them.  There is an axiom on the Internet- Don't Feed The Trolls.  Put that in any search engine (Google) and you will get plenty of information, here's one:

    http://www.consumersavvytips.org/avoiding_an_internet_troll.html 

    Trolls DESPISE being ignored, so they ramp up the fear and hate, attack, do whatever it takes to  get more ATTENTION.  The moderators can only block IP addresses, if the troll knows how to avoid that, the moderators can do little to stop them.  The troll will just create a new name and start again, and again.  And this is what the trolls LIKE to do, so again, OUTING them and reporting to mods is not going to help much.

    In my case, the troll attacked me personally, and quite sloppily, and everyone who saw it just ignored them and they went away.  But when they saw someone else 3 months later giving me crap, they jumped on the situation to stir things up. Or it could have been just that they saw how popular Bottle of Tamoxifen thread was becoming and either created the new name to cause trouble and appear like there was more than one person.  People remembered the personal attacks, so this troll went back and edited their previous posts.  I took my own advice, I ignored this troll, as I had them on "Ignore" from their first attacks months ago.  This troll then posted many many times on the thread, attacking all and sundry, ramping up fear, pleading ignorance, and yes, I do think that having a nonsensical DX line is a BIG TIP OFF.  Also look back to see that person's previous posts.  Its not so important to see how many posts that person had, as the content of those posts.  

    You see a lot of "Aren't you scared of ______ I heard terrible things about _____" or "I had a friend who had ________ and it killed her!" or  "I read somewhere that ________ causes (fill in the blank with some horror)".  These are meant to get attention, and that works!  This is how these people get their jollies.  

    As most of the posters here are NOT net denizens like me and cool breeze, everyone gives these creeps a shot and gets sucked in to their game.  On the hair thread when that shill was caught, she also pulled the "oh I expected more kindness from fellow patients" and tried to make the gals on the the hair thread feel bad.

    The bottom line is that these trolls stop the real patients from getting the help and support they need.  And the ONLY way to stop them is to not "feed" them.  I know it's hard, but if your BS detector goes off (e.g. how can this poster say they don't know what ILC is if they also say they have Invasive Lobular Carcinoma?, why do they say they have DCIS but their cancer is invasive?) you do not have to respond to EVERY poster.  And if you see someone making trouble, insulting another poster, being rude, the way to handle that is NOT to confront them.  You know what you are looking at, you know it's wrong, our time on this Earth is too short to try to tell other people- especially ones who are NOT looking for help- how to live.  HIT THE IGNORE BUTTON. And one more fabulous reason to use the ignore button is to cover what many have asked here- what if the person is sincere but just making the kind of mistakes that make them LOOK like a troll.  IGNORE doesn't do any harm to the poster.  Really, just take a step back.  There's no way to tell definitively, anyone can be wrong, but IGNORE is safe for everyone.

    There are SO MANY great wonderful intelligent well-advised wise patients here, and SO MANY new people coming who need REAL HELP, why bother with anyone who is looking for trouble?  Plus, its the best way to make them LEAVE.  IGNORE IGNORE IGNORE.  Its a WONDERFUL thing!  You put them on ignore and no longer see their posts.  Sounds passive but I promise you, it works better than anything.

    They effectively killed the Bottle of Tamoxifen thread, but happily, everyone who was on that thread has moved to other threads and stayed in touch, and we continue to monitor the Bottle thread for the new people who come in unaware that a productive thread that has been helping patients for over 2 years with a rich history has become a troll thread.

    Like everything else in dealing with Breast Cancer, you have to keep your wits about you and fight for your best care. 

  • London-Virginia
    London-Virginia Member Posts: 851
    edited November 2009

    A really informative post - thank you Rachel.

     Is it not possiblke to re-open posting on the Tamox thread and then chase the MFs off?

    I don't think these trolls should be allowed to do this either.  I don't do the sympathy thing with them.

    best wishes

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