trying to stay possitive, but finding it hard!!

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jodiel1
jodiel1 Member Posts: 51
edited June 2014 in IDC (Invasive Ductal Carcinoma)

i just wanted to say everyone on here is so brave, it thats the write word?! and helpfull.

you all give advice and try to help others that are in need of someone to talk too. i`m not even going through this my self, but yet i cant help logging on to see all of your possitive replys to people.

sometimes i log on and look through the forums and feel so much more possitive, then other times i read things and get scared.

my mum was dx in aug and is going back for her second op friday, to remove lymph nodes as she had one possitve out of two.shes just recovered from the first op in september and now shes got to go back through it again.

Its seems like such a long jurney, is it ever going to end? i feel like i stop worrieng about one problem,then i think of something that worries me even more. i suppose its because we still dont no the extent of the cancer that makes it so hard. when does it get better? its all the waiting around,it seems so long! 

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  • Regawhatever
    Regawhatever Member Posts: 28
    edited October 2009

    I can't speak for everyone, but I think for most of, once we had the pathology figured out and a treatment plan in place, things calmed down a bit. I think you and your mom are in the worst of it now, if that makes sense. Waiting around is absolutely the hardest part. Once you know exactly what you're up against, you can start to make some decisions and have some power.

    When I was first diagnosed, I couldn't imagine a day would go by that I wouldn't think about cancer (and so far it hasn't), but there have been hours. And when I do think about it, I come to a certain peace. I've done what I thought was best at the time. The rest is up to God.

    Come here and post often and ask questions. I'm not any braver than the next person, but when you've been through this mess like we have, I think I at least feel like I have some hope to offer others. You will get through this. Your mom will get through this. 

    Take care-

    Tricia

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  • jodiel1
    jodiel1 Member Posts: 51
    edited October 2009

    Thanks alot for your reply, it means a lot. i no what you mean you have to look of things in a different way sometimes, other wise you would be going mad with worry. I do feel alot better as time has gone on. Although sometimes when i try to get on with my life, this horrible feeling comes over me because i have forgoten about it for a while, then i feel worse.

    Because we are so close i find it hard when i think of what might happen to her x x

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  • mawhinney
    mawhinney Member Posts: 1,377
    edited October 2009

    I feel like I spent 2008 & 2009 socializing with doctors! My social life centered around doctor visits. I spent most of time being tested, treated,researching & sitting in doctors' offices! On the positive side I was able to benefit from the wonderful treatments  that are now available.  I found a sense of humor helped me through many of the tests and procedures. I decided that a man had to have invented the MRI. What a contraption!  Modest when I started this journey, I'll now readily flash anyone that wants a look!

    I found making lists of questions for all my doctors helpful. A notepad for the Breast Surgeon, one for the ONC, one for the PS.  I kept tablets around the house and when I thought of something, I'd jot it and taking it to my next visit.

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  • jodiel1
    jodiel1 Member Posts: 51
    edited November 2009

    my mums had her 2nd op on friday, more waiting now as she dont get her results until friday the 13th.

    Is it the onc that usually sends you for more tests? at the moment she hasnt had any other tests, MRI or bone scans etc. x

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  • tculler
    tculler Member Posts: 2
    edited November 2009

    Hello ladies, I am new to this whole thing, I was diagnosed in may, started my treatment with a&c in june then by sept things started to go a very different direction.  my breast started welling and my right arm has slight welling and a lot of pain. I couldn't go with the plan of care becasue i had a reaction to the taxol.  Now I am on carbo and gem but its not working that well either, because in drops my counts a lot so i cant get it every week like it suppose to be give. Now i have swollen lypmh nodes in the right arm and i havent had surgery yet.  I feel like i am not making any headway.

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