For those starting chemo in June
Comments
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Janie, Good luck with the move. I had treatment today and just woke up about an hour ago. It's almost 8 p.m. I am so glad tomorrow is Fri. I just have a hard time climbing steps anymore. I have to go up 2 flights of steps at work about ten times a day and there is a lot of steps in 1 flight. My boss is forgetful(dementia very bad) and he gets upset with me because he thinks I tell him things or he told me things and it never happened. I have a hard time being patient some times. Yesterday he held up an article in a readers digest that said 19 ways to lose weight. He was being nastly funny, he thinks hurting peoples feelings for a laugh is funny, too bad he didn't forget how to do that!!!!I felt like saying at least I know who I am but then I realized he can't help it. Instead I said "at least I am alive." I am down to 146 so thats fine for me. I am not over weight for my height I have just been really skinny all my life. He has a real thing about people over weight. Oh well, some day I will retire. I don't see his daughter much anymore. Thats a good thing.... Well better go get woke up. Hi P.J., Nancy Lee and Renee. Hugs, Mary
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Janie, congrats on being so far down the road on Herceptin. That move should be fun (not)... I think it's great you'll get to continue on with your treatments without interruption.
Sounds like that Herceptin stuff is really strong. I hope it beats the bejesus out of the bad cells.
Mary, do you suppose if you bonked that old guy over the head, he'd forget about it and not tell his meany daughter? (Just kidding of course, but how rude of him) Sorry to hear about the fatigue.
All's well down here. Take care,
Paula -
Hi ladies,
Back to Mayo for a follow-up tomorrow. I have to remember to take my film. I picked it up yesterday.
Mary, the old geezer is mean. He sounds like the board member with whom I "used" to work (sounds good in the past tense). He told several people that I was silly to go all the way to Mayo and to have "all that treatment." Of course, I hear that his wife flies to Atlanta twice a month to have her nails done.
Mary, I hope your pain subsides. Are you back to where you were before bc or do you have more aches? I think I have a few more. Of course, I am older too.
Good to hear from you PJ. Yep. Herceptin is supposed to zap hiding cancer cells. We can always hope. There is a new drug showing promise now called Lapatinib. It is supposed to help those that Herceptin doesn't. So much research going on these days.
Have a good one ladies.
Janei -
Hi right back at ya! Week #59 of treatment--Herceptin #34 on Tuesday-- only 18 to go!! YAY!! I've had the WORST backache for the past week--I finally went to PCP on Wed. of last week. He said that I pulled or strained my sacroiliac?? so he prescribed Lorcet for the pain. He also echoed my Onc's words--"Ya gotta quit working at that daycare". Little do they know they will get no $$$ from me unless I keep my retirement job. So I've taken this Lorcet stuff before with no problems especially right after my MRM, but Wed, Thurs. & Friday, I ralphed up everything I had eaten including the pills every night for about 2 to 3 hours. Needless to say, I quit taking the pill and my backache got worse on Sat, Sun and Mon the 4th of July. I could hardly walk the morning of the 5th until after my shower. I drove myself up for my Herceptin on Tuesday and saw PCP after treatment. He prescribed Demerol. I've been taking those little gems for 3 days and I can finally bend over and tie my shoes without screaming. I can still feel a dull ache down there so I'll continue to take them for a couple of days. Tomorrow I drive 160 miles round trip for my monthly Oncologist visit. I'm taking a friend with me who is recovering from a brain tumor. She's 24 and had a stroke before the tumor was removed. She has limited use of her left arm and hand so she can't drive. I was once her High School English teacher and now I take care of her almost 2 year old daughter at my daycare. I'm hoping I don't run into my PCP while at the hospital because he banned me from driving while taking Demerol. I'm such a natural born/chemo enhanced insomniac that I don't get in the least bit "drowsy" while taking pain killers so he really shouldn't worry about that. Yesterday I worked for 11 hours at the daycare cuz we had 28 children, 7 under 2 years of age and 11 in diapers. I thought that was bad, but today we had 34 there and I worked for 12 and a half hours. 32 of the 34 were there for 9 or more of the hours that I was. I traded places with my cook for the past few weeks so that I don't have to pick up kids with the ouchy back and all the trouble that I've been having with my WBC numbers lately. Today I rethought the whole cook thing because I spent most of the day washing dishes. 30 breakfasts, 32 lunches and 34 afternoon snacks makes for a lot of trays, cups and silverware. My feet would usually be killing me at this point, but I think the lovely pain killers are helping that situation too. NICE! Oh, on Tuesday, I got elected captain of our local Relay for Life team. The Eastern Montana head of the event came and visited with me while I was hooked to my infusion pump. I couldn't run away. Pretty smart of her, huh. I went last year for the first time right before my 4th and final AC treatment. I had no hair and the mosquitoes bit the back of my poor bald head where the cap didn't cover. This year I know a little more of what to expect so I will be taking "bug guard" with me although I have lots of hair now and bugs don't seem to be biting me this year. I wonder if Herceptin is also good as an insect repellent?? Mosquitoes land on me and fly away. I guess it didn't stop that bee from biting me, but that's a different story. Anyhoooo, I'd better get this day typed into Quickbooks and try to get a few hours of sleep. I took my Ambien about an hour ago so I should be getting a little sleepy soon. Hopefully?? Nite nite everyone--Life is good--Smiles--NancyLee
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Don't you love the as& H*les that say "Oh, I would never go through that treatment, I would think of my quality of life and I would rather take my chances as to be sick with what time I have left".%&*# , &*$%#@!!!!! Excuse me but are they in our shoes???I could just slap the shit outta people that ignorant....They wouldn't mind cause they are tooo stupid to know they are being beat up....Boy, I am glad I didn't see her in the parking lot cause I would honestly have almost hit her. I feel better now. Hugs, Mary
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My husband informed me he is going to sand the hardwood floor in the dinning room and refinish it....Now this is getting to be scarry but my daughter-in-laws dad does hardwood floors so I have back-up at a reasonable price. He offered his equipement but my hubby is doing it the hard way, of course!!! with his tools. Oh we won't even go there to the whole tool thing. My hubby's tools are his babys and no one borrows the good ones. He hasn't even used half of them but hey, we have them if the need arrises. He can spend hours drooling in Sears tool dept., electric tools ofcourse. God help me, we will be putting in a new floor, I can hear him now"I had no idea it would sand all the wood away that fast". He will drop like a log into the basement. If you don't hear from me for a while I will be doing 8-10 in the State pen. I won't even try to lie, I will tell the truth, someone broke in and sanded him to death. Later, saw dust hugs, Mary
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Nancy, you and Renee keep those relays going up North. Good to hear from you.
Mary, you and your hubby could do a sitcom.....no wait...it's already been done --- Home Improvement. Do you have an Al and a Wilson? -
Mary, Mary, you are just SO funny. I love to read your posts about your trials and tribulations with your hubby's home improvement crusade. You should write a book. You have a knack with words. I'd buy it for sure. Janie--Remember when I was whining about the cold weather? Well, it was 102 here today and SO humid that it was hard to breathe. I like cold weather better cuz you can always put on more clothes or blankets and get warm but when it's hot you just can't take off enuf to keep yourself from getting arrested for indecent exposure!! My little journey to the Oncologist yesterday was great. He didn't like the fact that I lifted the well house lid to kill the snake and hurt my back. He thought I should have put some thought into the weight I was lifting before I did it. I told him that I had so much adrenelin pumping thru me when that snake rattled that I gave very little thought to my back. He gave me a mini-lecture about picking up children out of cribs or high chairs or off the floor and definitely NO more well house covers. SIGH. The good news is that I still have my friend NED with me so I promised him I'd behave myself and spare my poor back more problems. And he believed me too! Yah--Right. Life is Good--Smiles--NancyLee
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Well there would of been no lifting here cause I would of moved...to another state with out rattle snakes. Hope your back gets better and you better take it easy. I had one within 2 feet of me one time in Palm Springs and that was as close as I will ever get. Oh My God, I hate snakes even the non dangerous ones like we have here. You are sooo brave. I would not kill one ...I wouldn't even look at one, I would of ran and ran screaming like a idiot. I get bolistic if I see one. Out of my head. Well my hubby being the disfunctional man he is has now started to paint the foundiation of the house and he bought shutters. His color scemes are lacking any sense of stomach settling taste. Anotherwords...It would make you throw up!!! Thats where I come in and try to rationalize that brown and green don't settle well together. Shiny silver may be too bright for the normal persons eye when the sun shines on the foundation. He has primed it so I figure he will work on the floor and the painting of the foundiation at the same time, this is why things don't get finished. JANIE!!!! There has to be medication for this. Maybe if I give him sleeping pills????What if he inhaled too much paint???No he would probably just get giddy. Now we are taking a break and go for a Harley ride. He has no sense of finishment, start something, finish something....Well I picked out dark maroon foundation and shutters. The house is white so it looks good. Better than green and brown. I survived B.C. but this....this will do me in. The fumes are getting to me, would that be considered mentally incompetent to stand trial????? Later, Mary
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Mary, You and I have something else in common: Fear of snakes. Well, one of you come on in and take the couch. I'll get my pad and pen. What does this ink blot look like to you? Paint?!?!?! Hmmmmm....
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Hi Mary & Janie--My little snake fearing friends!!--Guess What? I went into my gardening shed today to get some anti-fly powder to put on my poor doggy. I have this 8 shelf thing in the corner of the shed with all kinds of garden and other stuff on it. So I'm looking from the bottom shelf to the top which is about 7 feet off the dirt floor. On shelf 6 about even with my line of vision (I'm 5'10&1/2"tall) was this HUGE bull snake. I could see the side of him and his face and he's all wrapped around this box of Miracle Grow!! I thought he was deceased so I reached behind me and got this orange metal post that I use on my electric fence to keep bunnies out of my garden--Anyways, I poked him and he does this lazy movement slowly around the box. I just left him there because bull snakes eat mice and they aren't poisonous. I just don't know how he crawled all the way up to the shelving??? It's made out of metal and is open on all sides. I guess he just wound himself up there. I'd like to have seen that. I'm not afraid of snakes. I just don't like rattlesnakes. My cousin got bit by one once and almost died. When I was a kid, I used to play with garter snakes or water snakes as they are also called. My siblings and I would grab them by the tail and let them crawl back up themselves and tie themselves in knots in the process. It was fun. Am I giving you nightmares by talking about this??? I'll quit, but I think I could have done without seeing that stupid bull snake right on the heels of seeing the rattler. This has turned out to be a bad snake year. I guess I'm gonna have to quit taking my little cross country walks for the time being. I'll stick to the roads. Life is Good--Smiles--NancyLee
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Ink blot Janie, I thought it was my hubby covered in paint and stuck to the paper. My hubby would try to "PAINT" or "FIX UP" the blot. We are really disturbed people. Nancy Lee, you need to find a safer place. My God, Catching snakes, I am shivering thinking about it. I was in a pet store not long ago and they had a snake on the floor in a cage and I didn't know I was standing right next to it but everyone knew I had a fear of snakes after I noticed it and screamed. Yea, pretty much half the Mall knew it after that. My grandson looked me in the eyes and said "grandma you scare me sometimes". Janie, I am so affraid of snakes. I don't mind great big ones as much as little ones that slither and curl, Shoot I am making myself scared. There are a lot of dead ones around here on the roads in summer and fall when the farmers are in the fields. I have never ran over one but when my husband does I scream and lift my legs up in the car. Thats pretty disfuctional huh???? I better make me some popcorn. I have a salt/butter craving. Hey, If my husband sees a snake it makes him nervous for hours. I can touch his leg and he will jump and yell and its kinda fun....Hell its lots of fun, I can touch the back of his leg a million times in a couple hours and he just keeps jumping and yelling. Is it any wonder he is so nervous??? Ya know after as good as he was/is to me through all this I should feel bad about things like that huh?....Hugs, Mary
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Oh--I feel really safe here--I have a sign on the wall that says "Welcome to my little corner of the institution!!" I have a BAD case of the Herceptin sneezes today. It's either that or I'm having a bad case of hay fever. Who knows??? I spent the morning running around town putting flyers up for the Relay for Life. I put an item in the weekly paper and on the local tv channel. ???How did I end up running the team??? I was just innocently sitting at my Herceptin infusion last week and this Relay lady dropped off the info for me to bring back to town and give to the lady who captained the event last year. When I gave it to her, she took out forms for herself and her daughter and handed the whole packet back to me!!!!! What???? I'm not sure that these people have a clue as to the depth of my "chemo brain" situation. I may just forget to even show up at the event. THAT wouldn't surprise me at all. My phone number is on these ads and I shut my phone OFF every night so that I can take sleeping pills and maybe get 3 or 4 hours of sleep. All by themselves the Ambien causes memory problems too!! HMM!! I do already have 7 people signed up to walk in the Relay and have raised over $900, but I hope they're not expecting me to stick out the entire 14 hours of the actual event. Sleepwise, I know I could do it as long as I don't take any medication, but I don't know if my concentration level is high enough to stick it out. I saw the cutest shirt today--I think it describes me--It says "They say I have ADD, but they don't know. Hey, there goes a chicken!" It kinda reminded me of reading one of my posts. I kinda go off in every direction. Oh--hey--talk about popcorn. Sometimes I live on the stuff. Is that a good source of fiber?? I think so. Hope you all had a GREAT day. I took the back road back to town today from the ranch cuz they were oiling the hiway and I didn't like to sit and wait to drive thru oil. Anyway the backroad was AWFUL--Full of ruts and waterholes. I almost went off the road a couple of times. Are you ever driving along and think of what a waste of a lot of work by a lot of medical people that it would be if you cracked up your car? How dumb would that be? Well, better go shower and get the jammies on. I'm opening the daycare at 6:15 tomorrow. Fun, fun, fun. Life is Good--Smiles--NancyLee
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Hi Girls, Good luck on your cancer run Nancy. Sounds like you are already getting donations. I have had my benadryl sleep and its almost 8 p.m. I get a muga after my next treatment then I get to go to every other wk. if its o.k. Not much here lately. My husband wanted to know if I wanted him to paint the kitchen purple and light green......Oh someone please shoot me. I got paint samples and I will pick the paint. Purple and Green????? He really needs to go back to wood working......Later. Hugs, Mary
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Really? Purple and green? Well, it sounds festive at least.
All's well here. Got a bit of a lump of some sort kind of next to my SNB scar. But I don't think there are nodes over there. It's odd, but I'm trying not to worry. I see the onc in about 3 weeks, so I'll ask him about it then.
Planning to head up to Wisconsin for Christmas, so I don't want anything to ruin this vacation too. I'm still in the very paranoid about the other shoe dropping stage.
Hope the Herceptin treats you girls kindly...
Paula -
Hey P.J., hope the lump is nothing. While reading about yours I absently felt my SNB scar and I have a lump to the left of my scar. I have never felt around anywhere until now. My onky feels me up every other wk. so I don't waste my time. Its pretty sore under my arm!!! Now that I am getting my treatments at the local hospital and my neighbor down the street is one of my onky's nurses she bakes things every wk. There is only 3 nurses and some times theres maybe 6 of us chemos and some times theres 3 chemo people and 2 nurses so its small and friendly. Just about every one knows each other. I was sitting by a ladie that grew up with my mom and her uncle's wife was my grandmothers sister. She has lymphoma. I am the youngest one in there. Another ladie had b.c. and it went to her bone in her leg. She seemed to be in a lot of pain. We all start out talking and eating homemade cake or cookies and the benadryl hits......Well, hope all is well P.J. Maybe its just scar tissue. My whole arm pit seems different on that side or maybe I just think it is. Maybe its the extra poundage too. Yea, my arm pits are fatter now. Ya know I have called Hotels.com 4 times now about getting our money back from that hotel of Ill repute they put us up in (but we left) and they say they have tried to contact the hotel numerous times and the Hotel wont return the calls....Until they do we can't get our money back!!!I told them that house of Ill repute wont call you they got their money and the vice squad probably shut them down by now. They even went so far as to "Fax" the hotel of Ill Repute but still they have not responded to Hotel.Com. I am to call back next Wed. I wonder if Hotels.Com has people with a sense of understanding??? If the "Hotel of Ill Repute hasn't contacted Hotels.Com by now 2 wks. later I really doubt they will contact anyone any time. I sumise Vice has shut it down. Live and learn. I will never use them again. Hugs, Mary
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Well, geez, Mary, I hope hotels.com took the place off their list of places. I mean, if they can't reach them, that should send off alarm bells, right? I hope you keep pushing to get your money back. That's just ridiculous.
Guess what. We're going to buy a treadmill. Yup. Taking the plunge. -
Hi Girls; Gee, Janie must still be moving. Hope all is going smooth. P.J. I got on the site and filled out a complaint and e-mailed it so they would not give anyone else that hotel. They e-d back and said they are working on a refund. I told them to take that House of Ill Repute off the list because it would be horrible for a family to get there and not have the money to go else where. Honestly, it is a house of ill repute. The inside is in such bad shape I don't think you could fix it up. It needs tore down.At work, gotta go. Later, Mary
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Well, Mary, I hope they resolve that hotel thing.
Going in tomorrow to have my lump checked by the surgeon. A little nervous, as usual.
New treadmill's on the way, altho since it's being shipped and I can't get the tracking thing to work online, I'm almost hoping it got lost in the mail....
Hope you all are OK. Hope Janie's move went well. -
Hi P.J. and all. Hope the lump is nothing. Hang in there kid. Please let us know what you find out. I will be thinking of you tomorrow. Hey, is a tread mill something you sew with???? Oh that would be thread mill. It has to have something to do with tires. I know they call the amount of rubber on them tread.....You are brave girl. I hear if you get on that thing you will get addicted. It really scares me. I could break something on one of those things like a finger nail or leg. I just don't want to start something I can't finish and thats a lot of walking or running. I need to get back to bike ridding!!!!Gotta get to work. I am working a night tonight. I had my Muga today so hope to go to every other wk. soon. Hugs, Mary
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Mary, hope you get good MUGA results so yo ucan go every other week. I'll keep you posted on the other...
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Hey ladies,
I'm alive and well and moved. Bellsouth is not available in this area so I have to change my personal email address. I began new employee orientation yesterday. Went to the new place for the 2nd time today. Still drugged. Met the onc. He is very nice. Said, he thought I looked amazingly well given everything I've been through. Learning focused schools is the latest buzz word in GA. I have had workshops etc., out the whazoo, so the new people said I didn't need to sat through the same things again and I could work in my office. Trouble is, all the equipment/materials are in a vault or something so my office was almost bare. The teachers return Friday. They learned about the details of my new assignment before I did (of course). I received a couple of emails just prior to moving. One said "Thank you God for sending Janie back home." That and the reception I have gotten from eveyone makes me feel really good. I had to go back and clean up my other place etc. last weekend. The traveling is really not fun and actually painful -- old stiff bones and joints. Ohhhhh! I almost forgot. When I had my lst Herceptin apt at the new place last week, I went to sleep and woke up to a room full of paramedics. They took a lady to the hospital across the street. One of them asked what her treatment was and the nurse said, "Herceptin." There is only a very small percentage who react like that. I am not really sure what all happended to her.
PJ, be sure to let us know about your results. HOpe everything is ok.
Hi Mary. I am in a Benadryl stupor.
Hugs and fuzzies,
Janie -
Janie, glad all that moving fun is behind you and that things are going so well in the new place. Whew. You deserve that break!
I'm so glad you and Mary and Nancy Lee are all getting the Herceptin. Glad that it was so quickly available after that study.
So I saw the surgeon today and had an ultrasound. They've determined it's NOT a swollen lymph node (thank god) and think probably it is scar tissue from the lymph biopsy/removal. But for peace of mind's sake, the surgeon suggests I just get it out and checked anyway. So, looks like I"ll have another lovely little scar. It'll be just a quick, not general anesthetic surgery.
So, I've decided to put off the ovary removal til next year and get shots to take care of it for now. (I haven't let my onc or gyn in on my plan yet) I don't think I can do 2 surgeries within a month. Also, I asked the surgeon if, in the event they got in for the ovary thing and discovered they'd have to do slice me open instead of doing it laproscopically (sp) if they would just sew me up and let me have the major surgery another time (i really can't afford the 6 weeks off work). she said no, they'd just go ahead and do the slice and dice right then. So, that's another reason to put it off til when it wouldn't be as bad if i was gone from work for 6 weeks. Whew. Did that make sense? Perhaps not. It's been a wearing day and I'm exhausted.
Hope you guys are having a good one. My treadmill hasn't gotten here yet, so another day I don't have to feel guilty about not exercising! -
Well Hello stranger!!!!Glad your back Janie. P.J. Glad to hear you have good news. I don't blame you, I would wait too if they can't do it all at the same time. You will no doubt be a little nervous until they get it out and say"yes it is fine" but hope you can relax some what. I have to go get my "benadry fix" in an hour. Send me your new e-ad. janie. I am really glad it all seems to be working out for the better for you. My Muga was o.k. no new damage so I get to go to every other wk. I guess I will start this wk. with a double dose. We get a double dose at the start so it should be o.k. I didn't drop dead from that dose. Wow; Janie thats scary, haveing a reaction. Well its the hottest its been in years and my hubby is working on the outside of the house now!!!!! Painting, taking down a piece of fence. Hes sweating to death, he don't listen. I told him hes not 25 anymore and if he has a heat stroke I will throw him in a nursing home so he better get smart and rest....Its like 98 and soooo humid you feel like your in a sauna. Really....Hes been out there all morning. He jumps in the pool every once in a while to cool off. We are having a birthday party for 2 neices and 2 grandkids on Sat. The pool has been so clear until we had a big down pour for about 2 hours the other night. It kicked off the circuit breaker and the pump didn't run for the last 3 days. The water is a little cloudy, wouldn't you know????Its my luck. I am getting it cleared up. I hope.Gotta go, my benadry awaits, Mary
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Good to hear you are probably B9 PJ!
Good to hear your ticker is holding up Mary!
I have been sick tonight. They rushed my Herceptin yesterday...kept speeding it up. I'm one of the last patients. It is supposed to be over 30 minutes and it took 20. I don't know if that is why I have been sick at my stomach with cold sweats or if it is just the move, new job, and treatment rolled into one. I took Kytril. I love that little pill. I am still somewhat nauseous so it is a good thing I took it.
Have a good one.
Janie -
Janie, There is a flu going around and you throw up and kids run a fever with it. They run my herceptin for an hour. I get my bone scan on my spine today. I will glow in the dark. I have to get to work and I am sure my hubby will surprise me with something new he is doing around the house. He is putting in a new garage now. He tore the old one down a couple years ago. We don't have much room but who needs grass? He loves a garage. He would live in it if he could. I can't understand that....Its just a garage. He will fill it with his junk not our s.u.v. or truck. Mary
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Mary, a bone scan and a Muga scan in the same week? Geez, what a drag. Hope that bone scan shows nothing that shouldn't be there.... when do you find out results?
Janie, sorry to hear you are feeling sick. That Herceptin seems like it's pretty volatile stuff....
Take care, you guys.
Paula -
Hi Girls, Well everything looks good in the bone scan. Dr. don't know whats up with the hip but if it's still painful in 2 wks. shes doing an M.R.I. Its been painful since last Oct. but we will see in 2 wks. My reg. Dr. did the bone scan and she did it from head to toe. Gee; I love her. My onky wouldn't do one. She is a doll and I am going to take some treats over to her and her staff. She called as soon as she got the report and that was 1 1/2 hours after I left the hosp. Janie, hope your better. My hubby has an upset stomach. It may be his new meds. Better go, Hugs, Mary
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Hi ladies,
Doing better. Still a little nauseous. I didn't miss work. Didn't dare, having just started this week. It is extremely hot. I guess it is everywhere. I am now in middle GA and it is just as hot as South GA right now.
Mary, great news about your bones. Mine have ached more since all this began. I had a bone scan early-on. I think the treatment augments normal pain or even causes it.
The teachers returned yesterday. I got a huge welcome. When I was announced as a returnee, they clapped and woooo'ed. There were many hugs. I feel like I'm back home. The county has really progressed in the last four years, especially in technology. They are doing some really good things in all areas. I am very impressed.
Well, boxes are waiting to be unpacked.
Warm fuzzies,
Janie -
Mary, FANTASTIC news on the bone scan. So great for your doc to be so responsive. I hope they get to the bottom of the problem soon. I don't guess you're too thrilled about having an MRI, but I guess that could pinpoint the problem.
Janie, sounds like a great welcome. When you don't have to stress about your workplace, everything else probably will feel a little better, too.
Take care,
Paula
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