Stage Less than 4 Woman...Here's YOUR place..

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  • LynnVA
    LynnVA Member Posts: 174
    edited October 2009

    ((((FITZ)))

    You are a Rock Star!

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited October 2009

    Okay my BS told me when I came in for my post op to please never come back with crocs on....lol.....  I about peed my pants.  Then she told me that my outfit was very cute looking but the shoes....ewwwweee......  She is older so it had me cracking up.  I should send her a pair.... :)

  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited October 2009

    Hey, did you notice the picture of the lady in the article was wearing CROCS??? kinda of a funny.

  • GramE
    GramE Member Posts: 5,056
    edited October 2009

    crocs were a life saver for me with no toe nails.  I kept bumping into things and they helped protect my poor toes.  I still cannot wear regular shoes as my toe nails are only half grown out.  Last Christmas my DS gave me some decorations for my crocs.   They caught the eye of one little boy recently and he told his Mommy he wanted some...   A robot figure, a frog, couple of flowers and couple of "jewels" - sparkly glass, butterfly and a dolphin.  I figure at my age (63) they can just call me an old bag who has totally lost it !!!

  • apple
    apple Member Posts: 7,799
    edited October 2009

    my daughter decorates her crocs with clip on earrings.. tres cute.

  • jenn3
    jenn3 Member Posts: 3,316
    edited October 2009

    I still can't make myself like crocs, except for yard work...................  However, if I were having trouble with my feet I may look into wearing them.  I hate to say the words never............

  • kenzie57
    kenzie57 Member Posts: 207
    edited October 2009

    Hi Gals:

    I did want to point out that brook did get support.  Yes, there was some post that made here feel bad, but, she did get positive feedback.  I PM'ed her simply because I thought that particular thread needed to end.  In my opinion, anyone that loves dogs as much as she does is a great girl and I wish her all the love and support she needs.

    Anyways, I just hate that someone felt as badly as she did over something silly ... I blame it on all the drugs we are all on.  Those steroids will drive you CRAZY!!!! I also offer any one with questions for a STAGE IV person to PM me.  I understand the fear all of you are going through and have been there.

    Take care,

    Linda

  • covertanjou
    covertanjou Member Posts: 569
    edited October 2009

    Linda,

    That is really nice of you.  I think that sometimes it gets to be too much for the Stage IV to take care of others when they are struggling to take care of themselves and their families.  It also didn't help that a few Stage IV women passed away when Brook posted (this DOES NOT imply that Brook did anything wrong).  The deaths of those women really hit home with so many women on this board, but really hit the Stage IVs especially hard.  I find that overall the Stage IVs are so great.  They post on all different types of threads and try to be as helpful as possible.  See, you are another great example of that. 

  • lexislove
    lexislove Member Posts: 2,645
    edited October 2009

    Linda,

    Thanks for your offer!! Sometimes if a woman is scared, she would rather confide in one individual than start a thread. Privacy could be a factor too.

  • TammyLou
    TammyLou Member Posts: 740
    edited October 2009

    Unsolicited comment from the peanut gallery...

    My own history...in the cancer pages...In a rather painful episode, I had my "awareness" raised.  Several of the women that I was diagnosed with were later diagnosed with advanced disease...and several of the women that had befriended me were very sympathetic and kind while I was in treatment also had advanced (stage 4) disease.

    Years passed.

    What I didn't know...that they had to tell me...is that my fat chubby cheeks and long hair are a grim reminder that they are still sick...and I am visibly well.

    I got better and they didn't.

    It is not a matter of "intention."

    By my very presence, I remind them that for me (whatever my story has been or will be), right now cancer has been a "temporary" condition.

    They do not have that luxury.

    So, no...we are not in the same boat.

    I am the lady who sat in the third pew, deep in treatment, who turned my head and told a fellow church member to go f- herself. 

    So, I think I do understand that on some days, a feather can be too heavy.  A single straw could be the last one. 

    I also think that (conceptually), this could be a tough concept to grasp, particularly for someone who is new.

    It was (and is) hard for me...and I am not new.

    A good friend said to me, "Are you ever just MAD...like mad at the people in line at the grocery store because you have to deal with this crap and they don't?"

    Yes.   

    In a certain relative sense, the "Stage Less than 4" women are the people standing in line at the grocery store...and, it's why I often shop at the K&B...I can't deal with it.

    I can imagine that a mets lady might have this issue exponentially...it is possible that one or two are doing the live demo.   

    tl 

  • janloy
    janloy Member Posts: 113
    edited October 2009

    Barbara: You handled the insensitive comments really well. I don't think people realize how sick I was/am because I've progressed so well and not just because of the treatment, I've worked hard at not being sick. Still, at the end of the day, I have advanced metastatic cancer and no one knows what tomorrow will bring.

    Has anyone been continually asked to donate to the cause during this awareness month of October? I just got back from dinner where they asked to buy trinkets, t-shirts or just give a donation "for the cause". I wanted to say I gave 2 boobs for the cause. I didn't. I took the high road and didn't mention my cancer.

    Love and prayers,

    Jane

    Jane

  • Indomitable1
    Indomitable1 Member Posts: 253
    edited October 2009

    Barbara- I agree what a great way to handle that comment. Lucky-it's all relative, huh?!

    Jane-yes, I've been asked to donate. I did donate to the local community cancer center's ACS event as I didn't participate as my chemo had re-started. BUT, I do feel that I "already gave at the office" just by going thru this!

    In addition, there was a BC awareness educational program at church. I was asked to be there  to answer questions and augment the presentation given by the nurse. I don't think she knew that I am not only a  BC survivor but also a doctor. I got fairly upset (just labeled angry) when staging was discussed and the need to catch the disease early. Obviously, I would have loved to have caught it earlier BUT I would have rather had a way to PREVENT it. And when she talked about how treatments and side effects have improved so......I almost lost it. Don't get me wrong, I know chemo & rads are not like they used to be. But, really!  Other people have no clue!!!

    And, so, I can understand the Stage 0 vs. I vs. II vs. III vs.  IV sensitivity issues. The 'walk a day in my shoes' issue. I'd rather none of us had to deal with ANY of this.  Just glad that there are others who understand how I feel.

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited November 2009

    Indomitable1---Yeah, the BC Awareness title needs to be changed to BC CURE!!!!!

  • smithlme
    smithlme Member Posts: 1,322
    edited November 2009

    This may have already been addressed but I'm too frazzled to search through 5 pages. When someone passes on the Stage IV threads, are we allowed to post our condolences? I'm not about to step on anyone's toes...

    Linda

  • lexislove
    lexislove Member Posts: 2,645
    edited November 2009

    smithlme,

    Ive been wondering the same. Honestly? To ask such a question seems ridiculous, but Im not about to step on toes either.

  • sheila888
    sheila888 Member Posts: 25,634
    edited November 2009

    I did with Heidi And Amber. We are allowed to feel sad when one of our sisters become an angel.

    Had a friend stage IV not on these boards but we talked on the phone a lot. This is a lost of life. I feel if I know the person from these boards will post it.

    What do you think ladies?

    Sheila

    Edited to correct the spelling

  • lexislove
    lexislove Member Posts: 2,645
    edited November 2009

    I agree with you Sheila. I feel that when a member of the board passes,condolences are expected from woman. Regardless of stage.

    It's just the right thing to do in my book. IRL when I hear of someone passing I always offer my condolences. I was brought up to be empathetic and polite. Why would I leave it all at the door when I come on the boards?

    I also think that at times it may be comforting for family members of the woman to log on and see just how much the woman were loved and respected on here.

    Just my 2 cents....

  • hollyann
    hollyann Member Posts: 2,992
    edited November 2009

    smithlme, no one has complained about postind condolences so far on the stage 4 thread......I really don't think they mind that.......

  • pip57
    pip57 Member Posts: 12,401
    edited November 2009

    I hope not.  I just did.  If they didn't expect us to post on those topics I would think that they would just post the info on another thread.

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited November 2009

    I wanted to post about a BC sister I have gotten to know who was on another thread, then went to stage IV and has had a turn for the worse.  I posted on the threads she posted on.  Her husband wanted us to send her 1000 cards by Thanksgiving.

     I personally don't feel comfortable posting on the stage IV section; only posted once a condolence for a stage IV sister I had gotten to know.  I won't post anymore for fear of upsetting the people on the thread.  But that's me.

  • activern
    activern Member Posts: 409
    edited February 2010
    tsk tsk tsk.  Just read wonderful news about one of my BC colleagues and did not care what stage.....  Life is a stage and we are being a little pragmatic - don't you think?
  • Mazy1959
    Mazy1959 Member Posts: 1,431
    edited November 2009

    jrg,

    If I wanted to offer condolences, I would go to any board here. It should not upset anyone if you do so...but thats my opinion. I know you would only have pure intentions no matter what board it is. Hugs, Mazy

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    If a friend passes, I offer condolences and I don't think it matters which thread/part of the forum those condolences are posted on as long as the feelings being expressed are genuine.

    Cheering someone going through a rough patch is a bit more of a delicate balancing act, suitable only for someone you have gotten to "know" and I would probably try to keep those to the threads that we share outside of the stage IV forum, or to private messages.  Of course if something comes to my attention on the active threads I might not immediately notice that it is in the stage IV forum although that may change with the new heading. 

  • deborye
    deborye Member Posts: 7,002
    edited November 2009

    When ever I post on Stave IV boards is because I know and met the person.  I met alot of wonderful ladies 1 yr ago October in Las Vegas and a number of them are Stage IV.  I love them dearly.

    I of course offer condolences when a BC sister passes of this beast, my mum died 13 1/2 years ago, she fought the beast for 6 years.  She was only 64 yrs old. God I miss her.Cry

  • jader
    jader Member Posts: 223
    edited November 2009

    Personally, I think a lot people post on stage 4 threads is because when some people become friends, they ARE NOT STAGE 4  -- yet!  You make friends with people and then they become stage 4 so some people follow their friends.  Or some people made friends with women on other areas of the board and now they are stage 4 ..  so many women are concerned not for themselves but for the stage 4 gals and want to be supportive.  

    Very sad to have to have all these forums .. seems divisive instead of inclusive ..

    Like I really don't understand the need for a Muslim women FORUM!!  WHAT is wrong with posting in the spiritual one?  Do we need a Christian one or an Atheist forum???  How about a Jewish one?

    And the African American forum?  What if you aren't American but plain African? Or French? Maybe we should have an Asian ladies forum, too.

    This is all very, very divisive when we all simply have cancer and everyone is just scared.  

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited November 2009

    I am so glad we can talk about this and feel safe.  I truly believe it is important we can feel comfortable expressing our thoughts, feelings and ideas.  I know I look for others' ideas and their input; who knows, maybe my continuing to discuss, compare notes, find out about tx and share what we know we can discover better tx, better recovery and communicate more effectively a way to survive our ordeals and discover a cure.  We all know how multifaceted the sneaky beast of cancer is.  Our dx, our tx and our survivability should not , cannot and I hope for all of us is not a cookie cutter kind of situation.  ( I know, yet another discussion !  ), but if I had never discovered bc.org, it would have taken me so much longer to discover a really good lotion to put on my foob during radiation tx, hence take a much longer time to schedule a exchange....

    Anyway, I go on and on just to say thank you all for stating your opinion, and responding to mine.  I probably won't post on stage IV - but that's just me.

  • konakat
    konakat Member Posts: 6,085
    edited November 2009

    I think condolences or sending good vibes/encouragement to a friend having a rough time on the Stage IV board are very welcome. 

    I don't think there's anything wrong with having a variety of focused (can't think of the right word) forums -- it makes it easier for people to connect with others that have something in common with them.

  • activern
    activern Member Posts: 409
    edited February 2010
    @Jader:  cause it is the society we live in - made by us and politicians.........
  • Member_of_the_Club
    Member_of_the_Club Member Posts: 3,646
    edited November 2009

    I don't see why its divisive to have sections where women with particular concerns can find each other.  Where else can lesbians with bc have a forum?  I think its great that they have it here.  I suspect they have particular concerns -- for example, how the medical system treats their same-sex partners -- that the rest of us don't have.  I suspect French women don't have particular concerns and there aren't enough of them here to warrant their own section.

    This is also true for different aspects of bc.  We know it isn't one disease.   Women with IBC have an entirely different landscape than those of us with IDC.  Why not let them have a section to share information and concerns?  Why is that divisive?

  • gama
    gama Member Posts: 1
    edited November 2009
    just found ducal carcinoma stage one really undecided what to do lumpectomy or masectomy?vrery confused.

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