Suzanne Somers has changed her diagnosis

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  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited October 2009

    nixiechaos, you did chemo, but now are just doing mega vitamins? Chemo done right?

    Just helping with the time line.

    There was another gal here who did alternative meds. Wheatgrass everyday (grew her own), did an extensive vitamin regiment.  She just had bone mets. If I remember she wasn't on chemo either..Eventually her platelets tanked on her. She is gone now. I will look her up.

    Not black and white.

  • Dawnbelle
    Dawnbelle Member Posts: 696
    edited October 2009

    I think we all want to make the right choices.

    So when a stage I SS, tells people chemo kills. There is an outcry from the girls chemo has saved. I don't have any answers, I don't understand why two girls with the same Dx, can do the same Tx and have two different outcomes.

    When I decide that I am effing nuts and BHRT makes sense for me, I take offense when I am told how stupid that is. I take offense when I am told keeping a breast was stupid. Somehow, we have all come to believe that our own personal way is the only way, or the best way. Maybe that is our way of being secure with our personal decisions.

    It is hard to keep peace when we are all so very emotionally fueled.

    There is no black & white. There is no black & white. There is no black & white. I'd click my heels three times if I thought it would help.

    My hope is that we keep learning from each other & that our daughters, granddaughters, sisters and friends never have to make the choices we do.

    On a note; Ten years ago when SS did not have chemo, that was against the normal standard of care. OncoDx kept me from chemo, even after my BS assured me with a grade two cancer it was a given. Would I have said no to chemo without a score of 6? SS had big kahunas back in the day of her Dx. She said no without the security of an OncoDX....there are girls here who are afraid to forego chemo with low onco scores. Yep, big kahunas, Ms. Somers.

    Hope you all have great days. ~Dawn

  • nixieschaos
    nixieschaos Member Posts: 130
    edited October 2009

    I did all the chemo, yes. I believe I said that in my post.  I am now on Herceptin, and have added supps to help protect my heart. I would never suggest that chemo should be avoided. Heres my consern. In GENERAL, not everyone, there seems to be a definite line between alternative and traditional. The thought of the traditional gal crossing the line and trying the alternative is taboo and vise versa. I think there should be a balance. When I told my doc what i was doing after he told me I was going to die, he sat back , smiled and told me I could eat whatever I want. I knew then that I was really on my own. So glad that I took my overall health into my own hands.

    And YES fitztwins...Black and white. I think I was pretty clear in my post. Denny is black and white with regard to adding any alternative to the traditional chemo. She said YOU CAN'T. I am he shining example of "YOU CAN".  Nothing about this disease is black and white. It's all still a mistery. Causes, treatments, all of it.  

  • anitach
    anitach Member Posts: 191
    edited October 2009

    So when SS tells breast cancer patients, or any cancer for that matter, that "chemo will kill you", is that not "black or white". I think Dawn was correct in her assesment that 2 women with the exact same dx could react to treatment in totally different ways.... which is exactly why it is dangerous for someone in Suzanne Somers' very public position to say that chemo WILL kill you. For many women, including you nixieschaos, it was a valuable resource in your arsenal. No, not the only resource, and I think it is great that supplements helped you as well; however, you can not deny that if you took Ms. Somers advice and went with the "chemo is killer poison" train of thought, chances are you would not be here today to talk about it.



    Anita

  • Member_of_the_Club
    Member_of_the_Club Member Posts: 3,646
    edited October 2009

    Nixie, when you do these treatments in addition to traditional medical treatments, it is usually referred to as "complementary" not "alternative."  When i hear that someone is using alternative medicine, I usually assume there are foregoing traditional medicine.  That may be where the disconnect is.  Most mainstream oncs will support complementary medicine but not alternative.  

    Dawn I I agree that people get fixated on what they've done as the right path.  This is so true in the mastectomy versus lumpectomy debate, a more personal decision I can't think of.  I have also felt criticized for keeping my breasts.  But I also think SS is spreading a lot of irresponsible hooey.  

  • Denny123
    Denny123 Member Posts: 1,886
    edited October 2009

    nixie,

    You truly are a miracle as am I.

    I was told 6 years ago that the chance of me living for 5 years at Stage 4 with aggressive liver mets was less than 5%.

    You bet that all of my doctors are also scratching their heads over me.  I had A/C, Taxotere, Rads, Gemzar and Herceptin and I have been in remission for over 5 years-NO sign of CA anywhere.  Perhaps SS would call that "Whole-body clear"  :o)

    I have not had any supplements at all.  When I insisted on taking extra Vit D, my onc kept testing my D levels, said they were fine and demanded that I cease.

    Trouble is, I really think that very few ladies are as blessed as we are.  I have always questioned why my Stage 4 pals did not have the success that I did-it seems unfair that I should be the only one left in remission in my circle of BC pals.

    There is absolutely NO black and white, but I feel that I would prefer to omit all complimentary items rather than gamble which ones will or will not work.

    A case in point (no I will not bother to look up the actual stats-anyone can cut and paste) that was published in the New England Journal of medicine 5 years ago-Green tea should not be consumed the day before, day of, or day after Herceptin treatment.  Green tea has been shown to actually protect the cells so well that some of the effects of Herceptin are negated.

    If you disagree, fine, but I will continue on my merry way consuming only natural, real foods with no complimentary or alternative treatment.

    To me, that is the REAL natural way.

    Denise

  • brewster
    brewster Member Posts: 19
    edited October 2009

    >>On a note; Ten years ago when SS did not have chemo, that was against the normal standard of care.<<

    Actually, it may not have been, depending on the other factors of her cancer, chemo may have been optional or of so little additional benefit (according to the data) that it may have been presented as purely optional to her.  Somers states she had Stage I with negative lymph nodes, but uses so many BS words that don't actually mean anything and is always short on specifics, we can only make guesses about all the other details of her cancer.

    BTW, in her latest 'scare', Somers had disseminated coccidioidomycosis (a fungal infection a.k.a. Valley Fever).  The thing about coccidio is that most healthy persons have only mild or even no symptoms for years, and the infection stays localized because the immune system keeps it in check.  The vast majority of those who develop the disseminated form of coccidioidomycosis are those with a weakened immune system.  You just hardly ever see anyone else get the disseminated form unless they have underlying problems that weaken the immune system.  e.g.  AIDS patients, cancer patients, patients who are on corticosteroids, et. al.

    Somers is not old enough to qualify as having a weak immune system due to being 'elderly'.  So evidently, all those 'natural' supplements she takes claiming it to 'support/strengthen the immune system' weren't working too well, and could even have contributed (e.g. all the "bio-identical" hormones she takes).  Oops!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2009

    Denise,

    At your suggestion, looked up green tea and Herceptin. You have it wrong. Check

    http://www.breastcancer.org/tips/nutrition/ask_expert/2007_07/question_12.jsp

    Not all alternitives are Satan Wink

  • clemson93
    clemson93 Member Posts: 575
    edited October 2009

    I don't think that foregoing chemo gives SS any bigger "kahunas" than anyone else fighting this beast.

    Susan

  • Denny123
    Denny123 Member Posts: 1,886
    edited October 2009

    Lucy,

    Thanks, but since my onc. verified the info, I will continue to believe him. And I just attended an ACS conference and they agreed.

    Why take a chance?  It isn't like I desperately have to have green tea everyday.

    Herceptin is keeping me alive-I can forego green tea 3 days a month without a problem.

  • brewster
    brewster Member Posts: 19
    edited October 2009

    Denny123,

    I think your onc might have seen some earlier study or paper that concluded green tea might interfere with *some* chemotherapy agents, and was assuming this could apply to Herceptin as well out of caution.  Here is a pretty good list of the known interactions or contraindications for green tea (or its active extracts/derivatives) from the University of Maryland Medical Center website:

    http://www.umm.edu/altmed/articles/green-tea-000910.htm

  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited October 2009

    Whenever I have a cup of green tea, I get a hot flash! is that weird?

  • Denny123
    Denny123 Member Posts: 1,886
    edited October 2009

    Hoping-Thanks for posting that link.

    Did anyone else catch-toward the end of the interview when the doctors were on...She said one of the reasons why she wrote the book was because of her "experience with chemotherapy"????

    Thanks Brewster.  Since Herceptin is still so new, possible interactions are still being studied. A10-year study is sketchy, since not a lot of women have been on it that long.  I am only at 6 years myself, and my progress is constantly being followed.

    Denise

  • hrf
    hrf Member Posts: 3,225
    edited October 2009

    no one mentioned anything about not drinking green tea while I was doing chemo... before this dx I drank cups and cups of it every day.....I don't think I drank it while doing chemo because everything tasted bad. I'm on arimidex and am drinking lots of green tea again (even though it didn't do anything for me in regards to prevention of bc)

  • pip57
    pip57 Member Posts: 12,401
    edited October 2009

    Fitz, try drinking your green tea cold. If that doesn't help maybe you are just one hot lady!?

  • Denny123
    Denny123 Member Posts: 1,886
    edited October 2009

    hrf,

    I drank lots of it too during chemo.  There was never a mention of interaction with anything but Herceptin.

  • azdiva
    azdiva Member Posts: 201
    edited October 2009

    Fitztwins - 

    I think it may be due to the chemo, but I have been getting hot flashes with green tea as well.  And red wine.  And pretty much everything else.  I am living on popsicles, and hope this phase will pass.  Although Onc said we may have to talk about Lupron or Zoladex after I finish the chemo.  FUN! 

    Onc did say that green tea was fine, just don't go superoverboard with it.  I read some study that it actually helps increase the efficacy of taxane chemos (I'm on Taxotere and Cytoxan).  So, cup of green tea, popsicle, repeat!

    Have a great day Ladies!

    Laura 

  • 3katz
    3katz Member Posts: 1,264
    edited October 2009

    I finally was able to watch this interview. Oh My!!! She really is something else!! I loved that Dr. Otis Brawley - he was very clear and level headed and I think it was great that he called out SS using "unknown" terms.

    This is the first thing that came to mind after listening to SS's story: Was this an episode of "House" that I missed? (did someone else mention this? There are too many pages to review.) She made the point that she would not mention the hospital nor the doctors' names. Hmmmm . . . if I was treated so terribly I would be shouting it from the rooftops so no one else would be treated that way. Or was there some sort of non-disclosure settlement? She did say it wasn't worthwhile to sue. Hmmmmm again . . .

  • Denny123
    Denny123 Member Posts: 1,886
    edited October 2009

    Okay, here I am being all negative again-my bad.

    I think this is total fiction.  She is saying that 6 doctors dx'd her with "whole-body cancer" which no doctor would ever say, or poisoned wine, or leprosy or TB and finally Valley Fever.

     Possibly she was only dx'd with Valley Fever, but then she wouldn't be able to write a whole book about "her" cancer cures.

    So my question is-was she ever in a hospital at all?  If she was, that hospital would be hastening to refute her claims of a multiple missed dx.

  • brewster
    brewster Member Posts: 19
    edited October 2009

    Actually, medical privacy laws would prevent a physician or hospital from identifying themselves as the treating physician or institution, or commenting on anything about her care/treatment/diagnosis.  She could fabricate many things about her story and they still would be forbidden from commenting.

    However, if she identified the doctors or hospital, and she had stated falsehoods, they could sue her for defamation, libel, or slander (whichever was legally appropriate).  As long as she doesn't identify them, she is secure in knowing the law prevents them from coming forward or commenting.

  • kittycat
    kittycat Member Posts: 2,144
    edited October 2009

    Interesting thread...  SS is nutty - "full body cancer" - what's that???

    Ok, I've had my glass of wine and interesting reading.  Night Night everyone!  :)

  • rinna40
    rinna40 Member Posts: 357
    edited October 2009

    I watched the video on line, and she is a nut. There was nothing stating that the two doctors on the show had any greater success. I agree that chemo is tough, and no one has ever said that it is THE cure. When they find something that is curing everyone, I'll be there. Also, her story really lost credibility (if it ever had any) when she said that "Dr. Infectious" said that she could have TB or Leprosy and she'd have to stay in the hospital fo r 4- 6 weeks. And that they gave her the meds for both these diseases and told her to start taking them. Does that make any sense at all? An on Larry King she said they don't know what she had - maybe she was poisoned? Where was it when she finally decided that she had valley disease?

    Give me a break 

  • desdemona222b
    desdemona222b Member Posts: 776
    edited October 2009

    Doctors are speculating that the 60 supplements a day SS takes were the cause of her grossly enlarged liver.  They were certain at first she had mets to the liver it was so large when she had her recent medical crisis.  They are nearly certain the supplements were the direct cause of the crisis to begin with because it was a systemic fungal infection that people without compromised immune systems just don't get.  Since it nearly killed her, I don't think her experience speaks well for her supplement regimen.

  • RobinWendy
    RobinWendy Member Posts: 1,983
    edited October 2009

    SS is a self-promoting opportunist who has no freakin' clue what she is talking about.  Do we really want to take vital medical advice from Chrissy Snow?  Oh wait, she's not a moron... she just plays one on TV.  She is a menace to all vulnerable ill informed people everywhere.  Shame on Larry King and Oprah Winfrey for highlighting her nonsense without any research to back up her ridiculous claims.

  • hrf
    hrf Member Posts: 3,225
    edited October 2009

    She was in Toronto this week, promoting her book and appeared on all the morning shows. After seeing her on Larry King, I couldn't stand to see another SS interview so I passed. Unfortunately, for people who don't have some understanding of cancer, she does make sense to them and they think she has been the one to identify the "aha" moment. What she wants is money for her book and looks like she will make lots of it. Let's see if she makes any donation to a worthy cause that will do real reaseach on preventing or curing cancer.

  • Yazmin
    Yazmin Member Posts: 840
    edited December 2009

    Denny123, you wrote: "There is absolutely NO black and white, but I feel that I would prefer to omit all complimentary items rather than gamble which ones will or will not work."

    Another lady wrote (but I forgot where): "I believe it would not have made any difference whether I use complementary or conventional approaches: I would not have recurred anyway."

    That's the mystery of cancer: some  tumors simply stop, some recur early, some recur late, and some are unstoppable.

    Perhaps yours was also one of the tumors that were not going to recur not matter what treatment you went with. And that's something modern science is not yet able to explain to us.

  • pitanga
    pitanga Member Posts: 596
    edited December 2009

    Jeez, just when I thought this ole horse was dead, along comes somebody to give it a kick.

  • Denny123
    Denny123 Member Posts: 1,886
    edited December 2009

    I still think that SS is a moron....   :o)

    The topic has regenerated in the alternative forum also.   I am staying out of it.

     Denise

  • Reneepals
    Reneepals Member Posts: 2,196
    edited December 2009

    SS is a moron and shame on her. Is she just that stupid? She just doesn't matter!

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