how long should you keep your port

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Sunflower64
Sunflower64 Member Posts: 166

i need some input from you all.  my last chemo is next week and my onco wants me to keep my port in 1-2 yrs.  i was really shocked she said that and i asked her why and she said the cancer could come back and you are going to need alot of blood draws so that was her recommendation.  she said they won't be able to put it in the same place again because of scar tissue build up.  is that true?  does anyone know if i do take it out and i need it again what could i do?  where could i put it?  help.

diane

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Comments

  • GramE
    GramE Member Posts: 5,056
    edited October 2009

    The only problem with keeping the port in is you HAVE to have it flushed at least once a month.   And that means going to a place where they know what they are doing, not the "regular" doctor's office.   I was very happy to have mine out, over a year after it was put in.  It was yet another "reminder"...  But I am HER positive and had herceptin every 3 weeks for a year.   Are your veins "bad"?  

    I would ask the doctor what "a lot of blood draws" means.  Are they monitoring something besides cancer?   And they cannot put it in the same exact place as before.    

  • lexislove
    lexislove Member Posts: 2,645
    edited October 2009

    I had mine out 2 weeks after finishing Herceptin, it will be 1 year out next month.

  • Marple
    Marple Member Posts: 19,143
    edited October 2009

    My pathology appears quite similar to yours.  My port came out about 6 mos post chemo and it wasn't earlier because of a record foulup. 

  • NatsFan
    NatsFan Member Posts: 3,745
    edited October 2009

    My med on wanted me to leave it in for a year after chemo.  At about 8 months, he ordered a PET/CT - we agreed that if it showed NED, then he'd be OK with me removing the port.  The scan was NED, and I had the port out as soon as I could schedule it with my surgical onc.  It was removed under a local - it was quite wierd to be laughing and joking with the surgeon as she's cutting on me!  If I recur, I recur, and I'll deal with that then.  But once I was NED, out came the port.  As Lefty says, it's another "reminder" and I wanted it gone ASAP.

  • TennesseeMichele
    TennesseeMichele Member Posts: 136
    edited October 2009

    I kept mine in for a year.  A year from being diagnosed, that is, not a year from finishing chemo.

     Like NatsFan said, if I have to have another one put in, I'll think about it then.

     A curious thing; I had more discomfort after it was removed then while I had it in.  Sharp pains, but they lessened over time (a couple of months).

    Michele

  • bluedasher
    bluedasher Member Posts: 1,203
    edited October 2009

    From what I've read here, it seems to want that they often say to keep the port in for an extra year or two when there were positive nodes.

    In my case, it wouldn't have helped for blood draws. The phlebotimists can't draw blood from it - only the chemo nurses and if you aren't getting chemo, are you still going to go to chemo for the blood draws? Even during chemo, most of my blood draws were done in the lab and didn't use the port.

    For those of us with negative nodes and HER2+, they usually seem okay with taking the port out at the end of the year of Herceptin.

    I was told that the port needs to be flushed at least once every 6 weeks if you keep it in. I was able to get port removal scheduled for 4 days after my last Herceptin so never needed the flush.

  • Kim09
    Kim09 Member Posts: 100
    edited October 2009

    My onc said I could have it taken out anytime after I finished my last chemo (Oct 1).  I am planning on the surgeon taking it out while he is doing my bi-lateral mastectomy (long story, I had a lumpetomy in July, had cancer in one margin but had to start chemo right away).  Hopefully that surgery will be schedule for right after Thanksgiving weekend.  I will find out on Tuesday when I meet with the Surgeon.

    I was told that my port had to be flushed every 4 weeks.  So I am looking at having it flushed two times before it comes out.  I just have to go to my chemo center and have them flush it. 

  • MarieK
    MarieK Member Posts: 911
    edited October 2009

    I was told that if I got a port it would have to stay in for 2 years and that I would have to take Warfurrin (sp?) to keep it from getting clotted.

    I was offered a PICC line as an alternative and that can be taken out right after my last chemo by the IV nurse.

    My veins are bad and I've already had an allergic reaction to one of my chemo drugs.

    The PICC line is going in this Thursday with a follow up on Friday.  I was told that it would need to be "flushed" & the dressing changed every week.

    Hopefully it will mean a faster and easier chemo infusions!

  • Sunflower64
    Sunflower64 Member Posts: 166
    edited October 2009

    hi michele,

     is it true that they can't put the port back in the same place as it was because of scar tissue build up?

    if you needed your again where would they put it?

    thanks,diane

  • Sunflower64
    Sunflower64 Member Posts: 166
    edited October 2009

    hi kim,

    if you don't mind me asking, why are you having a double mast?  i had a lumpectomy in May and i didn't get a clean margin and my surgeon is going back in soon to check to see if it is clean now after chemo

    is over.

    diane

  • Sunflower64
    Sunflower64 Member Posts: 166
    edited October 2009

    hi michelle,

    where would you put it if you needed it again?

    diane

  • americanpinay
    americanpinay Member Posts: 338
    edited October 2009

    I've been told that they can't put port back in the same place. I think they can put one either on the left or right because the surgeon thought about putting mine on the right where I had lumpectomy but ended up putting it on the left. Thinking back, I would rather that he put it on the same side of the lumpectomy so I only had to worry about one side after the procedure. I still have mine.  I am waiting to get an all clear from my med onco before I get it removed. It gets flushed every four weeks when I see my med onco.  Hope this helps.

    BTW, my port was never used for blood draws, just for infusions. I think one has to be an RN to access the port.

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited October 2009

    I am keeping mine thru my reconstruction so they do not have to "find" a vein (equals me in a lot of pain).  After my second phase I will have the doctor's put an IV in while I am under and remove my port.  I have had some REALLY bad IV's in the past year. :(

  • Lauren3
    Lauren3 Member Posts: 289
    edited October 2009

    This is a great question and something I've been wondering.  I just finished chemo and starting rads in a few weeks.  I did have positive nodes though.  Jamieh great point about the recon though.  I'll have mine in April if all goes well and it does make sense to keep in.... never thought about this till reading your post just this moment.  I had a terrible IV experience ironically, the day I went to have my port put in. 

  • dcarpenter
    dcarpenter Member Posts: 36
    edited October 2009

    LaughingI had my port removed 4 months after i completed chemo, my oncologist recommended it be removed, and was so glad to get it out.

  • Bahons2
    Bahons2 Member Posts: 98
    edited October 2009

    Hi all

    I live in France and I have a port.  It was put in nearly two years ago.

    Here they have taken note of research that shows that flushing ports serves no purpose and mine is never touched except to administer drugs.  This is a country-wide policy.  So far the longest mine has been left undisturbed is 7 months and it worked perfectly.

    I hope this practice will become more widespread as the benefits to both patients and staff are enormous. 

    X

  • cm1122
    cm1122 Member Posts: 12
    edited October 2009

    I'm surprised to see all the posts saying how long they kept the ports in, I didn't realize! My onc was fine with me having mine removed shortly after I finished radiation, I wanted it out before I went on a vacation. I never thought about what I'd do if I needed one again.....I only get blood draws at my 6 month appts, and they take those from my finger like they did all the others throughout my treatment.

  • Lisa1964
    Lisa1964 Member Posts: 944
    edited October 2009

    I had my port out today.  6 days after my last Herceptin treatment.  Adios!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2009

    I'm keeping mine for another two years for Zometa infusions...I've had mine for a little over a year. I've got crap veins in my left arm. While my port is useless for blood draws due to a fibrin sheath that's formed over the end of the tail, it works like a charm for infusions. I'm presently cancer-free, and I think that a monthly flush of Heparin is a small inconvenience.

  • Estepp
    Estepp Member Posts: 6,416
    edited October 2009

    I had my port out at exchange. I asked if I could because I had 4 more Herceptin to go. I WAS SHOCKED when my onco said yes. The nurses said he must feel pretty darn secure that I am cured..LOL ( whatever that means)

    However, I have had 4 bones scans, two Brain Mri's. and three Cat Scans.... so... when all these came back ok over this past year..... he must have felt I would be ok???? who knows... all this is random ladies....unfortunately!

  • ShondaE
    ShondaE Member Posts: 48
    edited October 2009

    I had my port taken out about 4 weeks after my last chemo treatment.  My onc said there was no need to leave it in anymore..

  • diana50
    diana50 Member Posts: 2,134
    edited October 2009

    i had my port taken out 5 months after i finished chemo.  my surgeon wanted to keep it in but i said no way.  it was a good decision for me as i wanted to begin to get my body back.  i think it is a decision to make with your doctor and also how YOU feel.  i always figured IF i needed another port they can always put one in...

  • suemed8749
    suemed8749 Member Posts: 1,151
    edited October 2009

    I finished Herceptin in April, had a clear PET scan over the summer, and got mine out in September. I didn't have it flushed over the summer, so it wasn't used from April - August, and when they drew blood from it, it worked fine.

    In my experience, only a few imagining centers have someone who can access a port, so usually had to have an IV in a vein. Best surprise - there was an ex-chemo nurse when I had a colonoscopy, so she used my port! My daughter has been an RN for a few years, and she just got certified to access a port.

  • Lauren3
    Lauren3 Member Posts: 289
    edited October 2009

    I saw my onc. yesterday and he said I can have it out when I'm done with rads!  So probably sometime in January.  Yay!

  • Ainm
    Ainm Member Posts: 781
    edited October 2009

    I'm having my port out next week, its been in place 8 months.  I could have had it out 3 months ago but chose to keep it to facilitate blood tests (I was anemic for a while after rads). I did have positive nodes but that does not seem to be an issue with having the port removed. Since I finished chemo in June I had the port flushed every 6 weeks.  I had heard that ports are left in place for up to 2 years but when I asked my onc about that he said that was old procedure and that now they like to remove them as soon as possible after treatment to cut down on the possibility of infection.

  • scrappy_survivor
    scrappy_survivor Member Posts: 149
    edited November 2009

    Had mine out exactly 3 weeks after chemo ended. I ahted the damn thing & told my onc if it comes back I will deal with that then but this thing is coming OUT! & OUT it came. 6 months later still no recourrance so I could ahve waited for nothing or not but either way... no regrets.

  • FairyDogMother
    FairyDogMother Member Posts: 253
    edited January 2015

    The doctor's keep telling me in a year I will get it out, but that time frame keeps getting longer. I'm a back stick, so maybe that is why they are leaving it in, but I'm getting blood taken every 6-8 weeks still. Last chemo was 1/23/14.

    I'm only concern by it, because my dentist, nurse for my Nana, and my GP keep asking me why I still have it in.



  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited January 2015

    I had my port put in last August. I just finished my last chemo yesterday and my port is coming out January 21. My onc says I don't need it anymore. Hope she's right

    Nancy

  • madeditor
    madeditor Member Posts: 25
    edited March 2015

    I completed chemo on Dec 31. I will complete radiation on March 11. The port comes out on March 13. Oncologist gave me all the pros and cons. But she also said it is a personal decision and left that up to me. I want it gone. I feel as if it is an alien being within me. It's tender when I roll over on it at night. And I just hate looking at it. I cannot move on mentally as long as I have a port in my chest. I cannot wait to get rid of it. If the time comes when I need a port I will have a new one put in.

  • nancyannee
    nancyannee Member Posts: 2
    edited March 2015

    My onc also recommended I keep my port at least 2 years, I thought it was because I am triple negative. Makes me feel a little better to know others have been told 2 years as standard. I just finished my 8th round of chemo and will soon start rads. A little concerned there was no mention of needing my port flushed every month.....


    peace


    nancy

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