Sex become difficult?

Options
Rubyluby
Rubyluby Member Posts: 74

Hello ladies,

This may be a sensitive or "embarrassing" topic, but I feel desperate enough to feel compelled to air it anyway. 

I finished my FEC chemo on the 8th July and had my last radiation in September. Among the residual effects of treatment, the one that upsets me the most is having lost my libido. And when I do manage to get it together to have sex, I feel all dried up and it's actually quite painful. Frankly, I'd rather have a cup of tea than have sex. I feel pretty devastated about it because my darling partner has been absolutely amazing throughout this dreadful business, and I don't want him to lose out on a sex life. And I miss our sexual intimacy.

Have any of you had a similar experience?  How did you cope? Did it get better?

Big healing hugs to all of you,

Lucy x 

Comments

  • sakura73
    sakura73 Member Posts: 467
    edited October 2009

    Lucy

     You should check out the I want my Mojo Back thread which is on the MOving on from Cancer board - it is pinned to the top of the first page of threads. It has heaps and heaps of ideas from lots of different women.

    For my own part, I found that - 

    (a) it was better to have sex even if I didn't particularly feel like it, because afterwards I always felt satisfied and more sexual. Having sex kept my libido flickering. So don't wait for it to come back  - bring it back by acting as if it is already back

    (b) one needs lots and lots of foreplay and a really good lubricant (I recommend Pjur, check out the Mojo thread for other suggestions)

    (c) the best way to lubricate is oral sex (seriously)

    (d) on times when I really couldn't face penetration there were still lots of ways I could make my boyfriend happy, and usually making him satisfied made me feel more relaxed and sexual anyway so that I enjoyed myself more

    (e) the key to penetration is going really, really, really slowly. LIke, it might take 5 minutes for him to get fully inside you, if that is how long your body takes to adjust. But it is worth it!

    (f) get yourself a good vibrator if you don't already have one, and use it often, because orgasm helps ease the dryness.

    Sorry if this is too explicit - be warned the Mojo thread is worse!

    Good luck to you. THis is such an important thing in our lives and there is no way we shoudl let cancer treatment take it from us. Using the above guidelines I had good sex (though not as much as usual) throughout chemo, and I do definitely notice my body beginning to recover now that I am  nearly 2 months post chemo.

  • Rubyluby
    Rubyluby Member Posts: 74
    edited October 2009

    BLESS YOU, Sakura73! Thank you for your incredibly 'comprehensive' advice - it's like gold! Though I can't believe I was so Doh! as to miss the "I want my Mojo back" thread where there are pages and pages of advice...

    I see we were both diagnosed in January so we are sisters in a waySmile

    Best wishes and healing hugs to you,

    Lucy  

  • Sandals
    Sandals Member Posts: 104
    edited October 2009

    I'm going through the same thing.  I was diagnosed in April and got married in June and since about my 3rd Chemo, I've had no desire whatsoever to have sex.  Its had a huge, huge impact on my relationship with my new husband.  He thinks I'm just not interested.

    I asked my Oncologist about it but he really thought I was just talking about dryness and said that maybe I just don't feel sexy right now.  I'm very comfortable with how I look right now (it took time) so I know its not just me feeling unsexy. 

    Also going through hot flushes/flashes aswell so it may be that I'm just hitting menopause early. 

    I really wish someone had told me about all these side effects when I was diagnosed!

  • Rubyluby
    Rubyluby Member Posts: 74
    edited October 2009

    I know what you mean, Paulsgirl - I think lots of us wouldn't go through the chemo if we were forewarned about all of this stuff...whihc is precisely why they don;t tell us. BUT, I did find sakura73's advice above very helpful and this morning had dirty, dirty, dirty mutual oral sex with my feller - no penetration, but we both really found it dead sexy and it got around the dryness issue.

    Hearty congratulations on getting married, by the way! I'm sure you'll find that, even if it's been a hard thing for a new marriage to be hit by, long-term, having to deal with something like BC together will strengthen your relationship. Everyone tells me the most important thing is keeping hte communication open.

    HUgs,

    lucy 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2009

    Ruby,  this is a thread that I'm sure many women are feeling.  I mentioned this on my thread not too long ago about missing having hot sex with my hubby as a reason I don't feel positive, as others always seem to tell you how to feel.  I am one who really misses that because it was always a very important part of our 37 yr. long marriage.  Sex was always good between us.  Even now with all I've gone thru with this bc beast, he's been thru every step of the way even tho sex has not been great. I do agree with what others have already posted here.  Even when there is no libido, just staying sexually connect  to each other will bring about those feelings.  Don't just wait for your libido to happen.  In our circumstances, we have to make it happen.  Lots of lubrication and foreplay with a vibrator is helpful for getting those feeling down there to want him inside you, and then go very slow if it is painful.  I found it was painful for me because I think the skin around our vulva is thinned out from the lack of hormone.  I wanted to speak to my gyno about possibly getting some progesterone or testosterone creme to apply down there to alleviate the thin skinned hard to penetrate area.  It' s just a thought that I want to run by my gyno and if any ladies have any advise I would be grateful to hear it.  Oh and by the way we are really bc sisters! We were diagnosed on the same day.

  • rgiuff
    rgiuff Member Posts: 1,094
    edited October 2009

    For those of you with vaginal dryness, another option if the lubes don't work is also to ask for a prescription for some local vaginal estrogen, such as Vagifem or Estring, even some Estrace cream to be used sparingly.  It's hormonal replacement for the vagina, many Oncs will OK it, even if you are ER+, some won't.  If you are ER-, there should be absolutely no reason not to be able to use it.  Those of you who have been through chemo, are probably in "chemopause" so you're not producing the hormones that affect desire, and keep the vagina in good shape, like testosterone and estrogen.

  • Sailorgirl
    Sailorgirl Member Posts: 10
    edited October 2009

    When I explained these problems to my oncologist, I was sent to a gynecologist for help which was a waste of time.  He just said there was no way I should use any hormones cuz I was ER+ and PR+.  He just said to use lubrication.  But my vagina hurts whether or not I am having intercourse.  Another cancer survivor recommended Replens, a vaginal moisturizer that you use every 3 days on a regular basis which helps with the pain.  but I hate my life.  I really miss my natural progesterone cream which I was using before cancer.  It solved all my menopausal symptoms, and brought my libido back but they don't want me to use it.

  • Sandals
    Sandals Member Posts: 104
    edited November 2009

    I was prescribed Vagifem but when I read not to take it if you've had BC, I just didnt take them.  Even if I am ER-, everything that mentions BC just scares me!

    I wonder does your libido come back though?  Is there a certain period of time that everything becomes ok or could this last forever? 

  • chinablue
    chinablue Member Posts: 545
    edited November 2009

    Is there anyone out there that can give us hope?

  • ebann
    ebann Member Posts: 3,026
    edited November 2009

    I am a triple negative and cannot have any kind of hormones. I have lost it all and it sucks. But my doctor put me on Cialis and it is wonderful and keeps the blood flow going in that area and I have actually reached climax. That was very exciting. My insurance does not cover because it is considered a luxury. It is worth the money ladies. I only take 5mg a day and it last up to 36 hours. So I spread mine out. See what your doctor tells you. This was from my gyn. my oncologist said I needed to see her. Just thought I would share. I have finished chemo Jan. 7, 09 and started Cialis in July.

  • kmartin
    kmartin Member Posts: 78
    edited December 2009

    Hi ebann,

     I find your use of Cialis intriguing! I just started using Vagifem once a day for 2 weeks, then I am to use it twice a week. I am TN so no problems with vaginal estrogen. My gyn even prescribed some estradiol cream to use externally for the first two weeks. Am going to give sex a try this weekend...I also have been using Astroglide lubricant which helps a bit. Am going to fake the libido part...just go ahead and give it a try.

    Kathy

Categories