Triple Neg with spread to bones"

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christy50
christy50 Member Posts: 8
edited June 2014 in Triple-Negative Breast Cancer
Triple Neg with spread to bones"
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  • christy50
    christy50 Member Posts: 8
    edited October 2009

    Hi Everyone,

    I've never done this so please bear with me:)

    I am almost 5 years out and have been having pain in my lower back for sometime now. I was wondering if anyone out there has had a spread to their bones after treatment?

    My Mother had breast cancer (double mastecomy) and within 3 years had spread to her bones.

    Do you think I should be concerned?

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  • j414
    j414 Member Posts: 321
    edited October 2009

    Christy,

    The unfortunate reality is that many women - on and off this board - experience a local or distant recurrence after treatment.  I'm not saying your pain is from a metastsis, but the possibility is always there - for all of us. No one on this board can diagnosis you. You're a breast cancer survivor, you have a pain in your lower back, I implore you to make an appointment with your oncologist and let him or her rule out any breast cancer related condition.  Please don't wait on this. Best J.

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  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited October 2009

    Dear Christy,

    Pain in lower back could be anything - muscle/bone pain from injury, arthritis, cramps from periods, onset of menopause, bone mets or something else altogether.

    I did read somewhere that TN is more likely to spread to soft tissue organs like liver, lungs and brain but bones mets happen too.

    Get it checked out. Our wishes are with you.

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  • christy50
    christy50 Member Posts: 8
    edited October 2009

    Thank You, for the support and info. I did want to point out that I know this is not caused by cramps from periods, because I have had a hysterectomy. My Mom's spread was first noticed by the pain also in her lower back. Just concerned that history might be repeating it's self :(

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  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited October 2009

    Dear Christy,

    What did you find out?

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  • Duffymom
    Duffymom Member Posts: 179
    edited October 2009

    Christy,  I have mets to my bones.  The dr was surprised I didn't have any back pain. I'd recommend getting it checked out, even for peace of mind.  They say the bones are one of the areas that responds to treatment well. Hope you hear good news!

     Kathy

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  • SuzShea
    SuzShea Member Posts: 8
    edited November 2009

    Hi - When I was dx in 04/07, it was stage IV with mets to my ilium.  As of today, I still have mets only to my bones throughout my body.  I can honestly say, that I am not in pain.  The only discomfort is some hip and lower back pain.  So, what I am saying is, you can have mets to the bones and not even know.  I would definitely recommend that you tell your oncologist of all your aches and pains and may sure you get your PET/CT scans when told to.  Be Well.

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  • tibet
    tibet Member Posts: 545
    edited November 2009

    I heard for TN, after 5 yrs out, it is almost impossible to have mets or extremely rare after even 4 yrs out.

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