Strong ER/PR+ would be easier to get recurred?

hlya
hlya Member Posts: 484
edited June 2014 in ILC (Invasive Lobular Carcinoma)

One of my BC friend told me (not sure where she got the info. from),  the stronger your ER/PR+ is, the easier your BC will recur,  I read something similar somewhere on internet as well.    What did your doctor say?

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  • Gitane
    Gitane Member Posts: 1,885
    edited October 2009

    This is really not something that anyone knows.  There are so many factors that affect how well we do after treatment.  I have read that women who have negative ER/PR may be more likely to recur within the first 3-4 years, and that women who are positive ER/PR may be more likely to recur at a later time.  Treatments affect these statistics with ER/PR negative BC more likely to respond to chemo and ER/PR positive BC more likely to respond to endocrine therapies.  However, these generalizations come from statistics that apply to large groups of women with many different types/sizes/grades/stages of BC who received many different treatments.  I was told that nobody knows how an individual will do.

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  • hollyann
    hollyann Member Posts: 2,992
    edited October 2009

    I was told with triple negative, meaning ER/PR and Her2Neu negative that there is more likely recurrence the first 3 years than after 5 years and with ER/PR positive bc your chances of recurrence go up after 5 years..........In the end it is all a crap shoot no matter what......Onceyou have bc you always run the chance of recurrence no matter what....I have met a woman here in my town who is a 19 year survivor......She was diagnosed at age 21 and we all know the younger you are the more aggressive it is....I have also met women who were diagnosed later in life who are no longer here who lved only a couple of years......So we really don't know how we will all react to bc.......

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  • KerryMac
    KerryMac Member Posts: 3,529
    edited October 2009

    I think the wide-spread use of AI's is too new for any reliable stats to be issued anyhow. Half the time I just think the Oncs make it up! They really just don't know.

    The different approaches of hormonals is so wide-spread - some use Tamox alone, some Tamox with Lupron, some suggest an ooph and an AI - hard to know what will or will not work for you. It is kind of a one shot deal - we don't know how things are going to work for us - just because they work for another woman who "on paper" looks exactly the same as you, doesn't mean that you will have a similar response.

    At the end of the day, you just have to do as much as you can, and then make peace with it. And go on and live your life with out any "if only's...."

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  • yellowfarmhouse
    yellowfarmhouse Member Posts: 279
    edited October 2009

    Hi Sherri,

    Are you close to 5 years too?  Any thoughts on what you'll take?  I've got about 9 months left on Arimidex.  I went on Arimidex 6 months after dx and just after having an ooph.  My onc is thinking of  having me stay on Arimidex.

    blessings,

    Wendy

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