Suzanne Somers has changed her diagnosis

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  • Paulie
    Paulie Member Posts: 2
    edited October 2009

    Thanks Athena.   I really am fine.  I finally realized I needed psychological help to get through  and get healthy again  (my  ex locked me out of the house during surgery so I was stressed and an emotional wreck, which can be as devastating for one's health as other illness)

     One thing that struck me as sad was that a few women  on here were failing to see that Suzanne di have breast cancer in 2005 and this second scare was just as hurtful as any cancer diagnosis can be.  She didn't "change" her diagnosis.  Although she is using unconventional methods to remain healthy and is all too often a media whore, one can't dismiss that she felt the same agony and anguish and fear for her family that anyone of of has when faced with a negative diagnosis.

    Thanks for responding.  Hugs and peace to all.

  • jader
    jader Member Posts: 223
    edited October 2009

    Suzanne said her tumor was 2.4cm ... my onc would classify that, even tho no nodes, as Stage II due to size.  

     I find that since she had the lump removed and rads that she is misleading women across the nation, across the seas!!  She did traditional tx!!!  She just refused chemo .. not a rare choice. 

  • vivre
    vivre Member Posts: 2,167
    edited October 2009

    Paulie-thanks for giving us another side to the story. As someone who has learned a lot from Somers' book, and many others that are considered "alternative", it is obvious to me that there are a lot of people rethinking traditional medicine and discovering new and successful treatments, that are not accepted by our Big Pharma controlled business of cancer. I am happy that you finally found out what was really wrong. You might want to check out our thyroid, iodine thread here  because the problems you have had are common with low iodine levels.

  • rumoret
    rumoret Member Posts: 685
    edited October 2009


    Stage I

    Stage I describes invasive breast cancer (cancer cells are breaking through to or invading neighboring normal tissue) in which:

    • the tumor measures up to 2 centimeters, AND
    • no lymph nodes are involved

     

    Stage II

    Stage II is divided into subcategories known as IIA and IIB.

    Stage IIA describes invasive breast cancer in which:

    • no tumor can be found in the breast, but cancer cells are found in the axillary lymph nodes (the lymph nodes under the arm), OR
    • the tumor measures 2 centimeters or less and has spread to the axillary lymph nodes, OR
    • the tumor is larger than 2 centimeters but not larger than 5 centimeters and has not spread to the axillary lymph nodes
  • Nicole112
    Nicole112 Member Posts: 327
    edited October 2009

    Denise,

    Did you ever think one post would get so much chatter! I am finding this thread very interesting! With this said, I am having some issues I need to go get looked at tomorrow. I have been told I have breast lymphedema and I am going to the clinic on Friday for my first consult... In the meantime I have had clear leakage from my nipple, they are convinced this is from the lymphedema and not too concerned... but for precaution they want me to see the surgeon tomorrow... never a dull moment, eh?

    Sorry ladies, I am using this section to post this, I have already ranted on the lymphedema pages to those on there about this issue. Have any of you ladies had this experience?

  • Denny123
    Denny123 Member Posts: 1,886
    edited October 2009

    Good luck Nicole,

     I have been counseling new BC patients for 6 years and have seen ladies get much worse when they tried to go the "natural" route.  And, obviously, some of them passed away. When I was first dx'd with BC, I did have SS's book on nutritional eating. 

    When my liver was at its worse, I had less than a year to live. A new clinical trial of Gemzar with Herceptin saved my life.  Since I had already been leading a very healthy lifestyle, it was obviously the chemo that saved my life.

    I just don't want to see any more ladies die unnecessarily.

    If SS would make public her various health problems without trying to sell books about it, she might be perceived as having more of a motive other than the almighty dollar.

    Denise

  • anondenet
    anondenet Member Posts: 715
    edited October 2009

    You don't seem to understand there is no such thing as an umbrella therapy called "the natural route."

    There are only various specific nonstandard therapies. You must be confused if you think you were on an anti-cancer dietary plan devised by Somers when you relapsed.

    Have you actually read the new book, KNOCKOUT? 

    Not one person who criticizes Somers seems to have read her book.

    <

  • nixieschaos
    nixieschaos Member Posts: 130
    edited October 2009

    Dawnbelle...You rock. I think all of us pots should have a forum. I have been blasted, I have stoped threads in their tracks for suggestimg that maybe we have more control  than we are told. Hell, If I had listened to my docs, i would be DEAD today. I took a little of what they said...and alot of what my instincts told me to do.  Stage I stage IV stage right stage left...it's all frightening.

  • donnabee
    donnabee Member Posts: 580
    edited October 2009

    Hey Kelly,
    Wasnt that an old IRC command? (Internet Relay Chat--a 90's precursor to instant messaging)
    /me remembers those days. AND I remember the flames flying in those forums, too. The more things change, the more things remain the same. -- donna (/nick orangerin)

    /dcc send margarita

  • Denny123
    Denny123 Member Posts: 1,886
    edited October 2009

    anom,

    I did not have a relapse.  I was Stage 4 from the get-go, and I am far from confused.

    I would love to hear from a lady who is STAGE 4, did NOT have chemo or rads, but followed SS's or any other "Natural" path, and survived.  Trouble is, there aren't any.

    What you early-stage ladies don't realize is that BC mets are not slow-growing as the original BC tumors are (except for inflammatory BC).

     When I was told that my liver mets were tripling in size every 3 months and I then knew that I had less than a year to live, the very last thing I thought about was eating more broccoli, or buying SS's books.  I did not have the luxury of reading tons of self-help books as immediate chemo was necessary.

    Chemo did save my life and there are few of us who have survived for over 7 years at Stage 4.

    Blessings on you early-stage ladies and you certainly have the right to follow any beliefs that you wish.  I pray that you will make the correct decision if need be.

    SS can't tell me anything that I have not learned through working with oncologists and counseling 100's of ladies through their tx.

    Sure, attitude, prayer and a healthy lifestyle are very important, but if, at Stage 4 you don't seek out the "big guns" your life expectancy is zilch.

    Denise

  • KellyC
    KellyC Member Posts: 834
    edited October 2009

    Hey Donna!   Used to play an online game for many years, lots of different codes we used :-)

  • anondenet
    anondenet Member Posts: 715
    edited October 2009

    Denise,

    I'm sorry you have closed your mind to new information and SS.

    For the record, SS is the compiler of doctors' interviews/information/scientific strategies.

    And what makes you think you already know about all the "big guns?" So long as you refuse to read outside your comfort zone you close your mind to big guns you don't know about.

    It is more important for stage IV to know about alternatives than anybody.

    >

  • Denny123
    Denny123 Member Posts: 1,886
    edited October 2009

    By "big guns", I do not mean cleansings, detox, any non-FDA approved herbs, protein powders, etc.

    I study the new FDA-approved chemos, especially those in clinical trails.

    I am a certified trainer and coordinator for Reach to Recovery, division of ACS. 

    As my 15 counselors and I discuss treatment with newly dx'd BC patients, it is important that we know the effectiveness and side effects of the chemos that they are receiving.

    I use my knowledge and experience to help new BC patients.

    If an alternative option ever becomes an actual "cure", I will absolutely support it.  To date, this has not happened.

  • Dawnbelle
    Dawnbelle Member Posts: 696
    edited October 2009

    Denny~ The FDA is a joke. Anyone who thinks it isn't big business is a fool.

    It is big pharma who pays for the drug studies. It is big pharma who pays chemo bonus' to docs who Rx enough. Chemo may shrink a tumor, it may kill cancer cells...but it kills all the good cells too.

    Are you suggesting that there is NO possibility that there is a cure for cancer out there that is NOT FDA approved, are you seriously suggesting that? I do know that in the last 35 years, the FDA has NOT approved one herb, nontoxic drug, or vitamin for use in cancer. WHY? Because it doesn't make money, Denny.

    DO you want statistics? Statistics on your FDA approved chemo drugs?

    UCLA found, now confirmed in the Journal of the National Cancer Institute.....Adriamycin is INEFFECTIVE in 92% of women in which it is administered.

    Hell, in the last report the FDA did on itself, they claimed they were incompetent!

    Keep this in mind people;

    I was told by 3 OB/GYN 2 breast surgeons & 2 radiologists that my lump was a fibroid and did not need removed.

    The radiologist even went on to say & I quote "I am SO sure that is not anything, if you insist on removing it, I wouldn't even bother sending it to pathology."

    I had to PAY for cosmetic surgery to remove my lump because it was NOT medically necessary.

    Good thing I questioned those 7 men. Good thing I listened to my heart. It took 7, almost 8 years, but it is out....and it was cancer. I was right & all of those doctors were wrong.

    You can all believe in standard of care if you want to, it doesn't work.

    On a private note~My motives here have been questioned, I have been told I am argumentative & should leave. Really? I am that bad? Ignore me if I am full of such nonsense. IF you doubt, for one second, what your doctors are telling you, question it. Question it OVER & OVER & OVER.

  • Member_of_the_Club
    Member_of_the_Club Member Posts: 3,646
    edited October 2009

    I believe there is no cure for breast cancer out there that has not been FDA approved.  There, I've said it.  

    Dawn, you were stage I, good for you.  I wasn't and if I had not had chemo/rads/tamoxifen I wouldn't be here.  

    Dawn, I don't question your motives, I am certain you believe everything you are saying.  But you seem to have no capacity for understanding that others might see things differently, especially women with stage IV who are fighting for their lives.  I have NEVER heard of a woman surviving metastatic disease with only alternative treatments.  Have you?  How about stage III?  Or even stage II?  Does it EVER happen?

  • anondenet
    anondenet Member Posts: 715
    edited October 2009

    Denise,

    You say when alternative option becomes an actual "cure" you will support it.

    Well, if a mainstream option was considered a "cure" I'd support it. But they aren't curative at all. Read the fine print disclaimers in the consent forms. Even the FDA makes them state that the therapy is "Palliative" and not "curative."

    You have a double standard, holding alternative medicine up to a cure standard that not one single mainstream therapy has ever demonstrated nor claimed.

    <

  • Denny123
    Denny123 Member Posts: 1,886
    edited October 2009

    Had to reply to anom-Stage 4 ladies should NOT seek alternatives.  If they are undergoing chemo or rads, any alternatives will negate the effects of the chemo or rads.

    As I have stated-if any Stage 4 ladies have been cured of CA because of an alternative, please speak up.

    Dawn-chemo does not kill all of the good cells, or else we would all be dead.  It kills the fast-growing cells, like the hair cells, etc. CA cells multiply and grow very quickly which is why we need that ability.

    A good example of FDA research is Herceptin, which is not a chemo but a mono-clonal antibody.  I am on Herceptin for life and it is responsible for keeping me in remission, which would not have been possible 10 years ago.

    Herceptin has been found to be so effective that most women who are Her2Neu+ receive it for a year.

    Mono-clonal antibodies are being developed for all other cancers because they are less toxic.

    Sorry about your bad experience.  I, myself had been mis-diagnosed.  My left breast was originally thought to be DCIS, Stage 0 CA, when it was actually Stage 4.

    Cancer is so very hard to cure because everyone's CA is different, with an enormous number of variables.

    The fact that I am still alive today when I could have easily passed 4 years ago is evidence that so many people are out there fighting for all of us.  That excludes SS.

  • Denny123
    Denny123 Member Posts: 1,886
    edited October 2009

    Sherrie,

    I wonder if that was the lady that I can't get out of my mind.  She kept posting on here how more and more tumors were growing and breaking through.

    It was so heartbreaking.  And then there were no more posts.  We all kept writing to her, never to hear from her again.

    How horribly sad.

    I will never forget her posts.

  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited October 2009

    YEAH Denise. I SO agree. If it wasn't for chemo, herceptin I doubt I would be here today. Surviving 5 years with the best.

    AND, one of my dear friends SIL had BC, Stage II, Did 4 rounds of chemo, quit, no rads not tamoxifen, nothing. She died a horrible death, the tumor came back broke through the skin, (similar to what Sherri described). Gone in 12 months, leaving her family with a 2nd mortgage to pay for that yielded NOTHING.

    I stand by my SS is a nut.I fail to believe that a Diet alone can cure cancer. Period. Nor will enemas. There is an "alternative therapies" thread too. That might be better suited to a conversation of this nature. But you are WELCOME to stay on this one.

  • anondenet
    anondenet Member Posts: 715
    edited October 2009

    Denny123,

    Please document your statement that "any alternatives will negate chemo and rads." That is very irresponsible to make such an unsubstantiated claim. If it is true, I'm sure you can provide a documented study.

    If you get this info from the oncology grapevine we must consider it worthless gossip.

    <

  • anondenet
    anondenet Member Posts: 715
    edited October 2009

    <

    As long as were playing the game, "I knew someone who died from that," please consider the tens of thousands of women who played by their onc's rules, did everything they were told, and died awful deaths.

    >

  • bygracealone
    bygracealone Member Posts: 183
    edited October 2009


    Seventeen yrs ago when my cousin died of vaginal cancer at age 46 I knew nothing about cancer.

    In 2004 when my aunt died of colon cancer with mets to her lung and liver (after 2 bouts of early stage BC) I was convinced that it was the chemo that killed her.

    In Jan when I was dx with stage IV (mets through the skeleton, lung, & liver) I told my onc, no chemo, no way.

    But I sure did change my tune when nothing kept my liver mets from progressing. I told my onc it is a woman's perogative to change her mind and I was changing mine. Currently doing Abraxane and patiently waiting til scan time so I can see how the liver is holding up.

    I think that alternative supplements are fine if that is the way you want to go, but I spend a lot of time researching and have yet to see that they are anything but "supplements".

    Bottom line is we are all different. Best thing is to stay in tune with your body and do what works best for you. I have my own beliefs which I won't bother sharing here as they are spiritual based.

    Playwight Eugene Ionesco (1912-94), said it well:

     "Ideologies separate us. Dreams and anguish bring us together."

  • konakat
    konakat Member Posts: 6,085
    edited October 2009

    All encompassing blanket statements don't work.  Just like we have different stages, different cancers....   For many of us chemo = life.  It does to me.  It's keeping me alive and quite happy until the cancer kills me.

    Mom didn't have chemo -- she had a lump, rads and tamox.  And she's a healthy 84 yr old, BC free for 15 years. 

    We're all different.

  • j414
    j414 Member Posts: 321
    edited October 2009

    Dawnbelle,

    I had a similar experience with a radiologist from a major NYC hospital. A couple of years ago I inisisted on a mammo (very/very/very strong family history of early onset - every aunt and first cousin so far), I thought I felt something, he said I was too young for BC and that I should come back when when I am 40.  Turns out, he's a moron and I only started "early" screening b/c my new and outstanding gynegologist flipped out when we reviewed my family history and she insisted on immediate and thorough screening.  It's not a conspiracy, it's MALPRACTICE. And it's rampant and every other woman on this board had the same experience.

    Second, regarding an FDA conspiracy to withhold a cancer cure, that my friend is bunk. Of course there is a "possiblity" that there is a cure out there that isn't FDA approved. It took roughly 30 years for Judah Folkman to prove that tumors need blood to grow (angiogeneis) and cutting off the blood supply to a tumor would effectively kill it. From his spectacular discovery came all of the ground breaking anti angiogeneis drugs (e.g. avastin, herceptin) which has made big pharma billions of dollars. But before the FDA would approve any drug based on Folkman's theory two things had to be proven (1) clinical efficacy - that the drug reached the primary endpoints exactly as descibed in the FDA applciation - even a minor deviation and the clinical is deemed unreliable, and (2) that the drug is safe (Vioxx, anyone?).

    Conspiracy theories are alluring, but they are irrational. From a regulatory position and legal perspective, the reasons for requiring proof of efficacy and safety are indisputable. From a financial perspective (and anyone even remotely famliliar with the operation of the securites markets will get it)  - the first company to patent and bring to market a cure for cancer will make more money than every other publicly traded company combined. 

    To address one of your earlier comments on another thread - it's not broccoli, it's broccoli sprouts (I also read the Newsweek article) and Roche is presently sponsoring a Hopkins Study which examines the extent to which human breast tissue metabolizes sulforaphane, which is the ingredient in broccoli sprouts which has a tumor suppressor effect. All of these studies are well publicized, they don't need to "tell us" and a broccoli sprout cannot be patented, but a sulforaphane concentrate can.

  • Denny123
    Denny123 Member Posts: 1,886
    edited October 2009

    anom-you obviously have never had chemo or rads, so a documentation is unnecessary.  To explain it simply, when one is having chemo or rads, some vitamins and even green tea might actually protect the cancer cells.  Therefore the chemo or rads won't work as effectively.

    Sherri-Sorry.  My whole focus is saving lives.  I did check out the alternative thread to find that a lot of those ladies don't believe SS either.

    As far as an on-going discussion with SS cheerleaders, this is getting old.

    When those ladies are dx'd with Stage 4, lets see how long they live.

  • Denny123
    Denny123 Member Posts: 1,886
    edited October 2009

    Athena-I posted here because I belong here.  I have counseled many women of all Stages who do believe in SS's carp.

    And I feel that those of us who are Stage 4 are the ones who should avoid any of her advice.  Just trying to save lives here.

  • anondenet
    anondenet Member Posts: 715
    edited October 2009

    Denny123,

    So you don't have any evidence that alternative nutrients counteract chemotherapy?

    What is getting old is that you don't have any evidence for your theory.

    If the facts were simple as you say, there should be a ton of studies at your fingertips.

    >

  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited October 2009

    Sherry, you can post.

    As to the "i know of someone' , I actually talked to this someone. Tried to talk her into continuing treatments.

  • anondenet
    anondenet Member Posts: 715
    edited October 2009

    Denny writes: I have counseled many women of all Stages who do believe in SS's carp. {sic}

    Before you did all this counseling did you ever read Somers' book? Or do you feel the facts were unnecessary?

    >

  • Denny123
    Denny123 Member Posts: 1,886
    edited October 2009

    anom,

    I have had my certification and training through the American Cancer Society.  We do not counsel women on alternative therapies.  If they choose to go the alternative route, we are only allowed to offer emotional support.  ACS rules.

    As far as how various nutrients counter chemo, that is up to the oncologist and radiologist to discuss with the patient.  It depends, of course, on the patient's medical history, dx, and tx.

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