Stage Less than 4 Woman...Here's YOUR place..
Here it is....vent or rant.....
I, personally have had it. The last couple of days, of back and forth, back and forth. Snarky comments or helpful advise. You woman have it bad...but we have it worse...blah blah blah......
I feel like I'm in the sandbox and everyone is throwing sand at eachother. I think its nap time.....YAWWWWWWWWNNNNNNNNNNNN!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Seriously thinkin of leavin this place....seriously.
P.S. Not HATE Pm's please....
Comments
-
Maybe I am not reading all the comments, but I dont understand.
What is going on lexislove ? Explain, be clear, PLEASE
Hugs Carol
-
I don't know where to start!!! ....lol
A stage 1 woman posted on the stage 4 forum asking a question. The question was directed to stage 4 woman regarding progression. Some stage 4 woman found it offensive and the rest is history. Now the original poster is embarassed and ashamed. She got "put in her place" she didn't mean to cause problems, it was a mistake that any new comer to the boards could have made.
You could read the thread yourself and you'll get a better picture.
http://community.breastcancer.org/forum/8/topic/742235?page=5#idx_136
-
Ok, I see what you mean...... I read that too.
Well, this is what I think. I was told by my onc I was stage 2b, my surgeon said I was stage 3, because my nodes where matted together. In my diagnosis it says stage 2b, but I post and read in stage 3, cause I am both.
Just to let you know WHY I post in stage 3, but my stat says different. Many women are in one stage, but are worried to move to another stage, and post and ask questions in the stage 4 section just to see what is going on there, just in case they ONE DAY might be belonging in the stage. Maybe I am wrong, but thats what I can imagine.
Its FEAR, freaking fear, fear, fear.........nothing else. Take this with understanding and let go, I personally read many of your post, lexislove, and I must say, you are (to me) wonderful, with your young daughter ( her name is probably LEXIS..)
I dont want you to feel bad, its almost bed time, you are an inspiration and you need your good wibes for good poeople.
Love and peace my dear
-
I stopped writing to stage 4 ladies awhile ago. It broke my heart. I used to PM some of them I wanted to give a hug too. I am way to afraid to do that anymore. So I just don;t. I sure hope they do not think I was fake when I did contact them. I just feel, they do not not not want me around anymore. I pray for them DAILY and I am not kidding.. They do not need a PM from me to get my prayers heard from our Father. I am not mad at all.. I am not stage 4. I will never understand their feelings unless I am. I feel it is not my place to try.
-
If you go, I go. These boards would be so dull without you, I don't think I could take it.
-
I read all the post's and I am glad that my now deceased SIL told me to never go into the Stage IV area, unless I was stage IV. So, I read from time to time and pray but don't post and I feel bad for the woman who posted there but Lexilove don't go away you are much to much fun you too Estepp! I hope to god we don't ever have a reason to go behind door #4 again, and may those women live well and long.
-
Mamita,
Exactly its fear. Fear can take over, and when you are newly diagnosed sometimes you are not in the right frame of mind. You are panicking...I mean you have just been diagnosed with cancer!
I thought on this board we are all in this together, doesn;t matter what stage. But...I guess we are not. The board seems really divided...really divided. Its sad. We should be supporting eachother. Stage 1,2,3 or 4.
BTW, Im stage 2B and I post on the stage 3 board all the time. I feel comfortable there because I had a huge tumor. I was referred as Locally Advanced by my onc...untill I screamed oneday...lol
Estepp,
I hear you. I use to feel like I could post whatever was on my mind. My fears ect. Today I don't feel like I can because my fears are not as big as someone elses, therefore not valid. I feel like Im walking on egg shells sometimes. I think of the stage 4 woman often. I pray and they are in my thoughts. wether they believe it or not....I don't care. When Amber passed, it was rough...when roonie passed it was very hurtful. I wanted to say my condolences, but I debated for days if I should post on a stage 4 thread or not. Untill I said the hell with it....
-
Orange...
We need you on these boards. You have so much great info to share for the newly diagnosed. Maybe Facebook would be better an option for a little while.
Omaha,
thanks for your nice words. I don't think I could completely leave, just maybe take a back seat for a bit.
-
can i vent? can i really vent??
i hate crocs!!! really! that's the ugliest dang thing i've seen anyone try to call a shoe. it's a non-shoe shoe. it's like recycled rubbermaid. i hate 'em!!!!
;-)
seriously, please don't leave, lexislove. i've enjoyed reading your posts.
-
What Madalyn said.
Oh, and one of my chemo sisters on the May '08 thread found that crocs were the only footwear she could tolerate when the skin peeled off her feet from hand/foot syndrome. You just never can tell...
otter
-
Madalyn,
Yes, the stage 4 forum is to discuss stage 4 issues, and this thread is to discuss stage 1-3C issues.
You can participate if you like, if not its your choice.
-
Thanks for the new thread. Until 2 days ago I was fine but some of my BC sisters remarks really upset me. I felt like because I'm still stage I, My BC didn't count at all.
We didn't have a choice when we all started this journey. I care and respect all women an any stage, but I don't want to be looked down because I'm an earlier stage.
We all need to belong to a supportive group system no matter where we are in our journey.
Thank You again lexislove. I was upset before but now I feel much more better
Hugs to all
Sheila
-
I wonder how many years it would take a pair of Crocks to die in a landfill...1000 yrs maybe..lol
-
I will say, I have no place on stage 4 threads. I really believe this. My docs have no idea what stage I was.. they figure stage 3... but that is not stage 4.
I would never leave BCO because there are many way I gain here.. and I am really needed here, but I am not needed anywhere on stage 4 threads..
I do wish, for their sakes.. and a lot of ours... Stage 4 could have a private area.. it actually might help from scaring new BCO ladies... ( mods... JMO... this might help the newest dx not fear the worst.)
I for one, wold support stage 4 having a password protect here on bco... it might be the best... for so,so many.
-
Your welcome Sheila,
Im sure....actually I know you are not alone in your feelings.
-
otter - really? i've never tried them on. i'm surprised by that because to me they just don't look comfortable. i would have thought something lined like the winter clogs with that sherpa lining would have been more comfortable.
glad to know that in case i have peeling skin. i may end up having to wear them!
-
Estepp (((((Laura))))) I get what you are saying. I don't post on Stage 4 - I do read the threads because of some of the titles and then it isn't until later that I realize it was posted on the Stage 4 forum as I always go to active threads when I am on this site.
Privately I think of the wonderful ladies in the Stage 4 forum all of the time - I know Watson got my attention right away with her cute avatar. Fitztwins - well she is just as direct as can be and I admire her for it. Amber - she so inspired me with her private blog and her writings along with the beautiful words from her husband and the awesome pictures of her family. I have a friend who lived here and then moved away, she is in the chat room - I don't go there because I can't keep up fast enough with what is being said but although she is not Stage 4 herself, she personally knows many of the women that are Stage 4 so on occassion I have asked her how certain women are doing - not out of curiosity but because I care about them even though I have never met them and I know she cares deeply for them.
I don't post in the Stage 4 forum out of respect for the privacy of those wonderful ladies. Sometimes I get the urge to just say "you go get them girl" or something like that but I hold back.
I live in fear that my cancer will progress. That is a normal reaction - I don't beat myself up over it. I understand when others say they live in fear. If anything these women living in fear are showing their vulnerability - that shows they are humble and that is a good trait to have.
-
Lexis, just so you know, last night, in my post I said that I hoped that none of those women who were attacking stage four ladies were never in their shoes because what goes around comes around. To make it plain for you, because I guess you have a hard time understanding some things. I did not mean that they would get stage four. I meant that some day someone would be just as mean to them as they were being to the stage four women. And I MEANT that with every fiber of my being. Karma is a bitch.
Have fun on your little "I'll show them" type of rant on this thread. It's childish, ridiculous, and was only started for spite. What goes around truly DOES come around.
Oh, and I wont' be back. So have fun talking about me behind my back...it seems to be what you are doing to others, so I have no doubt you will do it to me also.
-
Yes Jancie! (((((JANCIE))))) miss you!
-
Gracie,
I don't have to talk about you behind your back.....everyone else is doin it. Your definatly hostile, and mean spirited. I started this thread so that woman won't go to the stage 4 board anymore with their concerns and the stage 4 woman can have a break!!!!!!!!!
And I am talking behind peoples back? I don't know who the f_ _k you are and I don't care to. Take a hike your pissin me off....your now officially the first person I have to put on ignore. DONE!!!
-
Lexi is a gifted and giving contributor to this site, and it often produces interesting new discussions when a new thread starts.
Gracie - cut out the vicious invective - it is not appropriate on this Board. I am
best to all - astonished that a woman who professes to be a christian can behave in this fashion. ENOUGH please. Lexi is consistentyl helpful to people and I can only imagine you have not followed other posts where this has been so clear for anyone to see.
Nice to bump into you again Sheila. How ridiculous that anyone should be dismissive of your TX - there are some very odd people on this Board sometimes. You are right, we are all on the same train journey.
best to all xxxxxxx
-
Dear Ladies, Wow, I can not believe what this crazy disease can do to us. I think that you are all wonderful and I just hope that we can all stick together no matter what stage we are. Hey, I am no saint either, I left the board once but came back. I was a little angry about something but realized we are all just trying to survive this horrible disease(plus I was weaning myself off of anti-depressants, ugly!!!!, I was such a jerk at times). I have to remind myself that God is in control. Lexi, you are such an inspiration and cute, and Gracie, don't leave mad, forgive and start again. God bless you all, Kathy
-
Lexi,
I can understand why some non-Stage IV women would feel hurt about what happened on the Stage IV thread. I really believe that the original poster was/is afraid and needed some reassurance. The problem with that is that the Stage IV women see that as "tell me I will not end up like you." If you look at the history of the Stage IV thread, these types of questions have been asked and answered many times. Considering that the Stage IV women KNOW they are dying, yes let's be blunt here, and that they are trying to live, raise their children and PROLONG their life with dwindling choices in care, I can understand why they may take offense and be TIRED of answering these questions.
Also keep in mind, that several women died in the past few weeks. These were all Stage IV women with small children who did EVERYTHING possible to be able to be around for their families. So, many of the Stage IV sisters were feeling especially scared and vulnerable.
I have LCIS/Stage 0. I am also afraid of one day having cancer, but can I really understand what it means to be Stage I, II, III, IV? Can I understand what it means to be going through rads, chemo, have mets? NO. I can sympathize. I can feel your pain. I can cry when Heidi and Amber pass away, but I cannot know what it is like when you KNOW BC will kill you. That is the major difference. Women with Stage I-III know that BC can or may kill you. Stage IV women KNOW it will. It is just a matter of time.
I do think that that particular thread really got out of hand, but try to have some sympathy for women who have to wake up everyday wondering if this is the day their oncs tell them there are no options left.
Mary
-
I'm afraid I stirred that whole pot unintentionally.
I will say this.
Estepp; I am a fallen Catholic, you know my story & my child born of sin who will spend her life in purgatory. When I wrote to you; YOU were kind. You welcomed me with love, life & understanding. These are the moments on these boards that last forever.
Fairy; She suggested I have an OncoDX when I was newly Dx. That changed my life.
rgiuff; Stopped my panic at Dx and saved my ovaries.
Konacat; Well, I love her because she loves cats as much as I do & that is just a bond that can not be broken.
Ivory: There is a woman that could get along with everyone with-out trying. So beautiful, I feel her love through my key board.
Lovegolf; Called me, the day of my Mx, to see if I was okay. She didn't know me, but she cared, I will love her & remember her always.
Beesie~Need I say more?
There are close friends I have made, we have gone through surgery together & support each other daily. Toni, Renee, Sharon, Karen, Michelle, Joni, Kathy, Terri....it goes on & on.
We can't all get along. We won't all like each other, Lexi, I have never spoke to you, but I read you often & I can honestly say I care for you. We are all we have ladies, if we do not watch each other's backs....who will?
I respect Stage IV wanting private moments to share private thoughts. It is easily understandable. But, I defended that stage1 girl, for I found no place logical for her to post that question.
I do shoot from the hip, I tell it how it is & many can't take that. I respect that too.
I have a point & I forget what it is....is it too early to drink?
-
Dawnbelle-we are always drinking on the drinking thread..and ALL are welcome!
-
Yes, I said I would not be back, but I am
Not to argue any more with lexis. She's not worth the time....but to let those of you who do care about our Stage Four sisters and indeed ALL sisters who are fighting this fight, that another thread has been created for those of us who are sick and tired of all of this vindictiveness and want to just talk. No fighting will be allowed, hopefully if all of us ignore those few individuals who are sick enough to want to belittle a stage four sister, we can have a great thread. You are all welcome who want to come and just talk.
Thanks, and Blessings to you,
Gracie
-
Wow. Thanks & blessings....but Lexis is not worth the time.
You all shock the hell out of me. Lexis is a woman, she is a mother & a wife & a woman with a terrible disease. I don't care what she has done or said. She is worth my time.
It amazing how we all live in glass houses. I seem to be the only one throwing rocks at myself.
Someone crack the Grey Goose, hand me a Xanax....it is gonna be a long day here in the bc.org 1st grade classroom.
-
Ohhhhh Grey Goose Martini's!!
-
errr, at what point did Lexi fail to care for Stage four sisters? Her posts in various places are invariably kind and caring. I don't agree with all ofher views ut that is fine.
It is plainly unfair and unkind for it to be stated that she does not care for people.
Really, this site sucks. It is full of bitching, meaness, religious hypocrisy, and bullying. And after your nasty comments Gracie you like to perceive yourself to be amongst the peace makers?
It would have been better if the Stage One lady had not posted on that thread, but that was dealt with and Lexi doesn't deserve to be a leper as well as a cancer patient.
I think I prefer being near the lepers overall, they appear rational.
-
Why do I feel we're living the script from Mean Girls?
But none of us have Lindsay Lohan's or Rachel McAdam's body, so no one is going to watch us act like a bunch of stupid high school girls.
Frightened women will always make mistakes and post on the wrong board. That's life.
Now officially ignoring ALL these threads, and suggest that we all do the same - and return to our business here - supporting newbies, and keeping up with the people whose information was so helpful when we were in treatment ourselves.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team