Suzanne Somers has changed her diagnosis

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  • lukejessesmom
    lukejessesmom Member Posts: 598
    edited October 2009

    I agree....if she could cure there would not be so many of us fighting this disease

  • activern
    activern Member Posts: 409
    edited October 2009

    dawn - Wow! "Take me or leave me" - If you are too much I will read over your post.  IMO: Susan Somers only wants to make money and who knows if she ever had breast cancer but that is her business - I do not read anything she writes nor do I look at any of her interviews.  She has never helped me.

  • KellyC
    KellyC Member Posts: 834
    edited October 2009

    My Bloody Mary is VERY jealous of your Sapphire Martini!  xoxo

  • kane744
    kane744 Member Posts: 461
    edited October 2009

    Gee.  For the first time in six months my taste for wine came back.  Had a lovely glass (big) of a Spanish red.  Can't remember what it was (chemo brain) but it tasted sooooooo good.

  • Babyface
    Babyface Member Posts: 91
    edited October 2009

    Wow !!! I know this isnt the right place to say this but I have to rant a tad. I have been reading through threads as of late wondering what ever happened to the bc.org that I came to when I was a newly diagnosed deer staring into the headlights. M.O.T.C...you were around at about the same time as I was so Im sure you will also remember a time when people politely disagreed with each other, when these boards were all about support, when women wouldnt dare have infringed on this particular board because after all, women on the stage 4 board generally have more pressing concerns ....isnt that why "concerned about mets" was formed.

    Anyway back to what I was saying...when there was a "problem" which was rare, sometimes at the end of the day someone would be "gone" from the boards but the controversy would be over and usually most women here(and by here I mean the entire "boards") would do there best to avoid controversy . The hostility that seems to permeate so many threads nowadays imho helps no one and frankly diminshes these boards and the purpose they serve. I've seen it personally in the health care debates when I posted about my experiences in Canada and ended up with nasty pm's to the point where I wont post there now. Im seeing it on threads just about every time I pop in just to read and see if anyone has questions regarding metaplastic bc. I think it is sad...its sad for women who are trying to cope with new diagnosis, its sad for women who are dealing with stage 4, it is sad for all the women who are using these boards for their original intended purposes ie :support, as opposed to those who seem to have taken over with political, or personal agendas who seemingly want controversy and to make statements. I dont know what the answer is but quite frankly it breaks my heart to see this stuff because I remember how helpful everyone was when I was first diagnosed and I thought of this place as part of my comfort zone.

  • activern
    activern Member Posts: 409
    edited October 2009

    here here Babyface - where are the damn moderators?????

  • Reneepals
    Reneepals Member Posts: 2,196
    edited October 2009

    They are drinking tonight too.

  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited October 2009

    Dawnbelle,

    The original post

    My doctors told me I have little chance of recurrence.  However, have you known someone or did you have this initial diagnosis and now have progressed to mets?  I often read hear and I am impressed with your courage, strength and determination and I cry for each woman who has come to the end of their battle.  I love you all and I hope you don't mind me asking this question.  thank you.

    I hope you don't mind the me asking...I answered very nicely, yes some of us do. Could you PLEASE post in the other thread that deals with questions like these? Oh...there were some repsonses to the fact that yes, shit happens.. Then I quoted to her to just live her life.

    Oh my Gosh, what a mean stage IV lady I am...gesh, I am facing death, but I better be fricking positive and take every insenstive question that comes my way..

    Oh, and gesh I IMPLIED that anyone but stage IV people are not welcomed. What a click we are. The click of the terminal. Who the hell wants to be in this group??

    I research a lot, know many in the pharm industry, also, I know that a single food won't cure cancer. Nor will some freakish therapy in Mexico...Anyone who believes that 'big brother pharm companies' are holding back a cure.....,  I take a huge pause with that. You might as well posted about the Roswell conspiracy or about the Grassy nole and that Oswald did not act alone.

    Listen, the companies are not holding back. If you beleive that, than you DO something about it.

    It is easy to post on an internet site, but what have you done to help find a cure for BC???

    The fact that you "keep" posting and saying that this is your last post and you are not welcome here, well honey, you have a chip on your shoulder and nothing to back what you say. I am not sure what you are trying to prove or tell us. Honestly? spend that attention to find us a cure, okay?

    Janis,

    who keeps drinking and feeling snarky against people who just don't have a f-ing clue.

  • badboob67
    badboob67 Member Posts: 2,780
    edited October 2009

    Janis,

    I'm sentencing you to a night filled with several glasses of a nice wine and a chick flick or two. Shame on you! ;-)

  • Analemma
    Analemma Member Posts: 1,622
    edited October 2009

    Gentleman Jack and vicodin, my favorite way to end the day.  Spent the evening on my little red tractor doing some grading, oxygen tank swinging from the taillight.

    Carry on, ladies.

  • badboob67
    badboob67 Member Posts: 2,780
    edited October 2009
    LOL Brenda...when you talk about your gardening like that, you make me think of Shirley MacLain's character,  Ouiser, in Steel Magnolias! " I'm not crazy M'Lynn. I've just been in a bad mood for the last 40 years!"
  • konakat
    konakat Member Posts: 6,085
    edited October 2009

    I only have beer in the fridge.  :-(  I'll have to make do.

  • konakat
    konakat Member Posts: 6,085
    edited October 2009

    I don't understand why Fitz was sh*t on.  She responded to the "I hope you don't mind", recommended the appropriate forum, said don't waste time on worry (something like that) and joked about taxes.  There was nothing wrong with that!

    Edit to add:  And has done a lot to get out the message about find a cure (i.e., recently TV interview) -- more than I've done, and probably most of us.  Yea Fitz!

  • Diana63
    Diana63 Member Posts: 773
    edited October 2009

    Here is a small part of an interview in 2005 with Suzanne Somers, it is all the way at the bottom she was dx at stage 1 bc ER positive. She did do rads & surgery though and she has taken several MRI's and scans. I think she is misleading a lot of women, if she were serious I would think she would donate the proceeds of the book to further research? JMO

     http://transcripts.cnn.com/TRANSCRIPTS/0504/11/lkl.01.html

    CNN LARRY KING LIVE

    Interviews With Joan Rivers, Suzanne Somers

    Aired April 11, 2005 - 21:00   ET

    THIS IS A RUSH TRANSCRIPT. THIS COPY MAY NOT BE IN ITS FINAL FORM AND MAY BE UPDATED.

    We'll take a call for Suzanne now from Birmingham, Alabama. Hello.

    CALLER: Yes. Hi, Suzanne.

    SOMERS: Hi.

    CALLER: I was wondering, what stage of breast cancer were you diagnosed? Specifically, can you tell me the size, the number of lymph node involvement, and your estrogen receptor status at the time of diagnosis? And by the way, you look great.

    SOMERS: Thank you. It was 2.4 centimeters. Estrogen dominant. Stage one. Does that answer everything?

    KING: Stage one is lucky. Right? You don't want to be stage three or four, right?

    SOMERS: Yeah. Clean -- and we, you know, we got clean margins, and we removed lymph nodes, and there was no cancer in my lymph nodes.

    KING: How did you discover it?

    SOMERS: I didn't. I had mammograms every year for 10 years. For 10 years. This was a tumor that to be this size said would take about 10 years to grow. I missed it. It was on the back wall of my chest.

    It was my doctor...

  • KellyC
    KellyC Member Posts: 834
    edited October 2009
  • SpunkyGirl
    SpunkyGirl Member Posts: 1,568
    edited October 2009

    I love you, FITZ.  You're always right on the money, honey!

  • KEW
    KEW Member Posts: 745
    edited October 2009

    Diana63--

    Interesting post according to her description in the transcript she was stage II, not stage I.  Got drawn to this thread because I think she is a snake oil salesman. I won't even get started. Loved the comment about Roswell.  

    Enjoy your cocktails and have a good night. 

    Warmly,

    Karen 

  • Reneepals
    Reneepals Member Posts: 2,196
    edited October 2009

    Fitz!  You need a noggie. I wish I was as articulate as you, seriously. My meds make me goofy & make me pause.....alot.

  • konakat
    konakat Member Posts: 6,085
    edited October 2009

    OK, this may be waaaaaay out there -- but you think it was the surgery, clear nodes and rads that achieved and kept her dancing with NED? 

  • KellyC
    KellyC Member Posts: 834
    edited October 2009

    hahaha Kona.....and one little "snort" in between. Classic girl.

  • Nicole112
    Nicole112 Member Posts: 327
    edited October 2009

    Dawnbelle,

    I just felt the need to post as I am a Stage 1 cancer survivor and I have to believe you are just having a bad day... we all have them and some days we feel more defeated than others!

    I wholeheartedly believe I am cancer- free and that I will remain cancer free. As far as my treatment options, I treated my aggressive Grade 3 cancer with the most AGGRESSIVE drugs out there ACT chemo, 33 rads, 2 surgeries, hormone therapy. I WILL live to see my babies grow old and i encourage each and everyone one of us to have the faith regardless of our "Stage". The power of the mind is a powerful tool and we should try and keep the positive thoughts and mojo going. We need to unite as woman and gain strength from each other and our experiences, we need to lean on each other in times of need, reach out when we need to reach out and keep each other informed!

    In reference to SS, her journey is her journey and I just hope woman are educated enough to do the treatment that is best suited for their circumstance and their own personal approach in fighting this disease!

    I will conclude with my final thought, "There will be a day we will find a CURE, in the meantime I will live my life as best I can and do the treatments which are out there to better my odds of survival!" BTW- My next treatment is Zometa infusion in a few weeks!

  • KellyC
    KellyC Member Posts: 834
    edited October 2009
  • Reneepals
    Reneepals Member Posts: 2,196
    edited October 2009

    Zometa? Your stage 1?

  • KellyC
    KellyC Member Posts: 834
    edited October 2009

    Yeah they are using that now as a preventative for bone mets Renee. 

    /me goes back to sipping out of her big glass of Mojo and Positivity.

  • Nicole112
    Nicole112 Member Posts: 327
    edited October 2009

    Kelly is right, they are using the zometa infusions as a "preventative" infusion in 6 month intervals... also shot me into menopause with Lupron.

  • tooyoungtohavebc
    tooyoungtohavebc Member Posts: 779
    edited October 2009

    Wow some of these recent threads make me think I am watching The Housewives of BC.Org!

  • AnneW
    AnneW Member Posts: 4,050
    edited October 2009

    I've been on BCO a looong time. Two times with cancer, and a chemo virgin both times. I rarely read this board--not my place--but when I do, my eyes light up in admiration for the straight-up attitude of you ladies. Keep it up.

    Things have gotten really nasty on BCO over the past year or so. It's fascinating reading, but so destructive.

    As a Stage One-er, I know I could lose NED status and join you ladies at any time. I actually don't spend a lot of time worrying about it, but I know it can happen. If it does, then I want to be a shoot-from-the-hip, take-no-prisoners type of gal that many of you have become. You owe no one apologies, IMHO.

    So, I think I'll be sharing that Bombay Sapphire with mthomp2020--we drink 'em the same way. Y'all hang in. I've got your backs.

    Anne

  • Diana63
    Diana63 Member Posts: 773
    edited October 2009

    Kew, I don't know this was straight from her interview transcripts, I copied and pasted it as it was. You can copy the site and paste and read the whole transcript yourself. I am just as confused about staging as everyone else is, mine was changed from II to III by the doctors. Her interview is at the bottom of the page, he interviews Joan Rivers first.

     Here is the site

    http://transcripts.cnn.com/TRANSCRIPTS/0504/11/lkl.01.html

  • Paulie
    Paulie Member Posts: 2
    edited October 2009

    Hello Everyone.  I know you are going through some very hard times and I  send you each a warm hug and wishes for good days ahead.

     I am not here to harass, but to give you a little more insight  and understanding, which is always a good thing when you are fighting and need to keep all those fight cells strong and free of toxins.  Isn't that chemo enough?

    I can't understand or be in your shoes, because I haven't been diagnosed with breast cancer.  I have had abnormal secretions and bleeding and lots of scares for my breasts and had HPV at age 25 and told I probably had cervical cancer before my body fought the virus and I was considered clean. I know I have been lucky.   Months and months of paps and then years of worry follow as you are still considered high risk.

    Suzanne's story struck  me when I heard it, becasue I went through the same diagnosis, emotional rollercoaster of fear and acceptance and anger.  Please let me elaborate just a bit, so you can perhaps find a litle less anger and vitriol towards her.  

    After months of illness, I started coughing blood,  My Doc said the xrays showed several spots and after a long pause, he said it didn't look good and that it might be cancer. I was sent that afternoon to a Thoractic surgeon.  After having other causes ruled out, I was told it was likely I had lung cancer.  Xrays showed huge black spots filling my lungs.  I spent months getting xrays constantly, 4 Doctors were consulted and  I was told, because there was little uninfected lungs, to prepare my family and myself  for the worst.  He felt he might have to remove too much lung for me to survive. 

    In other words, I was not only told I had cancer, so had that  heavy heart, but was also told I had little chance of survival. I told my family and  made a will. 

     I awoke after the surgery to find, Instead of Cancer, he had found huge casings of hard tissue.  The biopsy  showed it had been a lung fungus, and the casings were my body encasing the virus.  Even though I had not been to Arizona for years., my body had fought it, but a casing must have ruptured , making me ill.

     I related fully with Suzanne, that after going through the stages of denial, fear, acceptance and  preparing for death, That you are nonetheless in shock and pain.   After being told I was "fine" everyone forgot I still had the emotional result of the diagnosis... and the weakness from the stress and of course anxiety and still all the illness and subsequent pneumonia and upper respiratory problems I  had to deal with.  The emotional stress was probably similar to what you have all had in the beginning and even though  I WAS fine, it was a struggle to say the least to recover as i  had no support system... after all I didn't have cancer.

    Thanks for your time and I hope some of you  will find forgiveness for Suzanne, because, although she can be kooky at times she felt the same fear you all did when told you had cancer.  Try to give her a break and it will be much better for your immune system too, to judge less.   I really do wish you all the best.

  • Calypso
    Calypso Member Posts: 205
    edited October 2009

    Suzanne Somers?  Her journey is her journey, like someone said, and I'm glad she shares with the rest of us.  I think we can all handle it here, can't we?  Most of us already know as much if not more than our doctors, anyway.  I have just started reading her book Knockout, and have already found much of value.  To say "she has never helped me" and "I never read any of her books" in the same sentence seems illogical to me.......hmmmm... 

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