SEPTEMBER 2009 RADS
Comments
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Amy - I loved reading your note. It's inspiring and makes me smile.
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I am done with rads!!!! YAYAYAYAY!!! I brought the rad tech cookies and a thank you note. When I gave it to them, I started to cry. I told them that us cancer patients go through a lot and it is nice to have kindness and smiles from them everyday. Then I rang the bell VERY loudly and then hugged them all. My hubby was there and took a pic of me...that is my profile pic now. I am so glad that this phase is over for me.
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Christy - CONGRATULATIONS! I am right behind you. It is wonderful for you to have completed this challenge. GOOD FOR YOU!
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It's so inspiring to come here and hear about the bell ringing! I can feel everyone's relief from finishing!
I'm not feeling well today. I had Zometa for the first time yesterday and one of the potential side effects is flu like symptoms and I have them. I have the chills, my body aches and I have a bit of a fever. I had a busy day with my kids today, but did rest this morning (after rads, of course). I'm hoping to get a bit of sleep tonight and hopefully feel a bit better tomorrow.
I have about 2.5 more weeks to go and then I'll be done. I can hardly wait! Fortunately, so far, my skin is holding up. I'm grateful for each day without the skin pain!
Hope everyone who is done is able to celebrate!
Pam
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Way to go Christy...now go out and party! Like Pam said..it is wonderful to hear about everyone finishing up...we can do this...we have faced the anguish of finding out about our cancers, we have been together since, chemo, now rads....what hell we have been through these past 6-8 months..but we have come out of this....and it seems like we are stronger for it...if there is anything good about freaking breast cancer it is the friendships we have made and the support we have given each other through this....we have all listened to each other freaking out and been there.....thank God for BCO..to give us a chance to whine, complain, celebrate with each other...because ...even though we may have caring, supportive people with us..they really can't comprehend what we have gone through,,emotionally...it is so nice to come here and say whatever I want and know that I will get support ..now matter how much I freak...huge hugs to you all...we couldn't have done this without each other...ok..get out the violin...BUT I FREAKING MEAN IT!
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Tomorrow I am finished with Rads - 28 treatments plus 5 boosts. I am sooo happy to be through this. I feel so fortunate that I had so few se's, just one day when I came home from work at 5:30 and took a 2 hour nap, and some skin burns which hurt like the dickens but are now nearly back to normal thanks to Silvadene and Aquafor. God bless all of you who have gone through so much. All the best to you all.
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Congrats to everyone--Christy I think back and think you and I were in the grey area and both decided to go ahead with rads--now you are done and I am almost done--whew!!! Titan you said it all--I keep telling people I meet about BCO so many havent heard about it--and I cant emphasize enough how much it has meant to me--
Today I had my mapping for my boosts--5 to go but when they marked the area (I had a mastectomy not a lumptectomy so no breast tissue left and the implant is a little deflated so hard to see the original anatomy) it looked a little too far over--I told my rad doc and said the Plastic surgeon had pre pics would that help--he was really nice about it and agreed with my concern so off I went to the PS to pic up pics--then back to the rad onc-- he said if it was off too much we would have to remap and not do rads tomorrow--yuck i was so hoping to be done on the 15th but guess better to check it out-- well gotta go put my cold compresses on --tried the mil but it was sticky and yucky so passed on that might try the vinegar but in the meantime the cold compresses seem to be pulling the heat out--hang in everyone--Laura
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Insurance Question: Can folks from US share whether (a) Copay is needed on each day of radiation therapy? (b) What kind of money does insurance pay for each day of radiation therapy?
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I've been very fortunate in that my BCBS PPO insurance is paying 100% of their covered charges for all of my radiation, since my treated facility is a PPO provider--& I've already met my deductible for the year. So far I've only gotten one bill from the rad onc for the preradiation consult. I was only required to pay 10% of the covered amount. Even with having really good insurance, though, the bills have been high through all of this process since June.
elimar--Thanks for reassuring me that I might not have to live forever with this ugly brown areola.
Titan--Lunch sounds fantastic after next Wed. when we finish. How far do you live from the NW NC mountains???
Christy--Contrats on getting this hurdle over with! I'm just jealous that you had a bell to ring.
My DH & I got our flu shots on Tues. I've gotten them for years, because I've always felt like it was better to try to prevent something than try to heal it once you got it. Am planning on getting the H1N1, also, when it becomes available in our area. I got the swine flu vaccine back in 1976, & was apparently very fortunate that I didn't have any negative SE's. Seem to remember that they pulled it not long after I got it.
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Congrats! Christy...I was also surprised at the emotions on my last day. But like others have said it's been a long haul! We deserve to feel emotional after going through so much.
I've been using my arm & chest muscles a lot this week at work and by evening time I'm pretty sore. So I'm keeping it short. But I'm reading everyones posts and feel so happy for those finishing up and sending strength to those who have a ways to go.
unklezwifeo- by the time I got to rads, after doing chemo, I had no insurance co-pay as I hit my out of pocket maximum for the year so I can't really help you on your question. sorry.
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"Tha Tha-Tha That's All, Folks!"
I'm done, finito, finished with Rads. I'd like to say it wasn't so bad, but there is no way I'll ever call that freakishly un-natural activity anything but bad. Like dentists, but worse. Don't get me wrong, the staff were all super nice. I took them some muffins. The treatment went quick, and then I was off that table with a side aerial flip. The judges in my mind scored the dismount with 10, 10 and 9.5. I skipped out to the lobby, RANG THE BELL like the building was on fire. Then, as pre-planned, my sheet music of "The Merry Go Round Broke Down" (more widely known as the LOONEY TUNES theme) was played by the lobby pianist. More skipping ensued. (They had warned me that cartwheels were a liability!) My check-in swipe card was flung heavenward, as I closed with the immortalized lines, "Tha Tha-Tha That's All, Folks!"
*The side aerial is fictional; the skipping all true.
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I think Elimar is happy to be done...what do you think?

I think we are all little LOONEY!
Nancy...I know it takes us 5 hours to get to Beckley, WV from Ohio..how long does it take you? Maybe we should meet for dinner.
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Woohooo Elimar!!! Congratulations!!
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elimar--How exciting for you!!! Hopefully, from here on out everything will be smooth sailing. Enjoy Mon. when you don't have to figure rads into your day.
Titan--it takes us about the same time to get to Beckley, WV. Guess we might have to share a virtual meal. Ha!
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More congrats to all those who finished this week--looks like it is another 5 days for me--didnt have treatment today cause they remapped me-- just over a 1/2 inch just to make sure the area was correct--not sure since ( as above) my boob just aint what it used to be but since they remapped they have to wait until monday--so instead of next thurs it will be next fri--I know iit is just one more day but as you all know that one more means a lot to us counting down--forgot to call my med. onc about flu shots now have to wait till monday--did some errands this afternoon and lunch and even though didnt have rads got really really tired--slept for 2 hours--back to my creams and my compresses--have a great weekend everyone and those that are done, continue to celebrate--wish we all could meet for lunch--come to northern california and we would have a real celebration--but not until next week--hang in all--Laura
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Ok..Nancy..we are going to Myrtle Beach in a couple of weeks..we come down 77 through NC..like through Statesville, Mooresville, exit to Hickory (where some of our friends live)...then through Charlotte...are you any where near I77?
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Elimar & Amy...congrats!!!
Elimar...I expected 10,10,10..on the dismount but a 29.5 isn't bad....at least you landed on your feet. LOL Loved the Looney Tunes reference..my fav is Daffy Duck...and "your despicable" but the Tha's all Folks is more appropriate.
Titan- when is you last day?
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Well I finished this morning. DH came with me to take pictures. I brought a bouquet of flowers (fall colors, NO PINK) with me to give the techs with a thank you note telling them how much easier their warmth and support made the process.
I lay on the table for that last rad and as the music played, I reflected on how it was the end of another phase of my journey and how far I had come from the first day of rads when i was so terrified the first time they turned the machine on. A few tears slid down my cheeks and I couldn't wipe them away because you have to lie still! The techs came back in and hugged and congratulated me and then we went out to the bell and I rang it really loud and then put my hands over my face and just sobbed. I had no idea I would be so emotional. My husband got some photos - I will try to post one this weekend.
And so now tonight, I am very very worn out. Maybe the emotion of the day just got to me. But on another level, I know I have underlying anxiety about starting Tamox tomorrow. Maybe I am just too tired tonight, but I am very much feeling like this whole BC thing just goes on and on. The five years of Tamox stretches out far ahead for me - it feels overwhelming. I am hoping for few SE's but we shall see.
I think I just need a good night's sleep.
Not much of a celebratory last day of rads post, is this? I'm sorry. I'm just wrung out tonight.
Thanks for all of you being there.
Amy
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AMY IS STRONG - and Amy is done!!! Congratulations!!!! I know what you mean about being emotional, when I finished I cried all the way home. Don't quite get that, but seems like it happens to most all of us. Good luck on the Tomox. Haven't started mine yet. Getting my estrogen level checked first. I mean, I am way postmenopausal and have no ovaries. I'm asking the doctor to do it. He didn't suggest it.
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My rad team likes country musc..really don't care for it much..but with them zapping me I wasn't going to say a word...heard some songs about my exes live in Texas and God is Great, beer is good..I guess I can agree with that!
Darn..Amy..I know exactly where you are coming from...I think you lay there, you are getting zapped with who knows what but you hope whatever it is is kiling those litte buggers..like Betsy would say and you are sooo vulnerable..with this machine buzzing and the green lights going around the room....and you are done..and you are thinking..where do I go from here...I guess one day at time...man..cancer sucks...we shouldn't have had to deal with this junk but we DID..and we made it through...Sleep well Amy..we are soooo with you!
Betsy..I have 3 more..if I hear any new country song lyrics I will let you know.
If anything..finishing all this is a great excuse to party..remember God is Great, Beer (or wine) is good...or so they say..
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Congratulations Amy!!!! WOO HOOOOOO!!!!!!
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Amy - I started tamox. the day before I started rads. At first I had some pretty intense hot flashes but thinking about them now, I think they might have been chemo flashes. Anyway...I've had absolutely no other SE's from tamox so far. The hot flashes...or power surges... as I call them have mellowed. The hard part is over..TG!
Just a heads up..the onc's office is right that rads keeps on giving after that last tx. I'm still burning and red/black with a little peeling, although the swelling has gone down slightly. The girls match today...by next week I'm thinking the shriveled raisin look will begin to appear. Also...this week I have felt more fatigue than any other time through rads...just a warning to those of you out there...continue to pace yourself after you finish.
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Congratulation Amy and Elimar; without knowing it, you've each been a great help to me.
And maybe I'm being too "glass half full"-ish but my guess is that a good part of the last rads tears is simply cathartic. I mean, we've had to hold it together and be strong through so much; allowing any tears was always dangerous for fear that we couldn't get them to stop, And now as each of us hits the finish line, we can breathe a sigh of relief and have a very over due cry about everything.
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Betsy..I'm the ultimate energizer rabbit! It's so bad that when I feel like hanging around the house some night my DH says..you can't use rads as a convenient excuse! GRR!! but I'm always wound up...I just can't help it for some reason...if I come to a point where I just lay around you may as well just shoot me.
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Titan, When you're heading down I-77 & see the exit for Hwy 421N to Boone (home of Appalachian State University-3 X back-to-back Southern Conference football champions-yea!!!), think of me. We're about an hour away from where I-77 meets with Hwy 421; it also takes us about an hour to get to Hickory via Hwy 321. Boy, do I ever envy you going to Myrtle Beach! I so badly want to go to the beach to celebrate finishing rads. Am hoping to get to go sometime in Nov. My brother-in-law has a beautiful condo on the Atlantic in New Smyrna Beach, FL, & we're planning on going down for a week. Sure hope the weather is gorgeous for both of us! Enjoy your trip--& good luck with your final 3 rads!!!
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Elimar was right; the so-called "tanned" (I call dirty-looking) skin on my areola & below my armpit is beginning to flake off now that I'm almost finished with boosts. I never thought about the fact that this skin is not being sloughed off naturally during rads when they tell you not to use any soaps or scrub--just let the water run over it. I also have gobs of blackheads all around the nipple area--guess there again it's from using so many creams & not being able to use anything to wash the area good. I just feel so extremely fortunate that this C was caught so early & that all I had to do was go thru rads after a lumpectomy with a follow-up of 5 yrs of Femara. It's very humbling to read what most of you have gone thru b/4 getting to the rads point.
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I have to agree with nas14 about the humbling. I too only had lumpectomy (times 2), radiation and then Tamoxifen for 5 years. It seems like not much when compared with a lot of the people on this page.
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Hey Peg119 and Nancy...about the chemo....the rest of us were "lucky" enough to go through..well..it builds CHARACTER....and we did learn how to do cartwheels along the way..you guys missed out on that! And we did get to take lots of drugs and get stuck with needles...and don't forget the RED DEVIl..andrimycin....fun stuff I tell you....
Seriously though...hopefully you will never have to do chemo!
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About the chemo...definitely glad I didn't have to join that group. When my OncotypeDX came back with a 28, I was SO worried till the onc said after looking at everything he felt comfortable recommending just rads & Femara. Whew...big time!!! I just know that these rads have fried my C's butt...no more worries! (Fingers crossed!)
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Ok..ladies..here is a question for you...I have a 6 month follow up with my BS..they said I have to have a mammogram on both breasts! I just had one on my left breast (the good one)..had a couple of microcalcificatins, a biopsy..everything was perfectly clean..I'm wondering why I have to have a mammo on that breast again when it has only be 8 weeks? I don't mind having one on my "bad" breast..it has been six months and it is probably time...but how many mammos are we breast cancer people supposed to get a year? Every 2 months on the good one? Is it harmful?
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