oncodx score for 100% estrogen/proges stage 1 grade 2

Options
ace0001
ace0001 Member Posts: 2
edited June 2022 in IDC (Invasive Ductal Carcinoma)

Im 38 eight years old diagnoised on 8/24 had lumectomy, no nodes involed all tests results say no mets, had a 1.5cm, stage 1, grade 2, 100%estrogen and 100% progestrone neg for, Her2.  Just had my results submitted for oncodx test.  Anybody had same diagnosis and have received there test results back.

· Share on FacebookShare on Twitter

Comments

  • HelenaJ
    HelenaJ Member Posts: 1,133
    edited October 2009

    Hi Ace0001 - close, but not exactly the same.  100% ER&PR, HER-, Stage1, grade II but had ITCs in two nodes (pathology calls it lymph node negative though) but I was 46 at Oncotype DX time.  Onco score came back at 6.  5% chance of distant recurrence.  I do have a rare cancer though - but please join me in being a number 6.  Fingers crossed.

    soft hugs

    Helena

    · Share on FacebookShare on Twitter
  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2009

    Hi! I had very similar stats - 1.6cm IDC, 100%ER/PR+, her2- and grade 2 with no nodes.  I was 44 and my oncotype score was 22 or 23. 

    Fingers crossed that your score is lower than mine!

    · Share on FacebookShare on Twitter
  • wallycat
    wallycat Member Posts: 3,227
    edited October 2009

    You did not post if it was IDC or ILC....seems ILC won't bother you till later (in theory)...

    I was similar (you can read my tag line for my dx and stats)...

    I was 20.  My first onc and BC surgeon were shocked.  I fired my first onc and the second onc agreed no chemo.  The biggest benefit for chemo in my case (according to my onc) was it would kill my ovaries.

    My hormone status was not done in %, but in a more precise measure (which I don't totally understand...a 7 out of 8 for both er and pr).

    best to you

    · Share on FacebookShare on Twitter
  • Valjean
    Valjean Member Posts: 1,898
    edited October 2009

    ace0001 ~ I am the same as you except for our age. See signature below. (says 1cm but was 1.5cm) My Oncotype DX was 14.

    Wishing you get a lower score!

    {{hugs}}

    Valerie

    · Share on FacebookShare on Twitter
  • joanneasiata
    joanneasiata Member Posts: 719
    edited October 2009

    hi there every one can sombody please fill me in on the part about the ocoli score what is that all about  ive had 2 lumo in 1 mnth due to not a clear margin and seeing my onc this friday for the first time  my stats are posted below and im 45 yrs old

    · Share on FacebookShare on Twitter
  • HelenaJ
    HelenaJ Member Posts: 1,133
    edited October 2009

    Hi Joanne - do you mean the Oncotype DX test?

    · Share on FacebookShare on Twitter
  • joanneasiata
    joanneasiata Member Posts: 719
    edited October 2009

    well hi ther helena yes i think so

    · Share on FacebookShare on Twitter
  • HelenaJ
    HelenaJ Member Posts: 1,133
    edited October 2009

    This is a gene assay test they perform on a slice of your tumor (they will have some saved at the hospital where you had your lumpectomy).  They look at your individual cancer to see whether you have any benefit from undergoing chemotherapy.  Unfortunately you have to qualify, eg. premenopausal, grade 2 or under, no lymph node involvement (or perhaps 1 or 2), ER&PR+, HER-, tumor 2cm or smaller.  Also as I mentioned to you on the other thread in Australia there is no Medicare rebate or private health insurance rebate.  It cost me $5,800 but that was in the midst of the global financial crisis so it is probably cheaper now as you need to send the sample to America and relies on the exchange rate.  Talk to your oncologist about it.  With your PR- and 3cm not sure if you would qualify anyway.

    Hope you are doing ok.

    big hugs

    Helena

    · Share on FacebookShare on Twitter
  • Dawnbelle
    Dawnbelle Member Posts: 696
    edited October 2009

    Hi, ace.

    I was 43 at diagnoses in May. I had two lumps. One 1.7c & one 8mm. I was 90%ER~80%PR, Her- 0/3 nodes as you can see in my stats. Also grade2. My OncoDx came back a 6.

    That is a 5% chance of distant recurrence over 10 years with 5 years of Tamoxifen taken into account. I will assume since you posted in the IDC forum you have IDC as well.

    Dawn

    · Share on FacebookShare on Twitter
  • joanneasiata
    joanneasiata Member Posts: 719
    edited October 2009

    thanks for that info helped untill i came to thoes $$$$ signs scarry  my surg recons ill be in for cemo so ill just wait and see  thanks helena hope your having a good weekend  oh i just love your little post on top of your bx i read it all the time and its starting to sink in taaaaah

    · Share on FacebookShare on Twitter
  • drutter
    drutter Member Posts: 9
    edited October 2009

    Helena (or anyone else who understands the Onco DX scoring system) I am awaiting my Onco DX text results-they should come back Friday, 10/9.  How does the scoring system work?  Thanks, Donna

    · Share on FacebookShare on Twitter
  • momand2kids
    momand2kids Member Posts: 1,508
    edited October 2009

    donna,

    essentially there is a score  0-100--- the theory is if you are in the low ranges which is something like 0-16 or so, then there is no real benefit to chemo.  If you are in the higher ranges, above 30- there seems to be a benefit.  In the middle, well, you have to decide.  Your onc will give you the data and a graph that outlines it all--- I think it really helps people make more informed decisions--- I decreased my potential recurrence rate from a possible 15% to about 8% by having 4 rounds of chemo--not pleasant, but it was doable---I have kids and a full time job and I was able to do it..... I made my chemo decision based on what I needed to allow me to sleep at night.  Many people told me that an 85% chance that it wouldn't come back would be good enough for them--- but it was not for me..... everyone is different--but I sleep like a rock!  I also want to mention that I was in great health when I started chemo and I think that made a difference--- and I feel as though I am in great health now-- I do not feel that there are any residual effects at this point.  In the end, for me it did not matter, I wanted to throw everything I could at this--and now consider myself cured!!!

    we will pray for a low number for you....

    carole 

    · Share on FacebookShare on Twitter
  • Regawhatever
    Regawhatever Member Posts: 28
    edited October 2009

    Exactly the same stats. Except I was 35. My score came back as a 10, so no chemo for me. I know there's more to it, though, than that. The waiting is really the hardest part. Good luck!

    -Tricia

    · Share on FacebookShare on Twitter
  • drutter
    drutter Member Posts: 9
    edited October 2009

    Carole and Tricia, thanks for the response, feedback and support.  For once in my life, I'm hoping for a really, really low score!!!  I will keep you posted.  Donna

    · Share on FacebookShare on Twitter
  • joanneasiata
    joanneasiata Member Posts: 719
    edited October 2009

    hi there everyone going today to see my onc for the first time to see what treatment i will be on im ssso nervous silly ah

    · Share on FacebookShare on Twitter
  • ihavenoname
    ihavenoname Member Posts: 8
    edited April 2011

    mine is similiar, but my tumor is 3.5. im on pins and needles waiting for onco dx type to come back. i get results on weds.

    peace

    · Share on FacebookShare on Twitter
  • SheriBell
    SheriBell Member Posts: 393
    edited April 2011

    My score is a 20.  My onco says it is up to me but since I am soooo er/pr+  (98%) she feels the tamox will do the trick.  My breast surgeon asked me if I want a 2nd opinion.  I don't know - I .am pretty satisfied with my onco and she is very conservative - I don't think she would say no chemo if she had any doubts.  20 is on the low end of intermediate - i was surprized it was as high as that but glad it wasn't any higher.  My onco says that in a case like mine - it is very important to look at the whole pathology.  I am very er/pr +  no lymph involvement - low stage and grade if tumors - BUT had more than one tumor - had a tiny one in the other breast so tumors in both breasts.  She is comfortable with no chemo but says it is ultimately up to me.  I'm not scared of chemo I am just not sure it is necessary for me since to me it is so obvious I was one big hormone ball and the tamox should fix that issue.

    · Share on FacebookShare on Twitter
  • CrazyKitties
    CrazyKitties Member Posts: 180
    edited May 2011

    I was age 49 last year at diagnosis---100% estrogen, 60% progesterone, HER2 negative, Onco score 13. Micromestasis in sentinal node, no other nodal involvement. No chemo, had double MX, reconstruction. LUPRON, femara. 

    · Share on FacebookShare on Twitter
  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited May 2011

    I was considered Stage II when it is was all done but my score was 15.  My onco said that the benefit of chemo would only reduce my recurrance rate by 2% and the risks of chemo cut it in half and for 1% it wasn't worth the risks....so no chemo for me.  I edited because I forgot to mention my BS said it was "nice cancer" as far as cancers go!

    · Share on FacebookShare on Twitter
  • deborye
    deborye Member Posts: 7,002
    edited May 2011

    I never had the oncodx score done, wonder why?

    · Share on FacebookShare on Twitter
  • Chocolaterocks
    Chocolaterocks Member Posts: 364
    edited May 2011

    Deborye

    not that anybody would pay for it now? I know that all tumors have to be  kept for seven years.  Also since you were less than 1 cm - they probably that it was to small to do anything with.

    My onco did not want to send mine off but I said well if its to small they will say so (3.8mm) so that is my guess and also the technology in 2007 may not be what it is today

    hope that helps

    chocolate

    · Share on FacebookShare on Twitter

Categories