AUGUST 2009 RADS

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  • ravenruth
    ravenruth Member Posts: 13
    edited October 2009

    Peg119- I too have the same irritations on my chest and 10 more to go. I am big breasted and I am having a terrible time some days . It is fine when you go without a bra & a  bit under the boob & the high up the underarm is sore & brown. I hope I can make it the last 2 weeks. I told the last  5 treatments are boosters. Is that worse? The doctors gave me some cream but it doesn't seem to help. Do you or anyone know of a cream that will?  Hopefully one with alovera gel. Please help. I have been told I will need it after radiation also. Thanks

  • BetsyBuzz
    BetsyBuzz Member Posts: 592
    edited October 2009

    Lori - I'm done tomorrow too....and I can hardly wait! I'll be thinking about you ringing that bell...ring it for me too!

    ccbaby & Peg...the finish line is right in front of you. Yahoo!!!  

  • BetsyBuzz
    BetsyBuzz Member Posts: 592
    edited October 2009

    Ravenruth,

    I have had to go without a bra for the past two weeks now, I could not stand the pressure. Also, my axilla area started turning brown/black about two weeks ago. The good thing, is depending on where your tumor bed is they most likely won't hit the axilla area while you are having your boosts. My boost has my nipple in the target zone and it has gotten more and more tender and has a couple of black spots on it. My onc said the rads continue to do damage up to two weeks out from the last treatment. They said be sure to continue to use the aquaphor (or whatever you are using) during that time. Don't worry...you can do this. BTW-I am large chested too and never...never left my house without a bra before these past few weeks. I've begun wearing vests and light weight jackets to conceal as much as possible. Good luck.

  • ChrisC433
    ChrisC433 Member Posts: 553
    edited October 2009

    Congrats to those finishing up today....you have a lot of people celebrating with you!

  • kawee
    kawee Member Posts: 324
    edited October 2009

    LoriR and Betsy - Congratulations, ladies.  You, did it, you're done.  What a relief.  Just not going in this morning was so great!!!  I'm so happy for all of us.  Next Peg and ccbaby!!!!!

  • peg119
    peg119 Member Posts: 281
    edited October 2009

    My boost are also hitting my nipple area because that is where my lumpectomy was.  It is getting raw and peeled over the weekend.  I got silvadene cream today and use a telpha non stick pad to protect it from abrasion.  I did wear my bra to work today.  It irritates under my breast but when off then the clothes rub the nipple area which is very irritating, so I just have to decide which of the two things I can live with.  They have said two weeks after treatment it should start to heal and to use the cream for the two weeks.  I have been able to get away with just aloe up until now.  Two more days.

  • ChrisC433
    ChrisC433 Member Posts: 553
    edited October 2009

    Peg:  I was also given pads by the rad nurse that are like a gel.  You can peel the wrapper off the back and stick it to your burn.  I leave the wrapper on the other side so it doesn't stick to my clothes.  The are about a 4x4 square and can be cut to fit any size.  They worked wonders for me.  I can see the square outline where I would wear them.  Just ask rad nurse...she will know what they are (look like blue square when in wrapper).

  • LoriR
    LoriR Member Posts: 131
    edited October 2009

    Thank you kawee and Chris - yes we are done today!!! congrats Betstybuzz and to everyone else who is finishing up - YIPPEE!!!!  Now we just have to begin the healing process!  I feel pretty good - maybe it is just the adrenaline pumping but I am not tired at all and I ran 55 minutes tonight!  ravenruth and Peg - hang in there... you are almost there and it will be over before you know it. 

  • BetsyBuzz
    BetsyBuzz Member Posts: 592
    edited October 2009

    YAHOO...just got home. I'm DONE!!!! Let the healing begin.... Thanks for all your support, laughs and encouragement ladies. I'm not sure how I would have survived this without this board.

    Betsy 

  • Gramof3
    Gramof3 Member Posts: 301
    edited October 2009

    Just home from #28 today.  The rad oncologist told me I have 7 boosts coming up.  So far, I haven't found anything that really helps the burn--Chris, do you know the brand name for the pads?  I've tried going braless, but have a complication--a yeast infection under my radiated breast--so when I do go without a bra, the infection flares up.  I've about decided that I'll just grin and bear it until the 13th.

    Congratulations to all who have finished!!

  • kawee
    kawee Member Posts: 324
    edited October 2009

    Today I went out to run some errands.  It felt so good to just get back to normal.  I didn't feel that heaviness that hung over me.  I felt free again.  I'm so glad it's over (the hard stuff anyway).  I know I overdid it today.  I feel pretty tired right now.  But just to have my life back is so wonderful.  Let me know if you that finished up today feel that way in the coming week.  Congrats, again!!

  • ChrisC433
    ChrisC433 Member Posts: 553
    edited October 2009

    Gram...The brand is Vigilon - Primary Wound Dressing...they really are great.  I can sleep in one and wear one under my camisole.   Have you tried one of the camisoles with the shelf bra.  It is enough support to prevent rubbing, but not as much as a bra...worked better for me.

    Take care..

  • WLL
    WLL Member Posts: 96
    edited October 2009

    Hello all, I heard that if you have radiation you can not have it again if cancer reoccurs. Has anyone heard this??????

  • peg119
    peg119 Member Posts: 281
    edited October 2009

    Yes I have heard that.  You can't have it in the same place.  I had asked my oncologist about it but he said if I got cancer in that breast they would do a mastectomy anyway.  I am not sure how that works for people that had a mastectomy and then radiation.

  • ccbaby
    ccbaby Member Posts: 985
    edited October 2009

    I talked to my radiologist about that and he said that the only thing that they can do if you have a recurrence after mastectomy and rads is more chemo.

  • cakeisgreat
    cakeisgreat Member Posts: 660
    edited October 2009

    Hi, All!!!  Congratulations on everyone finishing this week!  I am enjoying my first week out of radiation!  Busy busy busy!

    My breast where the boosts got it is realllllly red...more red than the rest was.  Interesting, I wasnt expecting it.

    I met with my very cool breast surgeon today, and he said looked good!  I told him that I now want to get a double mastect with reconstruction (yes...I'm totally radical.  I wasnt sure what to do when this whole thing hit me, so I sorta fell into the lumpectomy with rads, but since then, I've done a lot of thinking, praying, researching and decided since I'm young (37), I want to "whack em off and get new ones."  

    My b surgeon said that was totally fine.  He said I would have to do the Tram flap for reconstruction tho because of the radiation which damages the skin (this is where I do have to do more research).  So I'm meeting with the plastic surgeon Oct 27 to discuss when the best time to do is and options, etc.  The less breast cells I have, the more I'll sleep happy.

    He did tell me that I could not radiate a breast twice.  But I dont expect to because I will have no more boobies  Laughing

  • kawee
    kawee Member Posts: 324
    edited October 2009

    Cake, I know that is a very personal decision.  But, I wish I would have done the same thing.  I am much older than you, 63, but feel, and I think, look much younger.  Everyone talked me out of it.  Drs., daughter, sister, friends, husband.  I still think it was the right thing.  I have been thinking about talking to the surgeon again, but maybe at my age????  I just don't know.

  • cakeisgreat
    cakeisgreat Member Posts: 660
    edited October 2009

    Hiya Kawee!  I wonder why they talked you out of it.  Maybe because of your stage?  That's why they convinced me at the time.  But it was cool because my surgeon said no prob - he just wanted to make sure I really researched having the mx because not everyone likes it. 

    I dont think I am going to like cutting my boobs off, ha ha.  I'm scared witless!  But, I'm more scared to have potentially new cancer cells in my breasts again, especially because I didnt have any lumps or symptoms this time around, so what happens if I get another cancer but catch it later than my stage?  

    I would be confused too in your situation.  Awoman that I talked to about it here had a double mx to make sure she didnt get cancer because her mom did at around your age (btw--her mom is now 93 or older and is suffering from alzheimers, not bc yippee!).  She got the silicone, and LOVES it.  She's young and spunky; more in shape than my fat self!  (As soon as my foot stitches heal, I'm exercising!!!).  On the flipside, my other friend's aunt who went to my surgeon was your age at stage 3 and just did the lump/rad.  That was 13 years ago and she's doing great.  So, like you said, I guess it comes down to what we are most comfortable with, right?

    Anyway, LMK if you end up doing that too.  We can start a thread together and go through it again, woohoo!

  • ChrisC433
    ChrisC433 Member Posts: 553
    edited October 2009

    Cake and Kawee:  I too did the lumpectomy and rads route.  I also thought that I would feel better by just taking the whole breast and being done with it.  My doc explained that there is no difference recuurance wise between that and a mx.  He said you can't get all the breast cells out even with mx, so there is still a chance of recurrance.  I originally wanted them both off so I would not have to worry about this again...he talked me out of it...said I really wouldn't be gaining anything???

    It is a hard decision.  I think in our minds we feel that not having breasts means not having breast cancer..it gives us piece of mind.   It comes down to a personal choice and what you feel most comfortable with.

     Take care ladies...Planet fitness has now taken my rads time slot!

  • kawee
    kawee Member Posts: 324
    edited October 2009

    Chris - Good for you!!!  I'm getting back into my daily walking.  I put on my headset (all fast music) but I can't keep up with the beat yet.  So I just do what I can.  From power walking to strolling, but I know I will get there.

    PEG119 - You're DONE!! - Congratulations.  Now you go, girl!!!!!

  • peg119
    peg119 Member Posts: 281
    edited October 2009

    I am done.  Thank God.  I am glad to be done, very emotional.  Friends at work gave me flowers, one of which is in a shot glass that I may have to find a use for to celebrate.  My hubby is out of town until Friday but I am going to play volleyball tonight with my son.  I thought about taking a few hours off work but haven't managed to leave yet.  It will be strange to show up on time to work tomorrow.  I don't think my car will have any problems not going to rads.  I also thought about having mx especially after they had to do two lumpectomies to get rid of the calcifications.  I think if the second one hadn't worked I would have said just take them.  My mom had a lumpectomy and radiation at age 560 and is now 86 and doing great.  My sister had a mastectomy on one side with no reconstruction and then 7 years later had to have the other breast removed for cancer.  She had reconstruction at that time.  That was 18 years ago and she is doing great.  She is afraid to have the BRAC testing even though mine came back negative.  I really wish she would have it but can't make her make that decision.

    I am very itchy under my arm pit and breast and my nipple area is raw.  They said to use silvadene for the next two weeks until it starts to heal.  Everyone that is still going keep up the positive thoughts and be strong.  We will endure and get through all of this. 

  • lemonjello
    lemonjello Member Posts: 75
    edited October 2009

    Well I am in the silverdene barrel now.  Got a blister the size of a small pancake on the outer left side of the left breast.  Darkened breast, may never lighten up i was told.  I am overwhelmed by the fact that the onc told me rads were easy.  HAH!  Newly found lump on my right side on the collar bone, going for a scan to diagnose.  Hope its a B9 thing.  I have 7 more days left for this radiation therapy.  For me, honestly, the chemo was easier.  Large breasts are not fun for the techs or the patient when it comes to rads.  I had lots of mapping and lots of zaps.  I've used everything on my breast but Vicks!  Maybe? nah...anyways...hope you gals get thru this too.

    I want a remodel if all is well a year from now.  The radiologist told me to wait six months and start the consultation process and go for it.  I know the experience was humilating for me.

    To have large floppy breasts thru all this was embarrassing, painful, trouble, and the outcome to preserve them was a waste of time.  The left breast, which i now call Ugly Betty, is two inches shorter from two lumpectomies!  It is dark, red, has a huge blood clot under the nipple which never left, and the docs all say it could take two years to go.  The left one just scares the hell out of me. All that double D territory just looming for DCIS.  Does it, will it have cancer too?  I just wish the doctors would have tried harder to preserve my peace of mind and dignity.  At my age, 65, birthday 66  tomorrow, preservation should not have been a priority.  Keep in mind, I have other health problems and a recurrence when i am older is going to be harder to cope with.  I made all these arguments to the breast surgeon, but he was on "there are too many mastectomies" wagon.  That is true, but i should have been one of them. 

  • ChrisC433
    ChrisC433 Member Posts: 553
    edited October 2009

    Lemonjello:  Good luck with your scan...you can join the good news wagon!

  • kawee
    kawee Member Posts: 324
    edited October 2009

    CCBABY- Congratulations!!!!  You made it, join the "So Glad To Be Done Club". 

  • ChrisC433
    ChrisC433 Member Posts: 553
    edited October 2009

    Can we have the PFR club???

    congrats ccbaby~

  • LoriR
    LoriR Member Posts: 131
    edited October 2009

    congrats ccbaby - I will join the PFR club!

  • ccbaby
    ccbaby Member Posts: 985
    edited October 2009

    I am done with rads!!!! YAYAYAYAY!!!   I brought the rad tech cookies and a thank you note. When I gave it to them, I started to cry. I told them that us cancer patients go through a lot and it is nice to have kindness and smiles from them everyday. Then I rang the bell VERY loudly and then hugged them all. My hubby was there and took a pic of me...that is my profile pic now. I am so glad that this phase is over for me.  Thanks everyone! I am now PFR!!!!

  • Gramof3
    Gramof3 Member Posts: 301
    edited October 2009

    Christy,

    I wish I had been there when you rang the bell!  Congratulations...now just heal!

    Lemonjello--I agree about rads being harder than chemo--sounds like we have several things in common!  Hope the scan is B9--we'll think positive.

    And happy birthday!  (Mine is Saturday--so we're both Libras and like that balance). 

  • Alyad
    Alyad Member Posts: 817
    edited October 2009

    Congrats Christy! Wish I had been there when you rang the bell too!

     Gram- Libras rock! I just had a bday last week. We will have to celebrate! Happy Birthday!

     Congrats to everyone finishing up! It does get worse for two weeks like they say but it does get better quickly after that. I finished a month ago and the skin is 95% better. My scars all look much better than they did before rads too fwiw. And my irradiated TRAM shrank some- which is good cause it was too big- now it is closer to size of good one. I saw my PS the other day and he said I looked pretty good. I don't plan to have any stage 2 for at least a year. I'm in no hurry for the fipple either. I am having the dogear on my hip revised in 2 weeks, and also I having this thing on my eye removed at the same time.

  • kawee
    kawee Member Posts: 324
    edited October 2009

    AMY IS STRONG - and Amy is done!!!   Congratulations!! 

    Windshift - Congratulations!! 

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