Starting Chemo October 2009

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  • Sido
    Sido Member Posts: 234
    edited October 2009

    Welcome Newtonville and jeanl151!

    That you for the reasurance onty.  Last night was strange and unsettled.  I fell on my friend's stairs and when I got home I knocked over our toothbrush holder and it shattered all over the bathroom floor.  Fortunately things turned out just as you said...no infection and no swelling.  Just my free-floating anxiety finding a temporary target.  

    Laura I hope you had fun at the wine tasting and everything goes well tomorrow.  Marie you sound well prepared for tomorrow.  I'll be thinking of you both.

    jhenry299:  My oncologist has started me on 50mg of B-6 twice a day to fight the neuropathy SEs from Taxotere when I start on the 16th.  Maybe you should ask if it would help your tingling fingers.

    judgejaclyn:  I'm so glad things are going well for you.  I admire your strength and hope it continues.

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  • valeriekd
    valeriekd Member Posts: 287
    edited October 2009

    Hey Jean, Dr. Erban is my oncologist as well - thats funny. He is a very nice guy- takes his time and answers questions and has been around for a long time. Was Hughes your surgeon? , they r part of the same team. Gilette is a nice place - I think we r lucky (Primary issue not withstanding). 

    Anyway, so far so good- start chemo thursday and anxiety is rising. Good luck to all.Valerie 

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited October 2009

    Hi there ladies

    I am new to this whole discussion board thing, as well to the cancer thing...I have my first chemo on Wednesday and I can't decide if I am nervous or excited to get the whole thing started...I guess a little of both.  It is great to see I am not alone in this crazy adventure...It looks like there is a lot of support in these groups.

    Michele

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  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited October 2009

    Dear Michele,

    Welcome! You will find very caring and supportive women here. No question is stupid. I was also excited to get my chemo underway.... so I can understand how you feel.

    Good luck!

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  • JLG90175
    JLG90175 Member Posts: 1
    edited October 2009

    Hi everyone.  I am also new to discussion boards, but have been exploring them the past few evenings and have felt comforted to read other peoples experiences which are so similar to mine.  I started treatment Oct. 2 and will only have to have 4 total, every 3 weeks.  I've been on steroids all weekend and have felt great, other than sleepless nights.  I'm kind of worried what this week will bring but am trying to take it one day at a time. 

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  • txstardust
    txstardust Member Posts: 599
    edited October 2009

    Welcome to all of the new people!  It's nice to meet you - only wish it were under better circumstances. 

    Good luck today to Laura and Marie as you start your first chemo.  I hope it's smooth sailing for you both.

    I'm hoping to get my surgical drain out today.  Of course, I've got a million other things to do today - we had flooding in the bedroom over the weekend due to a huge thunderstorm on Saturday night where we got almost 5 1/2 inches of rain overnight (a record), and now the carpet smells terrible - called the landlord, and she's sending someone over today.  Also, a leak (is there a pattern here?) in the yard sprinkler system, and someone's coming for that too.  Then, I have grocery shopping, and school.  Hah!  Wish me luck today. 

    Peace to all... 

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  • dershell
    dershell Member Posts: 11
    edited October 2009

    Hi Ladies..I'm NEW to the discussion board .I had my first Chemo on 9/24...have to do 4 cycles of AC and 4 cycles of Taxorol after that ..then 12 weeks of radiation....all of this is so overwhelming.......2 days into my first Chemo of AC i felt like a MAC TRUCK hit me...the Chemo fog is horrible I felt like i was having an outerbody experience....I HATE THIS ALREADY!..I will have my 2nd dose of AC this thursday- can i tell u i have serious anxiety about doing this again....I'm still trying to be ME from the 1st dose(lasting for 6 days total)....All I do is cry alot, which I know isn't good for me....I just feel LIKE ..WHY ME? Everyday I think about - WHAT IF IT COMES BACK? I dont think I have the strength to do this again....these negative thoughts are controlling me ALL DAY EVERYDAY!  They say you will loose your hair around the 2nd and 3rd treatment-this will be devastating for me-I'M COMPLETLY A HAIR PERSON ..have always been! For the past 20 years I've gotten my hair done every week and I have not slept on my hair in all these years so loosing my hair will not be good for me. I PRAY EVERYDAY AND EVERYNIGHT ASKING GOD TO GIVE ME THE STRENGTH! Of course I'm not working currently- i can't imagine anyone working through this but of course everyone is different. But I'm wanting to go back to work because of todays economy- I'm worried about loosing my job because of all of this! Is there anyone else out there that feels like I do?

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  • dershell
    dershell Member Posts: 11
    edited October 2009

    Hi Onty, I've been recently diagnosed as well...do u know what your treatment will be? It amazes me how the treatment varies from doctor to doctor....

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  • azdiva
    azdiva Member Posts: 201
    edited October 2009

    Dershell - 

    I think we have ALL felt like you do on some days.  I find myself wondering WHY ME?  I go into my closet and cry because I don't want to lose it in front of my kids.  I have tears now just reading your pain and knowing it is so close to my own.

    But what are we going to do except fight?  Except try everyday to be strong and find some moments of joy?  I am going to tell myself when I am sick or when my hair falls out that it is just the cancer leaving my body.  I will be GLAD to get rid of it, and someday my new hair will be better for it.  I am definitely a hair person as well.  I have been having a little fun looking for wigs.  I try to get my kids and friends involved and we try out new looks.  Maybe I will end up with a new style this time next year?  Right now it is long, but I may find I like short!  (Fat chance because I have major hair anxiety caused, I think, by my mother giving me the WORST HOME PIXIE CUT KNOWN TO MANKIND when I was 10, and have tried to overcome it ever since! Haha) 

    I am starting my first round of TC today.  I am scared and nervous, but also excited.  This is my first step to being DONE.  And you can't finish if you don't start.  I know this is hard, but you will find strength.  Lean on the people you love, and vent here when you need to.  

    And don't put up with the side effects.  If it becomes overwhelming, and BEFORE it becomes overwhelming, call your doctor.  They have prescriptions and tips that will help you get through it.  I am thinking of you today.  Dig deep, girl.  You will find that you have strength you didn't even know was there.

    Will try to post from the chemo lounge today!  Love to All

    Laura 

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  • regalbee
    regalbee Member Posts: 11
    edited October 2009

    I had my first chemo (TCH) treatment 2 weeks ago and am on weekly Herceptin.  I had a hard time with my GI tract after the chemo (distention, bloating, constipation/diarrhea, nausea, etc.).  It lasted about a week and I lost 7 pounds because I could not eat.  My next chemo is in another week and I was wondering if anyone has some suggestions on how to minimize my symptoms next time.  Incidentally, I feel great now and am hungry all the time.  Do I just have to grin and bear it?

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  • MaryNY
    MaryNY Member Posts: 1,584
    edited October 2009

    Michele and JoLynn: welcome to the club that no-one really wants to belong to. Can you let me know your treatment regimens so I can add them to the list on top.

    Hi Dershell: I think I would find the chemo doses just two weeks apart hard too. You seem to barely have a chance to recover from one before you are into another. But on the other hand you will be finished the AC portion quickly and I think I read that the Taxol/Taxotere after that is relatively easy.

    One of the oncologists I saw said that hairloss is uppermost in the side effects that his women patients fear. He said if he met a woman who said she didn't care, he'd know there was something seriously wrong with her. While contemplating the idea of chemo, I was wondering where are all the hairless women, you don't see them on the street or in the supermarket. But now I realize they are everywhere, wearing wigs/scarves and getting on with life. I went to a Look Good Feel Better event at a local hospital and half the women who attended had wigs, which I didn't realize until they admitted to them. And they looked great! I would suggest you go to one of these events. I think it would really help. Follow the link above, then the zipcode finder, to find one near one. You will meet others going through the same as you, and some who are nearing end of treatment and survived it. And as a bonus, you will get a wonderful bag of nice cosmetics. Also some of the LGFB events give out free wigs.

    Dershell,  since you are new to this Discussion Board your posts will be limited to five a day until you have accumulated a certain number of posts. This can be very frustrating if you have more questions/comments. You can send a direct messge to me or any other member by clicking once on the member name then on top right "Send Member a Private Message."

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  • puffins
    puffins Member Posts: 32
    edited October 2009

    Hi Ladies, I had my first TAC treatment 7 days ago, and my body is still reeling from it. The first 4 days had steroids and good drugs to help, but the following days have felt like the worst flu I've experienced, from the cell die-off probably. Trying to stay hydrated, nourished and managing symptoms is quite a trial...! I'm extremely discouraged physically and psychologically...it has been an "out of body" experience on many levels!

    I greatly admire all of the rest of you who are valiantly by my side in this struggle!

    I'm still hanging in here, and blessings to all!

    Shoshanna 

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited October 2009

    MaryNJ,

    I will be getting FEC T, starting on Wednesday.  I was diagnosed 5/27/09, with Stage IIB 3/12 nodes.  It is hormone + as well.  I am still getting use to all the "cancer lingo"  I shall keep you all updated..

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  • MaryNY
    MaryNY Member Posts: 1,584
    edited October 2009

    Hi Michele, is that Taxol or Taxotere after FEC? How many doses will you get and how far apart?

    Marie. Good luck to you tomorrow on your first Tx with FEC.

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  • azdiva
    azdiva Member Posts: 201
    edited October 2009

    Well I just finished the first one!

    I would have posted while there, but their wi-fi wouldn't connect.  So maybe the next one!

    Everything went relatively smoothly.  I put a warm compress on my hand, and they got my vein on the first try!  Anti-nausea and Decadron first, then Cytoxan, then Taxotere.  Within the first 5 minutes of the Taxotere my chest started to feel heavy.  Just like a weight on my sternum.  I took some big breaths, burped, and felt better.  They kept the drip slow for the first half because of it, but I was fine.  Over the course of it I felt like I was getting indigestion a little.  Not bad enough to stop.

    Went through the Arby's drive-through on the way home and put lots of Horsey Sauce on my sandwich.  May regret that later if it comes back up!!

    So far I am feeling pretty good.  I came home to a bunch of kids (fall break started today), so I sent a bunch of kids home!  Of course my house is now a wreck!!  But I am enjoying ordering them around, instead of working, because "I just had chemo,"  Seems like a good excuse.

    Doctor told me no B6 or B12 now, either.  What is it with vitamins?

    I will let you know if I get any side effects later.  But right now I am a-ok.  I met some very nice people in the chemo lounge and the nurses were just great.  Good luck to everyone this week!

    Marie - let me know how you are doing!

    Laura 

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  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited October 2009

    Dear AZDiva,

    If you have been regularly taking vitamins before, there is no harm in continuing to take them. There is some very small risk in starting something new. Try to get vitamins and minerals from natural foods though if you can.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2009

    Hi friends and welcome to the new girls!

    I am a smidge late in updating as today has challenged me with a great deal of fatique and I was napping for about 2 hours on and off.  I am day 4 after 1st treatment of dose dense AC - and first day with no steriods so I quess fatique is to be expected.  Minimal other side effects except the darn belching, itchy hands and feet and FATIQUE doesn't quite say it.  I have heard others describe the "Mack truck" effect and I would agree with that description.  But, it is a breeze compared to my intiial migranes, nausea and diarrhea on Day 1 so I feel very thankful.  Also, no real bone pain to report from Neulasta - but I did again take the Claritan and an Aleve this morning with breakfast so perhaps I have dodged the bullet this go round.

    I received a call from  my wig maker and she says my wig is ready.  I had already gotten the short haircut two weeks ago and have yet to adjust as it is now a style about 12 inches shorter than my normal do.  So, the thought of NO HAIR - although a reality (probably within 7-10 days since I am already on day 4) kinda freaks me out and I am dragging my feet to pick it up.  She wants to fit me and style it so it is not as easy as running in and out;  but I know I should be thankful for angels like her (and the many others surrounding us in our recovery) and gratiously accept her skills and talents.  What "Miss Manners" tells me and what I feel like right now are a bit at odds though so I put it off until I get back my strength and hopefully will be happier later in the week :)

    Keep the faith and keep on fighting the fight!

    -Jac

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  • Sido
    Sido Member Posts: 234
    edited October 2009

    Dear Jac, I'm sorry your energy crashed so after the steroids wore off, but I'm glad your SEs aren't as severe as Day 1.  Miss Manners and your wig maker will surely forgive (and approve) your putting your health needs before ettiquite formalities.  I think your wig maker would much rather you were feeling well enough to appreciate and enjoy her work when you see her.

    Laura, I'm so glad your first go went well.  it is so interesting how different doctors are toward vitamins and such because mine went so far as to write a script for the B-6.  I hope you continue to feel okay and only keep the memory of the horsey sauce!

    I went to my forst yoga class since my lumpectomy and SNB.  We have a local cancer center that offers classes for free and tonight was specifically for breast cancer patients and survivors (paid for by the local Komen office).  I hope I won't be paying for it tomorrow, but it was nice to be active again.

    Be well everyone,  Sido

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  • ReneeJean
    ReneeJean Member Posts: 100
    edited October 2009

    My first TC was last Wed.  I was fine on Thurs and just a bit fatigued on Friday with occasional blasts of nausea---no vomiting though and the zofran kept it in check.  I crashed on Saturday though...just felt yukky all day, bouts of nausea and just plain achy.   I finally took the compazine in addition to the zofran and that helped, once I woke up (the compazine knocks me out).  I felt a little better and was able to eat but still felt like a truck hit me.  Sunday no nausea with zofran but still pretty fatigued.  Bareable.  Just stayed home all day and watched Nascar and Football.   Monday I was almost normal...grocery shopped, cooked, sewed and slept well.  This morning, no nausea, and I feel pretty normal.  

    I will say that the chemo coming out the other end hurts!   I have had mild diarrhea and I cannot stress the importance of baby wipes<g>.   It is like you are pooping lye!  Sorry, TMI I am sure..LOL.  

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  • azdiva
    azdiva Member Posts: 201
    edited October 2009

    Hi Ladies! 

    Still feeling somewhat good/ok.  Was up a little last night, probably from the steroids.  And my heart was racing - not fast, just noticably - for a little bit. My friend made me some lentil soup and I ate the whole bowl.  So good.

    Of course, my period started right on schedule.  The nurse said it may be a few treatments before it goes away.  I think I may miss it when its gone forever.  Not that I want anymore kids! HAHA  I just don't think I'm ready to feel "old."  Was it difficult for those of you who went through the change?  I am 44.  One of my sisters was in menopause at 38 (she's 3 years younger than me), and she gained so much weight.  Don't know if that was from the Effexor or from the change.  Another sister had a hysterectomy at 34/35 (1 year younger), and she gained weight.  But I think that is because she doesn't really regulate the HRT she gets.  Which I am trying to talk her out of now.  My mom had a hysterectomy at 30, I believe (she is turning 65 on Wednesday), and she may have been on HRT for a little bit, but she was very irregular over the years.  Not too much weight gain, and she seemed to stay younger looking until crank took her over for a few years.  I don't mean to be vain, but I look younger than them.  Maybe its the laser, botox, juvederm, etc. . . .  HAHA  Plus, I never smoked.  I guess I will take older looking over cancer any day!!  I suppose I could go the Suzanne Somers route, but wouldn't bio-identical hormones effect cancer the same way as estrogen?  More research needed!  I think I spend 5 hours on the computer/day.  You all should give me assignments!!

    Sorry about the weird segue above - just free flowing here - and I meant to tell you more about my day yesterday!  My mouth tastes a little different - stress LITTLE, and my nose/sinuses are a LITTLE bothered.  Could be my allergies.  It is really bad in AZ right now, but the weather is incredible.  I have been rinsing my mouth with Biotene and using a saline spray for my nose.  Both help.  I also bought some Biotene gum for when I'm out and about.  I switched from Alavert to Claritin, even though they have the same active ingredient, just in case there is something special about the Claritin in regards to the Neulasta shot.  I also went from the 24 hour kind to the once/12 hour kind.

    Haven't used compazine or phenergan yet.  May break out with the valium tonight if my heart gets racy or I can't sleep from the steroid.

    I hope I don't get evil side effects today because I am going to try to get some things done.  Need to head to apple store because my computer is acting up (currently on DH's while he is in Peru), and I want to shop for window treatments.  My kids have only been on break for 1 day and I am ready for them to go back!  My daughter asked my if we could go to Las Vegas this weekend.  HA!  She is 11, going on 20 something.  She stayed out in the front yard with her friends until 10:30 last night, "just chillin'".  Really, she said that.  My 14 year old boy brought my food home from the neighbor around 7:00, and stayed in with me all night.  My sister told him he needed to keep an eye on me, and to call if I get sick.  He is being sweet.  Could be that, or could be that he wants to be ungrounded from his computer!!  He slept on the floor next to my bed.  He is looking forward to the first trip to the dunes for the season on Halloween.  My next treatment is 10/26, so we'll see if I'll even be able to go. 

    Sorry for the long post, but will still update later after Neulasta!  And I'm serious about computer research assignments!  If I am on here anyway, I should work for the good of all!  Love to All -

    Laura

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  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited October 2009

    Dear Laura,

    Nice to see a long update. Keep it up.



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  • MarieK
    MarieK Member Posts: 911
    edited October 2009

    Hi All!

    I spent 5 hours at the chemo clinic yesterday for my first FEC TX.  I didn't take any pre-meds but was told to bring my Kytril (24 hour anti-nausea pills).  I got there at 1 pm - they checked my height, weight, blood work report, and told me I was good to go.

    There was a bit of a consult on where to put in the IV since my arm is so messed up from last week's blook work and my viens are not that great to begin with.  But I pointed out the deep iner forearm vein that the anthesiolists used for my surgery iv and that's what the nurse went with.  I was impressed - she used a warm towel just to make sure there were not better veins but she got the deep one on the first try.  There follwed some discussion about a port or a pic line.  We'll see what happens for the next treatment.

    So she started a saline IV, gave me Decadron via IV (anti-nausea/steroid), and once that was through I started my chemo.  First came C - Cytoxan.  No problem there!

    Next came Epirubicin (the red stuff).  I had 2 vials to be injected into my IV line and after the first vial and a bit of the second vial I started to have a reaction - bright red splotch with a raised "bump" like a hive.  I do have some drug allergies and I've seen this before but they called it a "flash".  So the Epirubicin was stopped immediately and I had to have a bag of Hydrochortisone put through. 

    This delayed the process by 1 hour and after that the bump and redness went away.

     The nurse was able to finish up with the red stuff and go on to the Fluorouracil (5FU).  This went in for about 1 hour and then I was done.

    While the iv was running I was able to unplug myself and use the bathroom as needed.  I didn't bring my squirt bottle with me but I did bring and use feminine wipes to ensure that none of that nasty stuff touched my nether regions.

    We got home and I took my first dose of Maxeran (antinausea motility agent) that needs to be taken 1/2 hour before food.  Less than 2 minutes after taking it I threw up.

    I waited 1/2 hour, then ate some crackers and plain rice and then took my Decadron (antinausea/steroid).  Again I threw ALL that up.

    I had some ginger ale and decided to call it a day and go to bed.  It was 9 am!

    I read my book for a bit and tried to relax and finally fell asleep only to wake up at 3 am with my heart and head thumping and another trip to the toilet to throw up! 

    I thought about taking the ativan but I didn't want to sleep through my alarm and miss garbage pick up and getting the kids ready for school.  So I didn't take but will tonight if the same thing happens!

    My husband has taken the day off today and the contractors are back to do the finishing touches on the bathroom renos that I started right after my Aug MAST.

    Tomorrow I start the Neupogen injections and I'm going to the Ambulatory Clinic to have that done.

    All in all not too bad but I could've have skipped the vomitting part!

    I hope that everyone else is doing well/better and good luck to those that are going for their treatments this week.

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  • MaryNY
    MaryNY Member Posts: 1,584
    edited October 2009

    Marie: Thanks for the update. That was a long day! Too bad about that reaction to the Epirubicin. One of the oncs I say said a port was vital for infusion with Adriamycin or Epirubicin as it can cause a nasty reaction if it leaks into the skin. Another one said it should be OK as long as they were careful with the IV.

    I'm sure you could do without the contractors around the house today. But at least your husband is there to deal with them.

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  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited October 2009

    Dear MarieK,

    Ask your doctor  if you can get other meds for CINV. You should not have to suffer nausea and vomiting in this day and age.

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  • txstardust
    txstardust Member Posts: 599
    edited October 2009

    Marie,  I agree with Onty, there's got to be an anti-nausea med that doesn't make you throw up!  A bit of an oxymoron.  What a long day!  I hope today is better for you.

    I got my drain out today, hooray!  Visit with the oncologist tomorrow afternoon.

     Peace to all,

    Shelby 

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  • valeriekd
    valeriekd Member Posts: 287
    edited October 2009
    Hey Marie u r quite a trooper. Must be from being a mom for so many years- it toughens us up doesn't it!? I would be a whiny mess if I had a day like that - i do agree tho - no reason to throw up these days - they will review your meds if you tell them. Anyway, thats what they told me - I start on Thursday - I found your bravery inspiring, Valerie
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  • MarieK
    MarieK Member Posts: 911
    edited October 2009

    Thanks for your kind words of encouragement and support!

    I think the vomitting was due in part from exhaustion, the smell of the family's sushi dinner, and the killer headache.

    I took some Tylenol this morning (don't know why I didn't take it right away!) but I'm able to keep everything down so far today - food & pills. 

    I'm going with the advice of many others on here and sticking to small meals for the next few days!

    MaryNJ - there was no leak - the rash was much higher on my arm than the iv site and the nurse on the second attempt (after the hydrochortisone) increased the saline iv drip and ran through the rest of the Epirubicin at a much faster pace. I think the concentration of the Epirubicin had something to do with the reaction.

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  • MarieK
    MarieK Member Posts: 911
    edited October 2009

    Is anyone on here planning any travel/vacation outside of their home country during their chemo treatments?

    I was hoping to go on our annual family vacation to Arizona (we're in BC Canada) after Christmas and I'm not having any luck getting travel insurance with a pre-existing condition.

    The alternative would be to cancel the December trip and go in February after my treatments are over. 

    Might not be a bad idea to get out of town during the Olympics!

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  • azdiva
    azdiva Member Posts: 201
    edited October 2009

    Marie -

    So sorry you're first day was uncomfortable!  I am still running on a steroid high, but the weird taste in my mouth is getting a little worse.  The Neulasta shot this morning was a piece of cake - got it in the back of my arm because (1) I was wearing a dress and (2) I have had a tummy tuck, and figured they would want a "fattier" part of me!!  I seriously did not even feel this shot and she pushed it very slowly.

    Went to the mall for computer fixin (needs parts) and then to my plastics to have some errant stitches removed.  Was going to shop for window treatments today, but I think I am pushing it a little too much. 

    Keep an eye out on the ingredient list for some of the electrolyte waters.  I noticed the one I was drinking today was chock full of Vitamin C and E (and some of the other forbiddens).  The nurse said it was fine to drink one every once in awhile if I liked the taste, but not to make it a habit.  I don't like the taste, I just thought I was being healthy.  But since I do not want to offset the effectiveness of my chemo, I will stick to good old Smart Water. 

    I am thinking about heading to Mexico for a weekend.  I will probably just stay at my friend's house and not go into town.  Just sitting on the patio with the nice ocean breeze sounds fun.  Only a 3 1/2 hour drive from here and I can bring my own food down, so I don't need to worry about getting contaminated food. 

    Talk to you all soon!  Have a good one!

    Laura

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  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited October 2009

    Dear MarieK,

    I'd go out of town but not of country. There is much that is at stake and much that can go wrong and you do not want to be running around in a different country trying to get some ER doctor to help you. Besides, the health care systems in America suck :) (tongue in cheek in reference to the health care thread)

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