Newbie, Single, Lot to Get Off Chest ..... NO pun intended....

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Mai605
Mai605 Member Posts: 64
Newbie, Single, Lot to Get Off Chest ..... NO pun intended....

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  • Mai605
    Mai605 Member Posts: 64
    edited October 2009

    Hi Ladies!
    I'm a "newbie", and have a lot to get off my chest so please, please be patient with me Smile.
    Like many of you, I was shocked when I was diagnosed. I knew absolutely nothing about breast cancer, different types, grades, etc... but you sure learn quickly don't you? I still feel pretty ignorant but have learned so much since I've been on here already. I was diagnosed 4/8/09 with Stage IIIB ILC. ILC is a rare cancer that's hard to detect.  I had a mammo in 9/08, and a breast exam in 2/09, still, it never was detected... subsequently, the tumor measured 10 cm!!!  I chose a bi-lat mast, which was a good thing, because they found LCIS in my left breast also.

    I had surgery 4/22, with tissue expanders, chemo, and am now in the middle of radiation. I only recently began searching the internet for something like this, and thank GOD I found all of you! I have been so positive throughout all of this, and I give all the glory to God, and my faith. I've had "moments" where I've been sad, or down, but only moments and somehow have managed to pull myself out of my slump. I'm not sure why, but the last few weeks I've been on a downward spiral, to the point where the depression is so intense I can hardly stand it. In the beginning, I had people from my church, family, and friends gather around and was so humbled by the outpouring of support. That tapered off through chemo, about the time I started working full-time, despite the fatigue, feeling like crap and constant pain I've had on my right side since surgery. I have always tried to stay positive, no matter what the obstacle, and deal with a lot of stuff with humor.... People see me as a very strong person, and therefore, they think I'm "fine". I have a very hard time reaching out for help, basically because of fear of rejection and past experience with rejection. Recently I've tried to "reach out", and don't feel like people want to hear what I really have to say, they like it so much better when I tell them I'm just great. I've always tried to go above and beyond for everyone in my life, and exceed everyone's expectations, to the point where it's killing me (literally). I'm much more comfortable being in a position where I'm giving, rather than receiving, cuz I hate feeling so needy. It's all coming to a head now because I'm falling apart, and I don't have family near me, or emotionally available to help me with everything. 

    I am a single mother of two boys (14, 15), and have been for ten years. I don't have a lot of close girlfriends anymore since my divorce ten years ago forced me to focus on my boys and work. My best friend lives across the country. In 2000 I suffered a painful divorce after my husband of ten years came home from work one day, and said he was leaving. Four days later he left (with his girlfriend I knew nothing about) and never looked back. My boys were very young at the time, so I've been doing everything alone ever since. I was a stay-at-home mom when he left, had to find a job, find daycare and new NO ONE in my small town we only lived in for four months. He wanted to move here I found out later to be closer to his girlfriend - all part of his master plan. I felt isolated, but I found a job where I'm still at today, worked my way up through the ranks and now manage that company, which has it's rewards but is EXTREMELY stressful. Ten years went so fast.  I kept thinking I would somehow meet someone, but since I don't have a social life, it's pretty tough.  Now here I am.  I don't feel like anyone will want me anymore, for sure.  No one I know really understands what I'm going through, and I have no one to talk to. I've been searching for a support group in my area, and the closest one is 30 min away, and they're only once a month, and when I get home from work I'm ready to tip over.

    I've spent the last two nights reading hundreds of posts, and it's helped me tremendously because I can really relate to almost everything I read!  Aside from the emotional, psychological and physical affects from this horrible disease, the worst part for me, is being alone, and not having anyone to hug me, put their arms around me, or tell me everything will be ok. My boys are at the age where they are more interested in X-Box and their friends, and sometimes the being alone is excruciating. I cry all the time, and at work have to remain strong and professional. I'm so tired of trying to be strong, positive and happy.

    Thank you ladies, for letting me vent, and thanks for reading... I'm SO, SO glad to be here with all of you!!

    God Bless each and every one of you!!! Smile

    Mai

  • RaiderDee
    RaiderDee Member Posts: 150
    edited October 2009

    Hi Mai,

    Just to let you know, you've found a warm supportive home right here,  I'm sorry you have to go through this without the emotional support you deserve but you'll find that everyone here really does care and are more than willing to listen to any rant or problem you might have.  You sound like a very strong person who has sacrificed alot for your boys.  Just make sure you take care of yourself in the process.  I know it's hard because you're the kind of person who is normally the "care giver" but everyone needs to be able to "receive care" once in awhile.  Take care and check in with us often.  We really do care.  Be well.

  • dlb823
    dlb823 Member Posts: 9,430
    edited October 2009

    Mai!  I'm so glad you've found us!  It's a shame you didn't find this site sooner, but I'm so glad you're here now and felt comfortable unloading the heavy burden you've been carrying all alone.  It's just so crystal clear that you need someone to talk to, and that's something we've all found here, and you will, too.

    I'm also going to send you a Private Message -- it's a private email system we have here -- with my phone number.   Click on the Private Message icon when it lights up.   

    You sound like one strong lady!  You've done an amazing job with little or no support, but we're here now to help you finish this fight, and you're going to be fine!   (((Hugs)))     Deanna

  • Marsha56
    Marsha56 Member Posts: 86
    edited October 2009

    Mai,

     I live in Big Lake would be happy to help you anyway I can/ talking, meeting in person I have only been here for 4 months or so and it is very lonely and hard to beielve no Support Groups . I wanted to start one but no resposive's. So feel free to PM me! God watch over you and your boy's.

  • debbie6122
    debbie6122 Member Posts: 5,161
    edited October 2009

    Mai

    Sorry you had to be here but welcome! You have come to a very supportive place with lovely woman here who will help you thru this with any questions you have, If you call the american cancer society they will give you any support you need including sending some one to your home who has gone thru this themselves, when i first was dx i didnt want to call ACS but finaaly i did they have wigs and prosthesis, hats they also do a look good feel good class with free make-up but more importantly they will give you love and support and lots of hugs when you most need it, i hope this helps- god bless you

    angel hugs

    debbie

  • Grakenmom
    Grakenmom Member Posts: 169
    edited October 2009

    Hello Mai - I'm a newbie here myself, but welcome to a wonderful site filled with knowledgeable, supportive people. It's apparent that you're an intelligent, strong, independent woman - look at everything you've dealth with, and how far you've come already! - and I'm sorry to hear you're having such a difficult time right now.

    (As for the people who were so supportive before, I think once the initial feelings wear off, they tend not to think about us, or deal with it like we must every day. Many, many people prefer to put their heads in the sand - it's just their way of dealing with an unpleasant situation, and maybe it's the only way they know.)

    Your faith sounds strong - are you involved in a local church? Maybe you could approach your clergy person with your situation and he/she might be able to inform some of the congregation members or groups to provide you with some assistance - meals, shopping, cleaning, support, or at the very least, hugs!   You don't have to be happy and strong every day - you're human after all and deserve down time too.

    I hope you find strength and peace of mind, and I hope you feel the good thoughts and warm, gentle hugs I'm sending out.

    Erika

  • Mai605
    Mai605 Member Posts: 64
    edited October 2009

    Deanna, Marsha, 2New, Erika and all, thank you SO much for reaching out to me!  I had a hard time sleeping last night only because of my exitement that I found all of you and for the first time in a long time did not feel alone, so THANK YOU!!  I'm officially now addicted to this site, and will be spending more time on here, unfortunately it will only be in the evenings when I can.  I couldn't wait to get on here this AM but am now off to work Frown.... I could stay on here all day!  I have laughed already, and cried, but more importantly found a group of women who I truly admire, and who I know understand.  I hate that we are all here, and why we are here, but I can see how important it is to have support. Marsha you are my neighbor!!  How awesome is that?  I do believe in God's will, and know he is not punishing me... I don't completely understand, but I try so hard to focus on all the blessings I've already received, like this site and you gals.  I'll be in touch soon and thank you again, I am so grateful.

    Have a wonderful day!

  • Mai605
    Mai605 Member Posts: 64
    edited October 2009

    Sorry Debbie... I can't forget you!  I was trying to remember all your names when I replied.  Have a great day!

  • Mai605
    Mai605 Member Posts: 64
    edited October 2009

    Thanks Meg!  Met with Onc today after radiation, and had more questions answered.  I have SO many!!  I'm not sure if you've had to undergo chemo or radiation, but I'm having almost more of a difficult time with radiation than with chemo... lots of pain, burning and SO tired!!  And of course, the emotional and psycological effects.  What kind of anti-depressant are you taking?  I'm not sure what to even start with.  I have fear of Tamoxifen.... are you on that?  I have to start in two weeks and am sick about all the horror stories I keep reading.  You are right though, support group for me now is key, because no one understands what we go through.. they have no clue.

    Trying to stay positive!!  Mai

  • dlb823
    dlb823 Member Posts: 9,430
    edited October 2009

    Mai ~ I reread your original post just now, and feel I have to comment on what you said about not feeling anyone will want you now.  I know it's easy to fall into that kind of thinking when you're in a down mood -- and, believe me, we've ALL been there!   But I don't agree that no one will want you now!  In fact, the man who will be attracted to you in the future will be a real man -- one who will love you for your strength and independence and business savvy and authenticity and wit (all very evident in your posts here) -- not an immature one who is only interested in physical perfection -- which, by the way, few of us have past the age of 25 anyway!   So while I understand where your doubts are coming from, I just have to say that I honestly think they're groundless.  When the right man comes along, the fact that you've overcome bc will just be one more strength about you that he'll value.    

    Hope you're feeling lots better tonight.  Thinking of you  ~  Deanna 

  • Grakenmom
    Grakenmom Member Posts: 169
    edited October 2009

    Mai - just have to chime in and say that I agree wholeheartedly with Deanna - when you do meet another person that you enjoy spending time with, it will most certainly be a REAL man, one who appreciates all you've been through, and values each and every one of your tremendous qualities.  And I have two boys also, (albeit much younger than yours) and I tell mine all the time that I need their hugs (and I really don't give a fig if I'm interrupting their video games :) ).  I believe that as they see us moving through the bc journey, it will help make them better sons, husbands, and fathers - real men in their own right.  Just a thought - there will be plenty of good to come out of our situations. :{{more hugs to you}}

    Erika

  • Nancyld
    Nancyld Member Posts: 8
    edited October 2009

    Mai - Just wanted you to know that the low happens.  I had my bi lat last Oct  and was doing fine until the exchange in January.  Went through a slump for a few weeks but am now back on top.  This web site is the right place to be.  Take Care - Many hugs to you

    Nancy

  • Mai605
    Mai605 Member Posts: 64
    edited October 2009

    Thanks Nancy,

    I already am doing so much better since joining this site!  It's an amazing feeling to connect with women who know exactly how you feel and what you're going through, for me it makes all the difference in the world.  I just wish I would have found this sooner!  

    Can I ask though, why you think you went into a "slump" after your exchange?  I would think that would have made things better?  Just curious.

    Thanks for the hugs, right back at cha!

    Diane (Mai)

  • Nancyld
    Nancyld Member Posts: 8
    edited October 2009

    Mai - Not really sure, in fact it really suprised me.  I do know others went through the same thing.  Maybe it was because I had so many test, surgeries etc and I just gave out.   My best advise is just go with however you feel and let it happen - Coming on here really helped me.

     Nancy

  • Grakenmom
    Grakenmom Member Posts: 169
    edited October 2009

    Hi Mai - just thought I'd pop in & see how you're doing? Hope at least some things have settled down for you, and that you're feeling like yourself again.

    All the best,

    E

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