Motivation

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  • dlb823
    dlb823 Member Posts: 9,430
    edited September 2009

    Hi, Jess ~  I had the same thing happen, and I learned that, in addition to chemo, rads can also cause our blood counts to go way down.  I just had bloodwork, too, and mine are finally just barely within the normal range, and I'm 7 mos. past rads.  I don't think it's a big concern.  Are you still seeing your onc every three months?  If so, he'll probably just want to retest you when he sees you.   Deanna 

  • sobx
    sobx Member Posts: 435
    edited September 2009

    I am six months post rads and bloodwork is still not yet up to par. Was told it will take at least a year for it to be back to norm. Taking vitamins and all help to get things back up. My ONC wasn't worried about it being low and I still go every 3 months.

    Actually mowed the yard without stopping today. Usually takes me three stops to get it done. And I even painted the outside steps and railing to the backporch. Where did this energy come from? Did a load of wash too. I will do the "iron" thing tonight.  

    McDonald's at a hospital? Someone wasn't thinking straight.

    Ivorymom - Wilmington is where I had to go for my rads. So I spent several weeks down there.

    Off to walk the dog for the second time today. Back to work in the morning for two days before flipping to second shift. Joy 

  • kfinnigan
    kfinnigan Member Posts: 1,729
    edited September 2009

    Deanna, I really love the idea of that 'after' support group!  I would love to find something like that, but you all here on BCO are my 'after' support group! :)  I will ask my DD when she's at work to see if they offer something like that since its part of the UC system of hospitals.

    I'm going to sound so ignorant, its ok to have tofu?  sorry... :(  I'm trying to learn everything I can.  I'll have to look for those Annie chun sauces.

    I cannot believe it about the McDonalds in the hospital!!!!!!!! 

    Joy, you GO girl!!  Nice to have that energy, huh??  ;) 

  • ktym
    ktym Member Posts: 2,637
    edited September 2009

    Kari, hear things on both sides about tofu.  Bottom line from my docs is don't know the effect of a lot of it in the diet of ER+ patients--so in moderatin.  Personally, I need the protein, not a meat eater, so I eat it in moderatin but I eat it.  What am I exercising my fanny off for if not to enjoy life-- and I love stir fried tofu.

    Ran/walked, then stationary rower, then weight lifted, then a long session of stretching.  Wasn't in the mood to work out today but sure got into it once I got started. 

    Hope everyone else is having a good one.  Jess, how about you my fellow january jewel, did we relieve your mind and encourage you to keep on keeping on today? 

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited September 2009

    kmmd--Your workout sounds wonderful.  I have been doing exercise dvds and the usual  TKD workout, but I am thinking about joining a gym, the first time in years.  I joined one about 30 years ago and first encountered step aerobics.  I enjoyed it then and I enjoy it now, except I feel it isn't enough. 

     AND yes, I feel better after reading input about the bloodcounts.  I don't like TESTS anymore!!! wahhhh! I just wanna workout and feel a great sweat...ya know what I mean!!??  LOL!

  • ktym
    ktym Member Posts: 2,637
    edited September 2009

    Yes, I do get it Jess.  Feeling the endorphins and no outside worries coming in, bring it on!

  • kfinnigan
    kfinnigan Member Posts: 1,729
    edited September 2009

    kmmd, that's the same thing my onc told me about Edamame, said I could have a couple servings a week and would be fine.  Funny you mentioned you didn't feel like working out but then felt better...Same Here!  Got home, had been yawning all afternoon and lethargic, so this time when I got home I ate right away, and then went for a nice walk, but the sun is going down so early!  Then home to stretch and some band work, I felt sooooo good afterward!  

    I can't stop eating lately!!!  Ever since chemo and not enjoying eating at all, I really am loving it now!! haha

    It's Wednesday (Or Thurs already, hi Helena!), Let's make it a GREAT day all!

    Ainm, I started a new book yesterday and its based in Ireland, and of course I thought of you...are you out there???????  How are you doing? 

    "Do not look where you fell, but where you slipped."
      ~African Proverb  

  • dlb823
    dlb823 Member Posts: 9,430
    edited September 2009

    Kari ~ About eating tofu and other soy... The info out there can be quite confusing, but the PhD. nutritionists @ UCLA teach that soy is fine for us in moderation, with the important exception of soy protein isolates, which is the soy that's in soy protein powder and things made with soy protein, like a lot of energy bars.  That soy is a no-no because it's been concentrated and is no longer natural.  I know there is a lot of controversy about soy, and as a result, I sometimes think some doctors just say, no soy.  But UCLA is incredibly thorough & science-based in their recommendations, so I'm not afraid of an occasional serving of tofu.  The other thing about some soy, especially the by-products, is that they may be heavily contaminated with pesticides.  I've learned here (on "Natural Girls") that some women won't eat things with soy lecithin or other soy "sludge," basically, because it may contain heavy contaminates.  I don't know if that's true for tofu or edaname.  Maybe vivre knows? 

    Jess, we all know what you mean about not wanting any more tests!  But the good news is, exercise will hopefully keep us from needing quite as many.  And sweating is so good for us, especially to rid our bodies of any residual chemo.

    Hooray for fall!  Today was my first day walking (4.6 mi.) since Friday (although I did a little bit on my eliptical and HealthRider), and it was positively gorgeous -- about 70 degrees, with a nice breeze.  What a difference 30 degrees makes!  Have a great day, everyone ~   Deanna

  • my560sel
    my560sel Member Posts: 1,065
    edited September 2009

    Hi everyone! Thought I would join this group...I've been lurking and reading. I'm finding it hard to get my head around this BC stuff. I wake up with it on my mind in the morning and go to sleep with it at night. The weather here is turning cool and the leaves are changing color. Although beautiful, it's a sign of the winter about to be upon us. I suppose I'm a hot weather gal and this time of the year always depresses me. I actually drive my DH nuts around this time because of my talk of selling everything and moving somewhere nice and warm! We're about to go out for a walk and that's always a great motivator for me. Kudos to you ladies who exercise and take daily walks/runs. I realize now how important that is to staying healthy both mentally and physically. Ok, enough of my moaning. Wishing all of you a great day!

    Terri

  • Springtime
    Springtime Member Posts: 5,355
    edited September 2009

    Hi Ladies!

    Did a mile yesterday in 22 minutes. It was GORGEOUS outside here in NC... Green trees swaying, blue sky and big white puffy clouds. I felt like it was a dream!

    Good news: I was told I could sleep on my side and also got a script for Ambien CR - had a great night's sleep last night. I bet my healing will accelerate now. LOL.

    Joy, Is it also Rads, besides Chemo, that zaps our blood counts?  My white finally made it up to the "low" normal range, but my red was below normal even prior to surgery. This made me need a blood transfusion! (2 units) - I am just hoping it is true what they say that the blood supply is now safe. sheesh.

    Spring. 

  • vivre
    vivre Member Posts: 2,167
    edited September 2009

    The soy controversy just seems to go on and on. I found this article, which seems to agree with Deanna that moderation is okay.

    http://www.vegetarian-nutrition.info/vn/soy_breast_cancer.php

     Deanna-the author is a nutritionist from CA. Maybe you can call him up and ask him to give us a definitive answer, once and for all.

    My biggest questions are: Are Asian women less likely to get bc because of their consumption of soy, or is it because they get so much iodine in their diet from all the fish and kelp they eat? SInce I started on the iodine, my breast tissue has softened noticably. We know that dense breasts may be more condusive to developing bc. So is iodine the real preventative? That is what I am beginning to believe.

    My other question-should you actually get hold of this guy Deanna (LOL)-My fear of soy is that it is numero uno as far as genetically modified and pesticide sprayed crops we grow. Could the detrimental effects of soy be due to this? We know that that GMO and pesticides feed cancers. Maybe this is the real reason that soy causes problems.

    I just wish some of the $$$$$$$$ going to find the next "miracle" cure for cancer would instead go to study our tainted food supply. If we would clean up the causes of cancer, we would not have to take all these damn drugs. But alas, there is no money in PREVENTING cancer.

    OOPs-I guess this conversation spilled over from the natural girls! Back to motivation:

    Welcome Terri-hope we can motivate you and not scare you off! Get yourself a far infared sauna. Then all that cold weather will not bother you so much. And they are really great for you. And don't let me hear you say it is too cold to exercise. I walked all through the snowy winter. Walking is snow is a great workout, like walking in sand! I can't wait. Those CA sissies can have their heat! It was only in the 50's yesterday. I 'm lovin it!

  • Springtime
    Springtime Member Posts: 5,355
    edited September 2009

    On soy, I think I read that if a woman had soy since she was a youngster (Asian women raised in Asian country) it is different than for those of us reared on a Western diet, adding soy in our later years. I think in the later scenario, they are more concerned about it mimicking estrogen.

    I personally take DIM that has a bit of soy, and very occasionally I will eat soy, but I don't do Soy milk or veggie burgers that are soy dense. I dunno. I wish we knew more about this. It would not surprise me if the dairy industry is involved in bashing soy! Though the pesticide thing, Vivre, is a very valid concern...

    Spring. 

  • kookiesmom
    kookiesmom Member Posts: 143
    edited September 2009

    Vegie patties have soy in them?  I eat the Morningstar Farms one cause I like them but now I gotta read the ingredients.  There I was thinking I was being good too!

  • vivre
    vivre Member Posts: 2,167
    edited September 2009

    Make your own veggie burgers. (I think the soy sauce is okay, but I would use seasalt instead):

    http://allrecipes.com/Recipe/Veggie-Burgers/Detail.aspx

    Darn! wrong thread again! I need to motivate everyone to take this over to natural girls! LOL

  • Mandy1313
    Mandy1313 Member Posts: 1,692
    edited September 2009

     I am mostly a lurker because I don't feel I have that much to add to this thread. But you gals are an inspiration to me.  I just got the go ahead from my internist to go to a gym so on Saturday, I will join my husband's gym.  He goes every Saturday and Sunday without fail so I figure I will go with him and then try to go one day in the middle of the week by myself. I think that is a realistic amount that I might actually go to the gym in the beginning.  I am supposed to begin very slowly because I still have alot of post chemo issues, but I am so excited to be able to start. 

    Vivre don't be too hard on Terri. I lived in Montreal for 5 years and I remember those cold winters...we are not talking about Northeastern cold, we are talking about temperature of below 10 below zero F (not wind chill, but actual temperatures). I would go out wrapped from head to foot with only my eyes peering out from the scarf I had wrapped around my face, so my eyelashes would freeze!!  Terri, I also get sad in the fall for all kinds of reasons. I like the summer and the longer days and warmer weather.  Also since I was on an academic year for some many years, I think it seems as if the year has ended when fall begins.   So Terri, if you want to walk and not be on a treadmill, you'll probably need to go to some place such as Place Ville Marie (and reward yourself by shopping in all of those boutiques afterwards :-) ). 

    Everyone have a nice day.

    Mandy

  • my560sel
    my560sel Member Posts: 1,065
    edited September 2009

    Mandy, That's so funny, I was just thinking that I could walk around a big mall for exercise in the winter time!....lol It does get soooo cold here in Montreal - especially in January. Actually, I live just outside of Montreal in the country and it's beautiful here in the winter. Crisp white snow underfoot, oh my, I'm almost convincing myself! Vivre, I did suck it up today and went for an hour long walk with my DH in the rain! It was lovely, simply lovely.

    Terri

  • Mandy1313
    Mandy1313 Member Posts: 1,692
    edited September 2009

    I was a McGill student so I had a (tiny) apartment on Stanley Street. I loved living right in downtown Montreal, but I really hated those cold winters!!!  How far outside of the city do you live?

    And congrats on your one hour walk in the rain!!!  I still live downtown (in Philadelphia) so I end up walking for alot of errands that I might do by car if I lived in a suburb...today I walked about a mile just to get a pedicure and manecure---this is my post chemo treat to myself--I get my nails done about every 2 weeks.

  • kfinnigan
    kfinnigan Member Posts: 1,729
    edited September 2009

    On soy, that's basically the same info as I've received from the nutritionist I met with and my onc.  And I am a California sissy and proud of it! heehee!!

    Went to physical therapy for the low back/hip...making nice progress, albeit small but progress nonetheless!!

    Deanna, thought of you as I'm walking out of the med. bldg (hospital is across the street) and a lady was bringing in bags of McDonalds into the hospital!  AARRGGHH!!!! LOL

    Mandy and Terri, that's neat you two have Montreal in common! 

  • my560sel
    my560sel Member Posts: 1,065
    edited September 2009

    I've lived in Montreal or thereabouts all my life. My husband and I are living west of the island in the St. Lazare/Hudson area, about 40 minutes from downtown. We've been here for 22 years and love it out here. It's very peaceful and just beautiful and quaint in the summer time. Hudson reminds me very much of England....

    You've just made me realize how lucky I am to experience the 4 seasons, albeit the winter one lasts a bit too long but I guess that's what vacations are for!....lol

    Terri

  • vivre
    vivre Member Posts: 2,167
    edited September 2009

    Terri-now you are talking my language! There is nothing more peaceful than walking after a fresh snowfall, in the cold crisp air. You are making want to come to Montreal. Actually my partner is from there, and we are working on expanding our student exchange there. I grew up on the midwest prairie and spent my childhood out in the cold, exploring the woods and fields. I guess that is why I love it. We live near an arboretum. Last winter I finally got my DH to go with me. The next snow, he was asking me to go with him! He still doesn't like shoveling though!

    Mandy-We get a lot of below zero here too. Plus we get the wind. I can handle the snow and the cold, but the wind is the killer! I will walk on really cold days, unless the wind is blustering. Thanks why they invented polar fleece!

  • Ainm
    Ainm Member Posts: 781
    edited September 2009

    Hi all - welcome to all the newcomers - lurkers - occasional poster and the regulars who are the threads life blood!!! 

    As usually there are too many posts to address them all individually but I love the lift I get when I read this thread. 

    There is always a little nugget of info along the way - today I was interested in the discussion about blood work.  I'm 2 months post rads and due a blood test in a few weeks to check if my blood count has improved.  As soon as my bloods get back to 'normal' I will probably have my port removed.

    I have a confession to make ......... I haven't been going out walking :-(  I have increased my Wii Fit to about 60 mins a day to make up for it and I am still losing a little weight and I have cut down on portion sizes and increased my fruit and veg intake. I really hope that I can keep the downward trend going for about another 80lbs or so.  I'd really like my onc to actually notice a visible weight loss at my next visit  which is on the anniversary of my surgery in Jan 2010.

    Kari - what book are you reading - is it any good?

    Vivre - 'Ainm' is the Irish language (Gaelic) word for 'Name'.  It's just my forum name.

    It's always so late by the time I catch up on all the posts - I'm sooooo tired.  I had to go to the hospital today to have my line flushed (80 mile round trip) waited 1.5 hours and then asked if they had forgotten me ...... and ...... they had!!!! Five minute procedure and then hit the road again!!!

    Oh - I hope that all the newcomers get as much inspiration from this thread as I do. Must go to bed now while it's still Wednesday!!!

    Sweet Dreams.

  • Springtime
    Springtime Member Posts: 5,355
    edited September 2009

    One mile again today. I think I did it too late in the day, was a bit of a struggle. I think about 25 minutes, BUT I DID IT!!!  Will go for earlier in the day tomorrow... 

    Tomorrow I will be 4 weeks post op that HUGE HONKIN surgery. I am hoping in the next 4 weeks I turn back into myself!  

  • pk0199
    pk0199 Member Posts: 586
    edited October 2009

    Way to go Spring and all others.

    I am slowly getting back into exercising since my surgery. Walked the dog yesterday, took 50 min (got to let him stop and sniff once in awhile, Joy will know what I mean) this morning got up early and did the elliptical, still not back to my usual but getting there.

    Was glad to hear a bit of soy,like in chocolate was okay. Now, how much chocolate is okay? And why is it that really tasty things like chocolate have so many bad things in it that we should stay away from like sugar? I am trying to get off the sugar wagon again, can you tell, all i think about is chocolate! Can't blame it on PMS anymore, dang it anyway! lol.

    Oh and welcome all newbies.

    Penny 

  • AllieM22
    AllieM22 Member Posts: 464
    edited October 2009

    I dragged myself to the gym tonight and feel great! (Usually I am reporting that I missed a day so feel good that I have been going regularly since last week.)

    Ainm--congrats on your weight loss!! You sound like you are doing great.

    Penny- the darker chocolate the better. 70% or higher. It's so good and less sugar and milk fat. Also they don't have to add the other things to "stabilize" the mixture. That's the only sugar my DH and I eat now--so figure a few small-ish chunks a day are fine.

  • AllieM22
    AllieM22 Member Posts: 464
    edited October 2009

    Oh and Spring--congrats on your amazing diligence while in recovery mode!! :)

  • Springtime
    Springtime Member Posts: 5,355
    edited October 2009

    One more mile today! 21 minutes. I wore sneakers today (instead of clogs, duh!) and went earlier. I notice when I start out I am moving slower and more stiffly, and on the way home my gait is easier, smoother, and faster. 

    go Allie!

    Go Penny! You are post surgery too?? I didn't know I wasn't alone in convalescing!! 

  • kfinnigan
    kfinnigan Member Posts: 1,729
    edited October 2009

    Spring, BRAVA!!!!!  you are DOING it and you WILL be old self again very soon I imagine!

    Ainm, the book is called "Scarlet Feather" about a couple of caterers and its really good so far!

    Allie, good for you going to the gym!  

    Penny and Allie, Had me some dark chocolate and some almonds last night!! yummy!

    Ok, NO exercise yesterday.  The PT had aggravated my low back and it was a killin me' so I had to lay off, he also said no going backwards on the eliptical, cause on Monday night that really aggravated it too.  Feel better this a.m. though!!  YAY!

    Vivre, boy I really am a sissy, it was 68 in my house this morning and I was shivering!  I do have a condition...Raynaud's that when I get cold my body sends a message to my hands/feet to stop pumping the blood there to protect my core...so my middle finger turned white and I had to run it under warm water to get the blood back in...Been dealing with that for years...now my DD's have it!  So NOOOOOOOO walking in the snow or really cold for me, its just so painful.  I have a good reason to be a sissy, haha ;)

    Be nice to people on your way up because you'll meet them on your way down.
      ~Jimmy Durante

  • AllieM22
    AllieM22 Member Posts: 464
    edited October 2009

    Kari--that's interesting on the Raynaud's although of course sorry you have it. I wonder if my SIL has that--she really had trouble last winter in Boston...

    Yes I am a CA wimp now too on the weather. At 56 degrees I have a down vest and a hat on! (Granted that is when it's foggy and windy...) :)  No living in a cold climate for me!! 

  • dlb823
    dlb823 Member Posts: 9,430
    edited October 2009

    Wow, Spring!  You are chalking up the miles this week, which is great!  And I can't believe it's been 4 weeks already?!  And, Allie ~ Glad you got to the gym.  It's amazing how exercise can make us feel so good.

    I'm not going to take offense at being called a California sissy, vivre (LOL), but I would challenge any of you Midwesterners to spend a week here in July or August, when an afternoon high of 118 isn't uncommon.  Nothing sissy-ish about that!  On the other end of the scale, I lived in Steamboat Springs, Colorado for 5 years, and still recall January mornings when some area residents reported early morning temps of -50!  Now that's cold!!!  And I also lived in Northern Vermont (Jay Peak, which isn't all that far from Montreal) one winter.  So, I've had my share of bitter cold!   But now I'm like you, Kari --  50 degrees and my teeth are chattering, although I'm not sure that will still hold true now that I'm on Iodoral.

    When I saw my PCP this a.m., there was a food chart displayed on the huge coffee table in her waiting room that I loved and know you all will, too!  It appeared to be devised and copyrighted by the other woman doc in her practice, but it showed a colorful food pyramid with the following breakdown: The bottom 75% said "75% Fruits & Vegetables."  Then the remaining 25% was divided into 3 equal sections.  The first of those one was "Lean Protein," and showed fish & chicken.  The middle one was "Healthy Fats," with olives and nuts pictured,  And the very top one was -- "Dark Chocolate!"   How cool is that?!  And it was a serious poster because she also had the types and amounts of exercise we need each week spelled out, along with sleep and other components of a healthy lifestyle. So, I say, go for it -- it's advice straight from a doctor!   Deanna

  • ktym
    ktym Member Posts: 2,637
    edited October 2009

    Kari, Reynaud's ouch, all my sympathy.  I'm with you, we got frost last night.  I'm done with the outdoor stuff!!  Proud of myself today.  Long hours yesterday and today and I managed to get up early and get part of a work out in this AM and finish off with weight lifting and a short yoga session tonight.  Now, if I could only walk, my neuropathy is screaming at me that I was on my feet too long.....

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