Sisters Dx'd in 2006

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Anonymous
Anonymous Member Posts: 1,376
edited June 2014 in Life After Breast Cancer

I was dx'd in October of 2006 and wondered how many of us are still hanging around this board and how each is doing now that some time has passed.

I will start:

Im on the normal see the onco every six months....to date: I am NED and have had NO signs of bc returning.

Im going through a rough patch right now as they think I have Reumtoid Arthritis so am waiting for test results for that. Ive been on tamox for almost 3 yrs now but they continue to say my aches are not the normal ones for being a se to that....we will see I suppose.

Outside of that my life is wonderful.....just a little over a year ago I met the man of my dreams and have been living on cloud nine since!!!!!!!!!!

Hope to see that all of my 06 sis's are doing well too!!!!!!!!

Hugs

Jule

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  • Jorf
    Jorf Member Posts: 498
    edited September 2009

    So glad to hear that life is good, Jule. I was in the March '06 chemo group - isn't it nice to think that '06 was ancient history!?

    Sorry to hear about the RA stuff. Do the workup. Maybe stop the tamoxifen for a couple of weeks and see how you feel?

    Ugh, strong thoughts for you sister!

    So glad about the love life!!!Kiss

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2009

    Hi Jorf......

    Yes it is extremely nice to see the time go by....

    I should get the RA results back this week so will figure it out then I suppose.

    Ive tried stopping one med at a time to see if the aches are med related but so far no luck....

    Best of wishes to you!!!!!

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  • Ihopeg
    Ihopeg Member Posts: 399
    edited September 2009

    Hi,

    I was diagnosed in November 2006. I come to this site every day, but usually just to the Stage 3 forum. I am trying to get into a clinical trial for Zometa, since my onc will not let me do infusions. Other than that, I still think of the beast every single day...

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2009

    Hi Ilene

    Sorry to hear that your still dealing with bc....why wont your onco do infusions? Does he have specific reasons why or why not allow them?

    Best wishes

    Jule

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  • Raye99
    Raye99 Member Posts: 1,350
    edited September 2009

    Hi fellow 2006'ers:

    Diagnosed in July 2006 and feelin' good (KNOCK ON WOOD, as I am somewhat paranoid about posting that I am feeling good and just a bit superstitious).

    Chemo onc: every six months

    Rads onc: once a year

    bs: once a year.

    Jule - Sorry to hear about your RA.

    Best wishes to all of you ladies!!!

    Raye

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  • lisaelder1972
    lisaelder1972 Member Posts: 171
    edited September 2009

           Jule,

        I was also diagnosed in 2006,on June 6th.You are having the exact same problems that I am having,I am also being tested for Rheumatoid Arthritis.I am also on Tamoxifen and I really do think that is what is causing all of the joint pain.I have days that getting out of bed is impossible.The good news is that I am NED just having alot of QOL issues.I am glad to still be here with my children so I will just cope somehow.It's a daily struggle and I hope we get more posts because there was quite a few of us 2006ers.

          

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2009

    Hi Lisa, yes I remember you from back then.....glad to hear that things are basically ok for you....

    Raye99-why did you delete??

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  • turtle42
    turtle42 Member Posts: 139
    edited September 2009

    I was diagnosed in Aug of 06. I still come to this site a few times a week. I dont post much but I do learn alot from all of you. I am on Tamoxifen but I am thinking it may be time to switch to femara. I  am 43  and had a hysterectomy in Dec 06. I started having migraines about 3 months ago and I am wondering if it is the Tamoxifen. They are pretty severe and I get about 2 a week. I sitll think about breast cancer every day but it isnt the first thing I think of when I wake up anymore. I dont think life will ever be the same.

    Jackie

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  • Marple
    Marple Member Posts: 19,143
    edited September 2009

    I was dx in Feb/06 and still hang obsessively around these boards.  Embarassed  I was dx with IDC, 3cm tumor, ER,PR pos.  HER2neg.  1/14 nodes pos.  Had single mod. rad. mast. no recon. Chemo, rads and now on Arimidex almost for 3 years.  I too think about b.c. more than I likely should.  I also have arm LE.  In many ways I feel fortunate and in some ways I do not.

    Gentle hugs to all.   

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  • newter
    newter Member Posts: 4,330
    edited September 2009

    I was dx'd in January 2006.  I lurk everyday but do not post much because I have not figured out how to type a post from my I-pod Touch on this site.  The little keyboard does not appear for me on BCO.  If anyone knows how to do this, let me know.   Tonight I am on my laptop so it is easy to type.

    Not a day or hour goes by when I do not give BC a thought.  Every little ache or pain can cause me some worry but overall I am doing ok.  Things could certainly be worse so I count my blessings and hope everything stays ok.  I have been able to get past treatment and live a relatively hectic normal life with 2 young kids in school and lots of extracurriculars.  I work full time and love my job most of the time.  3 Years ago as I was finishing up chemo I would have never expected to be where I am now.  I feel like I have come through a war sometimes and I know at any given moment I can be back in the war zone.

    BCO has been a godsend for me.  It will always be one of my favorite places to go every day, if even for 5 minutes.  I have met some great ladies under the worst of circumstances because of this site and I hope to meet more local ladies.

    Sorry for the long post.  Take care everyone.

    Lorene

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  • dalycity
    dalycity Member Posts: 248
    edited September 2009

    Hello, beautiful ladies: 

     I was diagnosed Nov. 2006; had lumpectomy Dec. 2006; radiation Feb. 2007; then Arimidex for 5 years.  Actually, I just had an appt. this morning with my surgeon; I see him every 6 mos. for the first 5 years; then annually after that. 

     I had a small concern these past few months.  My left shoulder joint aches now and then.  Last week, the pain kept me up at nights.  I asked him if it may be mets.  He said he doesn't think so, particulary if the pain comes & goes. If it's mets, it's usually in the bones and not in the joints.

     Please take care and stay healthy!

     

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  • Ihopeg
    Ihopeg Member Posts: 399
    edited September 2009

    Hi,

    Onc said that my dexascan was very good and that I don't need Zometa. At first she said that we would do everything possible to treat this, but now I am really upset. I have an appt with her in November, and I will definitely push the subject then. From what I have read, Zometa seems to prevent recurrence on ER post menopause advanced BC.

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  • caaclark
    caaclark Member Posts: 936
    edited September 2009

    Hi Girls!

    I was diagnosed in Jan. 2006.  All in all doing well.  I am on the 6 month schedule with med. onc. and rad. onc.  I check in here still but don't post all that much.  I am now working part time as the school librarian at my children's school and love the job and the part time aspect of it.  My daughters are now 12, 10 and 8 and when I was diagnosed I sure did not think I would still be around to say that.  I do think about bc every day at some point but not in the crazy way I used to obsess on it- ok, well, sometimes when a dr. appt is coming up.  I still live in some fear of recurrence but I have been somewhat successful at pushing those thoughts back. 

    Since being diagnosed myself the person who helped me get through treatment has died and one of the women that I helped through treatment has also died.  That part freaks me out since they were both initially an earlier stage than I was.  The unpredictability of bc is hard for me to come to terms with at times.

    I am not trying to be depressing-just saying here what I don't say to the average person.

    All in all things in my life are going well.  Physically I feel mostly back to normal.  More aches and pains but I am also getting older.  I'm ok with getting older, compared to not getting older! :)

    Oh, and I have some seriously cute hair that is long! 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2009

    <---- is embarrassed to say she still lingers on the boards Tongue out

    I'm still on tamox; I'm also on a clinical trial (triptorelin injections 1x month to suppress ovaries).  I see my onc every 6 months.  I have achy bones sometimes and sometimes I have what I call my "flu" days...days where I feel like I've been hit by a truck.  I don't sleep like I used to...sleeping through the night doesn't happen anymore.  I'm not sure why...? My memory is shot.  Mmmmmm what else?  Oh yes.  Hot flashes... 

    As for my life - it is 100 times better now than it was before dx.  Seriously.  I don't want to offend anyone or anything - each of our experiences are different, this is mine.

    I saw my dx as a wake-up call of sorts...there was so much I wanted to do in my life!  I had gained a bunch of weight with my tx so I got active and lost 77 lbs.  We bought kayaks and mountain bikes!  We have taken trips...not just "trips" but trips that push me physically (kayaking in Alaska, kayaking/biking/hiking/horse riding in Banff etc.).  We're planning kayaking trips to Tofino, BC in May 2010 and to Costa Rica in February 2011.

    I try to push past my comfort level now; I used to own a horse who threw me badly and it's been 30+ years since I've been on one.  I'm horse riding now!!

    I have deeper friendships and better relationships within my family and the people who mean so much to me (whom I just always figured would be around, no matter if I called or not).

    Don't get me wrong.  I still worry at times, but I realized that if it's GOING to come back, it will come back regardless of my worrying or not worrying.  I've decided to live and deal with stuff if and when it comes up!!!

    My mantra...

    Life should not be a journey to the grave with the intention of arriving safely in an attractive and well-preserved body; but rather to skid in sideways, chocolate in one hand, wine in the other, body thoroughly used up, totally worn out and screaming "Woo Hoo...what a ride!!!"

    As always, JMO!

    Peggy

    PS:  This is one of the lakes we kayaked last week (Moraine Lake near Banff, Alberta)...

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  • Jorf
    Jorf Member Posts: 498
    edited October 2009

    Peggy!

    You are a babe in the best sense of the word - fabulous! Gorgeous! Love it!!!!!

    "I realized that if it's GOING to come back, it will come back regardless of my worrying or not worrying" - couldn't have said it better!

    Yeah, I think about it and I vote on going forward....

    JEO

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2009

    Peggy-Thanks for checking in here.......YOU are one amazing woman!!!!!

    Your words mimic my thoughts to a T!!!!

    Ive often thought of leaving here and moving on but there are so many people here that helped me through my bc process that I find I need to check on them to see if there is anything I can do in return.

    I agree with JEO-I too vote "onward and forward"....

    Jule

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2009

    Jule...congrats on meeting the man of your dreams by the way...!  And honestly...we are ALL amazing!! 

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  • cheryl58
    cheryl58 Member Posts: 182
    edited October 2009

    Hi !

    I was diagnosed in May of 2006 and finished chemo in October 2006.  On New Years Eve of 2006, my husband and I burned the 2006 calendar (that had all my appointments, etc. on it) in hopes that the following year would be much better and we could move on.  I am happy to say that I am doing well so far.  My oldest graduated from college in the spring of 2007 (when diagnosed I thought I was a goner and would not get to see that...) 

    I remember all of you and I am so glad to hear that everyone is doing well.  Boy, the hours I spent pouring over this board and trying to soak up as much information as possible so I could go to my onc with all the "what ifs".  I don't do that anymore, but I do pop in occasionally just to check what I may have missed.  This place was my safe haven and a place where I mentally and emotionally connected with so many women, some of which did not even know that.

    I, too, have been on tamoxifen 3 years and suffer terrible sleep, hot flashes, body aches, and memory loss.  I just try to push it all aside and forge ahead.  I feel blessed in so many ways because my family is healthy, happy, and still looking toward the future together.  No, life will NEVER be the same, but it is what it is, and I feel so lucky to still have it.

    Bless you all !

    Cheryl 

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