Eye watering from Taxotere

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trishK_
trishK_ Member Posts: 93

I am 7 weeks post treatment and my eyes still water constantly. I have been to the eye doctors and they keep checking to make sure my ducts are clear and they are. I am curious how many out there have had this problem after treatment and how long did it last? Has ANYONE had this problem NOT go away after a long period of time. Or can anyone tell me how long it lasterdfor them? I hear it can last for months from my Onc nurse, but some people i have read have said it went away for them after a few weeks. I am just trying to see how long i have to endure this awesome side effect!

Comments

  • annadou
    annadou Member Posts: 221
    edited September 2009

    Hi

    I had the same problem . About 8 wks post chemo it stopped- all of a sudden I realised I wasnt carrying a handful of kleenex around with me .I had had a good cry just before dont know if that unblocked something.I didnt have any treatment or shunts put in .If you can find Marybe on the board she knows quite a lot about eyes.

    The nails were the worst for me 

    Best wishes for a complete recovery 

    Anna

  • 07rescue
    07rescue Member Posts: 168
    edited September 2009

    I also had it last for about 2 months after Taxotere. It gradually became less severe as time wore on, then suddenly disappeared, thank goodness. My oncology nurse told me she had a patient who also had it as severe as I did, he had to have shunts put in because his eyes were so swollen the ducts became shut. There was nothing they could do to help him. I'm glad I survived it intact, and hope your's goes away very soon.

  • nasharayne
    nasharayne Member Posts: 139
    edited September 2009

    I cant remember when it stopped but, I'm 12 weeks out and it's been gone for a little while now.

  • Morgan513
    Morgan513 Member Posts: 664
    edited September 2009

    I had watery eyes too and I know it took at least a month to go away but it just happened one day.  I was told by the infusion nurse that watery eyes were an indication that you would lose your lashes.  I did lose them but only AFTER treatment, but I think they were pushed out by the new lashes coming in.  

    Lorrie 

  • ktym
    ktym Member Posts: 2,637
    edited September 2009

    Trish, don't know what to tell you, everone is different.  Mine are still watering, yet feeling dry at the same time, 7 full months after the last treatment.  Eyelashes fell out twice, and onc told me to expect it a 3rd time, and they are acting like they want to do it again so that's probably right.

  • blondie45
    blondie45 Member Posts: 580
    edited September 2009

    Mine were watering so much starting with about the 4th of 12 Taxols. I am just going to have my last Taxol (12th) one this next week. I just wanted to let you know what helped me. I went to the eye doctor and got punctal plugs put in and since a week later even throughout my treatment the watering stopped. It was the best advice that I got to stop the watering.

  • trishK_
    trishK_ Member Posts: 93
    edited September 2009

    Thank you ladies for the input! I have been seeing the eye doc and they dont want to put the plugs in yet. I actually am almost 8 weeks post treatment now and noticed an improvement this past weekend, they still water but not as much. I guess if it persists i will consider the tubes. I just have heard many people who didnt get any relief from them and i dont want to go through something that wont help much. if they keep improving i will just hang in there. But it sure is the most annoying of all the side effects isnt it?

     Keep me posted on your progresses as well! Thanks again!

  • Texas357
    Texas357 Member Posts: 1,552
    edited September 2009

    I finished Taxotere 5 months ago, and had stints put in 3 months ago. My eyes still water as much as ever-- and it's driving me NUTS. My opthalmologist says most people can have the stints removed by this point, but I've got allergies going on in one eye so he's leaving them in longer. Even though I've lost my nails three times, and I still suffer slightly from dry mouth,this is by FAR the most annoying side effect.

  • trishK_
    trishK_ Member Posts: 93
    edited September 2009

    Okay, tell me honestly...Did it hurt to have them put in? everyone says no, but i feel like it HAS to hurt a little right? it doesnt hurt when they probe into my ducts on my check ups, but it is not exactly fun either. Do they give you a shot to numb> or just the topical numbing stuff. I hate the idea of them working on my eyes for 30 min like that. gives me the heeby jeebies!

  • LRM216
    LRM216 Member Posts: 2,115
    edited September 2009

    To all my sisters with watering eyes:

    I am so glad I found this thread as I was beginning to feel I was the only one that had this.  I am only three weeks out from my last taxtotere, and the eyes started watering right after my third round and they just water, water and water 24/7.  It's driving me crazy as I work full time and am always wiping them and the tears running down my cheeks.  I also lost all my lashes and don't see anything coming in yet.  Your posts have let me know that at least I am not alone, and guess I shouldn't expect it to stop any time soon.  Thanks to you all for your posts regarding this.  Hope we all dry up soon!

    Linda

  • trishK_
    trishK_ Member Posts: 93
    edited September 2009

    Linda, you are sooo not alone! Just know that all my lashes started falling out around the last cycle of my treatment and i am 8 weeks out and have a ton of short little lashes coming in, they fell out over many weeks and so i was truly only without any lashes for about 3 weeks before they started sprouting back. I just wear black eyeliner and not one person can notice that my lashes are gone!

    Hang in there, we are all in the "crying club"! we have strong winds today here and my eyes are tearing really bad, so much for the relief i had for a couple of days!

  • LRM216
    LRM216 Member Posts: 2,115
    edited September 2009

    TrishK - thanks for the info, I am hanging in there!  I can stand no lashes IF I could line my eyes, but with them tearing non-stop, I can't keep any liner on.  All in all, my eyes are so washed out and "cancerous" looking, I hate it.  Can't wait until I can get my shadow and liner back on!  Thanks for all the info.

    Linda

  • trishK_
    trishK_ Member Posts: 93
    edited October 2009

    Linda,

    i had the same problem with keeping make up on and i found a makeup online that is awesome! and not expensive. It is for people who pull thier eyelashes and brows out (the disorder is called Trichotillomania). It stays on no matter what! I bought the gel liner it stays on ALL DAY! the best part is that it is really reasonable and less expensive than department store makeup.

     here is the website

    http://www.cheryn.com/

     It has video instructions on the site to show you how to apply.

     I had to do something, i hated having those cancer eyes too! once i wore the liner nobody could even tell i had no lashes!

  • lassie11
    lassie11 Member Posts: 1,500
    edited October 2009

    So glad to hear that I am not alone in this too. I am 5 weeks out from Taxotere and my eye watering is less than it was but certainly not gone. It's waking up in the morning when it is making my eyes stuck shut that is bothersome - and getting sightly better.  I also have a runny nose from Herceptin (and a cold that is about gone). You'd think with all this leaking that I'd lose some weight!

  • backagain
    backagain Member Posts: 34
    edited October 2009

    trishK - thank you for the link!  I will order today.  I still have 2 more Taxotere to go and I can not stand the constant drippy eyes.  I work, too, and my eye makeup  is a mess by 10:00 a.m.

  • trishK_
    trishK_ Member Posts: 93
    edited October 2009

    Yes, putting on the makeup when your eyes are running is like trying to bathe a dog and not get wet! I wold have to blot my eyes, apply, blot again and repeat!

    I now have the lashes coming in like crazy and of course they stick straight down at forst and kind of blur my vision, i feel like i need to re-train them to curl upward!

    I am now 8 1/2 weeks post taxotere and my eyes are improving. not pouring down my cheeks constantly, but still keep a tissue with me at all times. I am finding that wind and cold air conditiong is what is causeing the worst of it. Otherwise i find that i am hardly dabbing my eyes as much. Lets hope this keeps diminishing!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2009

     Hi, I am the Marybe Anna spoke of.  I don't know how much I know about eyes, but I certainly have had a time with them and posted questions about them last summer.    I was on abraxane which is in the same family.  My eyes were watering so much that it actually interfered with my vision.....was like looking thru a blurry windshield that the wipers just weren't moving fast enough to clear.   I went to my opthamalogist and he tried to unplug the ducts which had closed over, but they would not stay open so he then sent me to a specialst and I actually had surgery.....had cannula (I think that is what they called the little tubes) put in both upper and lower ducts. Most likely the same thing TX 357 had put in. That was over two months ago and I am still using the post surgery drops and to tell you the truth do not know if things have improved or not other than the fact tears now run out the sides and just aren't overflowing the lid and gushing down my face.the way they were.  The surgeon tells me that these little tubes are to re-establish a new drain and once he takes the tubes out everything will go back to normal.  But he also added that if it doesn't work, not to worry, that he will fix me up.  This may seem like a petty complaint compared to neuropathy and other SEs (which I also have) but the tearing eyes really annoy me, make it difficult to see, and dry out my skin and don't ask me how, but somehow the tears manage to go up over my lids and it gets all crusty up there.  The latest thing is my eyes are stuck together in the AM.(like Lassie11 wrote about)  I do have eyelashes that have grown back, but dont' use mascara since it always did bother my eyes.  Only one eyeliner I have even goes on, but it is usually washed off by the end of the day.  The thing that upset me the most about this is that a woman I used to talk to during treatment told me IF you went to the opthamalogist early enough and did something to keep the ducts open, you were more likely not to have a long lasting problem.....BUT NO ONE TOLD ME THIS.  The pamphlet they gave me about SEs said may affect vision, but I didn't know it would be due to tearing.  I sympathize with each and every one of you who has this problem......it is more than annoying, it is a big PIA.   

  • BMac
    BMac Member Posts: 650
    edited October 2009

    I had terribly runny eyes.  I have allergies so I'm always blowing my nose and everytime I blew my nose my eyes would squirt.  Very annoying.  I happened to go to the opthamologist for a routine visit while on Taxotere and mentioned the problem.  No one associated it with the drug and they told me it was probably an eye duct problem that could be operated on.  Needless to say the problem went away after finishing Taxotere.  I don't remember how long after but not very long...weeks rather than months, I think.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2009

      I am now getting a rash like area under my eyes from the skin being wet so much of the time.  I have been off of chemo since the latter part of July, had those tubes put in and it seems like my eyes have not improved one bit.  GROAN!  Know this is petty compared to a lot of side effects, but it is just so annoying and also uncomfortable. 

  • trishK_
    trishK_ Member Posts: 93
    edited October 2009

    Marybe, dont get too discouraged, i just went to the eye surgeon for a check up and she told me that it can take up to a year for your cells to get back to normal in your body, including your eyes. I am seeing improvement in my tearing and she said as long as it doesnt get worse over time that it probably will be fine and wont need any procedures. They only think they really should give tubes at the beginning of treatment to prevent the scaring but that it is pointless to give the tubes once the watering has started. So now i just wait and see how it goes.

     I had the red rawness under my eyes too and started using that Eurocrin (spelling?) it is like vasaline but for any scars, wounds etc. it took care of it right away. I put it on each night before bed around my eyes. It is gentle and non irritating and did the trick!

    we are not being petty! if i have to tell another person that i am not crying i just may loose my mind!!!

  • blondie45
    blondie45 Member Posts: 580
    edited October 2009

    Marybe I agree it is very annoying. I am so sorry the tubes didn't work for you. I also started putting in lubricating drops while they were infusing the Taxol and I am now thinking that also helped me, as now I get only herceptin and unfortunately the watering problem is back somewhat but not near as bad as it was when it first started. Also I guess I don't have any eyelashes now to stick together like I did then. Needless to say I am going to use my lubricating drops again during the next herceptin infusion.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2009

      Saw the eye surgeon on Wed and he said he wants to leave the tubes in for two more months.  I really think they are tearing more now and he tried to explain to me how the tissue is closing in on the tubes, but that when he takes them out there should be a well established drain.  I told him I was still using the drops and he asked what drops and I said the ones with the pink cap that you prescribed.  He then proceeds to tell me that you dont' want to use those for more than two weeks post surgery as they can cause glaucoma and cateracts!!  Great.  So I am not just using clear eyes and putting vasoline around my eyes.  I guess I shouldn't complain too much because at least my fingernails are improving and I am growing hair and can taste and the edema is much better.   What are the lubricating drops called, Blondie?   Thanks

  • blondie45
    blondie45 Member Posts: 580
    edited October 2009

    Hi, my eye doctor told me to use Bion Tears, I believe Wal-Mart has them. Unfortunately my eyes started watering again and I am now 2-1/2 weeks post Taxol. I am still getting herceptin so I think my eyes officially reacted to each one AC, Taxol and herceptin unless it is just going to take a little more time. I was instilling the lubricating drops several times during actual infusion of Taxol and herceptin and when I was done with the Taxol figured I didn't need to do that anymore. I am thinking that was a mistake as I have had one herceptin alone without using the drops during infusion and they are watering again. No doubt I will use the drops at the next herceptin infusion to see if that helps again. Now beginning to think that helped more than the plugs.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2009

       Yesterday, I was rubbing my eye because it itched and I must have caught one of my loose nails on the plug end because the next thing I knew I had this stabbing pain when I blinked the eye lid would not close because something was holding it open.  I said to a woman I work with, I think I just pulled one of my tubes out and she said Oh, Marybe as if she didn't think there was any way I could actually have done that.  Well, I went and looked in the mirror and there was this long clear thing sticking out so I just pulled it the rest of the way out. I cannot believe  how long it was.  I immediately called my eye surgeon's office and told them what happened and the receptionist wanted to know if it was still in at all and I said no and she wanted to know how long it had been since they were placed and how it felt and when my next appt is.  I told her actually it felt surpirsingly good and I have an appt a week from Monday.  I do think this eye is not tearing the way the one that still has both tubes is so this will sort of be like a test for a week.  They had been in for just a day short of three months so hopefully there is a new tear duct established which is what was supposed to happen.  Next thing you know I will be griping about dry eyes, but will certainly be glad to be done with this tearing.  It is actually more annoying than the neuropathy in my feet. 

  • justpayton1
    justpayton1 Member Posts: 786
    edited October 2009

    I had watering w/ only my right eye, which drove me nuts until I bought some allergy eye drops. 2 drops in the right eye and that seemed to help quite a bit.

  • trishK_
    trishK_ Member Posts: 93
    edited November 2009

    I could not be more frustrated with the tearing at this point! Just when it seems to taper off a bit then comes a day where it is as bad as ever again! Today is a good day, but yesturday it was horrible! I know it is the dryness of my eyes because when i first wake up my eyes are so dry!

     I am now 3 months since chemo and i dont see that it is getting much better. People tell me they can tell it is better but it still is tearing and i need a tissue with me everywhere i go.

     I hope that i didnt make a mistake by not going to the eye doc and getting tubes before this started. :(

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

       Trish, It's a big PIA isn't it? I am always saying to people, I am not crying, my eyes are just messed up from chemo.  I will let you know if the plugs were worth it soon, I hope.  SInce my eye that I accidently pulled the plug/tube out of seems to be better than the one with the plugs still intact, I am hoping maybe he will just take them all out. I honestly did not know there were tear ducts in the upper lids til I had this done.  The eye with the plugs is normally mattted shut when I wake up....it tears all the time, but the tears are sort of thick.  I just want it to go back to normal.  Perhaps at this stage of the game normal is not the term I should use.  I smear vasoline on my lids and cheeks before I go to bed. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2009

    Well, I accidently pulled out the lower plug on the other eye today....so I am back to having a matched pair.  I was at work and something flew in my eye....some prophy paste I think since I was polishing....so I rubber at my eye and felt something sting and sure enough just like before I was unable to close my eye.  I went running up to the front desk and said to Tammy...ooh, ooh, please help me get this out of my eye, I can't close it so she looked and went oooooh, no I can't.  I can't even look at it.  Get him to do it.  So my boss got some cotton pliers and pulled it on out.  At this rate my next office visit witht  he opthal should be free since I will have removed all the plugs myself.  It's these darned numb nails....I can't feel them or with them and they are brittle and snag on the end of the little plugs. 

  • cowgill
    cowgill Member Posts: 1
    edited June 2013

    I have completed 3 of 4 chemo treatments and my eyes are watering like crazy.  It drives me crazy, but the worst part is it seems to be affecting my contacts.  Does anyone else have a problem with this.  It seems to put a kind of film on them that then causes my vison to be very cloudy.  Thank you

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