2nd treatment tomorrow... crying again! Durn!
I have my second treatment of a/c tomorrow. I'm not too nervous about it, or at least I think I'm not, but I know I'm in for plenty of fatigue after, and I'm not looking forward to it (like anyone is!). And I keep bursting into tears.
I know all this is to be expected, part of the roller coaster, etc., but I feel like I'm just having a big self-pity party and I want to smack myself.
Then I tell myself to be kind to myself and it's ok to cry and even feel sorry for myself.
It doesn't help that I had this past weekend (3 days and nights) completely to myself for the first time in nearly a year (I normally am helping my mom, who also has cancer, along with other aging issues) -- and Saturday evening I missed the bottom step and sprained my ankle badly, putting an end to my hiking/photography/freedom plans. I'm walking on it now but still frustrated over the missed play time. I won't have another weekend alone for months or longer, and I'm sure I'll have more fatigue than energy in the coming months, as well.
If it sounds like I'm asking for pity, I probably am, but I really don't want it -- what I want is reminders of how to cope.
I journal, and tonight I'll set aside some time to cry/meditate/whatever... I feel like I'm leaning on y'all a lot lately, but I'm hoping you understand. I've found terrific support and strength from everyone.
hugs to you all....
Carol
Comments
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Oh, Carol, I SOOOO know how you're feeling. I had to have a blood transfusion last week due to low blood counts and I've been feeling sorry for myself ever since. It seems when someone feels sorry for me, it makes me cry/sob even more. It would help me more if someone just said, "Suck it up, Linda!"
That's a wonderful idea to set aside your pity party to cry when you journal at night. Journaling is a valuable tool. But in the meantime, we need to think of how many went through this before us. We can do it. Think of it as a time to catch up on all those books you've been wanting to read. Use your chemo card and ask for help with your mom.
Take care. We know what you're feeling, but you can do this!
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Thanks, Linda... I know what you mean about people being nice making you cry. I think I'm doing fine until someone asks me how I am, then I burst into tears!
And thanks for the reminder about others on the road before me. I know I can do this! I just have to get used to the ups and downs, I guess.
I have a few chores I have to do today, then I'm going to try to spend the rest of the day for me. Or as much of it as I can.
Thanks again for your reply!
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Naturegrrl - Oh I can so relate to what you are saying. I too have my 2nd AC on the 14th, and although my first and second day of the first round was not bad, I hated day 3 and 4 (between the constipation and runs, I felt truly miserable). I am already scared of that happening this time too as I truly felt so lousy. I work full time and am getting mine on thursdays, Neulasta Fri. a.m. so that I can "crash" over the weekend. Well, if last weekend was indication of that, they I will probably be crashing the weekend after the next round too. I don't want to play this game anymore!!!!
Linda
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Oh girls, a big cyber hug to you from me. It is ok to have a pity party, it is ok to cry, it is ok to yell, rant and rave. I didn't do A/C but I did CMF. I know how you feel, tho, to do the next one. It is ok...you will get through it and all will be ok. Linda, I always said those same words...I dont want to play this game anymore. As soon as you get through the treatments, you dont have to play it. Stay posting here on the beautiful website where there is lots of love and support. I am very close to being a 3 year survivor...and I still post here. I can't let go of these beautiful people. People I have known for a long time, people who are just starting the journey.
Take care of YOU, rest,read, watch good movies, do some crafts. Take care of YOU!!!!
Hugs,prayers,love,support and may it not be too bad for you,
your bc sister,
Candie
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You are so entitled to your tears, they are cleansing. candie is right it is ok to have a pity party and we will be there right by your side. She is also right about keeping your mind and hands occupied. Sending you big hugs and prayers. With all of us prayer warriors you are bound to come out OK. Be strong, keep the faith. We will be with you in spirit at your treatment tomorrow. When you get nervous or want to cry think about all of us being with you in your bag and shouting and laughing and eating chocolate, letting you know we are with you. Then you can smile.
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Oh big hugs to you guys! NatureGrrl, you are SOOOO not alone! I used to begin to cry and make myself sick from the moment I would head to the doctors for treatment until I left the doctors office after treatment. Once I left, I would be fine but that whole time I would be there for treatments I cried and got sick. I also would get so ticked off anytime some fool would come up to me and say "oh how beautiful I looked". Believe me, I saw each and everyday what I looked like and it wasn't pretty...I knew it. I used to scare myself just looking in the mirror. (HA HA!) But it just kept feeling like everyone was lying constantly to me just to make me feel better. The rage I put my poor husband through was also a big thing. But he stood through it like a trooper. He took the lickings and just stood solid through it all. I am one of the lucky ones with an amazing husband who stood by me with the most positive attitude and pushed me through it. But darlin', you are SOOOO NOT alone! We have been there, felt that way, and done it too! So anything you need don't hesitate to ask.
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Hugs all around (and a kiss on the forehead,too!) I get nervous, nauseous and emotional before treatment. Have my 4th TC the day after mom's day and am already dreading it. My onc says it's "anticipatory nausea" and has me take Ativan. Personally, I don't think the steroids I take the day before, day of and day after are doing me any favors. (I have ILC and heard that it feeds on steroids. Lovely. Perhaps I have "knowledge nausea" LOL)
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Wow, thanks so much, everyone! I made it just fine! (Of course!!) I think for me, like others, the anticipation is the hard part.... so last night I got brave (ha!) and took 1/2 an ativan I took it partly to help me sleep and partly to help my nerves but I was afraid a whole one would give me a headache, thus the 1/2 tablet trial... I did get a decent night's sleep and felt better when I got up. Ann, I suspect -- hope -- the ativan will help you a lot, too. I'm all for calming those nerves down! (BTW, love the expression "knowledge nausea!") Linda, I hope your 2nd treatment goes well... I know what you mean about crashing. I only work part time and I was able to work through it so far but I had about 10 days of real fatigue, it was hard to get through a few of those 4-hour days, so I can appreciate how long an 8 hour days must get. Then I woke up one day full of energy. Hurray! It was nice to have that rebound. Hoping for it again.
I didn't get much of a steroid buzz last time, in spite of 3 days of them, but I'm feeling pretty darn perky tonight, I wonder if it isn't the steroids from today's drip....
spar2, I've got a HUGE bag, and all my friends, family, and cyberfriends are in there with me. I will keep that image with me and pull y'all out when I need the boost! Candie, I so like hearing from those who've been in and out and are doing well -- thanks! And Krista, thanks for sharing... you must have Mr. Incredible for a husband. Do you rent him out as a punching bag? (kidding!) (but boy, there are times I'd like to punch or yell at something! Maybe I can find a special tree in the woods somewhere, but I'm afraid all my angst would kill the poor thing!).
And I'm babbling like a monkey, so I'm thinking it is the steroids!
Gotta love the roller coaster! Yesterday I was sobbing (and just letting it roll... I agree, I think it's cleansing and releases a lot of stress) and today I'm just fine. Who knows what tomorrow will bring.
Thank you all, really for the understanding and compassion and hugs and knowing what I'm going through and just being there and sending good thoughts my way! I may not have mentioned all of you by name but I've read all the posts over a couple of times and love and appreciate them all, and am so grateful for you all... thank you, thank you, thank you! Very warm hugs to you all.
(PS -- edited to add): is it normal to get something similar to hot flashes with chemo? I keep forgetting to ask my oncologist. Like, right now, about 5 hours after my treatment ended, I'm sitting by a window with a nice relatively cool breeze coming in on me, and I'm sweating. What the heck? Shower time!
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hugs..hugs...hugs...sorry about the sprained ankle. when i was on chemo i had a bike accident and ended up with road rash all over my knee. all i could say to myself was at least i was moving around during chem*....lol.
i cried a lot; espeically in the earlier stages of diagnosis. i would go upstairs and lay on my bed and cry....read....pray....hug my kitties./...and sometimes chuckle to myself because i was so amazed i was going through this** i always felt better after i cried. those tears are magic***
i took decadron before my chemo; i day before infusion...day of and day after. one time while on decadron, i was chatting with another woman on steriods in an elevator....and we forgot to get off** hahaha we were so busy chatting we didn't realize the elevator was going up and down with us on it.
so what is wrong with a pity party? a friend of mine said to me "you can have a pity party but just don't stay there" i thought that was a pretty good comment. so, i had my share of pity parties...and then i got back into the warrior mode. it is hard in the beginning because everything goes so fast and it feels like the rug has been pulled out from under you. hang in there. one day at a time.
diana50
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I'm also having my second chemo (TC) tomorrow and am very anxious. I started the steroids this morning and I know they get me all wound up.....by tomorrow I'll be bouncing off the walls. After the Neulasta shot was when all the pain began.......Good luck tomorrow everyone.
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HRF - try the Claritan and Aleve right before the Neulasta shot, then on day 2 after shot and on day 3 after shot. It worked for me.
And to all of our Sisters longer on this journey than we are - God bless you for being there for all of us. I couldn't have made it even this far without each of you. We love you!!
Linda
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diana, your replies are always right on target... thank you! You reminded me that it IS ok to feel sorry for myself, sad, mad, whatever -- it's all part of the process and I do get through it better when I acknowledge it and sit with it awhile. Then, time to put on my boots and do some stompin! Love your elevator story, too -- what a hoot!
Seems some get steroids the day before and some of us (well, me) get the first steroids the day of chemo... I get them day of treatment, then pills for the two days after. I haven't yet had really crazy energy, but about 30 hours after my first dose I did have about 20 hours of energy, which was helpful to get a few things done!
Helen, I tried what Linda suggested: Claritin. My oncologist and his office hadn't heard of this so I'm the office experiment but they said there's certainly no harm in taking it. Since it's allergy season anyway, I'm just staying on it for the duration. I just found out about it as my Neulasta aches were beginning to subside but I noticed an overnight difference with the Claritin -- could be coincidence but I kind of think not. Anyway, I get my Neulasta today and I'm keeping the Claritin going, plus some tylenol. I heard to take the non-d claritin, generic, so that's what I took.
my best and very warm hugs to all of you. You're the best!!
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i am glad that the boards are so helpful; it is comforting to know you are not alone. this site rocks**
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Hi Carol
I have just joined today and would like to say just take everyday as it comes. I went through chemo and now on Radiation and all i tell myself each day is i am taking a step torwards recovery and believe me once i am done with Radiation which i have been for Simulation today and to the machines on the 13th in the Name of the Lord my body will not harbour any cancer cells ever again. I just try and be positive and i have told my self i will see my 2 sons grow up get married and see my grandchildren and since my diagnosis i have been living the Secret. So head up Jewel you will pull through!!
God Bless all the Breast Cancer Ladies
Drascy
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Diana50, I will only be beginning my chemo next Thursday 05/14...But I can already relate to the the crying and then the feeling like a warrior afterwards. That's TOTALLY me too!! Just last night, I cried myself to sleep....again....and woke up with the attitude, well, there's nothing I can do about this but be strong, move forward and do what I gotta do....It's weird...sometimes I feel like a flower in a tornado....And other times, I feel like a raging bull with my horns down and ready for action....
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A few seconds ago Krista wrote:
NatureGrrl,
UH, yeah, sorry to say...the hot flashes are normal. And you haven't seen anything yet! The chemo puts you into a chemical menopause and if you choose to do what I did b/c I was HER2NU +3, I had my ovaries taken out. So now I am in full blown menopause. Girl, let me just tell you....the hot flashes and night sweats are crazy! This past winter my poor husband kept getting sick (colds and stuff) and I finally realized it was b/c I had been opening up the windows in the middle of the night to cool off and leaving them up through part of the night when it was like 19 degrees outside...LOL! Poor thing! He asked me if I was trying to kill him.
Yep, I have one of the most wonderful husbands I think anyone could ask for. Been married 16 years and he told me that we have been together this long...can't get rid of me now! ha! He gave me the best gift while going through treatment which was just to stand there and take it. I can remember right after having my lumpectomy (3days after) I really felt disfigured by the way I looked and was insistent upon going out and finding some sort of boob to fill in the gap. It really wasn't that big of one but for me it was way too much! And I made my husband and my mom take me to the mall to try to find something...anything...it didn't matter. And nobody had anything. The more I looked the more I had people telling me No, they didn't have anything like what I wanted. So after the millionth time of hearing "It will be alright", I lost it and cursed them both out standing in the middle of the mall! Screaming at the top of my lungs, "This is NOT alright!" God bless them....they stood right there and took it....didn't say a word and just let me scream and get it out of my system. That, hands down was the best gift anyone has ever given me. Right afterword's, I went to Victoria Secret's and found exactly what I needed! So, don't give up and I have been right where you are standing right now and know the fears, anxiety, anger and the want to have your "normal" life back. Believe me! So anytime you want to vent, just scream, I am here for ya girl! Stay tough!
Krista~ Hope, Faith and Blessings!
Dx 2007, DCIS, Stage IIb, 0/5 nodes, ER+/PR+, HER2+ -
all you on chemo; remember...chemo is the cocktail that takes out cancer cells. i really believe in chemo; i think that is why i am still NED after all these years. drink a lot of water if you can. the cancer cells are shrieking in their dresses....they are sooo scared. use visualization and when you are having physical symptoms know the chemo is waging war on the unwelcomed cancer cells.
hang in
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Diana50 is correct, but the mere fact that you know what it's going to do to your body afterwards and how you are going to feel and seeing the way people look at you it's just so hard to focus on that good part of chemo. But you are correct....thanks for that great reminder. Hope and Faith are what give you strength. Just when you don't think there is any left...dig deep, because there is much more. You just have to find the positives in chemo.....Not having to shave my legs was one of THE biggest ya-hoo ever!!!!
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I am afraid about work as well. I know I won't be able to work 40 hrs. a week because I have to do H every week and then every 3rd week all three TCH. And if I fall under 30 hrs., then I lose my insurance because I have to work 30 hrs a week in order to keep it...How many hours are/were you full timers able to manage?
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Well, what I did was I had my chemo treatments on Thurs so I would work a half a day on Thurs and take off Friday for my wonderful NEULASTA shot that way I would have my really bad days on the weekends. Then on Monday's I went back to work. I think there were a few that I ended up only being able to deal with a half of a day on the Monday after treatments but for the rest of the week I was there. For my radiation, I went in the mornings before I was to be at work and had no real issues with it except for some fatigue. I began my Herceptin after I was done with the chemo and radiation was over with b/c I felt like it was just too much to try to do more than one at a time. So when I did my Herceptin I did it on my lunch hours b/c it was only a half hour drip. So it would make me go over some on my lunch hour but typically only about 15-30 min for which I made up coming in early other days. I was also VERY blessed with having such caring co-workers who gave up their own sick time for me to use b/c of the many many doc appts in the beginning and the surgeries.
Also know that how I got through work may not be the best thing for you b/c I am a VERY stubborn woman who was insistent this was NOT going to change anything about my lifestyle. Needless to say I was WRONG! This should explain how stubborn I am....On the day of my very first treatment I was told to be at the doc office at 8am. They said it was a 4 hr drip + would need to see the doc for blood work ect. During the treatment I had an allergic reaction for which they had to stop everything and give me something to counteract the allergic reaction. I told my nurse that I was planning on going back to work after my treatment was over with. My nurse begged me not to. I told her I didn't care what was going on.....that I was going back to work and I wasn't going to let anything change that. Well it was about 2:30 when I was finally able to leave from treatment and still I was insistent on going back to work. My normal work hrs are from 8:30 - 5. So my husband drove me and I went into work for the whole 2 hrs that were left when I got there. By the time I left at 5, I could hardly walk. My husband had to carry me into the house when we got home and then spoon feed me something to eat. Obviously I had over done it b/c of my butt-headedness! But that is to give you an idea of how stubborn I am. I am the one that goes goes goes and then worries about the results later. I obviously don't suggest going back to work to ANYONE the day of treatment and would NEVER do it again myself. So ya, get the idea anyway. Hope any of that help. Stay strong and don't give up Hope and Faith. We are here for ya darlin'!
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Thanks, Diana,,, I hold those thoughts close right now but as Krista mentioned and I'm sure you know, there will be days when I'm deep in the trenches and will need reminding to keep the faith! I do look at chemo as a friend, even as I know it's doing some also-unkind things to my body... but all for a good cause. And Krista, I agree -- my leg and underarm hair has stopped growing so I won't have to mess with that all summer! Eeee-ha!
I went through menopause 15 years ago, full hysterectomy 11 years ago (including ovaries and cervix), so I wasn't expecting the heat/cold thing at all. I already sleep with the windows open year round and vents closed (my mom keeps the heat on 85 ALL YEAR, no lie) so I'm used to opening and closing windows to adjust the temp but this is just crazy. But I'll survive! Give your wonderful husband a big hug.
Lisa, I hope someone can address your question about work... if you don't get answers here, please post as a new topic. I imagine a lot of people have gone through what you're having to deal with. I'm hoping to hold my 20 hours a week and know that may be tough. I know what you mean about some days feeling like a flower in a tornado, and some days being ready to tackle the world! Roller coaster!
Thanks, everyone!!
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NatureGrrl, here's another one of those positives to think of.....it doesn't take nearly as long to get yourself ready in the morning. Just jump out of the shower and get dressed with some make-up and go! Now that my hair is coming back (it's now back down to my shoulders and it's so much thicker now and all curly...so the rumor is true.....the complete opposite comes back!) it takes me a lot longer to get ready in the morning and I am back to hearing my husband say "Exactly how long do you need to get ready???" or "Why does it take you so long" So you just have to find those positives as best as you can. There aren't too many but they are there I promise. I know it's so hard to find them when you are hardly able to hold up your head and feeling sick and emotional and ready to bite someones head off just for breathing in your direction. But a few days after treatment when you see that slight glimmer of hope to begin try to remember what I said....find those few positives and hold on tight. It will help you through each day that you are just trying to get through. You have many on here that have been where you are right now and can help you walk through it. You have many on here that are in the same boat as you and there will be many more to come in the future that you will be able to help walk through their journey. In the name of Clairee from Steel Magnolias "Go ahead, hit her, take a whack at Weezer!" (that is one of the best parts of that movie....) We are here for ya darlin'!
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lisa
i didn't work because i was working with many children (colds and flu...head lice...eeek ) and the chemo pretty much took out my white blood cells. i was on TAC combination' even with the neupogen shots i was too low for my work. however, i do know many of my friends from group did work through their chemo and were able to do it. in fact, i think they were glad to be working to keep some sense of normal schedule. they worked out their hours with their employee so they could take care of themselves when then needed too...many employers are really cool about it.
krista; right on on the fast shower with the bald head. i always called myself "baldy" as i said in my some of my other posts; i loved being bald for a change. i had always had a mane of hair and after chemo...have kept it short and sassy. i can tell you when my hair started to come in..i had more compliments on the great hair cut....it comes in all even...curly for me....it was great. after 6 months i lost the curl on top but kept a wave that i always had had.
hang on all of you...one day at a time.....the chemo is doing its job and taking out any cancer cells floating around looking for a place to land.
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oh something i did which helped me. i used a calendar during my chemo...and wrote down EVERY DAY how i was feeling......that way i could kinda track the physical symptoms. and i could kinda use it as a predictor for the next cycle. i still have that calendar.....you can put down whatever you want..i used: icky....better.....body aches...feel more energy...etc. it really helped as i got into chemo 3, etc. i could plan my life a little better
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The short showers are definitely a boon! I've never been one to want to spend time on my hair so I don't miss messing with it at all, to be truthful. It'll be fun to see what I get when this is done.
Diana, I like the calendar idea. I've been doing that but not daily (I have a personal journal blog and a public blog -- the personal one is so I can say whatever I want without having to worry about hurting anyone's feelings!)(I share it only with my therapist) and it's helped a lot in seeing how my second cycle is playing out. I like the daily note idea, though, just to tune into some of the fine details and jog my memorie on exact timings.
I'm gonna write down that line ("take a whack at Weezer!") for when I need a laugh and a vent!!
I'm doing well at the moment. The anxiety over the second chemo was short-lived and not too dire, and so far my reaction pattern is close to the first chemo, so I'm feeling more confident and know I just need to listen to my body and try to act accordingly. I've actually had a reasonable amount of energy (thank you, steroids!) but I know that will wear off today/tomorrow and fatigue will hit again. But I'm ready for it this time (wasn't expecting it the first time so I wasn't resting as I should have) and I know I'll get through it.
Hugs, all!
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FYI -- uncontrollable crying for apparently no reason or over something very very trival is a sign of Depression. As a person diagnosed with server clinical depression this should have been a warning sign to me 18 yrs ago. I've been on anti-depression meds since 1995 and my temperment has been more or less normal since then. Talk to your dr. about all symptoms you have even if they seem trival. My crying and rages nearly killed me.
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Hi Ladies,
Shannon56, I could have written what you just wrote and agree 100%. It took years to finally get the right combination of meds for me but now I stay on an even keel. My diagnosis and first biopsy was in March, lumpectomy and SNB, right mx and insertion of port in April. My second chemo is on the 28th and so far I've only cried three times but none of those times were for me. I am not iron woman but I am holding on and will continue to do what it takes to get me through this.
I am not trying to tell anyone not to give vent to their emotions. That is human and we need to do that. If you find that your emotions are overwhelming you then don't be afraid to seek help. It may be that you just need temporary help with the anxiety or depression. Wishing you all strength and courage.
Nancy
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FWIW, I didn't notice anyone mention uncontrollable crying for no reason or crying over trivial things (although I may have missed that) -- which are definitely signs of clinical depression and I do agree recognizing that is very, very important.
But all I saw in the posts was very normal reactions to a very trying disease and treatment. Thanks to both of you for the reminder about depression and meds.Even if you aren't clinically depressed, there are times when meds can help you get through a rough patch, and I'm all for people doing what they need to do. Although I haven't felt the need for meds yet, except for the anxiety the day before my 2nd treatment, I know meds have a place and can be a huge help.
Thank you also for recognizing that tears and venting are normal and important. I am fortunate to live in a community with many resources and a previous therapist willing to see me without insurance, some support group possibilities, friends and family who understand (some better than others, but still, the love and support are there), and an oncologist and his staff that I know and trust deeply, because I've come to know them over the last 2 1/2 year with my mom's cancer. And I have so far found many more good days than "bad" ones* (except for those first few weeks after diagnosis!). As someone who spent many years suppressing emotions, I had to go through a lot of learning and growth to find healthy ways to let them out, and I'm actually finding my infrequent but deep cries very cleansing and cathartic.
I think the point is do what you need to do for you, be aware of what's a normal reaction to a difficult time and what's out of bounds or control. I won't hesitate to ask for meds if and when I feel the need, and I also won't hesitate to use the many other (healthy) ways at my disposal to deal with the rough times.
*as someone else once said, if I'm here, it's a good day! Not to trivialize the bad times, because they can be horrible, but I agree with the thought and principle that just being here is a gift. Any day I'm here is a good day. I lost a dear friend to cancer when she was 50 and I figured any day I got past that age is gravy -- time she didn't get. So far I've had 7 years she didn't have. So even when I'm in the trenches, need to vent and cry, or just sleep... I'm grateful to be here. This is just something I have to get through, and I will. Pollyanna, signing off for now...
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i had my treatments 3.5 yrs ago. i spent the first year crying all the time. i thought i was going to die, never retire, leave my loved ones. one of my friends told me no one knows how long they will live, and that we just had to live. she was right. she died in a car accident that year. i think the worst was at night when the demons come.. the what ifs? dont go down that road. i dont spend my time on what ifs, i redirect my thinking to all i am thankful for today.today is really all there is. i still hiked during chemo pretty seriously, even though i slowly became more fatigued. everytime i got A/C i thought of jim jones and the poisoned kool aid, so i would say, have some kool aid to my cells and envisoin them dieing. i only threw up once after i went out for fish and chips after chemo. cut yourself alot of slack , dont listen to the horror stories of chemo, its different for everyone. cry if you need. it will get better, really.
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