Herceptin & LACK of side effects

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weety
weety Member Posts: 1,163
Herceptin & LACK of side effects

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  • weety
    weety Member Posts: 1,163
    edited September 2009

    Hi all,

    This is probably a dumb question, but once you have been diagnosed with BC, you start worrying about every little thing!  My question is, what does the LACK of side effects on Herceptin mean?  I have had 5 weekly treatments so far, and as far as I can tell, none of the usual side effects (no chills, fever, etc...)  Does that mean the herceptin is not working????

  • nagem
    nagem Member Posts: 353
    edited September 2009

    It's a targeted drug, so many people have no side effects. And those who do, often have very minor ones, like a runny nose or fatigue the day after. It was a piece of cake for me.

  • chainsawz
    chainsawz Member Posts: 3,473
    edited September 2009

    I have been on herceptin for over a year and my SE are minimal, but it has been holding the line on my lung mets so far.  I had awful side effects with the taxotere and carboplatin and they hardly did a thing to my mets.  I think side effects are definitely not an indication of how it's working, just how your body is reacting.  Herceptin is nice stuff......I plan to be on it for years and years!!   lisa

  • NanaA
    NanaA Member Posts: 293
    edited September 2009

    I have been doing herceptin since last March and really no SE's but a little achy the day after.  I do think when I was doing it with chemo it did make healing a little slower.  I had neuropathy in my hands and feet and when I missed one herceptin I saw a noticeable improvement in both.  When I had the next herceptin things did not get worse,  I think they just needed a little more time to heal and once they were everything was fine.  I will be on herceptin until next March.  I finished rads last week and all the tests caused by my CT scan came back great, so except for another CT 90 days from last one and my every 3 month echocardiogram I am about done.  They are going to biopsy a nodule on my thyroid but radiologist is sure it will be b9.  Since it is borderline on the size they usually remove doc wants to biopsy and watch rather then have me go thru another surgery now.  I also have to do a pulmonary test every 6 weeks till done with herceptin.  Lining of lungs have changed a little and pulmonary doc thinks could be hercptin, could have been chemo.  Did  not have a baseline pulmonary test before.  We did one this week and as long as it stays the same till herceptin is over we are good.  Only takes about 15 minutes to breath in a pattern they give you.  Compared to some of the things we have been thru, that is nothing.  I am feeling pretty good.  Still have a burn about the size of a quarter that needs to heal from rads along my incision line from the boosts.  PA in oncs office said give it one more week and it would be healing up.  I have to say it would be nice to wear a bra again, but am not risking tearing up the new skin until I a sure it is healed enough.  I have been on Femara for a week now and no SE's so far.  My knees are bad all the time, so I can't blame that on the femara.  In another week or so, I am going to do a series of 5 injections into my knee.  One a week for 5 weeks.  They put a natural lubricant into your knee joint where the cartiledge has worn away and it lubricates where bones rub together.  They say you can get a years pain relief from this when it works.  If my knee did not hurt I would be practically pain free.  At 61 we all a a few aches and pains here and there, but most are minor and don't interfere with daily living.  My knee has been so bad that I have no been able to walk any kind of long distance in quite a while.  I would like getting out to walk for exercise.  Even other exercise has been hard with a bad knee.  I guess I got carried away from the original topic, but I am glad to be doing the hercepptin and will do it quite willingly until March.  Annette

  • marejo
    marejo Member Posts: 1,356
    edited September 2009

    I was on herceptin for one full year and never had chills, fever or really any side effect.  Maybe some minimal stuff...joint aches etc. but nothing really.  My herceptin ended in Oct. of 06 and I am NED as I type.

    Most herceptin users don't experience much in the way of side effects.

    Hope that helps....Mary Jo

  • bluedasher
    bluedasher Member Posts: 1,203
    edited September 2009

    One more Herceptin and I'll be done with it. It doesn't give me any symptoms. At first I thought it was giving me a drippy nose, but that went away and I think that may have been due to lack of nose hair from chemo rather than a Herceptin side effect.

  • chainsawz
    chainsawz Member Posts: 3,473
    edited September 2009

    Bluedasher - I think the herceptin might be the cause of your drippy nose.  I thought the same thing, but when I had nose hairs grow back and was only on herceptin I had the same problem.  I've read of others having the same SE.  Just a nusiance, especially when you bend over...LOL!!  I'm glad you only have one more....congrats!!!   lisa

  • LJ13-2
    LJ13-2 Member Posts: 235
    edited September 2009

    Most people do not have the side effects of flu-like symptoms if they are given Tylenol and Benadryl prior to Herceptin infusion.

  • weety
    weety Member Posts: 1,163
    edited September 2009

    They do give me Tylenol and Benadryl before each Herceptin infusion.  That could explain the lack of symtoms.  Thanks to all who have posted!

  • JeninMichigan
    JeninMichigan Member Posts: 2,974
    edited September 2009

    I have been on Herceptin for 17 months now.   Only side effects I hare are drippy nose and thin fingernails.    It is an easy drug.  Good thing .. because I will be on it for life.

    Jennifer

  • bluedasher
    bluedasher Member Posts: 1,203
    edited September 2009

    I get neither tylenol nor benadryl with my infusions and still have no side effects. I haven't even had the drippy nose since my nose hair has grown back. They told me that the side effects are less common when they use a 90 minute infusion for treatment once every 3 weeks rather than a 30 minute one and that is what I had until recently. Since I wasn't having side effects, they tried speeding up mine first to 1 hour and then to 30 minutes and I still haven't had side effects.

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