Anyone starting chemo in June 08

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  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    Leggy, mine came in with a bit of a wave in the back but I think that is leaving also.  I think those of us that had TAC got a slow start on hair growth as most women say their hair starts growing a bit when they have the Taxanes administered seperate. I guess it is just hair, but so much of a cancer stamp for us when we don't have it!    I spent a lot of this afternoon in the Plastic Surgeons office.  I am spitting some internal stitches out from last surgery and some of my abdominal incision was starting to look angry red where the little snots were coming out. They got them out pronto with a little digging.  Guess it happens sometimes..your body just doesn't like them and they head for the nearest route out...the incision.  I am two months out from surgery too.  It just started this week.  Anyway, glad that is over.  Have to put the antibiotics on a couple places three times a day and go back Thursday.  Thats my story for today.  I guess other than that my life has just been pretty boring.  Our weather here is definately dropping to fall temperatures.  I am thinking about ya all.....XXOO...HunkyD 

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  • LeggyJ
    LeggyJ Member Posts: 726
    edited September 2009

    Oh HunkyD, I'm sorry to hear about the incision problem, it hurts just to think about it. Hope all goes well, this time around.  I think your right about the TAC, and slow hair growth.  When I was doing Rads. there was a lady who had her appt. before me, so we would compare stories, about our chemo. treatments, if we had time.  She always wore a scarf, but I could see hair underneah, so the last day of rads., she showed me her hair, and she had a more than I do now.  Course, I've had my chemo. hair trimmed for awhile now, cause it's yucky chemo. hair.  You know, how it is....

    Nothing new here either.  Take care!!!

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  • Wyoming
    Wyoming Member Posts: 381
    edited September 2009

    HunkyD, Sorry to hear about your incision and infection. Too bad about your surgery being postponed. If you are like me you would want to get done and over with.

    Not much going on here execpt  for work. Friday is my txt day and blood work on Thurs. I'm a little anxious about my markers. Everyone keep your fingers crossed for good blood work.

    Hope everyone is having a good week. HunkyD take care of yourself.

    Wyoming

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  • Bonnie02
    Bonnie02 Member Posts: 193
    edited September 2009

    Hi Everyone,  How nice you all look, you wouldn't think that any of you have ever had any chemo or surgery.  Everyone except HunkyD, lol,  you have to put a picture of yourself on here, I know what everyone looks like now except HunkyD although I have a picture in my head which is probably totally wrong. 

    Went for physiotherapy today and got beat up a lot, my arm is actually bruised and he did my shoulders and neck today also. It really hurts to have it done but I am starting to get some relief.  I will be contacting my doc this week and see if it is okay to go back on the Tamoxifen because I don't believe that was the problem at all. Not saying that there isn't a bit of side affects from it but not what was causing all my pain.  I can move my arm now  and it is getting better all the time.

    Our weather is starting to look like fall also, I do like the fall weather and everything looks so nice.

    HunkyD you take care of yourself and just take it easy if you can.  Same goes for the rest of you. Sit back and relax and laugh when it is at all possible.

    Everyone take care.

    Bonnie

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  • hunkydory
    hunkydory Member Posts: 1,241
    edited September 2009

    My surgery has not been postponed...I still am scheduled for Oct. 6. I am glad I got in when I did, the infections is just maybe starting.  Surgeon is taking precautions I guess.  Thanks for all your well wishes.  I will be glad when this next surgery is over.  xxxooo HunkyD

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  • KKing
    KKing Member Posts: 425
    edited September 2009

    Wow, nice to see pictures of each of you....I guess HunkyD and I have to figure out how to do that.    Sorry, you are having discomfort right now but I wish you nothing but the best with your upcoming surgery.

    Wyoming, I am sending you positive vibes that your markers will be right on.  

    Bonnie...I think we will get some side effects either from Tamoxifen or Arimidex.  I just changed over to Arimidex and I am having various pains but I will address with the onc when I see him in Nov.

     Leggy ...your weather must be nice in California... I am reading that right am I....I see the leaves are starting to change and the birds are flocking here. 

    Well, I am in a family golf tourney Saturday which is always fun.  We call it the FUSTIE HUSTIE...my Dad started it over 20 years ago, he did pass away in 1999 but we still play every year in his honour.  We have a man's trophy and a woman's trophy and a most enthusiastic trophy...which I was awarded last year for playing during chemo.   I hope it wasn't a pity reward.....LOL.   Anyway,  hoping to win the woman's .... we are all crappy golfers but someone lucks out.    Will let you know the results.     Leggy....I am DAT to day.

    Thinking about you all.

    Karen

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  • LeggyJ
    LeggyJ Member Posts: 726
    edited September 2009

    Hey ladies, 

    I go on the Tamoxifen page quite often, and there about four ladies, who live in CA and are interested in visiting the Napa Vallely, where I live, with a tenitive date of Nov. 8th. If anyone is out this day, I would love to see ya'll!  I work at a place where I can get a place for us to gather, and have a little party.

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  • Kellke
    Kellke Member Posts: 424
    edited September 2009

    Is it bad that my oncologist called to move up my consultation appt and I don't want to tell my husband? 

    I know we should have all the info etc but he is driving me nuts with the healthy eating and supplements and juicing and everything.  I can't even have a cup of tea in the morning because I have to drink aloe vera and take zinc and blah blah blah.  I don't even believe in all this stuff. And I feel like he thinks he knows more than me just because he is open to all this holistic stuff.  Ugh

    I wish he didn't know how poor my prognosis is so he would go back to normal.  Am I a terrible person for thinking about going without him?  Kelly

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  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    Leggy, I wish I could visit.  Unfortunately my sick and vacation leave are dwindling down to nothing.  I would love to come to wine country and meeting you gals.  However, I think any travel I do will have to wait until next year.  Maybe Wyoming could swing through southern Idaho on her way and kidnap me.  I could ride in her camp trailer.  Wouldnt be a bother at all!  LOL  XXOO  HunkyD

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  • Wyoming
    Wyoming Member Posts: 381
    edited September 2009

    Kelly You are not terrible. I find going by myself is easier. The hovering can get over whelming. Sometimes we end up worring about them instead of ourselves. We Love them and bless thier hearts but whew!!!!!!

    HunkyD If I could, I would swing by southern Idaho with my camper and kidnap you. It would be fun. Maybe one of these days. I'm glad your surgery isn't postponed.

    Karen sounds like a fun time golfing. You have to tell us who wins. I say so what if you got the award for pity, I take awards any way I can get them. LOL.

    LeggyJ, one of these days I plan on getting to the Napa Valley. Too bad I can't come now.

    Bonnie sounds like you had a deep muscle massage. If it helps who cares if you bruises.

    I had some bad news yesterday. My youngest daughter had to have emergency surgery. She had an ectopic pregnancy. She was about 5 weeks along. She had a feeling things weren't right. The good thing is she hadn't told anyone except her husband and me. My oldest daughter had a miscarriage in 2006, we lost my father in 2008, I was diagnosed in 2008, re-diagnosed in 2009, and now this. I think every thing should start to look up for my family. I'm tired of bad news. I'm not feeling sorry for my self but I want my life to go smoothly again.

    Sorry for the whining. I will let every one know what happens tomorrow after I get back from txt.

     Wyoming

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  • Kellke
    Kellke Member Posts: 424
    edited September 2009

    I am sorry about your daughter (and your family) having to go through so much the last few years.  Maybe 2010 will be the best year for you all!    Kelly

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  • Wyoming
    Wyoming Member Posts: 381
    edited September 2009

    Thank you Kelly. Lets hope 2010 will be a great year for you and your family also!!!! My daughter  is doing fine. A little sore and tired.

    My numbers were great today so after next treatment if the numbers are good then I get to go 4 weeks instead of 3. When I was finished with chemo I went to grab some lunch and found $10.00 in the parking lot. If there had been a car around I would have figured it would have been theirs but I was the only car in the lot so I took it. Maybe my luck and my families luck is changing.

    Going to go take a nap. Talk everyone later.

    Wyoming

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  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    Kelly, sorry you are dealing with such demand from husband.  I know that it is a mans instinct to want to care for you in any way they know how.  They do feel so helpless.  My husband has said that many times to me this last year.  Wyoming, sorry for your daughters loss.  You have had a shitty run of bad news.  I wish I could turn everything around for you.  You are so strong, it stifles me.  Actually, we all are for living with this crap!  I hope your markers were low. Keeping fingers crossed for ya!  I had to cancel my onc appt.  It was scheduled too close to my surgery.  Now I have to wait until November.  I am not real upset about it.  Karen, your golf does sound fun.  I was a golfer before this happened.  Played for many years.  This last year with trts and surgery put a stop to it for now.  I hope you have a good time tomorrow.  Putt one in for me!!!!  Bonnie, let me know about your oncs decision with the tamoxifen.  Also, are you going to continue with the physiotherapy?  I hope you can be free of the aches and pains in any event.  I hope your are able to continue with the Tamoxifen.  I would be chicken to stop it.  Leggy!  I wanted to say that I think your hair is quite cute.  Looks as though you have found a good style.  I know curly hair can be hard to deal with.  I hope you all have a great weekend....We have movies to watch so we won't be too bored.  Later...HunkyD

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  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    Anxious to hear about your golf day Karen.  I did more today around the house than I have for a while.  I sprayed the deck off and cleaned glass patio table.  It was 88 degrees and playing with the hose was fun but I am struggling a little with Tissue expander pain.  Anyway, I got it all cleaned up and then guess what happened..dust storm...I give up.  We are having a lovely dinner and our son is joining us.  Steak, baked taters, french bread, and corn on the cob.  We went shopping today and spent way too much money but I can't say it bothers me as much as it used to.  We watched a movie last night that was pretty good...Gifted Hands: The Ben Carson Story!  Tonight we have Next Day Air  I hate double posting but just wanted you all to know...I am thinking about ya...Hugs and prayers for all....HunkyD

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  • Wyoming
    Wyoming Member Posts: 381
    edited September 2009

    HundyD, Your dinner sounds wonderful. I have found that I don't stress as much when we spend too much either. I think I have mellowed out since my diagnoses. More important things to worry about.

    Karen how was your golfing?  

    My oldest daughter and I are going to see "Julie/Julia" this afternoon. Should be fun.

    Karen, LeggyJ and Bonnie hope everything is going well.

    Our weather is turning cooler so Fall is coming hope everyone has enjoyed their weekend.

    Wyoming

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  • KKing
    KKing Member Posts: 425
    edited September 2009

    Wyoming sorry to hear about your daughter, I am hoping things will only go up hill from here for you.

    Kelly, I think if you feel you want to go on your own and that way you have time to digest the info and then explain it to your hubby,,that is okay.  This whole thing is such a personal thing for each of us.  People want to stand by you and help which is wonderful but you always need your own time to deal with it.

    HunkyD... can I come for dinner...that sounds so good. 

     Well, I am proud to announce that I did win the woman't trophy....my friend has been the winner for years but finally I won it back ( I mean there were only 5 ladies playing and we only golf now or then but it was a lot of fun)  My DH won the men's trophy back from my nephew who has been winning for the last 5 years. It turned out to be a really nice day not a cloud in the sky.  

     Talk to you later,  a big hello to the other Junies.

    Karen

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  • LeggyJ
    LeggyJ Member Posts: 726
    edited September 2009

    Wyoming, sorry to hear about your daughter, but I'm glad she's doing better, and that your numbers were good. 

    Congrats on the golf game KKing!  It was a beautiful morning here, but it's gonna be a hot one.  Expected to be in the 100's this coming week, cooling on Friday, a bit....yuck.  I dread working outside this week.

    Hey I've got a question, for you gals.  I had only a few periods, in 07, not one for 6 mo. until April 08, after DX and prior to surgery.  Nothing since, and now I'm spotting, with really bad lower back pain, and sharp occasional pain in ovaries. I'm on a hormonal suppressing drug, called Tamoxifen, so maybe it's that. I asked the girls on the Tamoxifen thread, but thought I'd ask you girls, who might have gone into post menopause, if I should email my Onc. about this?

    Thanks,

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  • hunkydory
    hunkydory Member Posts: 1,241
    edited September 2009

    Leggy, I had my last period during chemo. My chemo finishing date was Oct 1.  I have not had any periods since then.  I assumed the tamoxifen threw me into menopause, or the chemo.  I would just wait a bit and see.  This might be your last one.  I know the last one I had was pretty crampy.  Never hurts to call your Onc or email them though.  Yea Karen on the golf winnings!  Wyoming...buy some lotto tickets with that ten dollars unless you haven't already spent it on candy at the movies....LOL!  Take care everyone.  HunkyD  

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  • KKing
    KKing Member Posts: 425
    edited September 2009

    Leggy

    I had my last period after the second chemo which was last July...My Naturpath doctor said that once you haven't had a period for one full year then you are considered in menopause. So my onc changed me from Tamoxifen to Arimidex.  I would think if you are getting new symptoms then you should contact the onc to make sure.  Let us know.

    Karen

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  • LeggyJ
    LeggyJ Member Posts: 726
    edited September 2009

    KKing, that's what I was thinking, so I emailed the Onc., and he got right back to me, saying it might be Tamoxifen related, but to follow up with my Gyno.. I have an appointment on Wed. At least then I can get out of the heat, for a while.  I'll let ya'll know.

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  • Kellke
    Kellke Member Posts: 424
    edited September 2009

    Ok well hubby has not been speaking to me since I told him I was not willing to do all the crazy enzyme stuff and never to eat any sugar.  I am ignoring him but hope he thaws soon.  It is good that I have all of you to talk to.

    I went to see the oncologist and he said he does not advise any more chemo right now.  He says that although we know the margins were not clear anywhere and there are suspicious areas on lung and liver that doing chemo now will not prolong my life and since I feel ok, except my back, that I should wait until the recurrance is measurable to start a cancer trial of chemo and whatever is recommended then.  I will go every three months for scans in the meantime.  He thought after much prompting from me that my probable life expectancy is 12-36 months. I hope more like 60-72  or 120...  :)

    Does anyone have any thoughts on that?  I actually feel ok about it.  I was completely stressed but now I just hope it grows back slowly.  Kelly

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  • Wyoming
    Wyoming Member Posts: 381
    edited September 2009

    Karen congrats on winning your golf. It is so good to have fun in your life.

    HunkyD, I spent my money on popcorn at the movie. I had extra butter!!!

    LeggyJ I can't help with your problem as I had a hysterectomy in "94". We have a never ending trips to doctors.

    Kelly, I had three spots on my lungs and two spots on my liver. I started treatment with gymzar, carboplatin, and Avastin. I had a ct scan once a week for three weeks. My numbers started to go down and the last scan my spots had all but disappeared. Now my numbers are all in the normal range. I started treatment at the end of March. I went in twice every three weeks. I am now down to once every three weeks. If every thing is going good on Oct 9th I go once every 4 weeks for two cycles and then keep spreading them out. With my treatment the only side effects are bloody noses, tired the next couple of days and a little nauseous. I feel great. Kelly if it starts to grow you can see that there is something out there that isn't as harsh as the first round. I hope it takes 120+ to grow back. Or miraculously goes away.  Keep up your spirits. Hubby will come around soon. They just don't quite understand how we can feel ok about what we have.

    Everyone hope you have a good week.

     Wyoming

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  • hunkydory
    hunkydory Member Posts: 1,241
    edited September 2009

    Kelly, I am sorry I can't offer anything but support to you.  I live in fear of reocurrance, as we all do.  I had many positive nodes so it is always on my mind.  I will not give you advice, only support.  I do know from reading different threads on this board that there are so many more trts available now.  I also hope that your progression is slow.  My thoughts are with you...live how you want too!!! 

    Wyoming, how was the movie?  I have been anxious to see it.  I suppose it will be one to come to DVD slow.  We rarely go out to movies anymore.  Tomorrow is my pre op with PS and hospital.  I always get nervous at hospital pre op.  Just the way it is I guess.  I think they will only xray my chest however this time.  I am not working tomorrow as it will be a full day at hospital and PS office. I hope you all are doing well, and are ready for fall.  It is feeling like fall here.  XXOO  HunkyD

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  • LeggyJ
    LeggyJ Member Posts: 726
    edited September 2009

    Oh Kelly, I'll I can say is shit, shit and triple shit. 

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  • KKing
    KKing Member Posts: 425
    edited September 2009

    Kelly...I agree with LeggyJ...also I hope it is at least 120.   Keeping you in my prayers

     Karen

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  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    Quick post.  I had pre op today with the PS and hospital.  Blood pressure was through the roof.  (bottom number =100)  Hospital is now making me go in every day for monitoring.  It has never been high on bottom before.  I must have been really stressed.  Husband brought home a cuff kit tonight and it is back to normal.  I have had my BP and blood draws so many times in the last year I can't count them.  Last blood pressure was 128/80 last Thursday.  Still have to take time off of work to go in tomorrow and Friday.  Not sure boss man was pleased with my email saying I would be in late.  Oh well, it's life!  Other than that...everything seemed in order.  Anyone use a home cuff BP kit?  Are they fairly accurate?  Can't imagine them being 20 points off.  Hope everyone is well.  Hugs to all....HunkyD

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  • Bonnie02
    Bonnie02 Member Posts: 193
    edited September 2009

    HunkyD my mom uses one all the time and they are usually correct. Maybe you were just stressed out today and that can send your blood pressure up.

    Kelly, all I can do is pray a lot for you and hope maybe some different chemo will work or maybe it isn't as bad as they say. You know Docs have been known to be wrong.

    Wyoming glad to hear your daughter is better now.

    Hope everyone is doing good have to go and make supper now

    Take care everyone

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  • hunkydory
    hunkydory Member Posts: 1,241
    edited September 2009

    Thanks Bonnie for the info on the home BP kits.  I have taken it three times now tonight, and it is fine.  Hopefully it will be low in the morning.  Have a good dinner!   HunkyD

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  • Wyoming
    Wyoming Member Posts: 381
    edited September 2009

    HunkyD, My mom has a BP kit. Of course I play with when ever I am there. She says it is pretty accurate. I have never had a problem with my BP except when it is too low. The movie was really cute. There were times when I thought Meryl Streep was Julia Child. There were a lot of funny lines. I recommend it all girls.

    I have been helping hubby get ready for moose hunting. I try to get him to do his work about a week before he goes but he doesn't listen. He has to work late tomorrow and he leaves early Friday morning. I will glad when hunting season is finished.

    I was given some home grown tomatoes and I wish I could give everyone some. They are sooo good.

    Kelly how are you doing? Have you tried acupuncture for your back pain? I love it. My knuckles were stiff and sore when I started my second round of treatments and it helped a lot.

    Bonnie and HunkyD what is for dinner. We had pork steaks, bread, gravy, and tomatoes. I love recipes so if you have an easy and good one send it my way.

    Karen hope you are hanging in there.

    Talk to every one later.

    Wyoming 

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  • LeggyJ
    LeggyJ Member Posts: 726
    edited September 2009

    Hi Ladies,

    Yesterday, I had to have a Endometrial sampling, and an ultrasound, to make sure the Tamoxifen, I have to take hasn't given me a SE of uterine cancer.  OMG, the SAMPLING was so painful, nice name for a biopsy.  Terrible cramps, and pain that I could hardly bare.  If I had know how much it hurts, I could have taken a pain pill, before the appointment.  How do women have babies, sorry ladies but I have a low tolerance for pain.  Results will be in about four days, but I didn't get a bad vibe, so I'm not sweating it, to much. 

    Hope your blood pressure is normal, your numbers are good and we all feel good today,

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