Starting Chemo in July 2009

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  • PS73
    PS73 Member Posts: 469
    edited September 2009

    Hi Js! 

    I searched thru this site for information regarding billing and assistance.  Two more women were recently dx w/ BC and one needs financial help.  I know the information is here somewhere but I cant find the numbers.  I found the bc.org info but was wondering if there are any other tips you ladies could send or bump up. 

    I hope everyone is doing well, I think we are all into the next regimen - congrats on finishing the first part!!! xo

  • sheila888
    sheila888 Member Posts: 25,634
    edited September 2009

    Hi PS73,,,, Here is the info you are looking for

    Http://bb67.wikispaces.com/

    Goodluck

    Smile Sheila

  • KarenVW
    KarenVW Member Posts: 92
    edited September 2009

    A big congrats to everyone who has finished chemo!  What a great accomplishment considering the fear, anxiety, sleepless nights, yucky SEs, etc.  You are truly an inspiration to those of us who are still moving through it.  We can do this!!

    I have my last TC treatment on 9/24.  Neuropathy continues to be my primary issue and I have reluctantly started taking Neurotin.  I hate being on such a 'serious' medication, but after much research and debate I decided I would follow doctors orders for the next few weeks and see what happens.  Anyone else having issues with neuropathy?

  • PS73
    PS73 Member Posts: 469
    edited September 2009
  • BlessedOne2
    BlessedOne2 Member Posts: 106
    edited September 2009

    I will have last A/C dose on Wednesday.  A couple of days ago, I noticed that the palms of my hands seem to be darkening.  Has anyone else experienced this?  Is there anything I can do to minimize this?

    Wanda

  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited September 2009

    Triple J's-Joni2 checking in.  I'm not at work today (day #5 after treatment #4 & final TC) but I probably could be; just don't feel like it!  Had a MUCH better weekend than I thought I would and that makes me feel more humanoid-not completely though-I still have my Jedi-ness about me.  

    Hope everyone's week goes better than the last, even if the last was the best!

    Joni2

  • Lauren3
    Lauren3 Member Posts: 289
    edited September 2009

    Hi!  I'm new but I did start chemo in July!  I'm done with 4 of 6 rounds of TAC.  Hope everyone is feeling good.

  • Niknak0320
    Niknak0320 Member Posts: 138
    edited September 2009

    Hi! I'm new but I did start chemo in July! I'm done with 4 of 6 rounds of TAC. Hope everyone is feeling good.

    Hi Lauren, welcome to the thread :)  I think we may be two of only a few here that are doing TAC.  I just finished my 4th round last Monday.  I can't wait for the next 2 to be done!

  • Lauren3
    Lauren3 Member Posts: 289
    edited September 2009

    Wow, not only are we both doing TAC but we're both really close together schedule wise.  My next one is 9/23.  Which happens to be Bruce Springsteen's 60th birthday LOL.  Yes, I'm from NJ.  LOL

  • Hopeful-1
    Hopeful-1 Member Posts: 72
    edited September 2009

    Hello All,

    My wbc was 6.7 last Friday and I sucked on ice through the 2nd round of Taxol yesterday  It was tough to stay awake because of the 50mg of benadryl I got, but I was determined to suck on ice for the 3 hrs during Taxol since it helps with the food taste thing.  I felt tired at home, but didn't take a  nap.  Even though I took 2 benadryl last night, I only slept about 3.5 hrs.  Went to bed at 1 and slept til 5:30 this morning.  I feel pretty good now, but when the steroid high wears off, I'm sure I'll crash.

    I found out the steroids help with the toxic chemo treatment to reduce effects on the kidney and other organs.  Maybe it keeps the blood flowing faster or something.  Anyways, I only got 40 mg instead of 60 mg last time.

    Some lady getting chemo started having chest pain or something and got taken to the hospital ER.  I hope she will be okay, but my husband overheard someone say they don't know if she will make it.  They pulled curtains closed so I'm not sure what they were doing or what condition she was in.  Very scary as I was getting chemo at the same time.  I pray for her and her husband.

    I hope that since I sucked on ice, food will taste better this time.  The chemo room was much emptier than the last few times so I asked why and the chemo nurse said there were quite a few patients who's blood counts were too low to get chemo. 

    Well I have 2 more Taxol to go so I'm heading toward the finish line.  Then I'll have my port removed, my ovaries and my right good breast removed  as prophylactic measures and start the 5 yr. hormonal therapy.

    Congrats to all you who finished AC and to those that are completely finished with chemo!

     I hope for those that are still getting chemo, you have minimal or no SEs.

    Connie

  • PauldingMom
    PauldingMom Member Posts: 927
    edited September 2009

    Hopeful 1 Sounds like you have a good grasp on your treatment. Sorry you had to be scared by the other woman when you were there. Prayers to her and her family. I know when I went there was always a woman and husband that were there. She was getting follow up Chemo. and was obviously in pain. She would scream flinch when they started her I.V. It was very difficult to hear.

    We just received word that my FIL is doing badly. He is semi-comotosed and slipping away. He has a bed side nurse from Hospice with him. My Onc. still says NO to me visiting. He is peaceful and God willing should pass soon. Your prayers are welcome and appreciated. 

  • KarenVW
    KarenVW Member Posts: 92
    edited September 2009

    Sorry to hear about your FIL Lisa,  I will pray for him and your family.

  • eliz46
    eliz46 Member Posts: 71
    edited September 2009

    Hello all

    I will be getting my last chemo sept 24 ,its amazing how quickly time passes. my se have been mild, my bllod counts are checked the lowest i went was 1.8 but it come right back up. i was just a little tired and stayed home a few days....... i am not getting the naulasta shot it made my white blood count go to the 40.2  ouch it was bad. just took advil. all of us hear have come a long way. ......breast cancer has changed my life, my world is bright and crisp i am going to be the poster woman ...and the get your mamagram yearly woman....... also self breast exam woman .....i need to do something for my secound chance at life cancer free. i have been asked to do this at my hospital .........liz

  • Jayne_in_UK
    Jayne_in_UK Member Posts: 517
    edited September 2009

    Hello Triple J's

    I hope you are all having the best week possible.

    Lisa I am so sorry to hear about your FIL. You and your family remain in my prayers.

    Welcome Lauren. You are almost done now! I have also completed 4 out of 6 rounds of chemo, different regimen to you though, I had 3 x FEC followed by 3 x Taxotere.

    Wanda congratulations on finishing A/C! I haven't expexperienced the darkening hands yet, but hopefully someone else will be along who can help on this.

    Gill I hope your foot is doing OK. I bet you are fed up with that boot by now. The end of chemo and your birthday are 2 great reasons to celebrate.

    Liz congrats on becoming the poster woman! I agree all of us have come such a long way and our lives will be changed by all this. We are so strong though.

    Having said that, I have found this first round of Taxotere quite hard. I didn't get the nausea I had with FEC, but I had joint/bone pain for a couple of days and my mouth has been worse on this drug. My tongue is coated and food doesn't taste right. I know many of you will have been through all this already. It is interesting in a way to notice the different side effects I have got from having a different drug. I have also felt very tired, more road kill than Jedi. I have been trying various remedies and I'm hoping I am over the worst now.

    Be well and stay strong.

  • josybee
    josybee Member Posts: 86
    edited September 2009

    Hi Ladies, Just wondering if anyone is doing Herceptin. I had my 2nd round of Taxol Sept 9 and am also getting weekly Herceptin till Oct 14th, then I will be getting Herceptin every 3 weeks until nect August. The good thing is I have onlt 2 more Taxols to go. I have just started getting a little tingling in my fingers ( I guess from theTaxol) Does that get worse?? Is anyone doing the Herceptin with Taxol yet??

  • stef58
    stef58 Member Posts: 288
    edited September 2009

    Hey Triple J's, Congrats on all who are done with chemo. I had my second taxotere treatment today. It does not  give me nausea. Just some bone pain which I think is from the neulasta shot, and then from the drugs so the two combined to make me hurt. Got a strange rash on the forearm but it cleared up really quick.

    Jayne, you said your tongue was coated, is it white, it might be thrush which I got with the first treatment. They give you magic mouthwash for that.My tongue was white all over it and some on the sides of my mouth. So go  look then call the doc, I was am taking claritin for the bone pain from the shot but they said it might help with the taxotere also. Read another thread on this drug. Worth a try as I need for my allergries any way.

    Good luck to all and hugs and strength Dianne 

  • ssimmons66
    ssimmons66 Member Posts: 51
    edited September 2009

    Praise the good Lord above!!! 

    I have finished my last TC today!!!! I still have to do the herceptin and radiation but I am thinking it can not be as the SE of chemo!  I give all the glory to God for him giving me you ladies on this website for answers....love...prayers...and support when I needed it!  Thank you ALL and I pray that God blesses each one of you and makes this journey he has sent us down as easy as possible!!!!  YALL ARE THE BEST!!!

    Love Sherri

  • Jayne_in_UK
    Jayne_in_UK Member Posts: 517
    edited September 2009

    Sherri YAY for finishing your TC!  Hope the herceptin and radiation go well for you.

    Stef yes my tongue did have a white coat, gross! I think you are right about it being thrush. They have given me some mouthwash and suggested a few other things to try and it is loads better today. I don't get the neulasta shot but I certainly had bone and joint pain for a few days. I have bought some Claritin to take next time to try to prevent it.

    This morning I had a check up with my surgeon. This was basically a physical exam and a chat and all seems to be going well so far. As a bonus I got a new prosthesis, which is a better size for me to balance out my partially expanded TE side against my natural side. Getting dressed had become a bit of a challenge. They had lent me one before but it was too large for what I need, so they ordered a couple more for me to try. The new one is great! Once I have finished radiation and my skin has (hopefully) recovered we will continue with reconstruction.

    Wishing you all minimal side effects. Hugs.

  • eliz46
    eliz46 Member Posts: 71
    edited September 2009

    Since some of you have finished chemo is your hair coming back.  does anyone know where the girl that was making chocolates for sale....... she was here in the beginning of treatment and the middle anyone know where she is ........

  • lorijo1993
    lorijo1993 Member Posts: 40
    edited September 2009

    I finished my last chemo yesterday, I am done !!! Nausated more than the last 3 but I see the end.Hope your all of your ends go as quickly as mine

    God Bless all of you, be strong

    Lori

  • Lauren3
    Lauren3 Member Posts: 289
    edited September 2009

    Congrats on being done!!!!!!!!!!

  • hopingforacure845
    hopingforacure845 Member Posts: 17
    edited September 2009

    Hi ladies,

    I know it's been a while since I've posted but I've been following along. It lifts my spirits greatly to see that many of you are done and seem to be doing well- congrats! Everyone else, you can do it!! 

    I'm continuing to be my mom's cheerleader. She has 3 more taxol left- next one is Wednesday. Overall, the side effects on Taxol have been easier for her than AC, though it has all been emotionally and physically draining for her. We are very much looking forward to that last chemo day- she wants to have her port removed immediately afterwards- and I don't blame her! Then she will have a break followed by 6 weeks of radiation. After chemo, though, we don't think the side effects will be too bad.

    I'm thinking of you all and cheering you on! Stay strong!

  • LindaSueH
    LindaSueH Member Posts: 70
    edited September 2009

    Hi Ladies....

    So glad to be 10 days out from the last AC!!  Still tired and somewhat nauseous, but getting better every day!

    Has anyone experienced arm pain?  I did not have a port, and my arm that always took the chemo has been sore at the elbow and the armpit.  Wierd huh??

    Have a blessed weekend....

    Linda

  • Lauren3
    Lauren3 Member Posts: 289
    edited September 2009

    I am hoping to get my port out right away too!  I'm scheduled for my next Tx on Wednesday but I feel like a cold might be coming on.  Will they delay treatment if that's the case?  I really hope it's just allergies!

  • PauldingMom
    PauldingMom Member Posts: 927
    edited September 2009

    I was told that they will wait till about amonth after last treatment to remove the port. Gotta check on those white blood cell count before they remove it. Makes sense. 
    As for my hair. I shaved my hair about 14 days after my first treatment and kept is shaved for a couple weeks. Then I just let it go, haven't cut it all and it is a little less than 1/2 an inch long all over. Still pokes straight up! but it is soft and fuzzy. It's also warm enough that I don't need a cap when I sleep. I even had to take a razor over my legs today. I was told that my hair would fall out after each treatment but it didn't. It first came in gray all over, which it wasn't before treatment, but now it is browning up. I wish there was something out there that would make it grow quicker and thicker. Any suggestions?

    Sounds like everyone is doing well and either complete or at least seeing the light at the end of the tunnel. Hang tough ladies and keep smiling!  

  • Lauren3
    Lauren3 Member Posts: 289
    edited September 2009

    A month I can wait.  Just hoping my oncologist doesn't want me to wait a year???

    I have had to shave my legs a few times throughout treatment as well.  It's growing slowly but it is growing.  The hair on my head that didn't fall out originally is growing slowly and sticking straight up too.  But it's still sparse.

  • stef58
    stef58 Member Posts: 288
    edited September 2009

    Hey Triple J's, Not many posting these days as everyone is getting done with chemo. I have hair starting to come back before I am done. Hope it keeps coming. Had to shave the legs again. How many us are left to do chemo??? We all need support yet. i have two left and hope less than 36 days. For you all that ar done what are they telling you to do now, do you go for check ups etc. Have a great day Dianne

  • Lauren3
    Lauren3 Member Posts: 289
    edited September 2009

    I have 2 left also.  One this Wednesday and one October 14.  My hair is growing veryyyyy slowly too. 

  • stef58
    stef58 Member Posts: 288
    edited September 2009

    Lauren, is the hair really thin, mine is and very white. Hope all the treatments are good. I see you have positve nodes, how many treatments did you have to do ???? I have eight 6 done. Hugs Dianne

  • Lauren3
    Lauren3 Member Posts: 289
    edited September 2009

    It's sparse, it is the hair that never fell out... I noticed a few white ones too.  I am having 6 TAC treatments total as far as I know.  4 down 2 to go.

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