RADIATION FATIGUE - POLL
Comments
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Wow just finishing up Chemo. and thinking that Rads. would be a breeze. I'm trying to decide what would be the best time to do it. I do get about an hour of free time between 1 and 2 and thought that if I get rads. over in the morning, return to work, and then take a nap between 1 and 2 I could be okay.
Does this sound like a pretty good plan? I didn't miss work due to Chemo. but do enjoy my rest between 1 and 2. -
I am currently finishing my rad. treatments and I have found that 9:30 ish had worked well for me. I am taking the shortened 3 week rad and this am was #12 of 16 total treatments. Most treatments for me lasted about 15 minutes plus travel time. Once a week it lasts longer due to an xray picture to confirm radiation field and then after treatment that day you will see the rad. onc. for a short visit. Hope this helps. Cathey
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I took an hour leave and my lunch at the end of the day. This has made it very doable (sometimes they have a back log). I relax after rads....I may not want to work a whole day ever again! I am at number 25 of 33. Done with chemo too...just wish I could get my brain back!
kat
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My appt is at 12:00. I come home, eat lunch, then rest for a couple of hours. Tomorrow is #10, but the Lupus thing is a factor. I am a little tired, just kind of no energy. So, far, so good. No redness, nothing, and I am very fair.
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I had no chemo, did 5 weeks of rads, was exhausted by week 4, which increased over the next couple weeks - it was horribley debilitating. Since March I have slowly increased my energy - was actually able to finally start bicycle commuting 2 weeks ago, finally feel like I'm back to (almost) normal, 6 months after treatment.
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I had 33 radiation treatments and felt no fatigue at all until the treatments were over. Throughout the six and a half weeks of treatments I walked for a little over three miles every morning (averaging about 3.5 mph) and swam laps for 30-45 minutes every afternoon. Shortly after the last treatment a strange wave of what I guess would be called fatigue swept over me. I don't have it all the time, but when it is going to sweep over me is unpredictable. The only time I know it WON'T be a problem is when I'm exercising. I'm still doing my 3+ miles of morning walking and my afternoon swimming since the exercise makes me feel better, not worse. I *hate* the strange feeling when the fatigue sweeps over me. (My last radiation treatment was on August 13, and I started taking Femara yesterday.)
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natalie43 ~ I admire your strength. I am very active, so I tried to keep working out during radiation therapy. I don't even work during the summer because I am a teacher, so I am very lucky. But I could only do light workouts three or four times a week. The fatigue wasn't as bad as I expected, but I just had no energy. It's hard to explain. My 6 weeks of rads ended on August 12, and I felt fine for three days afterward. Then it hit me! I could hardly get out of bed for about a week. Now I feel like everything I do is an effort. I resolved to work out at least four days a week starting today, so I hope it helps. I started back to work two weeks ago, and it's exhausting. I think my biggest issue is that I find that I can't think straight. My mind used to be so sharp. Now I feel like I can't focus. I can't articulate what I want to say. What IS that? It's really frustrating! How long do you think this will go on?
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Hello to All, I am finishing up chemo (tx #6 this thursday 09/17 as long as my blood work comes back good) and I am soooo excited! Then in Nov. I have to get my defibulator changed. inbetween this time (October) I will have to meet w/ a rads dr. and I am terrified!! When I was 1st diagnosed w/ breast cancer, I was terrified fo rthe surgery (lumpectomy), then the chemo, now the rads...I worked through all of chemo. I had/have tx on thurs., work on friday & sat & sun would be my crash time and be back at work on monday and would work all week. I am bound & determined to complete this journey and put it behind me! Now I am just having to work through my fear of the next stage....radiation....
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I agree with KAK - why wouldn't our bodies be tired after our cells have been whacked that hard, almost enough to kill the good ones even, day after day after day after day...I had a hard time with rads, so glad that's over. Never again. Of course, can't do it ever again, as we all know, since the cells would break down if they got anymore. That just says how hard it is.
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Calypso - How long before you felt better after rads. I'm too am having a hard time. I've done 20, 8 to go and then 6 boosts. I am exhausted. Some of you say you work out, you've got to be kidding me, all I can do is make it thru the day doing what I actually have to do. Some people have said on here it gets worse afterward, I can't even imagine.
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kawee ~ I can completely relate to what you're saying. After surgery on May 18, I didn't get my energy back. So I was not 100% when rads started in July. Rads ended on August 12. Within a few days after it ended, I could hardly get out of bed for about 4-5 days. I'm still tired. Everything is an effort. I have kept up a positive outlook throughout everything, but the fatigue is getting to me. I don't know how long it will last. My social life has taken a huge hit because all I can do is manage the everyday stuff.
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Shemei - By the way, you were talking earlier about the brain fog, my daughter has severe fibromyalgia. She says the brain fog is due to the fatigue. I'm like you, I can't articulate, forget what I'm talking about and just can't get my thoughts together.
Like I said I have 8 more and then 6 boosts, and am already exhausted. My Dr. said fatigue usually peaks at the end of 4 weeks, but that's not what I'm hearing from some people.
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Ladies, I am so absolutely exhausted. Day 21. Have 7 regular and 6 boosts to go. This is the worst thing. I thought I was tired with the autoimmune disease, but this is unreal. I'm also grouchy, emotional, and have brain fog. Will this ever end?
Don't want to scare you new guys, I'm sure my autoimmune contributes to it, but no one told me it would be this bad. One Dr. told me he thought the fatigue was overrated. Wait til I see him again.
Anyone out there like me?
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oooh, oooh, me! me! I'm like you kawee...I am exhausted!!! I think we're on the exact same schedule. And now I have a sinus infection or cold or something with a sore throat. I'm hoping it's not anything "flu-like." My 4 kids are basically fending for themselves (in a good way)...I get them to school and I get them home. That's about it. House is a mess but I guess I'll get it together eventually! Also pain at the incision site and underarm pain.
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Cake - How are you feeling now? Just think, only about 2 more weeks!! Yea! Did you get a cold? I know quite a few people with one. You have 4 kids? You're my hero!!! I am feeling less fatigue, think maybe cause my husband (great guy, to say the least) is doing most things. I asked the Dr. about not sleeping well. Said it wasn't from the rad (yeah, right). He said most people sleep really well. I also asked for a vitamin B12 shot (my rheumatologist gives them to me, but he's in Beverly Hills, and I am definitely not up to that trip) anyway, he said they don't have them. Oh, well, the end is definitely in site.
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hiya, kawee! I'm sitting here waiting for hubby to get home from NYC (about 9 pm right now). Then we're going to eat Chinese food! That's like SO BAD for this cancer thing, isnt it...eating *crap* and late at night, but oh well. I need comfort food (and there's no cake available...ha ha! just kidding
). Yep, I think it's a cold but I did start taking amoxicillin just in case. So far, not helping, but I only took 1 pill. I'll take another soon.Holy cow, I'm not sleeping either! And let me tell you this is the first time since I've been born that I couldnt sleep (except at dx of course...we all know what great nights we had when we first got dx'd), so I'm a thinkin' it's the RADS.
I am so glad you're hubby is helping out! Mine too, and I feel so blessed and undeserving! (I'm milking it a little too, I have to admit hee hee. but not so much that he'd notice
). Very interesting about vitamin B12 shot. I didnt even know they had that. I should tell my mom about it as she has rheumatoid arthritis. Maybe it'll help. BTW, Beverly Hills sounds like a great place I'd like to visit!!!
Woo hoo! 10 more days to go for me! Oct 1 is last day, yeah!
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I know when you're tired, working out is tough. But try to take a little walk & add on to that. Believe me, you will see a difference in your energy level. You just have to do it. Go up & down your steps in your house 3-4x in a row. I used to walk to the hospital for my rads ( about a half mile there & then a half mile back). I'm 2 months out of rads now & still fell fatigued, but, it is getting better. I try to go to the gym 2-3 days a week. My daughter started going w/ me. It helps to have a work out buddy.
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Actually I guess I am weird. I really didnt experience fatigue untill about 4 weeks in to it. then that was because I had to lay out for two weeks due to the skin under my arm. When I came back, Mondays were the worst. I have 5 more boosters to go and I already feel my energy coming back.
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You know its weird, I feel like my brain is slacking just a little, so I started getting up early in the morning before my 11 am rads and playing scrabble online and I really think it has helped immensely. It wakes my brain up and I dont get sleepy after rads. I have 5 more boosters to go and actually I am feeling fine and my skin looks good (except for the damn permanent ink markers they love to use, I just say, dammit keep it below the cleavage, I need that when I play poker. ahhah
good luck al
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I want to revive this thread in case anyone else is experiencing post-radiation fatigue and wondering about it. I started to get this weird fatigue early on during radiation treatments, but it was uneven. As some have said, this is different than being weary. It feels like a white fog rising involving my brain and my eyes hurt. I'm about three weeks out from rads, and the fatigue starts mid-to-late morning and lasts into the evening. I have low-grade headache along with it. I'm not worried, but I do have a job communicating information clearly all day long and by mid-day I feel like my vocabulary has shrunk to a couple dozen words and my comprehension to around zero.
I'd love an estimate on when this is supposed to go away, even though logically I know that everyone is different.
Hang in everyone! At least we can complain in good company.
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Thanks for reviving this - folks were discussing fatigue in the Fall 2014 Rads thread a few days ago. I am suffering from terrible fatigue, had DD ACT chemo May-August 26 and started rads on September 16 and finish today. Same thing, foggy head and weird speech pattern most afternoons and absolutely feeling like a lead blanket is resting on my soul. I have had some success with acupuncture which is available through my tumor institute and took afternoons off from work the last couple of weeks which helped. I fell asleep sitting up at my desk on/about week 3, but my boss said I was in good company as he may have nodded off once or twice himself
My acupuncturist suggests that this will continue for at least two weeks after radiation is complete, so I am going to continue with her for a couple more sessions. I already feel a bit better this week as I am on my final 5, which are the boosts to my surgical sight & suppose it's not as tough on my body. Will look forward to seeing what type of information others can post on this thread!
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I've finished 12 of the 30 and I'm really starting to get fatigued. I hit a wall at about 2 pm and am basically useless after that. I have to force myself to stay awake at my desk. I know it will probably get worse before it gets better and have warned my boss he may get a call that I am way too tired to get out of bed. They are actually working on getting me a laptop so if or when that happens I can at least get some things done from home.
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just finished 6 weeks radiation I didnt get too tired till now been over a week since last treatment and I feel so tired some days. I realize it more when I try to do some things. Iam on no meds choose not to take tamoxifen too many side affects. Iam healing good but was really burned under arm got new cream for redness on scar looking much better. Hang n there it gets better. I had DCIS grade 3
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I am about to start a heavier duty radiation, that only lasts three and a half weeks. Has anyone had any experience with this? I'm apprehensive!
Joyus
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dont worry it isn't bad. Most techs who u see everyday are super and explain everything. Hang in there
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Joyus - I had only three weeks' worth of rads so must have been heavy duty. Sailed through no problems and far far less fatigued than I had been lead to believe. I had to do some entertaining two days after finishing - shopping, cooking etc etc and managed it just fine. Hope your experience is as good. Best of luck. Aloe Vera cream twice a day was all I used but other posts will give you other ideas which may help.
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I'm supposed to have 36 treatments and have had the first 10. I haven't noticed too much fatigue but today my aerobic capacity seemed much less than normal (Spinning). I think I'll dial it back a bit the next couple of days and see how things go.
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Day 23 and no noticible fatigue. A couple of days I've felt a little less energy, and maybe took a nap, but nothing that I would consider "fatigue." Certainly nothing debilitating.
There's a gal that goes before me that finishes on this next Tuesday and she bikes 30 minutes to and from rads. Said that she may feel a little tired mid-afternoon, but then she gets on her bike to come to treatment and her energy is back. She's my hero.
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Day 33 and I've been tired. Somedays it's a struggle at work, other days I'm fine and just take a nap when I get home. I think the fact that I'm overwhelmed right now is contributing to that. Rad Onc says that side effects may last for a couple of weeks after finishing. I'm just ready to have the stickers off so that I can do the (sweaty) things that energize me.
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bumping this to ask:
Has anyone had INCREASING fatigue one year after chemo/radiation? I thought I was getting my energy back but in the past few weeks I have been experiencing more fatigue and shortness of breath, possibly because I have been a lot more active than usual ? My doc says it's probably from theradiation.
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